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The definition of disability and disability related data collection and analyses - Applying the IASC Guidelines in the northwest Syria humanitarian response

UNHCR INCLUSION TECHNICAL WORKING GROUP, SYRIA PROTECTION CLUSTER (TURKEY)
February 2021

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Action by humanitarian partners to strengthen inclusion of persons with disabilities in the humanitarian response in an evidencebased manner remains highly needed – this note aims to support that effort by providing background and explanation on the definition of disability as well as on how to interpret and use data related to disability.

 

The note also provides elaboration on the Syria Protection Cluster (Turkey) recommended disability-related data collection methodology for humanitarian organizations and entities in northwest Syria. Thereby the note aims to stimulate and assist the broader humanitarian community in northwest Syria in adopting the Washington Group Short Set of Questions on Functioning, especially in relation to disability focused data collection and in understanding and utilizing assessment findings, specifically prevalence-rates of disability in northwest Syria.

 

For more elaborated description of the situation of persons with disability in northwest Syria and practical suggestions for humanitarians on enhancing inclusion of persons with disabilities in programming, this note is to be read in conjunction with the ITWG “Self-reported barriers to activities of daily living of persons with disabilities living in IDP sites in northwest Syria” brief report and recommendations.

 

Coronavirus (COVID-19) - Cochrane resources and news

2020

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Cochrane provides high-quality, relevant, and up-to-date synthesized research evidence to inform health decisions. This page highlights content relating to the coronavirus (COVID-19) pandemic and the various related activities that Cochrane is undertaking in response.

We will be continually adding updates and additions to this page. Sections include information and resources for:

 

  • Public, patients, and carers
  • Healthcare workers
  • Researchers
  • Policy and guideline developers
  • The Cochrane Community

Inclusion of persons with disabilities in humanitarian action. Case studies collection 2019. 39 examples of field practices, and learnings from 20 countries, for all phases of humanitarian response

PALMER, Tom
et al
December 2019

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Published at the same time as the Inter-Agency Standing Committee (IASC) Guidelines on Inclusion of Persons with Disabilities in Humanitarian Action, this report aims to support their uptake and promote learning by example. This report presents 39 short case studies on inclusive practices for persons with disabilities in humanitarian action and disaster risk reduction (DRR). It is designed for humanitarian stakeholders with limited experience of working with and for persons with disabilities, as well as for organizations of persons with disabilities (OPDs) planning to engage in humanitarian action and DRR. The report draws lessons from field practices, but does not provide technical guidance. The IASC Guidelines are the reference document to seek in-depth theoretical and technical information

 

The case studies focus on:

  • Inclusive disaster risk reduction and preparedness
  • Collecting and using disability disaggregated data for assessments and programming.
  • Participation of persons with disabilities and their representative organizations in humanitarian response and recovery
  • Removing barriers to access humanitarian assistance and protection.
  • Influencing coordination mechanisms and resource mobilization to be inclusive

 

The evidence presented in this report was identified in 2017-2018 through a desk review of publicly available reports and internal documents on projects implemented by CBM, HI and IDA members, as well as their partners and affiliate members. Field visits to Lebanon, Jordan, Kenya, Nepal, and the Philippines conducted in 2018 also informed the case-study collection and documentation

Epilepsy: a public health imperative

WORLD HEALTH ORGANISATION (WHO)
2019

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This report is the first global report on epilepsy summarising the available evidence on the burden of epilepsy and the public health response required at global, regional and national levels.

This report is a call for sustained and coordinated action to ensure that every person with epilepsy has access to the care and treatment they need, and the opportunity to live free from stigma and discrimination in all parts of the world. It is time to highlight epilepsy as a public health imperative, to strongly encourage investment in reducing its burden, and to advocate for actions to address gaps in epilepsy knowledge, care and research.

Scoping Progress in Education

GLOBAL EDUCATION MONITORING TEAM
2019

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Scoping Progress in Education (SCOPE) brings together administrative data, household surveys, learning assessments and education finance from various data producers, notably the UNESCO Institute for Statistics, to explore the progress made towards SDG 4, the global education goal.

