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What are the most effective strategies for strengthening health systems for disability inclusive development? - Evidence brief

MACTAGGART, Islay
February 2021

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Health system strengthening refers to initiatives that improve one or more functions of health systems, leading to better health. There is a large body of evidence on what works to strengthen health systems in low- and middle-income countries (LMICs), much of which is aligned to the World Health Organization (WHO) health system building blocks (service delivery; health workforce; information; medical products, vaccines and technologies; financing; and leadership/governance). Despite the fact that some people with disabilities have additional health needs, and many face additional barriers to accessing healthcare, inclusion of people with disabilities is largely missing from this evidence base. Separately, a smaller evidence base exists on increasing the effectiveness of specific health-related services targeting people with disabilities, such as health-related Community Based Rehabilitation (CBR), rehabilitation services more broadly, and mental health services. This second evidence base is less closely aligned to the building blocks. Reviewing these outputs in parallel goes some way towards identifying effective strategies for strengthening health systems for disability inclusive development.

Realisation of sustainable development goals by, for and with persons with disabilities: UN flagship report on disability and development 2018

UNITED NATIONS DEPARTMENT FOR ECONOMIC AND SOCIAL AFFAIRS (UNDESA)
December 2018

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This report represents the first UN systemwide effort to examine disability and the Sustainable Development Goals (SDGs) of the 2030 Agenda for Sustainable Development at the global level. The report reviews data, policies and programmes and identifies good practices; and uses the evidence it reviewed to outline recommended actions to promote the realization of the SDGs for persons with disabilities. Over 200 experts from UN agencies and International Financial Institutions, Member States and civil society, including research institutions and organizations of persons with disabilities, contributed to this report. The report covers new areas for which no global research was previously available, for example, the role of access to energy to enable persons with disabilities to use assistive technology. It also contains the first global compilation and analysis of internationally comparable data using the Washington Group on Disability Statistics short set of questions. Reviews of legislation from 193 UN Member States were conducted and analysed for this report to highlight good practices and to assess the current status of discriminatory laws on voting, election for office, right to marry and others

Disability & the Global South (DGS), 2017, Vol. 4 No. 1 - Special issue: Disability in the Sustainable Development Goals: Critical Reflections

2017

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Articles include:

  • Editorial: Disability and the SDGs: is the battle over?
  • Entering the SDG era: What do Fijians prioritise as indicators of disability-inclusive education?
  • SDGs, Inclusive Health and the path to Universal Health Coverage
  • No One Left Behind: A review of social protection and disability at the World Bank
  • The capacity of community-based participatory research in relation to disability and the SDGs
  • Measuring Disability and Inclusion in relation to the 2030 Agenda on Sustainable Development

Roads to inclusion, a tool for identifying progress in community-based rehabilitation projects

February 2016

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The roads to inclusion tool has been developed by ENABLEMENT (the Netherlands) and LIGHT FOR THE WORLD on the basis of an action research programme carried out in Burkina Faso, Ethiopia and North East India. Communities in two sites of each country were asked to define what inclusion meant to them and those definitions were used as a basis for developing this tool. LIGHT FOR THE WORLD and ENABLEMENT hope this tool will support CBR teams in assessing communities’ progress in becoming more inclusive of persons with disabilities and planning activities to further the inclusion process. It promotes reflection on changes related to inclusion rather than judging projects on the impact of their work, and is thus not a tool for impact evaluation or comparing inclusion between different countries and cultures. The tool can be used in a variety of contexts. We recommend adjusting it to fit your organisation’s needs and seeing it as an inspiration on how it could be done, not as a prescription on how it should be done

Strengthening community and primary health systems for tuberculosis. A consultation on childhood TB integration

UNICEF
2016

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An estimated one million children between the age of 0-14 fall ill with tuberculosis (TB) every year, over 67 million children are infected and might develop active disease at any time. In 2013, the WHO with key partners launched the Roadmap for Childhood TB, outlining ten key actions to improve outcomes for children affected by TB, including improved data, development of child-friendly tools for diagnosis and treatment, engagement of key stakeholders at all levels of the system, and the development of integrated family- and community-centred strategies to provide comprehensive and effective services at the community level. A consultation on childhood TB integration took place in New York on June 1 and 2, 2016 to stimulate further the dialogue. The meeting addressed 7 topics: perspectives on childhood TB; country discussions on integration; integrating childhood TB interventions into service delivery; an opportunity for TB risk assessment at the community level: TB/HIV adapted integrated community case management (iCCM); childhood TB integration at the national, district, and community level; and financing childhood TB integration 

