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Participation in Practice: Examples of inclusive action for a “Participation Revolution”

March 2020

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Humanitarian organizations and donors have committed to change the way humanitarian action is carried out and create a “Participation Revolution.” In this webinar issues addressed included:

  • inclusion of the people and communities affected by humanitarian crises in practice;
  • how organizations are ensuring that the voices of the most vulnerable groups considering gender, age, ethnicity, language, and special needs are heard and acted upon;
  • how program activities and budgets are designed to support the changes that affected people demand


In this webinar, organized on 26 March 2020 by PHAP and the Steering Committee for Humanitarian Response, we took stock of the progress to date on workstream six of the Grand Bargain and heard success stories from the field that can help agencies achieve a sustained change in how they design and deliver their programs.

 

A full transcript is available. Webinar registrants were asked to provide what they thought, in their context, was the most important factor enabling participation in practice and what they thought was the most important factor preventing participation in practice. Answers are provided in an Annex.

NOTHING ABOUT US WITHOUT US! Cooperation with organisations of persons with disabilities in community programmes A learning guide

LIGHT FOR THE WORLD
June 2019

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Good practices of DPO (Organisations of Persons with Disabilities) involvement in Light for the World programmes are analysed and successful ways of supporting DPO empowerment are reported. The paper is based on interviews and focus group discussions with organisations of persons with disabilities (DPOs), other project partners and Light for the World programme colleagues in Bolivia, Ethiopia, Mozambique, Northeast India and South Sudan

Local economic and inclusive development; a toolkit for replication

Humanity & Inclusion
CAMID
The Employers' Federation of Ceylon
2019

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This replication guidebook is a tool that aims to highlight the link between social exclusion and poverty and is based on the premise that a country cannot achieve its development targets, if a section of its people is left behind.

 

This guidebook aims to show practitioners practical ways of working on economic development that inclusive of socially excluded groups such as women, people with disabilities, people living in poverty, etc. It provides corresponding concepts, explains the steps and suggests tools that may help practitioners use and adapt to their context. The context of this book are based on field level experience of the project team of the Inclusive Economic Development project.

Disability inclusion and accountability framework

McCLAIN-NHLAPO, Charlotte
et al
June 2018

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The main objective of the Disability Inclusion and Accountability Framework is to support the mainstreaming of disability in World Bank activities. It lays out a road map for (a) including disability in the Bank's policies, operations and analytical work, and (b) building internal capacity for supporting clients in implementing disability-inclusive development programs. The primary target audience of the Framework is Bank staff but it is also relevant to the Bank's client countries, development partners and persons with disabilities. The framework provides four main principles for guiding the World Bank’s engagement with persons with disabilities: nondiscrimination and equality, accessibility, inclusion and participation, and partnership and collaboration. 

 

The appendices to this framework highlight key areas in which the Bank can have a significant impact on the inclusion, empowerment, and full participation of persons with disabilities. These areas include transport, urban development, disaster risk management, education, social protection, jobs and employment, information and communication technology, water sector operations, and health care. 


Report No. 126977
 

Human rights toolkit for women and girls with disabilities. First edition.

Women With Disabilities Australia (WWDA)
October 2016

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A Toolkit for women or girls with disabilities to learn more about human rights and how this knowledge can be used to achieve change in their own lives or the lives of others. Following an introduction about why this Toolkit is needed,  a brief overview of five key human rights issues that women and girls with disability in Australia have identified as most important to them is provided. Section 3 provides information about what human rights are and also gives a brief overview about Australia’s international human rights obligations. Sections 4 and 5 focus on the Convention on the Rights of Persons with Disabilities (CRPD) and the Convention on the Elimination of all forms of Discrimination Against Women (CEDAW), examining the main ‘Article’ from each, that deals with the important urgent issues that have been identified by women with disability in Australia, which are: Violence; Decision-Making; Participation; Sexual and Reproductive Rights; and, Employment. For each of these issues, the words of the main Article (as it appears in the CRPD and CEDAW) are provided and explained in practical terms, and examples are given of what governments have to know and do. Information from WWDA members and supporters about some of the key changes which need to happen is given. Different ideas of what women and girls with disability can do to help achieve change and promote the rights of all women and girls with disability are given and some sample letters and ‘talking points’ for phone calls to a local Member of Parliament, or a government Minister or advisers are provided.   