It complements the printed edition of the Global Education Monitoring Report, enabling users to interact with the data to understand the achievements and challenges of countries and regions as they aim to reach the targets. Shareable and downloadable, users can create images and data files to explore further, print, or use online or in presentations

4th global report on adult learning and education: leave no one behind: participation, equity and inclusion

UNESCO INSTITUTE FOR LIFELONG LEARNING
2019

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This report explores participation in adult learning and education from the perspective of equity and inclusion. The first part tracks progress in adult learning and education against the Belém Framework for Action, adopted in 2009, on the basis of the GRALE (Global Report on Adult Learning and Education) survey; the second offers a detailed thematic analysis of participation, drawing on the survey findings, but also a wide range of other relevant sources. The findings of GRALE 4 are based on survey responses supplied by 159 countries.

Humanitarian inclusion standards for older people and people with disabilities

ADCAP
TILL, Celia
et al
February 2018

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The Humanitarian inclusion standards for older people and people with disabilities provide guidance across all areas and at all stages of emergency response to ensure older people and people with disabilities are not left out.

The standards consist of nine key inclusion standards, including identification, safe and equitable access, knowledge and participation, and learning. Alongside these, there are seven sector-specific inclusion standards, which include protection, shelter, health, and water, sanitation and hygiene.

Each standard comes with key actions, guidance, tools and resources, and case studies illustrating how older people and people with disabilities have been included in humanitarian responses.

The sector-specific standards provide guidance in three key areas: data and information management, addressing barriers to inclusion, and participation of older people and people with disabilities.

By implementing the key action points provided, organisations will build up a greater evidence base, deliver more inclusive programmes, and be able to better demonstrate impact on the lives of those most at risk during humanitarian crises.

The standards can be used as guidance during programme development, implementation and monitoring, and as a resource for training and advocacy.

Disability data in humanitarian action - Factsheets

HUMANITY & INCLUSION (HI)
2018

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Four factsheets concerned with Washington Group Questions (WGQ) produced in conjunction with the Disability Data in Humanitarian Action programme.

 

Aspects addressed are: collecting data at the household level; collecting data on persons with mental health difficulties and understanding temperality and causality when using the WGQs.

 

Including children with disabilities in humanitarian action

UNICEF
July 2017

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"The purpose of Including Children with Disabilities in Humanitarian Action is to strengthen the inclusion of children and women with disabilities, and their families, in emergency preparedness, response and early recovery, and recovery and reconstruction. This series of booklets provides insight into the situation of children with disabilities in humanitarian contexts, highlights the ways in which they are excluded from humanitarian action, and offers practical actions and tips to better include children and adolescents with disabilities in all stages of humanitarian action. The booklets were created in response to UNICEF colleagues in the field expressing a need for a practical resource to guide their work. The information and recommendations are based on evidence and good practices gathered from literature and field staff experiences. The six booklets on how to include children and adolescents with disabilities in humanitarian programmes are as follows: 1) general guidance; 2) child protection; 3) education; 4) health and HIV/AIDS; 5) nutrition; 6) water, sanitation and hygiene (WASH)".

General guidance available July 2017. Others to follow.

In addition to the PDF versions in English, Arabic and French, the guidance is also available in a range of accessible formats, including EPUB, a Braille-ready file and accessible HTML formats. 

The guidance was developed in collaboration with Handicap International.

"I see that it is possible": Building capacity for disability inclusion in gender-based violence programming in humanitarian settings

Women's Refugee Commission
International Rescue Committee
May 2015

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While humanitarian organizations are increasingly recognizing women and girls with disabilities in policies and guidelines, there are still significant gaps in operationalizing this. Their needs and capacities are often under-represented in gender, protection and disability forums. Furthermore, organizations of women with disabilities, which can play a critical role in bridging the development/humanitarian divide, are not meaningfully included in humanitarian coordination and decision-making.

This report documents findings and recommendations from a participatory action research project on disability inclusion in GBV programming in humanitarian settings, conducted with communities affected by crisis and conflict.

This toolkit was created with the input and participation of persons with disabilities, as well as GBV practitioners,
over the course of the project. It is intended to support GBV staff to build disability inclusion into their work, and
to strengthen the capacity of GBV practitioners to use a survivor-centered approach when providing services to
survivors with disabilities. The tools are designed to complement existing guidelines, protocols and tools for GBV
prevention and response, and should not be used in isolation from these. GBV practitioners are encouraged to
adapt the tools to their individual programs and contexts, and to integrate pieces into standard GBV tools and
resources.

