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Contingent Electric Shock as a Treatment for Challenging Behavior for People With Intellectual and Developmental Disabilities: Support for the IASSIDD Policy Statement Opposing Its Use

ZARCONE, Jennifer R
MULLANE, Michael P
LANGDON, Peter E
BROWN, Ivan
2020

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Issues: The International Association for the Scientific Study of Intellectual and Developmental Disabilities (IASSIDD) is an international group of researchers, clinicians, students, parents, and self-advocates that promotes worldwide research and exchange of information on intellectual and developmental disabilities. IASSIDD recently developed a policy statement regarding their opposition to the use of contingent electric skin shock (CESS) with individuals with challenging behavior and intellectual and developmental disabilities. To support the policy, the available literature was reviewed to evaluate the efficacy, side effects, generalization, and long-term effectiveness of the procedure as an intervention for challenging behavior.


Findings: The review provides a history that demonstrates that, although CESS can decrease the frequency of challenging behavior, it comes at a cost in terms of physical and emotional side effects, and questions remain regarding the long-term effectiveness of the procedure. In addition, we raise several ethical and methodological issues that make the research on the use of CESS even more concerning.


Conclusions: Although research continues in some countries, these studies are now rare. In fact, in the United States, the Food and Drug Administration has just banned the use of such devices with individuals with self-injury and aggression. It is hoped that, because there are many other forms of treatment that have shown to be effective for severe challenging behavior, we can completely avoid the use of CESS.

COVID-19 blog series

SDDirect
April 2020

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The principal aim of this COVID-19 Blog series is to inspire and support the international community to identify, prioritise and respond to the needs of the most vulnerable individuals and nations as part of both the immediate humanitarian response and long-term recovery planning

Blogs include:

  • Recommendations for a disability-inclusive response to COVID-19 (Print and Audio)
  • Why people with disabilities are disproportionately impacted by COVID-19 (Print and Audio)

COVID-19 and Humanitarian Crisis

2020

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A COVID-19 Humanitarian platform to gather, curate, analyze, interpret and disseminate COVID-19-specific and -sensitive interventions that are being implemented in a variety of humanitarian settings.

The goal is to facilitate the sharing of context-specific field experiences about how humanitarian programs are responding to and being adapted to the COVID-19 pandemic. This website will host both technical guidelines as well as operational field experiences from humanitarian actors in different settings.

Coronavirus (COVID-19): Evidence Collection

EVIDENCE AID
2020

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The COVID-19 (Coronavirus) pandemic is leading to a rapidly expanding and evolving literature. Evidence Aid is preparing summaries of relevant research, which are available below in English with links to translations in other languages. 

 

  • Clinical characterization and management
  • Epidemiology
  • Ethical considerations
  • Health systems and services
  • Infection prevention and control, including health care workers’ protection
  • Public health interventions
  • Research & Development: Therapeutics and Vaccines
  • Social science in the response

COVID-19 Disability Rights Monitor

2020

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Evidence is emerging that persons with disabilities are being disproportionately affected by the Coronavirus pandemic and emergency measures being taken by governments worldwide. As governments rush to respond to the virus, it is more critical than ever to guarantee that measures taken are fully inclusive of persons with disabilities and prevent human rights violations from taking place.

 

With the endorsements of the United Nations Special Rapporteur on the Right to Health, Mr Dainius Pūras, and the UN Special Rapporteur on the Rights of Persons with Disabilities, Ms Catalina Devandas Aguilar, a coalition of six disability rights organisations is today launching a major international monitoring initiative entitled “COVID-19 Disability Rights Monitor” to conduct rapid independent monitoring of state measures concerning persons with disabilities. The first element of this global initiative is the launch of two surveys requesting official information from governments and requesting the testimonies of persons with disabilities and their representative organisations. The surveys aim to collect information about what states are doing to protect core rights of persons with disabilities including the rights to life, access to health and essential services.

Impact of COVID‐19 on people with disabilities and their families in Jordan, April 2020

HUMANITY & INCLUSION (HI)
April 2020

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The objective of the assessment is to understand the needs of people with disabilities and their families during the implementation of restrictions by the Government of Jordan in response to COVID‐19. The findings will provide insights for intervention planning at Humanity & Inclusion (HI) and evidence for advocacy effort with the local authority regarding support policies for vulnerable groups and movement permission for humanitarian aids.

