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Uniting to combat neglected tropical diseases 2018 Action Framework Report

UNITING TO COMBAT NEGLECTED TROPICAL DISEASES
2019

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From 2013 to 2017, the Uniting to Combat Neglected Tropical Diseases (“Uniting”) partnership has produced an annual scorecard and report to celebrate progress and highlight the principal challenges. The Uniting partnership reviewed the scorecard approach in 2017. The initial scoring process was associated with several challenges in terms of inconsistent indicators across diseases and the number of subjective judgements required to arrive at a final score. The scorecard review resulted in a transition from a scoring approach to a collaborative assessment of progress, gaps and priorities, and identification of areas for collective action. Two new tools replaced the scorecard: the Action Framework and the Impact Dashboard. The Action Framework is a standardized gap analysis tool. It uses qualitative input from stakeholders across the NTD community and fosters dialogue and collective action among a broad set of stakeholders. The Impact Dashboards display quantitative data sourced from WHO and pharmaceutical companies, with standardized indicators across the PC and IDM diseases, to provide a high-level view of impact and gaps at the global level. 

Cochrane Rehabilitation Methodology Committee: an international survey of priorities for future work

LEVACK, William
et al
October 2017

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Cochrane Rehabilitation aims to improve the application of evidence-based practice in rehabilitation. It also aims to support Cochrane in the production of reliable, clinically meaningful syntheses of evidence related to the practice of rehabilitation, while accommodating the many methodological challenges facing the field. To this end, Cochrane Rehabilitation established a Methodology Committee to examine, explore and find solutions for the methodological challenges related to evidence synthesis and knowledge translation in rehabilitation. An international online survey was conducted via Cochrane Rehabilitation networks to canvass opinions regarding the future work priorities for this committee and to seek information on people’s current capabilities to assist with this work. One of the areas of debate concerned whether and how work on the application of Cochrane methods in low and middle income countries should be prioritised.

 

Eur J Phys Rehabil Med 2017;53:814-7

DOI: 10.23736/S1973-9087.17.04958-9

Including children with disabilities in humanitarian action

UNICEF
July 2017

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"The purpose of Including Children with Disabilities in Humanitarian Action is to strengthen the inclusion of children and women with disabilities, and their families, in emergency preparedness, response and early recovery, and recovery and reconstruction. This series of booklets provides insight into the situation of children with disabilities in humanitarian contexts, highlights the ways in which they are excluded from humanitarian action, and offers practical actions and tips to better include children and adolescents with disabilities in all stages of humanitarian action. The booklets were created in response to UNICEF colleagues in the field expressing a need for a practical resource to guide their work. The information and recommendations are based on evidence and good practices gathered from literature and field staff experiences. The six booklets on how to include children and adolescents with disabilities in humanitarian programmes are as follows: 1) general guidance; 2) child protection; 3) education; 4) health and HIV/AIDS; 5) nutrition; 6) water, sanitation and hygiene (WASH)".

General guidance available July 2017. Others to follow.

In addition to the PDF versions in English, Arabic and French, the guidance is also available in a range of accessible formats, including EPUB, a Braille-ready file and accessible HTML formats. 

The guidance was developed in collaboration with Handicap International.

Promoting good policy for leadership and governance of health related rehabilitation: a realist synthesis

MCVEIGH, Joanne
MACLACHLAN, Malcolm
GILMORE Brynne
MACLEAN Chiedza
EIDE, Arne H.
MANNAN Hasheem
GEISER Priscille
DUTTINE Anthony
MJI Gubela
MACAULIFFE Eilish
SPRUNT Beth
AMIN Mutamad
NORMAND Charles
et al
August 2016

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General principles requiring contextual adaptation regarding optimal policy related governance of health related rehabilitation in less resourced settings were developed from a literature review and realistic synthesis. A systematic review of literature published since 2003 was carried out. Multiple reviewers selected articles for inclusion in the realistic synthesis.  A Delphi survey of expert stakeholders refined and triangulated findings from the realist synthesis. Context mechanism outcome pattern configurations (CMOCs) were identified from the literature and then developed into statements for the Delphi survey, whereby 18 expert stakeholders refined these statements to achieve consensus on recommendations for policy related governance of health related rehabilitation. Several broad principles emerged throughout formulation of recommendations: participation of persons with disabilities in policy processes; collection of disaggregated disability statistics; explicit promotion in policies of access to services for all subgroups of persons with disabilities and service-users; robust inter-sectoral coordination; and ‘institutionalising’ programmes.

