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Disability Debrief: an international update on persons with disabilities in the COVID-19 crisis

TORRES FREMLIN, Peter
September 2020

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This is an update on disability news around the world relating to the COVID-19 crisis, from late April to the end of September 2020. It's a snapshot of news, statistics, policy, and experiences of persons with disabilities around the world. Links are prvided to the original resources.

 

Topics covered include:

  • What has happended so far: Data on COVID-19 and mortality; Care homes and institutional settings; Impact on persons with disabilities; Gathering data and the gaps; Experiences of Persons with Disabilities
  • Disability in response; International response: Collections of resources; Country and Regional Approaches; Resources by disability
  • Inclusion in protection and interim measures; Masks / face coverings; Physical distancing and isolation; Lockdown and confinement; Institutions and long-term care facilities; Coming out of lockdown; Social protection and services
  • Health, treatment and recovery
  • Across society and sectors: Care; Culture and sport; Digital accessibility and inclusion; Education and young people; Elections and politics; Humanitarian and Refugees; International cooperation; Justice; Mental Health; Transportation and travel; Violence; Water, Sanitation and Hygiene (WASH); Work and skills
  • Rebuilding / what happens next; New perspectives and recovery; Social protection; Work and employment

 

Persons with disabilities must not bear the brunt of COVID-19 aftermath: Lessons from Ebola in Liberia (SDDirect COVID-19 pandemic blog series)

CAREW, Mark
May 2020

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The importance of ensuring persons with disabilities are not excluded as part of COVID-19 responses is explored.
Lessons learnt from the 2014-2017 Ebola outbreak in Liberia are discussed highlighting access to information, access to healthcare and the social impact. Research in Liberia combined surveys and interviews with people from households with a disabled person as well as those without, and included responses from 560 persons living in areas that had ‘many’ or ‘few’ cases of Ebola.

COVID-19 and Persons with Disabilities

DISABILITY RIGHTS FUND
2020

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Links to various resources with additional information on disability-inclusive responses to COVID-19. Statements, disability resources and information and resources for Civil Society are provided

 

Bridging the mobile disability gap in refugee settings

DOWNER, Matthew
September 2019

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This case study highlights refugees with disabilities’ access to mobile services and the benefits and challenges associated with using these services in three different humanitarian contexts. The analysis is based on a representative survey of refugees in three contexts: Bidi Bidi refugee settlement (Uganda), Kiziba refugee camp (Rwanda) and with urban refugees in Jordan. It also includes qualitative data drawn from two focus groups conducted with refugees with disabilities in Bidi Bidi and Kiziba. The survey used the Washington Group Questions (WGQs) to assess prevalence of disability amongst the refugee population

Study on explosive hazard victim reporting and data management processes in Iraq

NIJHOLT, Sarah
April 2019

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Handicap International (HI) commissioned a study on on explosive hazard victim reporting and data management processes in Iraq. The overall objectives of the study were to:

  • Understand what explosive hazard victim reporting and data management processes exist in Iraq;
  • Identify who is collecting such information, for which reasons and how it is being shared, and how it is being officially used;
  • Identify whether international victim data collection good practices and reporting standards are being followed up, and make concrete recommendations to help meet the standards;
  • Understand the successes, shortfalls, and challenges in data collection and information sharing;
  • Identify the needs of the data collection community in terms of ensuring sufficient victim reporting and data collection;
  • Identify if and how the data on victims is being collected and used by government authorities and the international fora.

 

Desk research was carried out and data collection took place in March 2019 in Erbil, Baghdad and Ninewa governorates in Iraq. In total, the qualitative researcher spent 3 days in Erbil, 4 days in Baghdad, and 6 days in Ninewa governorate to conduct interviews through a snowball approach. In total, 22 interviews were conducted with a variety of stakeholders, including humanitarian mine action actors, government officials, hospital directors, police and community leaders. This report provides an overview of the main findings.

