The Bond Disability and Development Group (DDG) has commissioned this learning paper to summarise discussions which took place at the DDG’s Data Lab workshop, held in London on 22 October 2019, and to be used as a reference document going forward. This first workshop focused on why organisations need to collect disability data; what tools are available and practical ways in which these can be used. This learning paper provides a summary of these discussions and can act as a guide and reference tool for organisations looking to be more inclusive in their programming, generally, and in their data collection practices, specifically. A number of case studies and numerous resource references are provided.
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This is a first exercise to connect different areas of debate, looking at the key trends of the future of work from a disability perspective and seeking to identify specific action needed in order to shape the future of work in a more disability-inclusive way.
Chapters include: Work and disability - overview of current situation; megatrends of future work and persons with disability (technological revolution, skills revolution, cultutral change, demographic change and climate change); and Roadmap for an inclusive future of work.
The following five key objectives for the inclusion of persons with disabilities in the future of work have been identified:
1. New forms of employment and employment relations integrate disability inclusion
2. Skills development and life-long learning made inclusive of persons with disabilities
3. Universal Design embedded in development of all new infrastructure, products and services
4. Assistive technologies, existing and newly developed, to be made affordable and available
5. Measures to include persons with disabilities in growing and developing areas of the economy
Governments, companies, disability NGOs, trade unions and academia must be encouraged to commit and contribute towards achieving these objectives through different actions. An inclusive future of work can be reached through coordination and alliances among the different stakeholders
Implementing a just transition to a low-carbon economy that aims to leave no one behind will require a context-specific and locally determined mix of legal standards, social protection, skills development and attitudinal transformation that create an enabling environment for green jobs to perpetuate and decent work opportunities for persons with disabilities to proliferate. If done right, a just transition towards environmentally sustainable economies and societies for all can contribute to the goals of achieving social justice, decent work, social inclusion and the eradication of poverty. At this unique time that climate action is accelerating and the transition to green economies has started to take form, a just transition - that is inherently disability-inclusive - represents a unique opportunity to shape a future that works for all.
Topics discussed include: Persons with disabilities in a world of work confronted by climate change; Understanding the future of the world of work; Existing frameworks to guide action; An inclusive transition to a low-carbon economy; Key recommendations
The guidelines set out essential actions that humanitarian actors must take in order to effectively identify and respond to the needs and rights of persons with disabilities who are most at risk of being left behind in humanitarian settings.
The recommended actions in each chapter place persons with disabilities at the centre of humanitarian action, both as actors and as members of affected populations. They are specific to persons with disabilities and to the context of humanitarian action and build on existing and more general standards and guidelines.
These are the first humanitarian guidelines to be developed with and by persons with disabilities and their representative organizations in association with traditional humanitarian stakeholders. Based on the outcomes of a comprehensive global and regional multi-stakeholder consultation process, they are designed to promote the implementation of quality humanitarian programmes in all contexts and across all regions, and to establish and increase both the inclusion of persons with disabilities and their meaningful participation in all decisions that concern them.
Trichiasis (TT) operations are generally conducted in remote and resource-poor settings, which can make it difficult to follow-up and assess surgical outcomes. Sightsavers developed an Android-based mobile phone application, called the TT Tracker, which helps surgeons, assistants and supervisors to collect and analyse information about surgical outcomes and performance, and to determine when and where follow-up appointments are required.
Community Eye Health. 2019; 31(104): 93.
The project report is an outcome of a programme focussing on the implementation of the SDGs and advocacy to ensure that persons with disabilities are included in all sustainable development processes. The programme pays particular attention to allocation of resources which must be in line with the United Nations Convention on the Rights of Persons with Disabilities (CRPD)
Regional monitoring of the 2030 Agenda for Sustainable Development provides opportunities for DPOs to advocate for inclusion in the Sustainable Development Goals (SDGs). This project report aims to provide information and learning about this can best be done, using examples of current practices from different UN regions and their Regional Integration Organisations.