WHO global strategy and action plan on ageing and health

WORLD HEALTH ORGANIZATION
2015

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The purpose of the Global Strategy and Action Plan on Ageing and Health 2016-2020 is “to define the goals, strategies, and activities that WHO (its Member States and secretariat) will pursue on ageing and health, and to clearly lay these out as a global framework for public health action relevant to low-, middle-, and high-income settings ”

A million voices : the world we want|A sustainable future with dignity for all

UNDG MILLENNIUM DEVELOPMENT GOALS TASK FORCE
2013

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"This report by the United Nations Development Group (UNDG) collects the perspectives on the 'world we want' from over 1 million people around the globe. For almost one year, people have engaged energetically in 88 national consultations, 11 thematic dialogues, and through the MY World global survey...The findings of this global conversation contain important messages for governments as they seek to agree on a new development agenda that can build on the successes of the Millennium Development Goals (MDGs)"

Improved and standardized method for assessing years lived with disability after injury

HAAGSMA, JA
et al
2012

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"This article presents the results of study that aimed to develop a standardized method for calculating years lived with disability (YLD) after injury. The method developed consists of obtaining data on injury cases seen in emergency departments as well as injury-related hospital admissions, using the EUROCOST system to link the injury cases to disability information and employing empirical data to describe functional outcomes in injured patients. The novel method for calculating YLD after injury can be applied in different settings, overcomes some limitations of the method used to calculate the global burden of disease, and allows more accurate estimates of the population burden of injury"
Bull World Health Organ, 90

Making it work guideline

GUY, Michael
September 2011

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Making it Work is a methodology for researching and documenting good practices on key disability issues, and then using this evidence to carry out effective advocacy in line with the principles of the Convention for the Rights of Persons with Disabilities .The methodology is straight-forward: it can be used to develop projects on any disability issue, in any country, at any level, by all types of organizations. Indeed many organizations throughout the world are now using this approach and sharing their good practice research and recommendations online. This guideline sets out a step-by-step approach for implementing such projects

Heightened risk identification tool (HRIT)

OFFICE OF THE UNITED NATIONS HIGH COMMISSIONER FOR REFUGEES (UNHCR)
June 2010

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"The Heightened Risk Identification Tool (HRIT) and User Guide have been developed to enhance UNHCR's effectiveness in identifying refugees at risk by linking community-based / participatory assessments and individual assessment methodologies. They have been designed for use by UNHCR staff involved in community services and/or protection activities (including resettlement) and partner agencies"

The heightened risk identification tool : user guide

OFFICE OF THE UNITED NATIONS HIGH COMMISSIONER FOR REFUGEES (UNHCR)
June 2010

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"The Heightened Risk Identification Tool (HRIT) and User Guide have been developed to enhance UNHCR's effectiveness in identifying refugees at risk by linking community-based / participatory assessments and individual assessment methodologies. They have been designed for use by UNHCR staff involved in community services and/or protection activities (including resettlement) and partner agencies"

Testing treatments : better research for better healthcare

EVANS, Imogen
THORNTON, Hazel
CHALMERS, Iain
2010

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This book highlights issues that are fundamental to ensuring that research into the effects of treatments is soundly based and designed to answer questions that matter to patients and the health professionals to whom they turn for help in critically assessing treatment options

The gender-based violence information management system user guide

GENDER BASED VIOLENCE IMFORMATION MANAGEMENT SYSTEM (GBVIMS)
2010

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This comprehensive user guide explains what the Gender-Based Violence Information Management System (GBVIMS) is, why it is important and how it works. It is also a training tool on how to use the GBVIMS and related tools through hands-on, self-learning activities. It is intended to be both a reference document and a training manual for both service providers with specific services in place for GBV survivors, such as case management or health services, and agencies or actors coordinating multisectoral GBV interventions within a humanitarian context. This could include local national and international non-governmental organizations (NGOs), state actors, community-based organizations (CBOs) and/or UN agencies operating within a humanitarian context
Note: free registration is required to access the guide
Note: the guide is available as one document, or as individual chapters and annexes. A workbook is also available

Preventing chronic diseases : a vital investment. Overview

WORLD HEALTH ORGANIZATION (WHO)
2005

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This report urges health planners and decision-makers influence multisectoral government action to prevent chronic diseases. It dispels the long-held misunderstandings about heart disease, stroke, cancer and other chronic diseases that have contributed to their global neglect. It states clearly that 80% of the 35 million chronic disease-related deaths in 2005 will occur in low and middle income countries, where they affect men and women at younger ages than in high income countries. Premature deaths in countries such as China, India and the Russian Federation are projected to cost billions of dollars over the next 10 years

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