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Disability and unpaid care work

CBM AUSTRALIA
2019

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This report looks at the impact of unpaid care work on disability inclusive programming and shares some practical ideas for how to address this based on experiences of CBM partners and other agencies. 

 

Programme experience discussed include:

  • Building agency and relationships: a community mobilisation approach in Jharkhand, India
  • Engaging men as care advocates in the Phillipines
  • Recognising and supporting care givers in Ghana
  • Good practice

 

Do experiences and perceptions about quality of care differ among social groups in Nepal? A study of maternal healthcare experiences of women with and without disabilities, and Dalit and non-Dalit women

DEVKOTA, Hridaya Raj
MURRAY, Emily
CLARKE, Andrew
GROCE, Nora
December 2017

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Background
Suboptimal quality of care and disparities in services by healthcare providers are often reported in Nepal. Experience and perceptions about quality of care may differ according to women’s socio-cultural background, individual characteristics, their exposure and expectations. This study aimed to compare perceptions of the quality of maternal healthcare services between two groups that are consistently considered vulnerable, women with disabilities from both the non-Dalit population and Dalit population and their peers without disabilities from both non-Dalit and Dalit communities.

Methods
A cross-sectional survey was conducted among 343 total women that included women with disabilities, Dalits and non-Dalits. Women were recruited for interview, who were aged 15–49 years, had been pregnant within the last five years and who had used maternal care services in one of the public health facilities of Rupandehi district. A 20-item, Likert-type scale with four sub-scales or dimensions: ‘Health Facility’, ‘Healthcare Delivery’, ‘Inter-personal’ and ‘Access to Care’ was used to measure women’s perceptions of quality of care. Chi-square test and t test were used to compare groups and to assess differences in perceptions; and linear regression was applied to assess confounding effects of socio-demographic factors. The mean score was compared for each item and separately for each dimension.

PLoS ONE 12(12): e0188554
https://doi.org/10.1371/journal.pone.0188554

Gendered experiences of physical restraint on locked wards for women

FISH, Rebecca
HATTON, Chris
2017

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Physical restraint is used in inpatient services for people with intellectual disabilities as a way of holding a person to avoid injury. This article uses data from an ethnographic study in a locked unit in the north of England to explore women’s experiences of physical restraint using a feminist disability studies analysis. Data consists of field notes as well as interviews with 16 of the women who had experienced restraint, and 10 staff who worked with them. The women gave insights into the gendered phenomenon of restraint in light of their past experiences of violence. The authors argue that restraint is used with women to encourage passivity at times when more relational and therapeutic methods could be used. The article offers recommendations for alternative strategies that services can encourage.

Global report on the participation of organisations of persons with disabilities (DPOs) in VNR (voluntary national review) processes

INTERNATIONAL DISABILITY ALLIANCE (IDA)
STAKEHOLDER GROUP OF PERSONS WITH DISABILITIES
2017

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"This global report raises awareness for DPOs and how to engage with their governments in the national consultation processes on SDG implementation. This case study features the volunteering countries of Argentina, Bangladesh, Denmark, El Salvador, Ethiopia, India, Indonesia, Italy, Kenya, Nigeria, Peru, Sweden and Togo.

The information summarised in the country chapters was derived from DPOs and partners working at the national level on SDG implementation and information may be subjective. The country chapters are structured to include; status of persons with disabilities, engagement in the voluntary national review process, thematic issues--poverty alleviation, healthcare, women with disabilities and accessibility—and analysis of the submitted VNR report

Human Rights

www.macao-tz.org
December 2014

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Malezi AIDS Care Awareness Organization (MACAO) is a non-profit organization reaching out to neglected Indigenous people in Ngorongoro District, Arusha Region of Northern Tanzania.  Macao founded in 2003, Macao is a humanitarian organization that provides assistance to approximately 200,000 Indigenous Maasai community in Ngorongoro district for addressing needs of water and sanitation, food security, health Care Research, Education, Research environment, Maasai Traditional Research, Human Rights and sustainable economic development by strengthening their livelihoods.  In addition to responding to major relief situations, MACAO focuses on long-term community development through over 4 Area Development Project. We welcome the donors and volunteers to join us in this programs, we are wolking in ruro villages.