Disability data collection: A summary review of the use of the Washington Group Questions by development and humanitarian actors

QUIGLEY, Nolan
et al
October 2018

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The Washington Group Questions on Disability are rapidly emerging as the preferred data collection methodology by the global community for national data collection efforts on disability. However, more and more development and humanitarian actors are now using the methodology in their own data collection efforts. This is beyond the original purpose of the questions, which was to generate usable data for governments. Leonard Cheshire and Humanity & Inclusion, two international charities focussed on disability and inclusion, have worked together to share learnings of recent research studies. These studies aim to understand how the Washington Group Questions (WGQ) have been used by development and humanitarian actors and the impact of using the methodology. This summary report outlines the key findings, analysis and conclusions about the application of the Washington Group Questions in a range of contexts. The report concludes with a number of recommendations for different stakeholders.

Portrayal of disabled people in the Kuwaiti media

ALENAIZI, Hussain Mohammed
2018

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This paper explores the views of 10 participants on how the Kuwaiti media represents disabled people. Participants expressed their views through focus groups and interviews. The findings show that, generally, disabled people in Kuwait are shown in a negative light in the media. The media depicts disabled people as ‘pitiable’, ‘violent’, ‘sinister’, ‘tragic’, and as a ‘tool of ridicule’. The findings, however, witness some positive examples of media representation regarding how some TV shows portray deaf people in a positive light. On the other hand, the study suggests that learning disabled people are the most negatively depicted group in Kuwaiti society. There are also indications of implicit endorsement or internalisation by the participants of views of disabled people as ‘extraordinary’ despite the presence of their impairments. The study concludes that it is more important that the media shows the everyday lives of disabled people before showing their abilities and achievements.

 

Disability and the Global South, 2018, Vol.5, No. 1

Social relationships, mental health and wellbeing in physical disability: a systematic review

TOUGH, Hannah
SIEGRIST, Johannes
FEKETE, Christine
May 2017

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The aim of this study is to systematically review quantitative studies exploring associations of social relationships with mental health and wellbeing in persons with physical disabilities. The objective is to summarise a complex and heterogeneous body of empirical research on the association of different social relationship constructs with mental health and wellbeing in physical disability and to highlight conceptual and methodological deficiencies in the field of research. The literature search included original articles published in English between January 1, 1995 and May 31, 2016. Data was extracted on study and participants’ characteristics, independent and dependent variables, used measures and effects sizes of associations between social relationships and mental health or wellbeing. A narrative review was performed to synthesise findings along the constructs social support, social networks, negative social interactions, family functioning and relationship quality.  Of the 63 included studies, 47 were cross-sectional and 16 longitudinal.

BMC Public Health (2017) 17:414 

DOI 10.1186/s12889-017-4308-6

Community Action Research in Disability (CARD): An inclusive research programme in Uganda

HARTLEY, Sally D
YOUSAFZAI, AK
KAAHWA, MG
FINKENFLÜGEL, H
WADE, A
BAZIRAKE, G
DRACHLER, ML
SEELEY, J
ALAVI, Y
MATAZE, W
MUCURNGUZI, E
2017

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The ideology of Emancipatory Disability Research (EDR) reflected in the phrase ‘Nothing about us without us’, was first put forward in the 1990s. Although it aimed to place research control in the hands of the ‘researched’, i.e., people with disability, this rarely happens even today, 25 years later.

 

The Community Action Research on Disability (CARD) programme in Uganda embraced and modified the EDR approach, recognising the need for including people with disability in the research process from concept to outcome, and nurturing participation and collaboration between all the stakeholders in achieving action-based research. The research teams always included people with disability and staff from Disability People’s Organisations (DPOs) as well as academics and service providers. It endeavoured to generate and carry out research around issues that mattered to people with disability and their families. Leadership roles were assigned by team members. The objectives of the CARD programme were: (1) to fund teams to carry out action-based research on disability in Uganda; (2) to develop research and administrative capacity to manage the initiative within the academic registrar’s office at Kyambogo University; (3) to incorporate new knowledge generated from the studies into the ongoing local community-based rehabilitation and special education courses; and, (4) to ensure wide dissemination of research findings to all stakeholder groups.

