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Evaluating the impact of a community–based parent training programme for children with cerebral palsy in Ghana

ZUURMOND, Maria
et al
January 2017

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"Cerebral palsy is the most common cause of physical disability in children worldwide, and yet in most low resource settings there are few services available to support children with cerebral palsy or their families. Research is required to understand the effectiveness of community and/or home based programmes to address this gap. This 2-year study aimed to evaluate a participatory caregiver training programme called ‘Getting to know cerebral palsy’ in Ghana. The training programme consisted of a monthly half-day support group with training, and a home visit, delivered across eight sites in Ghana over 10 months. A total of 76 families and children were included at baseline and 64 families followed up one year later at endline. Children were aged between 18months and 12 years with a mean of 3.8 years and a range of severity of cerebral palsy. Nearly all (97%) the caregivers were female and the father was absent in 51% of families. The study was a pre-post intervention design using mixed methods to evaluate the impact. A baseline and endline quantitative survey was conducted to assess caregiver quality of life (QoL) and knowledge about cerebral palsy and child feeding, health, and nutrition outcomes. Qualitative data was collected to explore the impact and experiences of the training programme in more depth".

The epidemic divide

HEALTH AND CARE DEPARTMENT, INTERNATIONAL FEDERATION OF RED CROSS AND RED CRESCENT SOCIETIES (ICRC)
July 2009

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The burden of epidemics of infectious diseases on the social and economic development of poorer countries is growing, but is not being sufficiently addressed. This paper argues that to reduce the impact of epidemics involves addressing complex issues that include prevention of disease, empowering communities, better access to health services at the community level, availability of health personnel and better infrastructure (especially for water and sanitation)

Closing the gap in a generation : health equity through action on the social determinants of health|Final report of the Commission on the Social Determinants of Health

WORLD HEALTH ORGANIZATION (WHO)
2008

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This is the final report of the World Health Organization’s Commission on the Social Determinants of Health (2005-2008). The report gives three main recommendations: 1 improve daily living conditions 2. Tackle the inequitable distribution of power, money, and resources 3. Measure and understand the problem and assess the impact of action. The Commission was created to provide evidence on policies that improve health by addressing the social conditions in which people live and work. The report is addressed to WHO, national governments, civil society, and other global organizations

Reaching the most vulnerable : proposed supplement to the standard rules on the equalization of opportunities for persons with disabilities | Report of the Special Rapporteur of the Commission for Social Development on monitoring the implementation of th

LINDQVIST, Bengt
2002

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The Standard Rules is one of the most important tools for the inclusion of disabled people. In 2002 the United Nations special rapporteur presented a supplement for the standard rules which aims to fill the gaps within the standard rules and complement its text mentioning poverty alleviation, adequate housing and living conditions, special attention for disabled people in emergency situations, gender aspects and others. At the 42nd session of the Commission for Social Development in February 2004 it was suggested that this supplement for the standard rules be adopted.

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