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Inclusion Works Uganda Situational Analysis

ROHWERDER, Brigitte
June 2020

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This situational analysis (SITAN) addresses the question: “what is the current situation in relation to formal sector employment for persons with disabilities in Uganda?”. It has been prepared for the Inclusion Works programme (which works on disability inclusive formal employment in Bangladesh, Kenya, Nigeria and Uganda), to better understand the current context and available evidence in Uganda, and will be helpful for anyone interested in disability inclusion, especially in relation to employment, in Uganda. It focuses on persons with disabilities, employers, policy, the disability movement, and partnerships. This SITAN has been briefly updated from the June 2019 SITAN.

 

The opinions expressed are those of the authors and do not necessarily reflect the views or policies of the UK government or members of the Inclusion Works consortium.

Disability & the Global South (DGS), 2019, Vol. 6 No. 2

2019

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Articles included are:

  • A comparison of disability rights in employment: Exploring the potential of the UNCRPD in Uganda and the United States
  • Reimagining personal and collective experiences of disability in Africa
  • Social participation and inclusion of ex-combatants with disabilities in Colombia
  • ‘Inclusive education’ in India largely exclusive of children with a disability
  • Participation, agency and disability in Brazil: transforming psychological practices into public policy from a human rights perspective

Community Action Research in Disability (CARD): An inclusive research programme in Uganda

HARTLEY, Sally D
YOUSAFZAI, AK
KAAHWA, MG
FINKENFLÜGEL, H
WADE, A
BAZIRAKE, G
DRACHLER, ML
SEELEY, J
ALAVI, Y
MATAZE, W
MUCURNGUZI, E
2017

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The ideology of Emancipatory Disability Research (EDR) reflected in the phrase ‘Nothing about us without us’, was first put forward in the 1990s. Although it aimed to place research control in the hands of the ‘researched’, i.e., people with disability, this rarely happens even today, 25 years later.

 

The Community Action Research on Disability (CARD) programme in Uganda embraced and modified the EDR approach, recognising the need for including people with disability in the research process from concept to outcome, and nurturing participation and collaboration between all the stakeholders in achieving action-based research. The research teams always included people with disability and staff from Disability People’s Organisations (DPOs) as well as academics and service providers. It endeavoured to generate and carry out research around issues that mattered to people with disability and their families. Leadership roles were assigned by team members. The objectives of the CARD programme were: (1) to fund teams to carry out action-based research on disability in Uganda; (2) to develop research and administrative capacity to manage the initiative within the academic registrar’s office at Kyambogo University; (3) to incorporate new knowledge generated from the studies into the ongoing local community-based rehabilitation and special education courses; and, (4) to ensure wide dissemination of research findings to all stakeholder groups.

 

CARD ran for 5 years, commissioning 21 action research studies in the field of disability and community-based services. This paper describes the process, presents the 12 completed studies, examines the extent to which the objectives were achieved and evaluates the experiences of the participating research teams, particularly in relation to the inclusion of its members with disability. It concludes with recommendations for future initiatives designed to promote validity, good value and inclusive approaches in disability research.

Parental stress and support of parents of children with spina bifida in Uganda

BANNINK, Femke
IDRO, Richard
VAN HOVE, Geert
2016

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Background: Children with disabilities in Sub-Saharan Africa depend for a large part of their functioning on their parent or caregiver. This study explores parental stress and support of parents of children with spina bifida in Uganda.

 

Objectives: The study aimed to explore perceived stress and support of parents of children with spina bifida living in Uganda and the factors that influence them.

 

Methods: A total of 134 parents were interviewed. Focus group discussions were held with four parent support groups in four different regions within the country. The Vineland Adaptive Behaviour Scales, Daily Functioning Subscales and Parental Stress Index Short Form (PSI/SF) were administered to measure the child’s daily functioning level and parental stress levels.

 

Results: Parental stress was high in our study population with over half of the parents having a > 90% percentile score on the PSI/SF. Stress outcomes were related to the ability to walk (Spearman’s correlation coefficient [ρ] = −0.245), continence (ρ = −0.182), use of clean intermittent catheterisation (ρ = −0.181) and bowel management (ρ = −0.213), receiving rehabilitative care (ρ = −0.211), household income (ρ = −0.178), geographical region (ρ = −0.203) and having support from another parent in taking care of the child (ρ = −0.234). Linear regression showed parental stress was mostly explained by the child’s inability to walk (β = −0.248), practicing bowel management (β = −0.468) and having another adult to provide support in caring for the child (β = −0.228). Parents in northern Uganda had significantly higher scores compared to parents in other regions (Parental Distress, F = 5.467*; Parent–Child Dysfunctional Interaction, F = 8.815**; Difficult Child score, F = 10.489**).