 

CARD ran for 5 years, commissioning 21 action research studies in the field of disability and community-based services. This paper describes the process, presents the 12 completed studies, examines the extent to which the objectives were achieved and evaluates the experiences of the participating research teams, particularly in relation to the inclusion of its members with disability. It concludes with recommendations for future initiatives designed to promote validity, good value and inclusive approaches in disability research.

WFD’s position paper on the language rights of deaf children

WORLD FEDERATION OF THE DEAF
September 2016

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Early exposure to sign language and multilingualism, combined with strong family support for sign languages, best prepares deaf children for their future effective participation in society. This position paper covers language acquisition for deaf children, the benefits of multilingualism, multilingual education and interpreting UN CPRD Article 24 in support of sign bilingual education. 

Each section of the paper has International sign videos available.

Hear my voice: old age and disability are not a curse. A community-based participatory study gathering the lived experiences of persons with disabilities and older people in Tanzania

MRISHO, Mwifadhi
FAKIH, Bakar
GREENWOOD, Margo
STEFF, Marion
2016

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Community based participatory research (CBPR) was used to provide evidence on the specific nature and experiences of persons with disabilities and older people from their own perspectives in Tanzania, through the lens of social, political, economic and cultural inclusion. The aim was to strengthen efforts to provide services for and improve the lives of people living in the rural and urban settings of Nachingwea and Kibaha Urban Municipal Council. Twenty-nine peer researchers (nine persons with disabilities, 10 older people and 10 Tanzanian Non-Governmental Organisation (NGO) members working in these communities) were involved in the study. A total of 106 stories were collected. Eight priority areas emerged and were chosen by peer researchers for further discussion in groups: access to education and quality learning; access to health services; issues fed back from NGOs; poverty relating to income and dependence; attitudes towards witchcraft and albinism; relationship difficulties and marriage breakdowns; sexual violence and gender issues; poor treatment from family
 

Bridging aging and developmental disabilities service networks : challenges and best practices

FACTOR, Alan
HELLER, Tamar
JANICKI, Matthew
March 2012

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This reports aims to provide the "best practices guide to encourage the ‘bridging’ of the aging and developmental disabilities service networks that are both in need of including managed long-term, integrated care for people who are dually eligible for Medicaid and Medicare, and rebalancing initiatives that promote community living"

Web accessibility policy making : an international perspective

G3ICT
THE CENTRE FOR INTERNET AND SOCIETY
January 2012

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This report reviews of a number of countries policies on web accessibility to share good practice. The internet and ICT have become increasingly accessible with the introduction of electronic screen readers, close-captions video viewers and personally tailored assistive technology readers. Despite this, the authors maintain that there are still 1 billion disabled people who could have better access to the internet and ICT and there is great potential for improvement

Universal service for persons with disabilities : a global survey of policy interventions and good practices

THE CENTRE FOR INTERNET & SOCIETY (CIS)
THE GLOBAL INITIATIVE FOR INCLUSIVE INFORMATION AND COMMUNICATION TECHNOLOGIES (G3ict)
December 2011

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This report documents "how Universal Service definitions and related policies and programs have been implemented by various countries to ensure that persons with disabilities have full access, on an equal basis with others, to telecommunication service...(it) aims to highlight the extreme suitability of leveraging the Universal Service Fund (USF) to implement accessibility and assistive technologies in telecommunications. It examines the evolution of the concept of USF, its minimum mandate and scope, funding sources, as well as project implementation mechanisms and showcases countries which are using the USF to fund accessibility projects through policies and programmes." This report is useful for policy makers, operators, organizations of persons with disabilities, and as a framework for good practice sharing among countries currently implementing the Convention on the Rights of Persons with Disabilities

