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Impact of parenting a child with cerebral palsy on the quality of life of parents: A systematic review of literature

RAMANANDI, Vivek H
PARMAR, Trupti Rudra
PANCHAL, Juhi Kalpesh
PRABHAKAR, M M
et al
2019

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Purpose: The implications of parenting a child with cerebral palsy (CP) are multifaceted, as parents have to cope with their child’s functional limitations and specific needs, and prepare for the possibility of long-term dependence. There has been significant research on the consequences of managing these parenting tasks. This article reviews the literature on the effects of parenting children with CP, and summarises the related factors.

 

Methods: A systematic search of online databases was conducted and, based on the reference lists of selected articles, further studies were identified. Thirty-six articles that met the inclusion criteria were analysed.

 

Conclusion & Implication: Parents of children with CP were found to have lower quality of life, associated with high levels of stress and depression, due to factors such as child behaviour and cognitive problems, low caregiver self-efficacy and low social support. The implications of these findings in relation to the planning and development of interventions addressing the family as a whole are discussed. The aim is to enhance parents’ competence and resources so that they are better able to cope with the demands of parenting their children.

 

 

Disability, CBR and Inclusive Development, Vol 30, No 1 (2019)

Problem Management Plus (PM+) Individual psychological help for adults impaired by distress in communities exposed to adversity

WORLD HEALTH ORGANIZATION
2016

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With this manual, the World Health Organization (WHO) is responding to requests from colleagues around the world who seek guidance on psychological interventions for people exposed to adversity.

The manual describes a scalable psychological intervention called Problem Management Plus (PM+) for adults impaired by distress in communities who are exposed to adversity. Aspects of Cognitive Behavioural Therapy (CBT) have been changed to make them feasible in communities that do not have many specialists. To ensure maximum use, the intervention is developed in such a way that it can help people with depression, anxiety and stress, whether or not exposure to adversity has caused these problems. It can be applied to improve aspects of mental health and psychosocial well-being no matter how severe people’s problems are.

Psychosocial counselling and social work with clients and their families in the Somali context : a facilitator’s guide

OFFICE OF THE HIGH COMMISSIONER FOR HUMAN RIGHTS (UNHCR)
November 2009

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This handbook is "designed to be used as training support handbook for helping professionals in the Somali context. The focus is on psychosocial needs for the rehabilitation of persons with trauma, mental health related forms of distress and those who have experienced gender based violence and gender related abuses. The guidelines, developed within a UNHCR funded programme in Somalia, are intended to assist staffs, who are concerned with providing protection and assistance to refugees and IDP"

A handbook for network support agents and other community workers supporting HIV prevention, care, support and treatment

March 2009

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This manual is intended to help network support agents and other community workers be more effective in disseminating standardised information about HIV and AIDS. It "...emphasises the importance of the acquisition of knowledge, skills and the right attitude needed to identify the psychosocial needs of people of people infected and affected by HIV/AIDS and address these needs by giving information, counselling and appropriate referrals. Knowledge of counselling and psychosocial care, is combined as much as possible with prevention activities such as adopting HIV basic care positive prevention and adherence to treatment"

Future sight loss UK (2) : an epidemiological and economic model for sight loss in the decade 2010 to 2020

MINASSIAN, Darwin
REIDY, Angela
2009

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This report provides estimates of the numbers of persons that were likely to have age-related macular disease, cataract, diabetic retinopathy and glaucoma at two points in time 2010 and 2020. Estimates of the baseline and cumulative costs to society of the prevailing health and social care provision and support in that time frame are provided using a cost of illness approach from the societal perspective. Useful figures and tables are provided to present the results

Introduction to child protection in emergencies : an interagency modular training package|Child protection in emergencies training and resource CD : psychosocial module

CHILD PROTECTION WORKING GROUP (CPWG)
2009

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This document is the psychosocial module of the Introduction to Child Protection in Emergencies and Interagency Modular Training Package. This module is divided into the following sections:
Part 1 presents a background to psychosocial issues including the overall impact of emergencies on psychosocial well-being, psychosocial effects of emergencies on children, and legal framework and advocacy activities.
Part 2 intervention planning presents psychosocial programming principles and priority activities, and co-ordination and sector support.
Part 3 psychosocial programming presents addressing basic services and security developing community and family supports, focused supports, and referrals to specialised services
This comprehensive document will be of particular interest to NGOs, DPOs, international and national bodies and anyone else interested in child protection and psychosocial work with children and their families
Note: The core resources for this module are the Inter-Agency Standing Committee (IASC) Guidance on Mental Health and Psychosocial Support in Emergency Settings and the key interventions of the Sphere Handbook (2004) Standard for Mental and Social Aspects of Health