 

Conclusion: Parents of children with spina bifida experience high levels of stress. To reduce this stress, rehabilitation services should focus on improving mobility. Advocacy to reduce stigmatisation and peer support networks also need to be strengthened and developed.

Training social facilitators in personalised social support: Trainers’ booklet

LAFRENIERE, Annie
RELANDEAU, Audrey
KIANI, Shirin
December 2015

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This booklet is the gateway for a training kit on personalised social support (PSS). The aim of this training course is to train social facilitators either in the personalised approach only, or in how to carry out a complete PSS process. The aim of this booklet is therefore to impart the methodological and educational components required to use the content of this training course to Handicap International’s (now Humanity and Inclusion) future PSS trainers. It therefore takes another look at the entire content of the PSS training course, explains the educational choices, presents the modules and other teaching tools created, and above all, provides advice/recommendations for future designers and trainers/facilitators on this theme. Throughout this booklet, internet links provide the reader with quick access to the content of training courses and other relevant resources

Deaf identities in a multicultural setting: The Ugandan context

MUGEERE, Anthony B
ATEKYEREZA, Peter
KIRUMIRA, Edward K
HOJER, Staffan
2015

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Often located far apart from each other, deaf and hearing impaired persons face a multiplicity of challenges that evolve around isolation, neglect and the deprivation of essential social services that affect their welfare and survival. Although it is evident that the number of persons born with or acquire hearing impairments in later stages of their lives is increasing in many developing countries, there is limited research on this population. The main objective of this article is to explore the identities and experiences of living as a person who is deaf in Uganda. Using data from semi-structured interviews with 42 deaf persons (aged 19–41) and three focus group discussions, the study findings show that beneath the more pragmatic identities documented in the United States and European discourses there is a matrix of ambiguous, often competing and manifold forms in Uganda that are not necessarily based on the deaf and deaf constructions. The results further show that the country’s cultural, religious and ethnic diversity is more of a restraint than an enabler to the aspirations of the deaf community. The study concludes that researchers and policy makers need to be cognisant of the unique issues underlying deaf epistemologies whilst implementing policy and programme initiatives that directly affect them. The upper case ‘D’ in the term deaf is a convention that has been used since the early 1970s to connote a ‘socially constructed visual culture’ or a linguistic, social and cultural minority group who use sign language as primary means of communication and identify with the deaf community, whereas the lower case ‘d’ in deaf refers to ‘the audio logical condition of hearing impairment’. However, in this article the lower case has been used consistently.

Disability & the Global South (DGS), 2015, Vol. 2 No. 3

2015

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Articles include:

  • Typhoon Haiyan One Year On: Disability, Poverty and Participation in the Philippines
  • Beneath the rhetoric: Policy to reduce the mental health treatment gap in Africa
  • Working within the tensions of disability and education in post-colonial Kenya: Toward a praxis of critical disability studies
  • How disability studies and ecofeminist approaches shape research: exploring small-scale farmer perceptions of banana cultivation in the Lake Victoria region, Uganda
  • Partnerships for Disability Research in Africa: Lessons Learned in Kinshasa, Democratic Republic of the Congo
  • Representation, Access and Contestation: Facebook and Vision Impairment in Jordan, India, and Peru

Inspiring futures : learning from memory work in Africa

DUNN, Alison
HAMMOND WARD, Sarah
2009

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This learning paper looks at the experiences of applying memory work as part of broader strategies to mitigate the impact of HIV and AIDS in five African countries. It explores how six NGOs in sub-Saharan Africa established memory work as a key component of their community-based HIV programmes and draws on the experience of people living with HIV and AIDS, children and young people who participated in the initiative, partner organisations' own learning and analysis and the end of project evaluation report

Move together now! Community and youth mobilisation for HIV prevention among young people in Uganda

MINISTRY OF GENDER, LABOUR AND SOCIAL DEVELOPMENT
2008

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This guide covers basic ideas on community mobilisation, youth participation and participatory tools with examples from Africa. It aims to equip users with competencies to develop the capacity of communities and young people to work together to address sexual and reproductive health (including HIV) needs of young people in Uganda. It provides tools and processes for mobilising young people and communities at various stages and planning activities for HIV prevention

Joining hands: integrating gender and HIV/AIDS: report of an ACORD project using Stepping Stones in Angola, Tanzania and Uganda