HI conducted the assessment in April 2020 via phone survey with 942 households including 524 households having adults with disabilities and 418 households having children with disabilities. HI used purposive sampling to select the respondents from the currently active beneficiary dataset. Due to the large size of rehabilitation project, 93% of respondents were people with physical impairment. The results should be used as reference rather than representation for the needs of people with disabilities in Jordan.

 

The assessment findings are presented in two parts: Data at individual level and Data at household level.

Women's Integrated Sexual Health (WISH) Programme for Results: independent verification, evidence, and learning

Monteath-van Dok, Adrienne
Lagaay, Mary
April 2020

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As part of the Department for International Development’s (DFID’s) Women’s Integrated Sexual Reproductive Health (WISH) programme, an evidence gap map (EGM) has been developed to map interventions on ‘what works’ to enable access to sexual reproductive health (SRH) services for persons with disabilities in low and middle-income countries (LMICs). EGMs are a user-friendly presentation of the available, relevant evidence for a particular sector, which is systematically gathered and mapped onto a framework, visually highlighting the gaps or concentration of evidence. This EGM aims to support WISH programming by consolidating evidence and identifying tools/approaches which could be brought into the programme. In addition, it aims to identify where evidence is weak and how the WISH programme can contribute to evidence generation.

This report provides a written accompaniment to the Evidence Gap Map (EGM) to explain the methodology, findings on the availability of evidence, and key recommendations. When scoping for this EGM, it was recognised early on that some of the best practices and interventions on ‘what works’ to support persons with disabilities access SRH services in LMICs are not always empirically tested. Therefore, a decision was made to develop an EGM which includes both peer-reviewed and grey literature. This approach diverges from the norm, as EGMs typically only include peer-reviewed literature.

Aid Connect Inclusion Works (NIGERIA) Qualitative Formative Research

BBC Media Action
April 2020

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BBC Media Action is implementing a Department for International Development (DfID) funded project aimed at increasing action and investment from private, public and civil society actors to enable economic inclusion for women and men with disabilities through employment, with focus on FCT, Lagos and Kano states. The formative research provides insights to help (re)shape the design and implementation of media capacity strengthening activities on the project.

 

The opinions expressed are those of the authors and do not necessarily reflect the views or policies of the UK government or members of the Inclusion Works consortium.

Learning Paper – Inclusive Sports for Development Project

NEUPANE, Sudarshan
JALAL, Faruk Ahmed
CHAKRABORTY, Ripon
Md. ISLAM, Shafiqul
PAUL, Ashok Kumar
Md. MUHIT, Mubdiul
April 2020

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Children with disabilities in Bangladesh have equal access to play, recreation and leisure, and sporting activities, including in the school system (contributing to enjoyment of article 30 5.d of UNCRPD).

Inclusive safeguarding

INTERNATIONAL DISABILITY AND DEVELOPMENT CONSORTIUM (IDDC)
April 2020

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IDDC and its members aim to promote inclusive development, which means ensuring that all people are fully included and can actively participate in development processes and activities. One area which the consortium has highlighted as an area which should be made more inclusive is the development of safeguarding policies and practices.

This report gives some background to safeguarding people with disabilities. Topics covered include: empowerment; prevention; proportionality; protection; partnership; and accountability. 

Recommendations are provided.

Participation in Practice: Examples of inclusive action for a “Participation Revolution”

March 2020

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Humanitarian organizations and donors have committed to change the way humanitarian action is carried out and create a “Participation Revolution.” In this webinar issues addressed included:

  • inclusion of the people and communities affected by humanitarian crises in practice;
  • how organizations are ensuring that the voices of the most vulnerable groups considering gender, age, ethnicity, language, and special needs are heard and acted upon;
  • how program activities and budgets are designed to support the changes that affected people demand


In this webinar, organized on 26 March 2020 by PHAP and the Steering Committee for Humanitarian Response, we took stock of the progress to date on workstream six of the Grand Bargain and heard success stories from the field that can help agencies achieve a sustained change in how they design and deliver their programs.