Treated worse than animals : abuses against women and girls with psychosocial or intellectual disabilities in institutions in India

SHARMA, Kriti
December 2014

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This in-depth, illustrated report on the abuses of female patients with psychosocial or intellectual disabilities at institutions in India found that patients experience widespread neglect and abuses of their rights, including denial of legal capacity, a lack of community-based support and services, verbal and physical violence as well as involuntary treatment and admission. It recommends that “India undertake urgent reforms to guarantee the legal capacity of people with psychosocial or intellectual disabilities and take steps to shift from institutional to community-based care and services for people with disabilities”, with specific recommendations for central and state government level, national and state commissions and international donors

 

Note: Easy-to-read version, summary and video also available

Treated worse than animals : abuses against women and girls with psychosocial or intellectual disabilities in institutions in India : summary and key recommendations

HUMAN RIGHTS WATCH (HRW)
December 2014

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This illustrated summary presents the key findings and recommendations of the full report which found that female patients with psychosocial or intellectual disabilities at institutions in India experience widespread neglect and abuses of their rights, including denial of legal capacity, a lack of community-based support and services, verbal and physical violence as well as involuntary treatment and admission. It recommends that “India undertake urgent reforms to guarantee the legal capacity of people with psychosocial or intellectual disabilities and take steps to shift from institutional to community-based care and services for people with disabilities”, with specific recommendations for central and state government level, national and state commissions and international donors

 

Note: Full report, summary report and video also available

Women and girls with a disability in India

HUMAN RIGHTS WATCH (HRW)
December 2014

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This easy-to-read summary uses simple language and clear illustrations to succinctly present the key principles of the full report: “Treated worse than animals: abuses against women and girls with psychosocial or intellectual disabilities in institutions in India”. The report found that female patients with psychosocial or intellectual disabilities at institutions in India experience widespread neglect and abuses of their rights

 

Note: Full report, summary and video also available

Caring for people with intellectual disabilities in poor rural communities in Cambodia : experience from ADD International

CORDIER, Sylvie
October 2014

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This article explores the impact of ADD International’s project in Cambodia, which aimed to support communities to learn more about persons with intellectual disabilities and support them in their daily life. The article has a particular focus on how this work affected carers, the majority of whom are women

Gender & Development, 22:3

Maternal and new-born care practices among disabled women, and their attendance in community groups in rural Makwanpur, Nepal

LEONARD CHESHIRE DISABILITY AND INCLUSIVE DEVELOPMENT CENTRE
2013

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This paper presents qualitative and quantitative research that describes the type and severity of disability of married women in the study area, describes their participation in community groups and analyses associations between maternal and new-born care behaviours and disability. Health workers and field researchers were also interviewed about their experience with disabled women in rural Makwanpur
Cross-cutting Disability Research Programme, Background Paper: 01

Responding to intimate partner violence and sexual violence against women : WHO clinical and policy guidelines

WORLD HEALTH ORGANIZATION (WHO)
2013

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"The guidelines aim to raise awareness of violence against women among health-care providers and policy-makers, so that they better understand the need for an appropriate health-sector response. They provide standards that can form the basis for national guidelines, and for integrating these issues into health-care provider education...The guidelines are based on systematic reviews of the evidence, and cover: identification and clinical care for intimate partner violence; clinical care for sexual assault; training relating to intimate partner violence and sexual assault against women; policy and programmatic approaches to delivering services; mandatory reporting of intimate partner violence"

Responding to intimate partner violence and sexual violence against women : summary