HADJIPATERAS, Angela
et al
July 2007

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This is the report of a two-year project to reduce the vulnerability of women and girls in Africa to HIV and AIDS, using Stepping Stones - a gender-focused participatory process that involves working closely with peer groups. The project's other objectives were to: build the capacity of local structures to respond; promote community responses through effective partnerships and advocacy actions; and find out whether Stepping Stones could be used effectively in unconventional settings with a range of population groups such as the nomadic Mucubai tribe in Southern Angola, internally displaced people living in camps in Northern Uganda, and the 21st Battalion of the Angolan armed forces. Key findings include: improvements in the level of knowledge and understanding of HIV/AIDS and increased communication around sexual issues and between couples and within communities, across all three countries, as well as an increased sense of community responsibility for HIV and AIDS. In addition there was patchy evidence of stigma reduction and some reduction in risky cultural and sexual practices. Although increased respect for women, including self respect and a reduction in gender violence was also noted, female subordination in decision making and control over resources remains. Stepping Stones was on the whole considered to be adaptable for use in a wide range of contexts although more thought was needed to develop effective strategies to combat obstacles when using this process in some circumstances

CSO capacity for policy engagement : lessons learned from the CSPP consultations in Africa, Asia and Latin America

CHOWDHURY, Naved
FINLAY-NOTMAN, Chelsie
HOVLAND, Ignie
August 2006

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This paper explore the views of Southern civil society organisations (CSOs) on the issues of evidence-based policy engagement and came out of the Civil Society Partnerships Programme (CSPP). "During its first phase the CSPP conducted a series of consultative seminars and workshops in Africa, Asia and Latin America. The aim was to provide a forum for representatives from policy research institutions and non-governmental organisations (NGOs), as well as other stakeholders, to come together. Participants discussed the opportunities and challenges for CSOs when using evidence to inform policy, presented lessons and best practice in this area, shared experiences about ongoing activities and identified opportunities for collaborative work"

Civil society in Uganda : at the crossroads?

DEVELOPMENT NETWORK OF INDIGENOUS VOLUNTARY ASSOCIATIONS (DENIVA)
June 2006

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This report provides useful and relevant knowledge on the state of civil society and increases the capacity and commitment of civil society stakeholders to strengthen Ugandan civil society, by mapping the structure, environment, values and impact of the NGO Sector in Uganda. It is also intended to contribute towards improving the quality of these structures, and of credibility and policy advocacy activities for a vibrant, active and independent civil society that will command respect among other stakeholders in development and governance activities in Uganda. The study was part of an international initiative, the Civil Society Index (CSI) project, coordinated by CIVICUS: World Alliance for Citizen Participation

Building bridges with SIPAA : lessons from an African response to HIV and AIDS

DUNN, Alison
HEALTHLINK WORLDWIDE
2005

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This document examines the key lessons from the Support to the International Partnership against AIDS in Africa (SIPAA) programme implemented between 2001 and 2005 in nine African countries. The programme's main focus was on African leadership and ownership, involvement and participation of people living with or affected by HIV and AIDS and mobilisation of national and regional partners. Lessons learned include: meaningful involvement of people living with HIV and AIDS; supporting associations according to potential rather than proven track record; networks support; support for local leaders; making connections through National AIDS Councils; building strong partnerships; sharing information and knowledge across Africa; making the most of African skills and resources

RBM communications assessment : challenges and opportunities in Ghana, Mali, Senegal, Tanzania and Uganda

SHUFFELL, Sara
2004

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This report is from an assessment carried out between October 2002 and April 2003 in Ghana, Mali, Senegal, Tanzania and Uganda. It was part of a Roll Back Malaria Communications Assessment as an initial stage in the process to develop effective and inclusive national malaria communication strategies in RBM participating countries across Africa. It notes the challenges that are raised in the context of development communications in Africa: the absence of basic malaria communications strategies, poor visibility of National Malaria Control Programmes, and lack of regional coordination and information sharing to name a few. There are, however, many opportunities to develop better malaria communications listed in the report

AFRO barometer : a comparative series of national public attitude surveys on democracy, markets and civil society in Africa

Institute for Democracy in South Africa (IDASA)
Center for Democracy and Development, (CDD-Ghana)
Michigan State University (MSU)

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Afrobarometer is a state-of-the-art research survey that measures the social, political and economic atmosphere in Africa. Afrobarometer surveys are conducted in more than a dozen countries. Because there are a standard set of questions, countries can be systematically compared and, ultimately, trends in public attitudes can be tracked over time. Each survey collects data about individual attitudes and behavior. Surveys have been done on democracy, governance, livelihoods, macro-economics and markets, social capital, crime, participation and national identity

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