Capturing the difference we make : community-based rehabilitation indicators manual

WORLD HEALTH ORGANIZATION (WHO)
2015

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This manual presents indicators that "capture the difference (Community-Based Rehabilitation) CBR makes in the lives of people with disabilities in the communities where it is implemented. This manual presents these (base and supplementary) indicators and provides simple guidance on collecting the data needed to inform them. The indicators have been developed to show the difference between people living with a disability and their families and those without disabilities in relation to the information reported in the indicators. This comparability provides valuable information to CBR managers, donors and government agencies alike, which can be used to guide decision-making, support advocacy and improve accountability. Further, the ability of the indicators to provide a comparison of the populations of persons with disability to persons without disability aligns with the United Nations Convention on the Rights of Persons with Disabilities (CRPD), which states that persons with disability have equal rights to those without disabilities...this manual serves to standardize the monitoring of differences made by in the lives of people with disabilities and their families, making it possible to compare the difference CBR makes across areas and countries. This manual aligns with the WHO Global Disability Action Plan 2014–2021, and may also be used to monitor other development plans in an easy and efficient way”

Surviving polio in a post-polio world

GROCE, Nora
BANKS, Lena Morgan
STEIN, Michael Ashley
April 2014

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This paper reviews what is currently known about disabled survivors of polio and highlights areas of need in public health research, policy and programming. Based on a literature review, discussion and field observations, the authors identify continuing challenges posed by polio and argue that the attention, funding and commitment now being directed towards eradication be shifted to provide for the rehabilitative, medical, educational and social needs of those for whom the disabling sequelae of polio will remain a daily challenge for decades to come

Social Science & Medicine, Vol 107

Mainstreaming disability in disaster management : a toolkit

HANS, Asha
et al
2012

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The toolkit promotes an understanding of the main issues and concerns from the perspective of people with disabilities in the context of disasters and provides an understanding for integration and mainstreaming. The comprehensive toolkit provides a step by step approach for the inclusion of disability in disaster management. 

  • It provides the user with a resource to help plan in mainstreaming disability in disaster management
  • A guidance note, which summarizes the mainstreaming needs and enables users to understand them from the perspective of a Person with Disability.
  • A guidance on the most appropriate methodology to be adopted for including disability in the disaster management process, to monitor and evaluate it; a good practice scenario and a road map.
  • A checklist for use and FAQs are provided in the last section. Section wise essential readings and a reference, which refers specifically to the issue, has been provided to give the background and deeper understanding. Most of these are accessible through the Internet. At the end of the document additional references are provided. This section refers to the most important writings, handbooks and guidelines available. As very few resources have been developed on the subject, generic material has been included

​This toolkit is intended for use by policy makers, government officials, members of Panchayati Raj Institutions, non-government organisations, disabled peoples organisations and disaster management practitioners

Personalised social support : thoughts, method and tools in an approach of proximity social services

RELANDEAU, Audrey
et al
May 2010

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This paper is a methodological guide to personalised social support to enhance understanding, thinking about and practising this approach to social work. It is targeted at field workers and public services’ or association advisers responsible for receiving, informing, guiding and supporting people with disabilities and other vulnerable groups.
This guide is divided into three sections. First, a "principles and benchmarks" section explores the theoretical aspects of social work, development and personalised social support. This section is followed by a "Practical guide" targeted at social workers, facilitators and advisers responsible for providing support and provides an in-depth guide to implementing personalised social support, based on various intervention techniques and practical tools. This section also offers a section devoted to project managers or social mecha¬nism coordinators, featuring benchmarks for the development and follow-up of a social support service. The third section features a "Toolbox" consisting mainly of tools sourced from Handicap International programmes

Packages of care for depression in low- and middle-income countries

PATEL, Vikram
SIMON, Gregory
CHOWDHARY, Neerja
KAAYA, Sylvia
ARAYA, Ricardo
October 2009

