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Community based rehabilitation (CBR) : critical perspectives from Latin America

GRECH, Shaun
2015

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“CBR Perspectives from Latin America” is a critical reflection on the multi-dimensional and changing nature of CBR, the perceived benefits, the conundrum of standardized approaches versus community driven processes, the nature of links between CBR and human rights, the resourcing of CBR and the difficulty inherent in taking a short term view in the evaluation of what is a long term process. Not so often are the experiences and perspectives from Latin America shared to a wider audience, making Dr. Grech’s work a remarkable achievement for the Region.”

JICA thematic guidelines: Disability and development

JAPAN INTERNATIONAL COOPERATION AGENCY
August 2015

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Good practices, lessons learned, effective approaches, and recommendations have been added to the previous version of this publication—itself a revision of the 2009 modified Thematic Guidelines: on Disability. 

The first chapter presents basic information about disability and development, and outlines international efforts toward disability-inclusive development. The second chapter explains the need for all persons with disabilities to fully enjoy their human rights and participate in society, to ensure that the social order is both equitable and inclusive. The third chapter discusses three priority actions that JICA shall take to:

(1) Set up disability-inclusive policies and regulations (encompassing social and environmental changes);

(2) Implement disability-inclusive projects (also involving social and environmental changes); 

(3) Empower persons with disabilities (focusing on the development of individual abilities)

No justice : torture, trafficking and segregation in Mexico

RODRIGUEZ, Priscila
ROSENTHAL, Eric
GUERRERO, Humberto
July 2015

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This report presents the findings of Disability Rights International (DRI)'s two-year investigation into the treatment of children and adults with mental disabilities in Mexico City which found a pattern of egregious and widespread human rights violations. The investigation found that in Mexico City having a disability can mean a life of detention and uncovered the existence of a “blacklist” of particularly abusive institutions that the Mexico City authorities are aware of – yet they permit these facilities to operate. DRI visited five of 25 facilities on the blacklist and specifically highlight the findings from Mama Rosa and Casa Esperanza, which was so abusive that DRI filed a formal complaint to DIF and sought immediate action by DIF to protect detainees. The report outlines the overall findings and how Mexico can take steps toward reform and justice calling for immediate steps to enforce the basic human rights of people with disabilities and outlines

Note: the report is available in pdf and word versions in both English and Spanish

Practice note : collecting and using data on disability to inform inclusive development

BUSH, Asahel
CARROLL, Aleisha
JAMES, Kathryn
July 2015

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This Practice Note provides guidance and tools for the collection and use of data and evidence on disability at a program level, to inform inclusive development practice and outcomes. It includes sections on why to collect information about disability; how to make mainstream data collection processes disability inclusive; planning for data collection throughout the project cycle; and methods and tools for collection of data to support disability inclusion

The document is the result of a collaboration between Plan International and the CBM Australia-Nossal Institute Partnership for Disability Inclusive Development. It was prepared in the context of growing interest among international development agencies in the disability inclusive practice, and the collection of evidence to underpin this. It draws on some of the experiences and learning arising from Plan’s work to strengthen disability inclusion within its development programs and the CBM-Nossal Partnership’s work to strengthen disability inclusion within the Australian development sector

A systematic literature review of the quality of evidence for injury and rehabilitation interventions in humanitarian crises

SMITH, James
ROBERTS, Bayard
KNIGHT, Abigail
GOSSELIN, Richard
BLANCHET, Karl
July 2015

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Introduction: Humanitarian crises continue to pose a significant threat to health; the United Nations estimates that 144 million people are directly affected by conflict or environmental disasters. During most humanitarian crises, surgical and rehabilitative interventions remain a priority.

 

Objectives: This review assessed the quality of evidence that informs injury and physical rehabilitation interventions in humanitarian crises.

 

Methods: Peer-reviewed and grey literature sources were assessed in a systematic manner. Selected papers were evaluated using quality criteria based on a modified version of the STROBE protocol.

 

Results: 46 papers met the inclusion criteria. 63 % of the papers referred to situations of armed conflict, of which the Yugoslav Wars were the most studied crisis context. 59 % of the studies were published since the year 2000. However, only two studies were considered of a high quality.

 

Conclusions: While there is now a greater emphasis on research in this sector, the volume of evidence remains inadequate given the growing number of humanitarian programmes worldwide. Further research is needed to ensure a greater breadth and depth of understanding of the most appropriate interventions in different settings.