 

A full transcript is available. Webinar registrants were asked to provide what they thought, in their context, was the most important factor enabling participation in practice and what they thought was the most important factor preventing participation in practice. Answers are provided in an Annex.

Disability and gender analysis toolkit

THOMSON, Teresa
et al
March 2020

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CBM’s Disability and Gender Analysis Toolkit has been developed to support staff, partners and allies in strengthening capacity to address systemic and deeply entrenched discriminatory practices and specifically to meet their Programme Quality Standards. It provides practical tools for stronger disability and gender analysis to inform planning, practice and systems. The toolkit provides practical assessment templates and guidance for individuals, organisations and programmes to identify strengths and gaps and to develop focussed action plans to improve practice.

Celebrating the value of employees with disabilities

Sightsavers
March 2020

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In this blog, Rasak Adekoya (Programme Officer Inclusion Works, Sightsavers Nigeria) shares his career story, tells us about his role helping employers appreciate candidates and employees with disabilities, and what it’s like leading a film shoot as a blind person.

 

The opinions expressed are those of the authors and do not necessarily reflect the views or policies of the UK government or members of the Inclusion Works consortium

Disability Inclusion Helpdesk Query No: 30 : Climate resilience and disability inclusion: mapping and rapid evidence review

LEE, Harri
MEANEY-DAVIS, Jessie
WAPLING, Lorraine
KETT, Maria
March 2020

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Summaries on the findings from the following queries:

What are the links between climate change and disability?

What is the evidence available on interventions/programmes that strengthen climate resilience of people with disabilities?

How can climate resilience programmes be more effective in including people with disabilities with a larger impact? 

Agenda for Humanity

OCHA
2020

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The Agenda for Humanity sets out five major areas for action and change, the 5 Core Responsibilities, that are needed to address and reduce humanitarian need, risk and vulnerability, and 24 key transformations that will help achieve them.

Gender Assessment Tool

ADD International
January 2020

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This Gender Assessment Tool has been developed by ADD, based on existing good practice in the development sector, to support capacity building with DPOs in the following ways:

  • To support discussion/ awareness raising of gender issues and practical action which can be taken to promote gender inclusion
  • To analyse gender inclusion issues and practice within the organisation in a systematic way
  • To identify specific areas for improvement on gender inclusion
  • To identify CB support needed from ADD/other sources to address the issues raised
  • To track progress on gender inclusion over time

NB: this tool replaces previous versions and has been updated based on input and discussion at the global MEL meeting in July 2016.

 

The opinions expressed are those of the authors and do not necessarily reflect the views or policies of the UK government or members of the Inclusion Works consortium.

Zero Project Report 2020: Inclusive education. 75 Innovative Practices and 11 Innovative Policies from 54 countries

BUTCHER, Thomas
et al
January 2020

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There are several sections in this report:

  • Executive summary
  • Impact of the Zero Project: Survey results
  • Innovative policies and practices: Factsheets and life stories
  • The Zero Project Impact Transfer accelerator programme
  • An analysis of ICT supporting innovations in inclusive education
  • SDGs, Data and inclusive education
  • Summary of report in Easy Read. 

Themes were:

  • Early childhood and preschool
  • Formal education (primary and secondary education)
  • Universities (tertiary education)
  • Vocational education and training
  • Non-formal education
  • ICT-driven solutions related to education/digital skills

Inclusive education. For inclusive schools where all children can learn

HUMANITY & INCLUSION (HI)
2020

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Following a short summary of factors limiting access to education for children with disabilities, Humanity & Inclusion (HI) work in inclusive education is briefly reported. HI's aims, main areas of activities (families and communities, making services inclusive (education, social, etc.) and developing policies) and ongoing projects are outlined. Examples of innovative practices and testimonies (from Mozambique, Gaza, Mali, Nepal and Sierra Leone) are given. The importance of inclusive education and HI's approach are discussed.

 

The unprecedented impact of COVID-19 on education systems worldwide and the HI #school4all campaign are also highlighted.  

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