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Coordination between health and rehabilitation services in Bangladesh: Findings from 3 related studies

PRYOR, Wesley, HASAN Rajib
MARELLA, Manjula
NGUYEN, Liem
SMITH, Fleur
JALAL, Faruk Ahmed
CHAKRABORTY, Ripon
HAQUE, Mazedul
MOSTOFA, Golam
HASAN, Rajib
April 2019

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The unmet need for rehabilitation is profound and is likely to worsen as population health shifts towards longer lives lived with more ill-health and disability. The WHO Global Action Plan on Disability and the Rehabilitation 2030 framework [1] call for quality evidence to inform targeted responses.
The intent of this work is to examine six IDSCs (Integrated Disability Service Centres) in detail but to use the results to inform new activities through the network of more than 100 Integrated Disability Service Centres, with potential to influence practice in other services. As such, results of this work have the potential to directly inform policy decisions concerning future investments in rehabilitation services in Bangladesh and bring awareness to key stakeholders on current challenges and potential solutions.

Research was conducted during March-October 2018 in Kurigram, Tangail, Manikgonj, Dhaka and Narsingdi districts of Bangladesh to map out the current trends and determinants of good coordination
between health and rehabilitation, emphasising quantitative measures of: timeliness, continuity, acceptability, availability and integration

Disability and global health: Special issue of International Journal of Environmental Research and Public Health

KUPER, Hannah
POLAK, Sarah
Eds
2019

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Papers included in this special issue are:

 

The waiting list. Addressing the immediate and long-term needs of victims of explosive weapons in Syria

O'REILLY, Claire
et al
2019

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This report looks at the challenges linked to the use of explosive weapons in the Syrian context for the provision of adequate immediate assistance and to plan for mid- to long-term assistance to the victims of explosive violence, to ensure their full recovery and inclusion into society. It is based on data and testimonies collected from humanitarian agencies, actors and patients across all areas of control in Syria. The testimony of Farah, a Syrian girl injured during the bombing of her school, and of her mother, is shared throughout the report to illustrate the challenges faced by victims. 

This report was compiled from June to August 2019 and relies on multiple sources, including review of both gray and academic literature, published and unpublished data from INGOs working in Syria response, firsthand interviews with patients and Syrian humanitarians working both inside Syria and from cross-border locations, and expatriate staff from INGOs and UN agencies. Interviews were conducted at a distance during June and July 2019 with 12 individuals, among which: 2 patients; 3 mine action operators; 4 medical staff, and 3 humanitarian workers 

Report of the informal consultation on stopping discrimination and promotion inclusion of persons affected by Leprosy. New Delhi, 14–16 Nov 2017

COOREMAN, Erwin
WHO SEARO/Department of Control of Neglected Tropical Diseases
et al
2018

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An Informal Consultation on Stopping Discrimination and Promoting Inclusion of Persons Affected by Leprosy was held in New Delhi from 14 to 16 November 2017. Forty delegates with diverse backgrounds, experience and expertise enriched the discussions. Persons affected by leprosy brought to the table the challenges faced in daily life and suggested actions to be taken to reduce stigma and discrimination related to leprosy. Representatives of national programmes presented actions taken in their respective countries. The participants acknowledged the fact that stigma and discrimination related to leprosy still exists at a significant level. Information about stigma and discrimination related to leprosy needs to be collected in a more systematic manner to assess the magnitude of the problem and to further plan activities to reduce it.

Key recommendations from the consultation included counselling and reporting of incidences of discrimination. Efforts should be continued to inform facts about leprosy to the community.

The participants strongly recommended that leprosy programmes should adopt a ‘rights-based approach’ in line with the Sustainable Development Goals.

Strengthening community and primary health systems for tuberculosis. A consultation on childhood TB integration

UNICEF
2016

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An estimated one million children between the age of 0-14 fall ill with tuberculosis (TB) every year, over 67 million children are infected and might develop active disease at any time. In 2013, the WHO with key partners launched the Roadmap for Childhood TB, outlining ten key actions to improve outcomes for children affected by TB, including improved data, development of child-friendly tools for diagnosis and treatment, engagement of key stakeholders at all levels of the system, and the development of integrated family- and community-centred strategies to provide comprehensive and effective services at the community level. A consultation on childhood TB integration took place in New York on June 1 and 2, 2016 to stimulate further the dialogue. The meeting addressed 7 topics: perspectives on childhood TB; country discussions on integration; integrating childhood TB interventions into service delivery; an opportunity for TB risk assessment at the community level: TB/HIV adapted integrated community case management (iCCM); childhood TB integration at the national, district, and community level; and financing childhood TB integration 