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This article focuses on the effective management of depression in low- and middle-income countries, reviewing the evidence on efficacy of treatments and delivery of interventions derived from those countries to the extent possible

The epidemic divide

HEALTH AND CARE DEPARTMENT, INTERNATIONAL FEDERATION OF RED CROSS AND RED CRESCENT SOCIETIES (ICRC)
July 2009

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The burden of epidemics of infectious diseases on the social and economic development of poorer countries is growing, but is not being sufficiently addressed. This paper argues that to reduce the impact of epidemics involves addressing complex issues that include prevention of disease, empowering communities, better access to health services at the community level, availability of health personnel and better infrastructure (especially for water and sanitation)

Child health : generating the will

WORLD VISION
2009

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This edition of Global Future explores the nature of political will and what is required to reduce rates of under-five mortality and realise Millennium Development Goals (MDG) four (to reduce under-five mortality) and five (to improve maternal health). Authors from around the world lay out the "why, who, what and how" of the actions needed to realise these MDGs and get more countries on track quickly. At the time of publication only 16 of the 68 countries with the highest rates of child death were on track to reach MDG four

The role of partnerships in health equity

TUTU, Desmond
November 2008

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This commentary sees working in partnership as key to tackling the disparity in access to health care throughout the world. It cites the Medical Knowledge Institute's programmes for addressing HIV in Africa as an example of successful partnerships.

World health report 2008|Primary health care : now more than ever

WORLD HEALTH ORGANIZATION (WHO)
2008

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This report considers four sets of reforms that reflect a convergence between the values of primary health care, the expectations of citizens and the common health performance challenges that cut across all contexts. These include: universal coverage reforms, service delivery reforms, public policy reforms, and leadership reforms. "While universally applicable, these reforms do not constitute a blueprint or a manifesto for action. The details required to give them life in each country must be driven by specific conditions and contexts, drawing on the best available evidence"

ILEP learning guide four : how to prevent disability in leprosy

CROSS, Hugh
MAHATO, Margaret
2006

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"This book is for all health workers who may have to help people who have nerve damage to their eyes, hands and feet. It will help them to encourage patients to develop a lifetime habit of caring for nerve-damaged parts. The content of this book complements the recommendations in the Operational Guidelines of the World Health Organization"
Note: This resource is available to download in three parts

Reaching the most vulnerable : proposed supplement to the standard rules on the equalization of opportunities for persons with disabilities | Report of the Special Rapporteur of the Commission for Social Development on monitoring the implementation of th

LINDQVIST, Bengt
2002

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The Standard Rules is one of the most important tools for the inclusion of disabled people. In 2002 the United Nations special rapporteur presented a supplement for the standard rules which aims to fill the gaps within the standard rules and complement its text mentioning poverty alleviation, adequate housing and living conditions, special attention for disabled people in emergency situations, gender aspects and others. At the 42nd session of the Commission for Social Development in February 2004 it was suggested that this supplement for the standard rules be adopted.

Global health observatory (GHO)

WORLD HEALTH ORGANIZATION (WHO)

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The Global Health Observatory (GHO) provides access to WHO's global health-related statistics. The aim of the GHO is to: compile and verify major sources of health data; provide easy access to country data and metadata; present scientifically sound information in user-friendly formats. Specific areas are provided for theme pages, a data repository, reports, country statistics, a map gallery and standards

Journal of human development, disability and social change

GAUCHER, Charles
Ed

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The bilingual Journal of Human Development, Disability and Social Change focuses on the development and diffusion of knowlege about personal and environmental determinants of the social participation of people with disabilities. The journal values "interdisciplinary", "cross-disability" and "transgenerational" perspectives: all disciplines, impairments and disabilities, as well as age groups are included. The publication accepts submissions from authors discussing about the rehabilitation, adaptation, social participation and people with disabilities human rights fields
Two issues per year

ICF education

WHO FUNCTIONING AND DISABILITY REFERENCE GROUP (FDRG)

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A web portal for the International Classification of Functioning, Disability and Health (ICF) education materials. The portal is for sharing resources as well as for finding materials, and resources are available in a variety of languages including English, French, Dutch, German, Portuguese and Finnish

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