Violence against children with disabilities : legislation, policies and programmes in the EU

EQUALITY AND DIVERSITY FORUM (EDF)
December 2015

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This report "outlines relevant international and European standards and reviews national legislation and policies addressing violence against children with disabilities. The report also explores the extent and different causes, settings and forms of such violence, and presents measures and initiatives to prevent it”

Available in easy-read version from the web link provided

Human Rights

www.macao-tz.org
December 2014

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Malezi AIDS Care Awareness Organization (MACAO) is a non-profit organization reaching out to neglected Indigenous people in Ngorongoro District, Arusha Region of Northern Tanzania.  Macao founded in 2003, Macao is a humanitarian organization that provides assistance to approximately 200,000 Indigenous Maasai community in Ngorongoro district for addressing needs of water and sanitation, food security, health Care Research, Education, Research environment, Maasai Traditional Research, Human Rights and sustainable economic development by strengthening their livelihoods.  In addition to responding to major relief situations, MACAO focuses on long-term community development through over 4 Area Development Project. We welcome the donors and volunteers to join us in this programs, we are wolking in ruro villages.

Strengthening participation of children and young people with disability in advocacy

SIMMONS, Dr. Catharine
ROBINSON, Dr. Sally
October 2014

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Participation by children and young people in advocacy and change-making can not only improve and foster positive change in their own lives, but also influence the lives of others. When young people’s participation is supported, meaningful and engaged, multiple benefits accrue; their perspectives and experiences bring a unique contribution and can result in rights-based empowerment, enacted citizenship and improved relationships. This has the potential to shape policy, to increase the relevance and responsiveness of organisations they use, and to influence change in their communities in positive ways

 

However, there are significant issues and a range of barriers that discourage, prevent or actively exclude children and young people with disability from participating. A culture of low expectations, social and cultural barriers, relationship and identity difficulties and practical hurdles exist for many young people. As a result, many are precluded from participation, particularly around change-making activities

 

This paper examines how meaningful participation of children and young people with disability in advocacy and change-making can be strengthened. In the paper CDA calls for the promotion of children and young people’s participation as active and valued community members

Study on the situation of indigenous persons with disabilities, with a particular focus on challenges faced with regard to the full enjoyment of human rights and inclusion in development

UNITED NATIONS
February 2013

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"The study reviews the situation of indigenous persons with disabilities in the enjoyment of their human rights. It looks at the main relevant legal standards - the Convention on the Rights of Persons with Disabilities and the United Nations Declaration on the Rights of Indigenous Peoples - and how those standards interact to protect relevant rights. The study examines some areas in which, according to indigenous persons with disabilities, there is discrimination in the enjoyment of rights, such as political participation, access to justice, education, language and culture, and issues specific to indigenous women and children with disabilities. It is concluded that more attention should be paid to the rights of indigenous persons with disabilities"
E/C.19/2013/6

Devaluing people with disabilities : medical procedures that violate civil rights

CARLSON, David
SMITH, Cindy
WILKER, Nachama
et al
May 2012

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"The report puts individuals with disabilities at the center of this discourse. It reviews the facts of Ashley X, as a case study for a larger discussion and presents a continuum of common experiences and treatment of individuals with disabilities within a context of medical decision making. The report explores the potential and actual conflict of interest that medical decision making may present between a parent and his or her child. It describes the vital role that the legal system has in ensuring that the civil and human rights of individuals with disabilities are protected. The report discusses how the deprivation of these rights is harm within and of itself and that all individuals have substantive rights regardless of the severity of their disability"

"I want to be a citizen just like any other" : barriers to political participation for people with disabilities in Peru

BARRIGA, Shantha Rau
et al
2012

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"This report documents legal, physical, communication and attitudinal barriers experienced by people with different disabilities in exercising their right to political participation just like others in society. It also examines how restrictions on legal capacity impact the ability of people with intellectual and psychosocial disabilities in particular to enjoy a range of rights, including the right to own or inherit property, be employed or legally represent their children"
Note: This report is available in pdf, word and easy-read formats

Realizing the millennium development goals for persons with disabilities towards 2015 and beyond

