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Systematic review of interventions for reducing stigma experienced by children with disabilities and their families in low and middle-income countries: state of the evidence.

SMYTHE, Tracey
ADELSON, Jaimie
POLACK, Sarah
March 2020

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A literature review was carried out to identify and assess the evidence for interventions to reduce stigma experienced by children with disabilities and their families in low and middle-income settings. A systematic review of seven databases (MEDLINE, EMBASE, Global Health, PsycINFO, Social Policy and Practice, CINAHL, IBSS) for articles published January 2000 to April 2018 was carried out. Data were extracted on study population, study design, intervention level(s) and target group, and type(s) of stigma addressed. A narrative approach was used to synthesise the results.

Twenty studies were included. The majority (65%) of interventions targeted enacted stigma (negative attitudes) and the most common intervention approach was education/training (63%). Over half (54%) of interventions were delivered at the organisational/ institutional level and only four studies targeted more than one social level. The most common disability targeted was epilepsy (50%) followed by intellectual impairment (20%). 

doi: 10.1111/tmi.13388

Trop Med Int Health. 2020 Mar

Social inclusion, care and belonging of children with spina bifida: perspectives from Uganda

BANNINK, Femke
February 2017

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This study presents a situation analysis on daily functioning, caregiving, and inclusion of children with spina bifida in Uganda. 139 children with spina bifida and their families from 4 regions in Uganda participated in this study. Findings show how a complex play of cultural values, globalisation and access to biomedical care determines knowledge, and negative attitudes about, and perception of children with spina bifida


Afrika Focus, vol 30, no. 1, 2017,  pp. 130-136

DOI https://doi.org/10.21825/af.v30i1.4984

 

2016 Synthesis of Voluntary National Reviews

DIVISION FOR SUSTAINABLE DEVELOPMENT DEPARTMENT OF ECONOMIC AND SOCIAL AFFAIRS - UNDESA
2016

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"The 2016 meeting of the High-Level Political Forum (HLPF) took place from 11 to 20 July 2016 at the United Nations Headquarters in New York. Twenty-two countries presented voluntary national reviews (VNRs) of the implementation of the 2030 Agenda, and particularly the sustainable development goals (SDGs), over a day and a half during the Ministerial Segment of the HLPF under the auspices of the Economic and Social Council (ECOSOC). This report synthesizes some of the findings of the VNRs, drawing primarily from the written reports and executive summaries of the majority of countries. It uses a theme based analysis drawn largely from the voluntary common guidelines contained in the Annex to the Secretary-General’s report on critical milestones towards coherent, efficient and inclusive follow-up and review at the global level. The report examines reporting countries’ efforts to implement the 2030 Agenda, including challenges, gaps, achievements and lessons learned." 

Fighting against epilepsy in Rwanda : an efficient patient-centred experience

FINEL, Elodie
March 2012

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This document presents a learning-from-experience "capitalisation’’ process on Handicap International’s epilepsy project in Rwanda. It includes 4 parts: (1) Principles & Benchmarks which sets the framework including main concepts, definitions and intervention context (2) Intervention methods which detail the main activities monitoring the project and its tools (3) Focus which presents the community-based approach and provides a deeper look into the know-how and good practices developed through this approach (4) Results which provides the limitations and recommendations found during the capitalisation process to different stakeholders
SD/LL 04

Fighting against epilepsy in Rwanda : an efficient patient-centred experience

FINEL, Elodie
2012

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This brief provides a summary of the learning-from-experience process on Handicap International's project "Promoting access to medical care, ensuring the school, social, family and community integration of epileptic people in Rwanda." Strategy and intervention methods are highlighted along with the community-based approach
Brief SD/LL 04

Non-Communicable diseases in an ageing world : a report from the International Longevity Centre UK, HelpAge International and Alzheimer’s Disease International lunch debate

BAMFORD, Sally-Marie
SERRA, Valentina
July 2011

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This report, based on the discussion and recommendations from the expert meeting, presents information about the need for a life-course focus on prevention, treatment, management and related care issues on NCDs and for dementia to be addressed as a global priority for action. "The first part of the report highlights salient policy and political issues on the NCD question and summarises some of the key international developments in this regard. The latter section of the report provides a summary of the presentation by Professor Martin Prince, and identifies some of the key themes which emerged from the meeting"
Expert stakeholder lunch meeting
London, UK
4 May 2011

Ageing and the challenge of non-communicable diseases in low and middle-income countries : a position paper

HELPAGE INTERNATIONAL
2011

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This position paper presents detailed information to advocate for a "whole life course approach to NCDs, which is inclusive of all ages, should be adopted for any recommendations on detection and diagnosis, and strategies for prevention, management and treatment as well as more effective care." It concludes with key messages and recommendations, and is useful for anyone interested in ageing and non-communicable disease in low and middle-income countries

World health report 2003 : shaping the future

WORLD HEALTH ORGANIZATION (WHO)
2003

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This report argues that real progress in health depends on strengthening health systems, centred on the principles of primary health care. This requires effective use of existing knowledge and technologies and innovation to create new health tools, along with appropriate structures and strategies to apply them. Success will need new forms of cooperation between international health agencies, national health leaders, health workers and communities, and other relevant sectors. Chapter 1 of the report looks at the current state of global health, highlighting the gap between the poor and better-off everywhere. Chapter 2 reflects on the slow progress towards achieving the Millenium Development Goals. Chapter 3 looks at the HIV/AIDS pandemic, and demonstrates why HIV/AIDS control needs to drive the agenda for the global health community. Chapter 4 looks at the steps needed to achieve polio eradication within the next few years, and chapter 5 concentrates on the lessons learned from the SARS outbreak. The theme of chapter 6 is the the overlap between communicable and non-communicable diseases and injuries occurring throughout the developing world, leading to a crisis of priorities for health systems. The concluding chapter returns to the statement that stronger health systems are necessary, and that strengthening health systems should be based on the principles and practices of primary health care

Globalization and health

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Globalization and Health is an Open Access, peer-reviewed, online journal. It encompasses all aspects of globalization and its effects on public health. Globalization in the journal will refer to economic, political, social and technological processes, which transcend the geopolitical boundaries of the nation-state and have resulted in increased interconnectedness of the world. The journal examines market liberalization, the changing role of nation-state, supra-national structures, poverty and equality, the changing distribution of communicable and non-communicable diseases and the risk factors associated with these diseases, and the growing awareness of our collective responsibility for one another. Global warming, global governance, global public goods for health, equity and justice and a host of related topics are emerging as priorities and illustrate the need for interdisciplinary thinking and debate
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