 

 

WCPT report : the role of physical therapists in disaster management

SKELTON, Peter
SYKES, Catherine
et al
March 2016

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This report has two main aims: to highlight the need for physical therapist involvement in disaster management and particularly in Emergency Medical Teams (EMTs); and to brief physical therapists who want to work in the field, and national and international agencies who are already working in the field. Following an introduction to the topic of disasters, the paper outlines in separate sections the three phases of disaster management most relevant to physical therapists: preparedness; response; and recovery. Each section includes information on the role of physical therapists and details guidelines and resources to support practice in disaster management. Case studies include: Nepal, 2015 April earthquake; 2011- great East Japan earthquake; integration of rehabilitation professionals into the UK Emergency Medical Team; Nepal, 2011 onwards; Phillipines, typhoon Sendong, 2011;  Phillipines, typhoon Haiyan, November 2013; Haiti, 2011- physical therapy in post-earthquake recovery and reconstruction; Pakistan, earthquake Oct 2005; Phillipines, typhoon Bopha 2012-2013.

WHO Global disability action plan 2014-2021

WHO Disability and Rehabilitation Team
2014

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The WHO global disability action plan 2014-2021 is a significant step towards achieving health and well-being and human rights for people with disabilities. The action plan was endorsed by WHO Member States in 2014 and calls for them to remove barriers and improve access to health services and programmes; strengthen and extend rehabilitation, assistive devices and support services, and community-based rehabilitation; and enhance collection of relevant and internationally comparable data on disability, and research on disability and related services. Achieving the objectives of the action plan better enables people with disabilities to fulfil their aspirations in all aspects of life.

Guidance note on disability and emergency risk management for health

WORLD HEALTH ORGANIZATION (WHO)
et al
2012

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"The Guidance note on disability and emergency risk management for health is a short, practical guide that covers actions across emergency risk management, such as risk assessment, prevention, preparedness, response, recovery and reconstruction. Developed primarily for health actors working in emergency and disaster risk management at the local, national or international level, and in governmental or nongovernmental agencies, the guidance note points out the health-related actions that are required to ensure that both mainstream and specific support are available and accessible to people with disabilities in emergencies"

Disability, inclusion and development : key information resources

SOURCE INTERNATIONAL INFORMATION SUPPORT CENTRE
December 2005

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This directory of information resources pulls together over 300 of the most practical and useful books, reports, videos, CD-ROMs and websites on disability. It is aimed at organisations working with disabled people in developing countries. Organised thematically, It covers a wide range of issues including human rights, gender, poverty and mainstreaming, as well as planning and management of disability programmes and service delivery relating to children, community-based rehabilitation, mental health and HIV and AIDS. The directory provides a quick reference listing of information resources with clear abstracts and details of distributors and websites, while the CD-ROM contains many published and un-published full-text documents, as well as links to websites for those who can access the Internet. The index of publishers and distributors will be especially useful to resource centres and information services which collect and manage information on disability and development

The Synergy APDIME program management toolkit : resources for HIV/AIDS program managers

SYNERGY PROJECT
2005

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This CD-ROM and website present a toolkit developed by USAID's Synergy Project to support programme designers and managers in HIV prevention, care and support worldwide. It includes tools such as worksheets, budget templates, survey instruments, data and software produced by a variety of organisations working on these issues. APDIME stands for the stages in the programming cycle: Assessment, Planning, Design, Implementation monitoring, and Evaluation

The memory work trainer's manual : supporting families affected by HIV and AIDS

HEALTHLINK WORLDWIDE
NATIONAL COMMUNITY OF WOMEN LIVING WITH HIV/AIDS IN UGANDA (NACWOLA)
2005

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This manual guides trainers through a course to support parents, guardians and carers affected by HIV and AIDS, by helping them to share information, hopes and fears with their children; strengthen each child's sense of identity and belonging; plan for the future care of their children. The course is designed to be delivered to: parents and other family members living with HIV and AIDS; future guardians of children affected by HIV and AIDS; community workers and volunteers working with children and families affected by HIV and AIDS. The manual draws significantly on the experiences and ideas of NACWOLA trainers and trainees, as well as those of Healthlink Worldwide and others. The course consists of 12 modules, covering child development, parenting, communication between parents, carers, guardians and children, HIV status disclosure, coping with separation, loss and grief, planning for children's future, involving children in planning, preparation for new care arrangements, making a memory book, and related legal aspects