Regional integration mechanisms in the African Union, the Arab league, the Association of South East Asian Nations, the European Union, the Organisation of American States and the Pacific Islands Forum are explored.
This research article focuses on optimising the performance of frontline implementers engaged with NTD programme delivery in Nigeria. Three broad themes are examined: technical support, social support and incentives
Qualitative data was collected through participatory stakeholder workshops. Eighteen problem-focused workshops and 20 solution-focussed workshops were held in 12 selected local government areas (LGA) across two states in Nigeria, Ogun and Kaduna States
Human Resources for Health, 2019 Nov 1;17(1):79
The Security Council adopted its first-ever resolution calling upon Member States and parties to armed conflict to protect persons with disabilities in conflict situations and to ensure they have access to justice, basic services and unimpeded humanitarian assistance.
By the terms of resolution 2475 (2019), the 15-member Council called upon all parties to armed conflict to allow and facilitate safe, timely and unimpeded humanitarian access to all people in need of assistance. It further urged them to prevent violence and abuses against civilians in situations of armed conflict, including those involving in killing and maiming, abduction and torture, as well as rape and other forms of sexual violence in conflict and post-conflict situations.
A short brief giving urgent general livelihood related concerns and also urgent disability related livelihood concerns in Syria is presented.
Recommendations for donors and humanitarian actors are listed.
The 17th ISPO Congress was held in Kobe, Japan 5-8 Oct 2019.
A book of abstracts is freely available to download.
PTSD in veterans is a serious issue, but many former service members and their loved ones do not know how to identify the condition or seek treatment. Because PTSD affects mental health and can be hidden, it can be difficult for health practitioners and other individuals to gauge its severity. Additionally, PTSD in veterans is often misunderstood by the public to be a condition that only affects combat veterans or those who have encountered violence firsthand. And even those who understand PTSD in veterans and its potential long-lasting harms still may not know all of its wide-ranging symptoms.
Included here are tips, tools and resources that can help friends and families of veterans who may be suffering from PTSD.
This report presents findings from a short study in Zambia to examine its social protection system and programmes and identifies the challenges faced by persons with disabilities in accessing them. The study was undertaken by a visit to Zambia between 31st October – 4th November 2016 during which a range of interviews and focus group discussions were undertaken. The study was supported by a review of the literature and some limited analysis of administrative data.
Topics presented in the report include:
- the broader context of Zambia particularly around issues of education, health and consumption dynamics
- the national population of persons with disabilities
- key challenges faced by persons with disabilities
- the legislative and policy framework on disability in Zambia
- the governance of social protection and support for persons with disabilities
- the disability classification system and an overview of the social protection system
- the evolution of the Social Cash Transfer and access to the scheme by persons with disabilities
The extended family as a potential cause of and protection against intimate partner violence (IPV) remains relatively unstudied. This mixed-methods study used focus group discussions (FGDs) and a clinic-based survey to investigate several family-based risk and protective factors associated with women's risk of IPV in Jordan. Seventeen FGDs (total number of participants = 105) were conducted with women in Amman. Each transcript was coded for categories using open coding methodology and mapping. Relevant categories and subcategories were family support, family interference, family abuse, exposure to violence in childhood, and place of residence. For the survey, systematic probability proportionate to size methodology was used to select a sample of 517 literate, ever married, women from seven reproductive health clinics located throughout the country (response rate = ≤70%); due to missing data, the analytic sample was restricted to 418 women. Measures assessed the categories mentioned above. Bivariate and multivariate logistic regression models were constructed to examine the relationship between IPV and the main predictors of interest (residence, family interference, family violence, exposure to violence as a child, and family support). The combined results of the FGDs and the survey demonstrated that the respondent's husband's exposure to violence in childhood and violence perpetrated by other family members were risk factors for IPV. Family interference was also significantly related to IPV but only when the respondent identified the interference as harmful to her relationship. Residence with the respondent's in-laws demonstrated mixed effects. A supportive family was protective against IPV, although the FGDs revealed that families were not always an effective source of assistance. Findings demonstrate the continued role of the wife's and husband's kin in women's risk of IPV in Jordan, highlighting the importance of a broader view of the context of IPV.