 

International Journal of Public Health, Vol 60

Being counted : funding for people with disabilities

SAMARASAN, Diana
July 2015

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This blog post  by Diana Samarasan, executive Director of the disability Rights Find and the Disability Rights Advocacy Fund, focuses on the disadvantages faced by the disabled community in the sphere of human rights and charitable funding. The central argument is that the current system of disability funding is too fragmented, and that only a more holistic approach to funding will be able to cater to the varied needs of people with disabilities across the world

Beyond 2015 : shaping the future of equality, human rights and social justice

EQUALITY AND DIVERSITY FORUM
EDF RESEARCH NETWORK
June 2015

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This publication is a collection of essays from Equality and Diversity Forum and EDF Research Network Beyond 2015 project. It presents a collection of articles about three main concepts: equality, human rights and social justice in the United Kingdom. The collection principally serves to describe levers for change and scenarios where equality and human rights could be promoted

Technical report 1 : mapping of organisations in Indonesia in disaster risk reduction [MOIDRR]

CENTRE FOR DISABILITY RESEARCH AND POLICY, University of Sydney
ARBEITER-SAMARITER-BUND INDONESIA
June 2015

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This is the first Technical Report in a three part series for the two year DFAT Australian Aid funded project (2013-2015), Promoting the Inclusion of People with Disabilities in Disaster Management in Indonesia. This report details the mapping of organisations in Indonesia working in disaster risk reduction (DRR). The two year project was concerned with understanding the gaps between disability inclusive policy and practices in DRR and supporting opportunities to include people with disabilities in all phases of disaster risk management. The premise of this work was that reducing the vulnerability of people with disability during disasters is a key strategy to promote broader community resilience

 

The direct and practical solutions that people with disability can offer to community-level DRR activities should be a key consideration within all phases of disaster risk management. Inclusion of people with disabilities in DRR before, during, and after disasters contributes to the “whole-of-community” approach to disaster resilience advocated in contemporary policy and enacted by DRR agencies. This project was initially framed within an increasing awareness of disability inclusion in DRR globally which is now articulated in the recently issued Sendai Framework for Disaster Risk Reduction 2015-2030 (UNDISR, 2015), and within an increasingly supportive policy environment in Indonesia

Technical report 3 : the disability inclusive disaster resilience (DiDR) tool : development and field-testing

CENTRE FOR DISABILITY RESEARCH AND POLICY, University of Sydney
ARBEITER-SAMARITER-BUND INDONESIA
June 2015

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This is the third Technical Report in a three part series for the two year DFAT Australian Aid funded project (2013-2015), Promoting the Inclusion of People with Disabilities in Disaster Management in Indonesia. This report details the development, refinement and field–testing of the Disability Inclusive Disaster Resilience (DiDR) tool. The purpose of the DiDR tool is to identify the resilience and capabilities of people with disabilities to natural disasters in their family and community setting. The tool is designed to be used by people with disabilities, their families or carers and thereby to promote the inclusion of people with disabilities in Disaster Risk Reduction (DRR) policy making and strategy implementation. The tool assesses the resilience of people with disabilities by bringing together four components known to be fundamental to disaster risk reduction: the individual’s functioning status, their level of participation in their communities, the physical vulnerability of their place of residence, and individual risk predictors known to influence the behaviour of the general population before, during and after a natural hazard emergency. In February and March 2015, the survey teams administered the DiDR Tool by interviewing 289 people with disabilities or their carers in four Indonesian Districts affected by diverse natural hazards 

Prosthetics & orthotics impact assessment : India and Bangladesh

COCHRANE, Helen
ROSARIO, Demetria
SINGH, Anil
GHOSH, Ritu
June 2015

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Mobility India is the only International Society for Prosthetics and Orthotics​ (ISPO) recognised program in India offering training for ISPO Category II single discipline. From 2002 to the time of the study Mobility India enrolled two hundred and twenty-one students. This study was conducted in association with ISPO’s USAID funded programme: ‘Rehabilitation of physically disabled people in developing countries’. Activities included: field visits to India and Bangladesh, interviewing Ministry officials, Heads of Clinical Services and Heads of Prosthetic and Orthotic Departments;  a partial audit of graduate clinical skills and competencies and determining the professional development needs of graduates in selected South-East Asian countries; and listening to service users, hearing stories of how services had directly impacted upon their lives. Services in India and Pakistan are outlined and 22 recommendations to help to further develop prosthetic and orthotic services are provided.

