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The need for a rehabilitation model to address the disparities of public healthcare for people living with HIV in South Africa

CHETTY, Verusia
HANASS-HANCOCK, Jill
June 2015

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This article advocates for the development and implementation of a model of care to guide rehabilitation of people living with HIV in South Africa. The paper begins by presenting the emerging evidence of rehabilitation in the context of HIV, and goes on to identify appropriate steps to develop a model of care based on this that would be applicable to South Africa

African Journal of Disability 4(1), Art. #137

A home-based rehabilitation intervention for people living with HIV and disability in a resource-poor community, KwaZulu-Natal : study protocol for a randomized controlled trial

COBBING, Saul
HANASS-HANCOCK, Jill
MYEZWA, Hellen
2015

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In this paper, the researchers develop a needs-based home-based rehabilitation programme for people living with HIV in order to improve their quality of life and functional ability. The study aims to  provide rehabilitation professionals and researchers with evidence that can be utilised to improve existing rehabilitation interventions for people living with HIV.

The paper outlines a randomised control trial to test the programme, to be conducted at a public hospital in KwaZulu-Natal, South Africa. The trial will assess the participants’ quality of life, perceived level of disability, functional ability and endurance

Trials 16:491

Barriers to sustainable access of children and families to ART centres in rural India : a report on operations research conducted in Maharashtra and Manipur

INDIA HIV/AIDS ALLIANCE
December 2009

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This report identifies barriers that children and families face in accessing anti-retroviral therapy (ART) centres in rural India. The report also seeks to find solutions to these barriers based on an operations research conducted in Maharashtra Pradesh and Manipur. Operations research objectives: * To build an understanding among policy makers of the barriers faced by children and caregivers accessing ART services in rural communities. * To assess and highlight a basic minimum level of standards for ART centres in terms of adequacy, quality and timeliness of support needed. * To explore opportunities for linkages with state and district level departments and/or local self-governing institutions

Facilitating HIV testing and disclosure with children and adolescents

INDIA HIV/AIDS ALLIANCE
June 2009

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This report looks at the challenges in facilitating testing and disclosure for children in 0-6, 7-14 and 15-18 age groups. The report is based on operations research conducted by India HIV/AIDS Alliance in Andhra Pradesh and Manipur. This operations research was aimed at understanding current challenges with facilitating testing and disclosure for children, and to provide possible short to medium term solutions. Three broad objectives of the study were: * Identifying challenges and factors that prevent the community from seeking HIV testing of their children * Understanding issues related to disclosure of HIV status to children, and the social impact related to disclosure faced by parents and children * Using the study findings in formulating practical solutions to address these issues, and to come up with practical recommendations on building links between policy and practice

Towards universal access : scaling up priority HIV/AIDS interventions in the health sector : progress report 2008

WORLD HEALTH ORGNAIZATION (WHO)
JOINT UNITED NATIONS PROGRAMME ON HIV/AIDS (UNAIDS)
UNITED NATIONS CHILDREN'S FUND (UNICEF)
2008

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This report provides in-depth information on: treatment and care for people living with HIV; HIV testing and counselling; health sector interventions for HIV prevention; scaling up HIV services for women and children; strengthening health systems and health information; and towards universal access as the way forward

Barriers to services for children with HIV positive parents

LOUDON, Mark
et al
July 2007

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This is a national overview of a study on barriers to services in the education, health and social welfare fields, encountered by children affected by HIV & AIDS in the Indian states of Andhra Pradesh, Karnataka, Maharashtra, Nagaland and Tamil Nadu, particularly those services which are or should be provided by state governments. The study identifies actions which can be taken by relevant departments in the state governments to overcome these barriers

Helping a forgotten minority : disability and HIV/AIDS in Zambia

DEPARTMENT FOR INTERNATIONAL DEVELOPMENT (DFID)
June 2007

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This article and case study demonstrate work being done in Zambia to ensure that the needs of people with disabilities are met by HIV and AIDS services, so that they have full access to the treatment, care and support available. Provisions include sign language training for HIV and AIDS counsellors, making mobility aids and hearing aids available to those who need them, as well as improving food security and encouraging a sustainable livelihoods approach. This would be of interest to anyone looking at mainstreaming disability in the provision of HIV and AIDS services

Towards a stronger response to HIV and AIDS: challenging stigma

International Center for Research on Women (ICRW)
2007

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This is an internal paper for the Department for International Development (DFID) that looks at information and evidence for the global prevalence of HIV stigma and how it is damaging people living with HIV and AIDS and their families, especially women. It also looks at evidence that this compromises effective responses to AIDS by lowering the uptake of preventative services and testing, delays disclosure, decreases care seeking and undermines treatment. The paper examines successful strategies that have been used to tackle stigma and suggests that DFID is well placed to help scale-up efforts and play a leading role in the international arena