Human Rights

www.macao-tz.org
December 2014

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Malezi AIDS Care Awareness Organization (MACAO) is a non-profit organization reaching out to neglected Indigenous people in Ngorongoro District, Arusha Region of Northern Tanzania.  Macao founded in 2003, Macao is a humanitarian organization that provides assistance to approximately 200,000 Indigenous Maasai community in Ngorongoro district for addressing needs of water and sanitation, food security, health Care Research, Education, Research environment, Maasai Traditional Research, Human Rights and sustainable economic development by strengthening their livelihoods.  In addition to responding to major relief situations, MACAO focuses on long-term community development through over 4 Area Development Project. We welcome the donors and volunteers to join us in this programs, we are wolking in ruro villages.

Equal basis 2014 : access and rights in 33 countries

BURKE, Megan
PERSI VICENTIC, Loren
December 2014

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This report presents research about efforts to meet the needs and uphold the rights of persons with disabilities in four thematic areas: health care, rehabilitation, work and employment, and accessibility and enabling environments. Research findings are drawn from the experiences of landmine and cluster munition survivors and other persons with similar needs in 33 countries experiencing armed conflict or emerging from armed conflict or political or economic transition. Findings are placed within the context of relevant articles of the Convention on the Rights of Persons with Disabilities and the World Report on Disability

Community-based rehabilitation (CBR) and persons with intellectual disabilities : international workshop report

SUNIL, Deepak
Ed
March 2013

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This report presents a summary of the main issues and conclusions from a CBR and persons with intellectual disabilities workshop. The workshop’s four sessions included "a session on health care needs led by Alaa Sebeh; a session on inclusive education led by Katharina Pfortner; a session on livelihoods and economic independence led by Philipa Bragman; and lastly, a session on social participation and empowerment led by Kathy Al Ju’beh." At the end of the workshop the participants agreed to establish an electronic group/network on CBR and intellectual disabilities. All presentations can be accessed from the website in pdf format
"CBR and Persons with Intellectual Disabilities"
Agra, India
24-25 November 2012

Common European guidelines on the transition from institutional to community based care|Guidance on implementing and supporting a sustained transition from institutional care to family-based and community-based alternatives for children, persons with dis

THE EUROPEAN EXPERT GROUP ON THE TRANSITION FROM INSTITUTIONAL TO COMMUNITY BASED CARE (EEG)
November 2012

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These guidelines "provide practical advice about how to make a sustained transition from institutional care to family-based and community based alternatives for individuals currently living in institutions and those living in the community, often without adequate support. The Guidelines are aimed primarily at policy and decision makers in the European Union and the neighbouring countries with responsibility for the provision of care and support services for children, people with disabilities and their families, people with mental health problems and older people"

Independence, choice and control : DLA and personal mobility in state-funded residential care|Volume 1 : report

THE LOW REVIEW
2011

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This report focuses upon: how the mobility component of DLA is being used by care home residents and the impact of the loss of this benefit; funding arrangements for meeting personal mobility needs between local authorities and care home providers; and responsibilities of care home providers in relation to the mobility needs of residents. Over 800 submissions from individuals, local authorities and providers were provided , and six oral evidence sessions were held for the compilation of this report
The executive summary and report are available in both word and pdf formats
Oral and written evidence is contained in volume 2 available on the website

Feminist psychology and women with disabilities : an emerging alliance

BANKS, Martha E
December 2010

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"This article is an application of the Guidelines for Psychological Practice with Girls and Women to psychological issues faced by Women with Disabilities. It includes culture-specific issues faced by Women with Disabilities, the multiple roles of Women with Disabilities, the importance of informal support systems, and the intersection between feminism and disability...Perspectives of health professionals, disability advocates, and family members are provided to identify issues that need to be included in a comprehensive psychology of Women with Disabilities"
Psychology of Women Quarterly, Vol 34, No 4

Backbone principles of the CBR Guidelines and their application in the field of leprosy

VELEMA, Johan P
CORNIELJE, Huib
January 2010

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This paper summarises the draft CBR guidelines of WHO/ILO/Unicef into 3 principles: inclusion, empowerment, sustainability. Existing work with people affected by leprosy is reviewed in light of these CBR principles to formulate new strategies and make changes if necessary. The paper also presents experiences from the field with inclusion of leprosy-affected persons in multi-disability self-help groups and disabled people’s organisations
Asia Pacific Disability Rehabilitation Journal, Vol 21, No 1