Disability among clients attending Taif Rehabilitation Centre, Saudi Arabia

AL-SHEHRI, Abdul-Salam A
ABDEL-FATTAH, Moataz M
2008

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This is a cross-sectional study of hospital records of people who were admitted to Rehab Armed Forces Rehabilitation Center, Taif, Saudi Arabia from 1999- 2005. Eight hundred and fifty records were reviewed. Data were collected on age, sex, nationality, data of admission and discharge and type of disability. Univariate and multivariate logistic regression analysis were performed to determine predictors of long stay at the hospital. Trauma as an etiology of disability was more common than non-traumatic incidents among male and middle aged clients (16-45 years). Traumatic accidents mostly result in quadriplegia (72.8%). Male, single, less than 45 years old, people with traumatic accidents and people with paralytic types of disability were significantly more likely to stay longer at the hospital. Home care programme should be expanded to minimize duration of stay at the rehabilitation centres. Health education of the public would help in encouraging disabled people to adapt to daily life activities.

The medical peace work textbook

ROWSON, M
MELF, K
Eds
2008

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This textbook provides an introduction to medical peace work and includes chapters relating to human rights; the causes and health effects of war and violent conflict; how health workers can promote peace-building and reconstruction; and the health and well-being needs of refugees and immigrants. The book is aimed at doctors, nurses, public health workers and other health professionals, and students. This e-textbook is part of an online course on Medical Peace Work. The book can be consulted, downloaded, or printed for free without registering for the course

Guidelines for essential trauma care

MOCK, C
et al
2004

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These guidelines provide a series of resource tables for essential trauma care that detail the human and physical resources that should be in place to assure optimal care of the injured patient at a range of health facilities throughout the world. The health facilities range from rural health posts, to small hospitals staffed by general practitioners, to hospitals staffed by specialists, to tertiary care centres. They also offer a series of recommendations on methods to promote such standards including training, performance improvement, trauma team organisation and hospital inspection.
The guidelines are a collaboration between the World Health Organization, the International Society of Surgery and the International Association for the Surgery of Trauma and Surgical Intensive Care

Rehabilitation for persons with traumatic brain injuries

WORLD HEALTH ORGANIZATION (WHO)
et al
2004

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This manual is intended for mid-level rehabilitation workers and primary health care personnel as an educational and instructional tool to use for their work with persons who have sustained traumatic brain injury (TBI), their families and members of their communities including teachers and their potential employers. Drawings are provided to help clarify safety guides, training instructions and the steps involved in making specific adaptive devices

Where there is no psychiatrist : a mental health care manual

PATEL, Vikram
2003

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This is a practical manual about mental health care, aimed at community health workers, primary care nurses, social workers and primary care doctors. It describes more than 30 clinical problems associated with mental illness, using a problem-solving approach to guide the reader through their assessment and management. It addresses the lack of understanding of mental health among many health workers

Primary prevention of mental, neurological and psychosocial disorders

WORLD HEALTH ORGANIZATION (WHO)
1998

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This book describes a number of simple and effective measures for the primary prevention of selected mental, neurological, and psychosocial disorders. Addressed to policy-makers as well as mental health professionals, the book aims both to increase awareness of the potential of primary prevention and to encourage the use of specific interventions. Four disorders are covered: mental retardation, epilepsy, suicide, and burnout of health care staff. Each disorder is discussed according to a common format that includes information on the size of the problem, risk factors and causes, and measures available for primary prevention. The book adopts a public health approach, arguing that the multifactorial causes of most mental and neurological disorders requires broad-based strategies involving many different sectors. Recommended lines of action range from simple procedures to measures at the legislative level. [Publisher's abstract, amended]

Transferring palliative care from institutions to communities

SOUTHERN AFRICAN AIDS TRAINING PROGRAMME (SAT)

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This brief publication describes the issues in home- or community-based care for chronically or terminally ill people, including those living with HIV/AIDS. It describes a project at the Island Hospice and Bereavement Service in Zimbabwe, which integrated 'traditional' home-based care (HBC) and the specialised palliative care and bereavement support offered at the hospice. It concludes that HBC projects that are linked to and supported by institutions such as hospices are able to integrate specialised skills in palliative care and bereavement support into their on-going work

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