Enhanced protection for children affected by AIDS

GREENBERG, Aaron
et al
2007

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This paper articulates the vulnerabilities and protection risks of children affected by AIDS and proposes practical actions to address them. It is a companion paper to "The Framework for the Protection, Care and Support of Orphans and Vulnerable Children Living in a World with HIV and AIDS". It aims to help translate government commitment into practice, building on the strategies laid out in the Framework

Living on the outside : key findings and recommendations on the nature and impact of HIV/AIDS-related stigma

HEALTH AND DEVELOPMENT NETWORKS (HDNET)
AIDS-CARE-WATCH CAMPAIGN
2006

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This publication presents an overview of discussions, evidence and proposals contributed to the Stigma-AIDS eForurm by both experts and people living with HIV and AIDS, and moderated by Health and Development Networks (HDNet). Three major areas are covered: HIV stigma and place, including the work place, health care services and religious settings; HIV stigma and people living with HIV/AIDS, addressing self-stigma and injection drug users; HIV stigma and society, with a focus on the role of the media. Each topic includes a brief commentary and sets out specific recommendations. It is aimed at individuals, organisations and policy makers willing to learn about practical approaches to reduce HIV/AIDS-related stigma

Psychosocial support training manual

WALKER, Lynn
2005

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This document recognises that psychosocial support for children affected by HIV and AIDS is as important as responding to their material needs. It explores children's experience of loss and grief, and suggests ways to deal with aggressive behaviour and to overcome stigma and discrimination. Some of the topics discussed are accompanied by useful handouts. It is designed as a training tool for professionals working directly with children or in community building projects

The memory work trainer's manual : supporting families affected by HIV and AIDS

HEALTHLINK WORLDWIDE
NATIONAL COMMUNITY OF WOMEN LIVING WITH HIV/AIDS IN UGANDA (NACWOLA)
2005

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This manual guides trainers through a course to support parents, guardians and carers affected by HIV and AIDS, by helping them to share information, hopes and fears with their children; strengthen each child's sense of identity and belonging; plan for the future care of their children. The course is designed to be delivered to: parents and other family members living with HIV and AIDS; future guardians of children affected by HIV and AIDS; community workers and volunteers working with children and families affected by HIV and AIDS. The manual draws significantly on the experiences and ideas of NACWOLA trainers and trainees, as well as those of Healthlink Worldwide and others. The course consists of 12 modules, covering child development, parenting, communication between parents, carers, guardians and children, HIV status disclosure, coping with separation, loss and grief, planning for children's future, involving children in planning, preparation for new care arrangements, making a memory book, and related legal aspects

HIV-related stigma, discrimination and human rights violations: case studies of successful programmes

JOINT UNITED NATIONS PROGRAMME ON HIV/AIDS (UNAIDS)
2005

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This report is a collection of case studies of projects, programmes and activities around the world that have used innovative methods to challenge HIV-related stigma, discrimination and human rights violations. The case studies are grouped under stigma-reduction approaches; anti-discrimination measures; and human rights and legal approaches. They are followed by some cross-project/activity analysis that identifies common elements and a number of key principles of success, each of which offers an entry point for innovative and potentially effective work

Providing antiretroviral treatment in southern Africa : a literature review

HEALTH SYSTEMS TRUST
February 2004

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This report outlines experience with ART in a number of sub-Saharan countries. ART is provided through a number of different avenues, which include the public sector, the non-profit sector, the corporate sector and the private sector. ART programmes may involve collaboration between two or more sectors with such partnerships being encouraged in recognition that the magnitude of the task may exceed the capacity of any one sector. Particular attention is paid to Botswana, the first sub-Saharan country to provide ART on a wide-scale through the public sector. The report consists of four chapters, focusing on provision of ART in the different sectors, challenges to scaling up ART programmes (including community preparedness and involvement of people living with HIV/AIDS, and issues for further research

Connecting to care : addressing the unmet need in HIV

AIDS ACTION FOUNDATION
2004

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This CD-ROM holds a workbook is about connecting people to medical care and health services in the United States of America. 17 methodologies from 9 different areas of the United States are described in this workbook. These are selected from a wide range of settings, including community based organisations, clinics, and housing services. All the methologies described address one central question: how does the activity help reconnect HIV positive people, who know their status, to healthcare? Although based on the context of health and social services available in the United States, some methods and activites might be of interest to people in low-resource settings

Orphans and vulnerable children in India : understanding the context and the response

GOLDMAN, Judith
ANASTASI, Marie-Christine
June 2003

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A report from a meeting for exchange and learning between organisations working with orphans and vulnerable children in India, looking community responses to working with this group. The experience of Plan International, Palmyrah Workers Development Society and the International HIV/AIDS Alliance was presented to the meeting. Specific responses to working with orphans and vulnerable children discussed in the report include lessons from a child participatory approach, prevention of mother-to-child transmission and the development of community action

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