Making television accessible

LOOMS, Peter Olaf
November 2011

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"This report identifies the kinds of access services required by a range of persons with disabilities and the respective accessibility options. These include closed captioning and signing for the deaf, audio description and audio captions for the blind or those with visual impairments, and accessible remote control devices for the elderly and those with reduced dexterity. This report explains how access services are produced and delivered so that regulators and service providers can better understand the costs involved. It also identifies the need to make the target users aware of access services and provides a checklist for those implementing accessible TV." It is useful for for media executives, regulators and policy makers, pay-TV operators, consumer electronics manufacturers, sales outlets as well as disabled persons organizations

Making mobile phones and services accessible for persons with disabilities

NARASIMHAN, Nirmita
LEBLOIS, Axel
2011

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"This report contains references to the new legislative and regulatory framework set by the Convention on the Rights of Persons with Disabilities, an important resource for policy makers. It also covers practical elements required for a successful implementation of those programs and policies: technical accessibility features for handsets, accessible and assistive applications and services as well as business cases of companies which have implemented significant accessibility programs...(T)his report will be a useful resource for telecom regulators, mobile operators, organizations of persons with disabilities and other mobile stakeholders to develop successful accessibility policies and programs in their respective countries to equally serve persons of all abilities"

HIV/AIDS and disability networking : summary report of survey consultation

CAMERON, Cathy
March 2010

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Recognising the importance of the connection between HIV and disability, this report aims to explore options for the development of a global network among the HIV/AIDS and disability fields in order to advance policy and program development. Through a survey consultation process, the report identifies and documents communication and collaborative activities that currently exist or are under development and provides recommendations to increase communication and collaboration. This report would be of interest to those working in the HIV/AIDS and disability fields

Natural sign language and proficiency in learning Setswana sign language and curriculum content among students with hearing impairment in Botswana

MUKHOPADHYAY, Sourav
SISON, Waldetrudes
2006

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Language as 'mother tongue' is the first language in which one can express oneself fully as a tool for communication. Children acquire the mother tongue with seeming ease. Language theorists have offered various explanations about how children acquire and learn how to use language. The common element in the explanations is the innate force or power within the child and the opportunities for communication within the environment. Children with hearing impairment do not learn oral language the way it is acquired by hearing children. Because of the impairment, gestural communication which is the forerunner of language acquisition in normal children, are elaborated and end up as homesign or self-styled communication systems. This paper explores the relationship between homesign language as mother tongue of children with hearing impairment and their performance in learning the academic subjects and the second sign language formally taught in school

An examination of current provision of education for children with special educational needs in Karen refugee camp schools at the Thai-Myanmar border

MORTIMER, Aye Aye
August 2004

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"The paper investigates the provision of education for children designated as having special educational needs within the context of the Karen community located near the eastern border area of Myanmar. The population sample chosen is that of the Karen refugees in camps along the Thai-Myanmar border. The study is carried out through: i) collection of available statistics to demonstrate the scale of the problem; ii) disaggregation of data to indicate the range of special needs being catered for; and, iii) an examination of various teacher training and administration approaches being used, in order to identify whether these are accommodating to children with special educational needs"

Human resources toolbox : building an inclusive development community

MOBILITY INTERNATIONAL USA (MIUSA)
2003

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This toolbox provides information, strategies and resources for development organisations to become more inclusive in their hiring practices, administration and policies. It focuses on practical tips and resources for organisations seeking to become more inclusive at headquarter offices and though organisational policies. Although it was designed for US-based agencies and refers to the Americans with Disabilities Act, it includes practical and useful guidance which will be adaptable to many contexts. It deals with workplace accessibility, communication, Internet accessibility, recruitment of disabled people, budgeting for inclusion, and more. The "budgeting for inclusion" section provides an innovative strategy for ensuring that your organisation has the funds it needs to accommodate people with disabilities in both offices and the projects the organisation supports

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