UNITED NATIONS
February 2011

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This report presents a resolution adopted by the General Assembly at the 71st plenary meeting. It provides information about the inclusion of people with disabilities in the millennium development goals and outlines specific requests to the secretary general regarding inclusive development efforts. This resource is useful to people interested in the MDGs and people with disabilities

Keeping the promise : realizing the Millennium Development Goals for persons with disabilities towards 2015 and beyond

UNITED NATIONS
July 2010

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This report presents a "comprehensive biennial review on the implementation of the World Programme of Action concerning Disabled Persons, and the progress and challenges concerning the advancement of persons with disabilities in the context of development and the realization of the Millennium Development Goals." It consists of an introduction, five informative sections, and recommendations to advance disability-inclusive Millennium Development Goals and other internationally agreed development goals by member states and other stakeholders. The detailed annexes provide further technical information in support of the recommendations

PMTCT strategic vision 2010 - 2015 : preventing mother-to-child transmission of HIV to reach the UNGASS and millennium development goals

WORLD HEALTH ORGANIZATION (WHO)
February 2010

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This strategic vision defines WHO’s commitment to help countries achieve agreed international goals on the prevention of mother to child transmission (PMTCT) of HIV, increase access to quality PMTCT services and integrate these services with maternal, newborn and child health and sexual and reproductive health programmes

Coordination for vulnerable children : Alliance Zambia’s efforts to strengthen government and community OVC systems

ALLIANCE FOR COMMUNITY ACTION ON HEALTH IN ZAMBIA (Alliance Zambia)
2009

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Based on its experience of implementing a programme to strengthen community support systems for orphans and vulnerable children (OVC), Alliance Zambia sees coordination within government, and partnership between government and civil society, as essential building blocks for effective OVC support

Promoting sexual and reproductive health for persons with disabilities : WHO/UNFPA guidance note

GROCE, Nora
et al
2009

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This resource addresses issues of sexual and reproductive health (SRH) programming for persons with disabilities. SRH, in particular, deserves attention because these needs have been so widely and so deeply neglected. At the same time, however, the approaches discussed here apply broadly to all aspects of health programming for persons with disabilities. This note outlines a general approach to programming and does not address specific protocols for the SRH care and treatment of persons with disabilities It is intended for SRH experts and advocates within UNFPA and WHO as well as those in other development organisations and partners

Philippine CBR manual : an inclusive development strategy

MCGLADE, Barney
MENDOZA, Veronica Ester
Eds
2009

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This is an executive summary of a manual that is intended as a guide to decision makers in Local Government Units on how to institutionalise and implement programme that ensure the inclusion of persons with disabilities in all activities in the community – and ensure these activities are part of the annual work and financial plan of government and other local groups.  While the manual is intended for government decision makers, it can also be used by CBR workers and managers to understand inclusion, CBR in the rights-based context, the historical perspective and evolving definition of disability as well as how to start CBR, how to organize DPOs and communities, and how to undertake training and advocacy

The publisher has given permission for the uploaded document to be reproduced and made publicly available on the Source website

Building capacity in six disadvantaged communities vulnerable to natural disasters

BERKE, Philip
et al
September 2008

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This paper aims "to describe and analyze an Emergency Preparedness Demonstration (EPD) project aimed at reducing the risk to life and property in six disadvantaged communities in Delaware, Maryland, North Carolina, Pennsylvania, Virginia, and West Virginia. EPD involves a community-based participatory planning process aimed at building the capacity of disadvantaged communities threatened by disasters. To understand the successes and limitations of the EDP approach we used multiple sources of evidence. Semi-structured interviews were conducted with 30 key informants, field notes were taken during attendance of community planning meetings, and documentary materials prepared by local planning teams (memoranda, vulnerability assessments, household surveys) were content analyzed"

Mobilising children & youth into their own child- & youth-led organisations

MADOERIN, Kurt
May 2008

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This publication explores child- and youth-led organisations from many different angles, amongst others, HIV and AIDS prevention, the critical role of adults within these organisations, and economic strengthening. What is also perhaps distinctive about the approach outlined in this booklet is the fact that organisation of children into their own child- and youth-led organisations is considered primarily from a psychosocial wellbeing perspective

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