The medical peace work textbook

ROWSON, M
MELF, K
Eds
2008

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This textbook provides an introduction to medical peace work and includes chapters relating to human rights; the causes and health effects of war and violent conflict; how health workers can promote peace-building and reconstruction; and the health and well-being needs of refugees and immigrants. The book is aimed at doctors, nurses, public health workers and other health professionals, and students. This e-textbook is part of an online course on Medical Peace Work. The book can be consulted, downloaded, or printed for free without registering for the course

Integrating mental health into primary care : a global perspective

WORLD HEALTH ORGANIZATION (WHO)
WORLD ORGANIZATION OF FAMILY DOCTORS (WONCA)
2008

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This report provides the rationale and know-how on integrating mental health into primary health care. It outlines primary care for mental health in context and then presents primary care for mental health in practice, highlighting 12 case studies and key lessons learnt from specific countries. A detailed annex on the core functions of primary care workers is provided, as well as 10 core principles of mental health integration. This resource is useful to anyone interested in integrating mental health into primary care

Community mental health policy

RADTKE, B
et al
2008

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This resource presents CBM’s community mental health (CMH) policy which "is human rights based, seeks to empower service users and facilitate their active participation in service provision, is culture, poverty and gender sensitive and based upon collaboration and networking with other organizations and the public sector." There are two main delivery models: integration of CMH into existing community-based rehabilitation (CBR) programmes, and implementation of CMH services into primary health care services provided by the government with sharing of resources or the implementation of stand-alone CMH services. This resource is useful for people interested in community mental health policy

Pneumonia : the forgotton killer of children

WARDLAW, Tessa
WHITE JOHANSSON, Emily
HODGE, Matthew
2006

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This report examines the epidemiological evidence on the burden and distribution of pneumonia and assesses current levels of treatment and prevention. The report aims to raise awareness of pneumonia and to serve as a call to action to reduce child deaths from pneumonia

Scaling up access to HIV prevention, treatment, care and support: the next steps

Joint United Nations Programme on HIV/AIDS (UNAIDS)
2006

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This is a review of country and regional consultations undertaken by UNAIDS, following the United Nations' Political Declaration on HIV and AIDS in June 2006. It explores barriers to UNAIDS' commitment to ensure universal access to comprehensive HIV prevention programmes, treatment, care and support by 2010; and it identifies the next steps that need to be taken for this to become a reality. The key messages are the need for: supportive and protective legislation and programmes to ensure the rights of people living with HIV, women and most-at-risk populations; predictable and sustainable funding for all credible AIDS plans; more trained health care professionals and improved health care systems; and affordable medication, testing and prevention programmes. The review also examines the role of civil society and of faith-based organisations in supporting people with HIV through treatment compliance, prevention, support, care and reducing stigma. It recommends that the high level of response should continue, that targets need to be set and accountability mechanisms improved

Expanding access to HIV treatment through community-based organisations

SIDACTION
JOINT UNITED NATIONS PROGRAMME ON HIV/AIDS (UNAIDS)
WORLD HEALTH ORGANIZATION (WHO)
July 2005

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This UNAIDS Best Practice Collection document aims to highlight and advocate for the work of civil society, community based organisations in particular, in responding to the AIDS epidemic in Africa. The paper describes a ground breaking survey by Sidaction, a Paris based treatment rights group, which supports community responses to AIDS in low and middle income countries. In 2004, Sidaction, in cooperation with the UNAIDS secretariat and WHO mapped treatment and care efforts by community based organisations in Africa. Many community based organisations are already dispensing ARVs on a significant scale. The survey confirmed that community efforts to provide treatment represent an important opportunity to enrol more people in antiretroviral therapy. To seize this opportunity, national governments and the international community need to quickly provide support to expand the coverage and impact of community based treatment. The aim is for CBOs to work closely with the public sector so that each reinforces the efforts of the other

Analysis of aid in support of HIV/AIDS control, 2000-2002

DAC
JOINT UNITED NATIONS PROGRAMME ON HIV/AIDS (UNAIDS)
June 2004

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This report is a review of statistical data on aid to HIV/AIDS control. It was compiled by the Development Assistance Committee (DAC) Secretariat in collaboration with the members of the DAC Working Party on Statistics (WP-STAT) and UNAIDS between February and May 2004. The key findings are presented concerning total official development assistance commitments for HIV/AIDS control, and bilateral aid. It also includes contributions to the Global Fund to fight AIDS, Tuberculosis and Malaria. The report notes that larger donors especially multilaterals are the main funders of treatment programmes, which require substantial funding and long term commitments. Smaller donors tend to concentrate on HIV prevention, but also support home-based care and social mitigation activities

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