Research Protocol: Development, implementation and evaluation of a cognitive behavioural therapy-based intervention programme for the management of anxiety symptoms in South African children with visual impairments

VISAGIE, Lisa
LOXTON, Helene
SILVERMAN, Wendy K
2015

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Background: Childhood anxiety presents a serious mental health problem, and it is one of the most common forms of psychological distress reported by youth worldwide. The prevalence of anxiety symptoms amongst South African youth is reported to be significantly higher than in other parts of the world. These high prevalence rates become even more significant when viewed in terms of children with visual impairments, as it is suggested that children with physical disabilities may be more prone, than their non-disabled peers, for the development of psychological difficulties. 

 

Objectives: The main aim of this study is to develop, implement and evaluate a specifically tailored anxiety intervention programme for use with South African children with visual impairments.

 

Method: A specifically tailored cognitive-behavioural therapy-based anxiety intervention, for 9–13 year old South African children with visual impairments, will be evaluated in two special schools. The study will employ a randomised wait-list control group design with pre- postand follow-up intervention measures, with two groups each receiving a 10 session anxiety intervention programme. The main outcome measure relates to the participants’ symptoms of anxiety as indicated on the Revised Child Anxiety and Depression Scale.

 

Conclusion: If the anxiety intervention programme is found to be effective in reducing symptoms of anxiety, this universal intervention will lay down the foundation upon which future contextually sensitive (South African) anxiety intervention programmes can be built.

 

Contextual factors around the sexual abuse of people with disability in East Africa

WADDELL, Mary Ann
May 2015

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This literature review on the issue of sexual violence against people in East Africa aims to identify applied research. It contains a synthesis of the knowledge contained in the best selected research, reading notes and an annotated bibliography. The synthesis provides an objective summary of the of the state of the knowledge concerning the sexual abuse of people with disabilities in East Africa

 

 

Impact evaluation : a guide for commissioners and managers

STERN, Elliot
May 2015

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A guide on the processes involved in implementing and designing instruments to measure the impact evaluation of development projects for commissioners and managers. This guide takes a multifaceted approach, considers the perspective of all possible stakeholders, and highlights best practice

Discussion papers on the theme of the high-level political forum on sustainable development, submitted by major groups and other stakeholders

UNITED NATIONS ECONOMIC AND SOCIAL COUNCIL
May 2015

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A compendium of papers from various stakeholders setting out “established and maintained effective coordination mechanisms” for the high-level discussions on sustainable development and the post-2015 development agenda

High-level political forum on sustainable development, Convened under the auspices of the Economic and Social Council, 26 June-8 July 2015

E/HLPF/2015/2

Malawi : DoDMA exploring indigenous knowledge on disasters

KAZEMBE, Ida
May 2015

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This article contains an interview with Mulder Mkutumula, Mitigation Officer at the Department of Disaster Management Affairs in Malawi. Mr. Mkutumula discusses the importance of raising awareness and understanding of disaster risk reduction in Malawi, especially in the context of the 2015 floods

Project Re•Vision: disability at the edges of representation

RICE, Carla
CHANDLER, Eliza
HARRISON, Elisabeth
LIDDIARD, Kirsty
FERRARI, Manuela
2015

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The representational history of disabled people can largely be characterized as one of being put on display or hidden away. Self-representations have been a powerful part of the disability rights and culture movement, but recently scholars have analysed the ways in which these run the risk of creating a ‘single story’that centres the experiences of white, western, physically disabled men. Here we introduce and theorize with Project Re•Vision, our arts-based research project that resists this singularity by creating and centring, without normalizing, repre- sentations that have previously been relegated to the margins. We draw from body becoming and new materialist theory to explore the dynamic ways in which positionality illuminates bodies of difference and open into a discussion about what is at stake when these stories are let loose into the world.

The Development of a New Quality of Life Questionnaire for Children with Hearing Loss - The Impact of Hearing Loss on Children (IHL-C): Field Testing and Psychometric Evaluation

Raj, Lavanya J
Pitchai, Swarnakumari
2015

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Purpose: To report the development of user-defined, multidimensional, psychometrically sound Quality of Life questionnaires – Impact of Hearing Loss on Children – IHL-C 69 and Brief IHL-C for children with hearing loss, in two languages -Tamil and English.