WORLD HEALTH ORGANIZATION (WHO)
2013

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"This document summarizes ‘Responding to intimate partner violence and sexual violence against women: WHO clinical and policy guidelines’, the World Health Organization (WHO), 2013 publication, developed by an international group of experts following a thorough review of evidence. It contains evidence-based recommendations for the introduction of policies into health services and programmes to improve responses within the health sector to violence against women. Each recommendation is classified as either "strong" or "conditional", on the basis of the generalizability of benefit across different communities and cultures, the needs and preferences of women to access services, as well as taking into consideration the level of human and other resources that would be required"
WHO/RHR/13.10

Feminist psychology and women with disabilities : an emerging alliance

BANKS, Martha E
December 2010

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"This article is an application of the Guidelines for Psychological Practice with Girls and Women to psychological issues faced by Women with Disabilities. It includes culture-specific issues faced by Women with Disabilities, the multiple roles of Women with Disabilities, the importance of informal support systems, and the intersection between feminism and disability...Perspectives of health professionals, disability advocates, and family members are provided to identify issues that need to be included in a comprehensive psychology of Women with Disabilities"
Psychology of Women Quarterly, Vol 34, No 4

Handbook for coordinating gender-based violence interventions in humanitarian settings

WARD, Jeanne
LAFRENIERE, Julie
July 2010

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This Handbook has been produced by the global Gender-based Violence (GBV) Area of Responsibility Working Group as a quick reference tool for all individuals and agencies involved in GBV programming and coordination in humanitarian/emergency settings. The handbook contains practical guidance on leadership roles, key responsibilities and specific actions to be taken when establishing and maintaining a GBV coordination mechanisms in a humanitarian setting. The focus is primarily on work that should be done to scale up coordination from the onset of an emergency (both conflict and natural disasters) but is also relevant to contingency planning and post-emergency stabilization phases
The goal of the handbook is to improve coordination capacity at the field level in order to facilitate accessible, prompt, confidential and appropriate services for survivors according to a basic set of principles and to put in place mechanisms to prevent GBV
The handbook can also be used as an advocacy tool to educate non-GBV programmers--including UN personnel, government officials, NGO staff and donors--about basic protection responsibilities related to GBV coordination, prevention and response

Improving the health care response to gender-based violence - phase II : project evaluation report

BUDIHARSANA, Meiwita P
TUNG, Mai Quoc
2010

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This report describes phase II of the Population Council Vietnam project on gender-based violence (GBV). The project involves both a hospital and community based intervention to address this problem in Hanoi and to conduct research to assess its effectiveness. This report is useful to practitioners interested in gender-based violence issues in Vietnam

Gender and care : supporting resources collection

ESPLEN, Emily
February 2009

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This collection show-cases existing work on gender and care, including a mix of research papers, policy briefings, advocacy documents, case study material and practical tools from diverse disciplines and geographical regions - all focusing on different aspects of care. Summaries and links to key resources are provided, as well as information on international frameworks and conventions relating to care

Gender and care : overview report

ESPLEN, Emily
January 2009

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This overview report explores how we can move towards a world in which individuals and society recognise and value the importance of different forms of care, but without reinforcing care work as something only women can or should do. It includes recommendations for donors, government and educators

Child health : generating the will

WORLD VISION
2009

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This edition of Global Future explores the nature of political will and what is required to reduce rates of under-five mortality and realise Millennium Development Goals (MDG) four (to reduce under-five mortality) and five (to improve maternal health). Authors from around the world lay out the "why, who, what and how" of the actions needed to realise these MDGs and get more countries on track quickly. At the time of publication only 16 of the 68 countries with the highest rates of child death were on track to reach MDG four

Gender & eye health : equal access to care

VISION 2020
2009

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The long-term goal is to achieve global gender equity in the use of eye care services and service outcomes. There is good evidence that in most developing countries, women are less likely to receive eye care services than men, particularly services that will prevent or treat blinding conditions. Added to the fact that women comprise more than half of the elderly population, and that the natural incidence of some blinding diseases (cataract and trachoma) is higher among women than men, this results in a situation where women account for 60-65 per cent of blind people worldwide. While there have been some successful programmes to improve gender equity in eye care, a more systematic approach needs to be adopted

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