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Community Action Research in Disability (CARD): An inclusive research programme in Uganda

HARTLEY, Sally D
YOUSAFZAI, AK
KAAHWA, MG
FINKENFLÜGEL, H
WADE, A
BAZIRAKE, G
DRACHLER, ML
SEELEY, J
ALAVI, Y
MATAZE, W
MUCURNGUZI, E
2017

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The ideology of Emancipatory Disability Research (EDR) reflected in the phrase ‘Nothing about us without us’, was first put forward in the 1990s. Although it aimed to place research control in the hands of the ‘researched’, i.e., people with disability, this rarely happens even today, 25 years later.

 

The Community Action Research on Disability (CARD) programme in Uganda embraced and modified the EDR approach, recognising the need for including people with disability in the research process from concept to outcome, and nurturing participation and collaboration between all the stakeholders in achieving action-based research. The research teams always included people with disability and staff from Disability People’s Organisations (DPOs) as well as academics and service providers. It endeavoured to generate and carry out research around issues that mattered to people with disability and their families. Leadership roles were assigned by team members. The objectives of the CARD programme were: (1) to fund teams to carry out action-based research on disability in Uganda; (2) to develop research and administrative capacity to manage the initiative within the academic registrar’s office at Kyambogo University; (3) to incorporate new knowledge generated from the studies into the ongoing local community-based rehabilitation and special education courses; and, (4) to ensure wide dissemination of research findings to all stakeholder groups.

 

CARD ran for 5 years, commissioning 21 action research studies in the field of disability and community-based services. This paper describes the process, presents the 12 completed studies, examines the extent to which the objectives were achieved and evaluates the experiences of the participating research teams, particularly in relation to the inclusion of its members with disability. It concludes with recommendations for future initiatives designed to promote validity, good value and inclusive approaches in disability research.

Water supply and sanitation access and use by physically disabled people : literature review

PARKER, K J
JONES, Hazel
REED, R
September 2002

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This review, of published and unpublished literature from all over the world, was undertaken in order to gain an overview of available information. The majority of disabled people in low-income countries face barriers to accessing and using water and sanitation facilities. CBR projects, policy makers and governments need to address these findings

International Disability and Development Consortium (IDDC)

INTERNATIONAL DISABILITY AND DEVELOPMENT CONSORTIUM (IDDC)

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IDDC aims to promote the rights of disabled people more effectively and efficiently through collaboration and sharing information. The website contains details of and links to disability publications on a number of disability and development-related topics. Click on "disability and development topics" for links to documents on donor policy and practice, mainstreaming disability and development, and key development issues including HIV/AIDS

Disability awareness in action (DAA)

DISABILITY AWARENESS IN ACTION (DAA)

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DAA is an international human rights network run for and by disabled people. The website is used to pass on information and news to disabled people and organisations. There are links to further information about disability that is available on the Internet, as well as to DAA's resource kits (some are available online) and reports, and the contact details of other disability organisations

Movement for global mental health

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The Movement for Global Mental Health (MGMH) is a virtual network of individuals and organisations that aim to improve services for people living with mental health problems and psychosocial disabilities worldwide, especially in low- and middle-income countries (LMIC) where effective services are often scarce. Two principles are fundamental to the Movement: scientific evidence and human rights

Science advice and COVID-19

International Network for Government Science Advice (INGSA)

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In response to the COVID-19 outbreak, INGSA has created this information hub to aggregate and share the resources and discussions relating to how science advice and evidence functions in emergencies

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