As part of the results of the Bridging the Gap project, this report examines leveraging the Sustainable Development Goals (SDGs) for people with disabilities.
To estimate the proportion of children with trachomatous inflammation—follicular (TF) and adults with trachomatous trichiasis (TT) in internally displaced persons (IDP) camps in the Darfur States of Sudan and to evaluate associated risk factors.
A random-effects hierarchical model was used to evaluate factors associated with TF and TT. Thirty-six IDP camps were represented in the survey data in which 1926 children aged 1–9 years were examined, of whom 38 (8%) had TF. Poor sanitation, younger age and living in a household that purchased water from a vendor were associated with TF in children aged 1–9 years.
Transactions of The Royal Society of Tropical Medicine and Hygiene. 2019 Oct 11;113(10):599-609
This guide provides tips for people with disabilities and their caregivers to properly handle prescriptions and manage medications. Practical advice is given on:
- How to read medication labels
- Managing medications at home
- Medication strategies for people with visual impairments
- Medication management for people with a physical disability and/or mobility limitations
- Medication management for people with intellectual disabilities
- Tips for effective medication management as the caregiver of a person with a disability
With India preparing for the next decennial Census in 2021, disability estimates and data collection methodology between the Census 2011 and the most recent population-level survey for India and its states were compared, to highlight the issues to be addressed to improve robustness of the disability estimates in the upcoming Census.
Data from the Census 2011 and from two complementary nationally representative household surveys that covered all Indian states with the same methodology and survey instruments–the District-Level Household Survey-4 (DLHS-4, 2012–2013) and the Annual Health Surveys (AHS three rounds, 2010–11, 2011–12 and 2012–13) were used. Data from DLHS-4 and AHS 2012–13 round were pooled to generate estimates for the year 2012–13. Data collection methodology between the sources was compared, including the review of definitions of each type of disability. The overall, mental, visual, hearing, speech, and movement disability rate (DR) per 100,000 population were compared between the sources for India and for each state, and the percent difference in the respective rates was calculated
This first accountability report, one year on from the Global Disability Summit 2018, presents independent analysis of the 171 sets of commitments made by governments and organisations at the Summit. It also sets out the results of a self-reporting survey completed by Summit participants, updating on progress made against their commitments so far.
The wider impact of the summit is discussed.
The results of the first GDS18 self-reporting survey demonstrate that significant progress has been made on implementation of the 968 Summit commitments. Work is reported to be underway on 74% of the commitments and 10% are reported as already completed, contributing towards an improved and increased visibility of disability inclusion within development and humanitarian action.
Appendix 2 gives country level case studies: Case study developed by Users and Survivors of Psychiatry Kenya; Case Study developed by the National Federation of the Disabled Nepal (NFDN); and Case Study developed by I Am a Human, Jordan
This case study highlights refugees with disabilities’ access to mobile services and the benefits and challenges associated with using these services in three different humanitarian contexts. The analysis is based on a representative survey of refugees in three contexts: Bidi Bidi refugee settlement (Uganda), Kiziba refugee camp (Rwanda) and with urban refugees in Jordan. It also includes qualitative data drawn from two focus groups conducted with refugees with disabilities in Bidi Bidi and Kiziba. The survey used the Washington Group Questions (WGQs) to assess prevalence of disability amongst the refugee population
This joint guidance note provides harmonized guidance on how humanitarian actors can collect data on PwD in the process of assessments and studies and encourages all Clusters to develop specific guidance on data on disability partners should collect in the process of monitoring and reporting activities
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