Mapping workshop manual : finding your way through life, society and HIV

ALEMELEH, Colin
et al
March 2004

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This manual was developed through the Memory Box Project, and some of the mapping exercises presented here draw on the tradition of 'memory work'. However, it reflects a shift in emphasis from bereavement and succession planning to positive living in the context of greater availability of antiretroviral therapy, and with people living with HIV/AIDS now having the opportunity to live longer, more productive lives. The mapping exercises described in this manual are designed to encourage empowerment and understanding of available opportunities, identify key components of an enabling environment and promote positive living. Tools presented include journey mapping, body mapping and memory box

Integrating HIV voluntary counselling and testing services into reproductive health settings : stepwise guidelines for programme planners, managers and service providers

MYAYA, Mary
2004

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This guide aims to provide reproductive and sexual health programme planners, managers and providers with the information necessary to integrate voluntary counselling and testing (VCT) for HIV/AIDS within their services. In particular it considers integration within the context of family planning (FP) service provision. FP and VCT provision have similar aims of reaching sexually active people and promoting safe and healthy sexuality. FP settings therefore offer specific opportunities for reaching women with VCT. This guide looks at the continuum of possibilities available for integrating VCT. It is divided into 5 sections. Section 1 provides an introduction to VCT; section 2 details an assessment process for use when considering how to integrate VCT services; section 3 describes factors to consider when planning the integrated service; section 4 covers specific implementation issues; and section 5 focuses on monitoring and evaluation. The appendices contain checklists, sample monitoring tools and further reference material. Most of the references are available through the Internet

Resource centre manual : how to set up and manage a resource centre

O'SULLIVAN, Sheila
et al
2003

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Contains practical information on all aspects of setting up and managing a resource centre, from planning, fundraising and finding a suitable location, to collecting and organising materials, developing information services, and monitoring and evaluating the work of the resource centre. It assumes that most readers will use manual systems for organising information, but also explains how computers can be used in resource centres, including e-mail, Internet and databases. It describes how to select database software, and contains a detailed review of three leading database programs. It includes a list of organisations and publications that can provide further information

International consultation to review community-based rehabilitation (CBR)

WORLD HEALTH ORGANIZATION (WHO)
2003

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This document summarises the outcomes of the international consultation. The main conclusions were that human rights play a role in CBR, CBR has to be supported by national governments, various sectors have to cooperate and that UN agencies, governments and non-governmental organisations (NGOs) have to promote CBR as a poverty re-education strategy

Organization of services for mental health : mental health policy and service guidance package

WORLD HEALTH ORGANIZATION (WHO)
2003

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"This publication aims to: present a description and analysis of mental health services around the world examining different services and their organization and activities; review the current status of service organization around the world; make recommendations for organizing services; discuss crucial issues in the organization of services; discuss barriers to the organization of services and suggest solutions. The publication is intended to be useful to a range of people, including policy-makers and health planners, governmental and non-governmental organisations, and people with mental disorders and their families"

Access for all : helping to make participatory processes accessible for everyone

SAVE THE CHILDREN
2000

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This manual draws attention to different aspects of the accessibility of meetings, written documents, visual communications, presentations, environment and accommodation. It gives an overview of the major issues around accessibility for disabled people and presents practical adaptations to enable disabled people to be included in participatory activities

Positive development : setting up self-help groups and advocating for change. A manual for people living with HIV

MAASDORP, Aubrey
LONG, Siân
BEHRMAN, Nina [ed]
1998

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This manual has been written for people working in groups. It aims to offer suggestions and ideas to people and organisations who are beginning new groups, or planning to do so and who have limited experience of running a group. It will also be useful for trainers and facilitators who have been running groups for some time or who are helping others set up their own groups. It has developed from experiences of people living with HIV who have been working together in groups around the world. It is practical in focus and written in accessible language, with checklists, examples and tips throughout. Part 1 looks at why we set up groups and the benefits of group working. Part 2 looks at the practicalities of setting up groups, organising meetings and keeping the group going. Part 3 looks at some skills and activities for developing and maintaining positive group dynamics. Part 4 explains how to develop a project step-by-step, from planning to evaluation. Part 5 offers advice on finding sources of funding, Part 6 deals with disclosure issues, and Part 7 looks at advocacy and campaigning at all levels

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