 

Methods: 421 problem statements from previous qualitative studies were reduced to a 220-item questionnaire with 7 domains (educational implications, social integration, psycho-social well-being, speech, language and communication, family relationships, leisure time activities and general functioning). After field testing, the domain of leisure time activities was dropped, resulting in a 103-item self-administered questionnaire with 6 domains. This 103-item questionnaire was translated from Tamil to English, and self-administered by children with hearing loss (11-18 years of age) in Special schools (n=100) and Integrated schools (n=100), as well as by normal controls in Integrated schools (n=200). Standard methods were used for item reduction and to evaluate psychometric properties.

 

Results: Psychometric item reduction produced the 69-item IHL-C69 (long version) and 48- item Brief IHL-C (brief version) questionnaires. Psychometric evaluation showed that all the domains of both the questionnaires had good acceptability, high internal consistency (alpha >0.80; intrinsic validity >0.80) and test-retest reliability (0.86).The questionnaires significantly distinguished between the children with hearing loss and the normal controls. The domains of both the questionnaires showed moderate evidence of convergent validity, and discriminant validity derived through hypotheses testing showed mixed results. The translation validity was also determined.

 

Conclusion: The IHL-C 69 and Brief IHL-C are reliable and valid user-defined, multidimensional questionnaires, available for the first time in both Tamil and English languagesin Tamil Nadu, India. Designed to analyse the impact of hearing loss and to determine the quality of life of children with hearing loss, the questionnaires could be used to prioritise the goals for rehabilitation intervention for these children.

Nigerian Realities: Can we ignore Traditional Leadership in developing successful CBR?

VERMEER, Bertine
CORNIELJE, Marije T
CORNIELJE, Huib
POST, Erik B
IDAH, Mike A
2015

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Purpose: To study the role of traditional leaders (Sarakuna) who provide a form of social welfare for persons with disabilities in the Hausa society of Northern Nigeria. From the results of this study, lessons are derived for cooperation with Sarakuna in (emerging) Community Based Rehabilitation programmes.

 

Methods: A literature study was done using different (non-)electronic sources. In addition, 26 semi-structured interviews were conducted with different stakeholders (e.g., non-governmental organisations, disabled people’s organisations), and 8 focus group discussions were held with (leaders of) persons with a disability. Question-led analysis was utilised by considering 4 dimensions: rehabilitation outcomes, rehabilitation services, involvement of beneficiaries, and social acceptability.

 

Results: Not much literature is available on the role of traditional leadership in rehabilitation programmes and social welfare. Nevertheless, this study found indications that traditional leadership is still present in contemporary NorthernNigeria. Some Sarakuna improve the socio-economic position of persons with disabilities by functioning as mediators and by their ability to provide social insurance. Their cooperation with multiple stakeholders enables them to distribute food and clothes. Also, since they possess essential information, NGOs are helped to access the community of persons with disabilities. Sarakuna are in a position to promote the inclusion and rehabilitation of persons with disabilities, but often lack necessary skills and training; yet, Community Based Rehabilitation programmes often ignore them.

 

Conclusions and Implications: Community Based Rehabilitation programmes should take better note of social contexts and therefore should also work in the specific context of traditional leadership. In this way, rehabilitation programmes are more likely to meet the expectations of persons with disability.

Disability and extreme poverty : recommendations from practitioners in Bangladesh

FREMLIN, Peter
April 2015

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This paper presents shared lessons from experts and organisations working on disability-inclusive poverty reduction in Bangladesh. It gives an overview of the situation of persons with disabilities in extreme poverty in Bangladesh, highlighting disability-specific challenges, and the gaps in institutional capacity to deal with these issues. Recommendations are provided on the need to identify persons with disabilities more clearly, introduce disability-focus to mainstream poverty reduction efforts, adopt measures to overcome disability specific challenges, and strengthen institutional capacity to work on disability issues

Rethinking the work capability assessment

BAUMBERG, Ben
et al
March 2015

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This report outlines the key research findings about the Work Capability Assessment (WCA) criteria of the Employment Support Allowance (ESA), a means tested benefit for those who are unable to find work in Britain. It presents the state of the UK’s existing assessment and then describes how seven key countries systematically assess incapacity, and the lessons these countries provide for reforming the WCA in the UK

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