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Online collective identities for autism: The perspective of Brazilian parents

ANTUNES, Debora
DHOEST, Alexander
2018

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This paper aims to better understand the role of social media in the definition and spread of views on autism in Brazil. To do so, it explores the identities adopted by parents of autistic people in one of the biggest Brazilian online communities about the subject on Facebook, ‘Sou autista… conheça o meu mundo’ (I am autistic… get to know my world), whose members are mostly parents, mainly mothers of autistic people

 

Disability and the Global South, 2018 Vol.5, No. 1, 1273-1291

Humanitarian Hands on Tool (HHoT)

CBM
2017

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The CBM smartphone app 'Humanitarian Hands-on Tool' (HHoT) provides step-by-step guidance on how to implement an inclusive emergency response. With disability-inclusive humanitarian action broken down into individual task cards, which explain the basic 'how-to' details in simple language and images, this web-based tool and downloadable mobile app aims to become the ‘go-to’ field resource for all agencies planning humanitarian work that leaves no-one behind

Global report: Self-Advocacy for inclusion

INCLUSION INTERNATIONAL
November 2016

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Across the Inclusion International network, many individuals and organisations took part in workshops, surveys and interviews to report:

  • what self-advocacy means to them
  • what good support is 
  • how organisations can be more inclusive
  • the vital role that families play in empowering self-advocacy.

This report provides a snapshot of work, and has some useful information for self-advocates, supporters, organisations and families. As well as containing the results from the global survey, interviews and workshops, this report also provides some useful guidance for anyone who wants to make the world more inclusive for people with intellectual disabilities.

 

A website (www.selfadvocacyportal.com) has been developed to share good practice and resources.

The promise and the reality: a mental health workforce perspective on technology-enhanced youth mental health service delivery

ORLOWSKI, Simone
LAWN, Sharon
MATTHEWS, Ben
et al
October 2016

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Digital technologies show promise for reversing poor engagement of youth (16–24 years) with mental health services. In particular, mobile and internet based applications with communication capabilities can augment face-to-face mental health service provision. Results of in-depth qualitative data drawn from various stakeholders involved in provision of youth mental health services in one Australian rural region are described. Data were obtained using focus groups and semi-structured interviews with regional youth mental health clinicians, youth workers and support/management staff and analysed via inductive thematic analysis. Six main themes were identified: young people in a digital age, personal connection, power and vulnerability, professional identity, individual factors and organisational legitimacy. 

 

DOI: 10.1186/s12913-016-1790-y

Mental Health Innovation Network (MHIN)

May 2016

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MHIN is a network  for the global mental health community to  communicate and share knowledge, experiences and resources to improve the quality and coverage of care. Provides searchable innovations and resources. The community area hosts blogs, podcasts, webinars and forums.

AuthorAid

AUTHORAID
December 2015

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AuthorAid is a tool to help researchers in developing countries to network and further disseminate their work to a wider audience. The website contains links to find mentors/collaborators, a range of E-learning opportunities, funding opportunities for people working in developing countries, and a plethora of resources on topics ranging from how to write a grant proposal though to the publication process itself

A world that counts : mobilising the data revolution for sustainable development

UNITED NATIONS (UN) INDEPENDENT EXPERT ADVISORY GROUP ON A DATA REVOLUTION FOR SUSTAINABLE DEVELOPMENT (IEAG)
November 2014

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This report highlights two big global challenges for the current state of data: whole groups of people are not being counted and important aspects of people’s lives and environmental conditions are still not measured; and there are huge and growing inequalities in access to data and information, and in the ability to use it. The report makes specific recommendations on how to address these challenges, calling for a UN-led effort to mobilise the data revolution for sustainable development: fostering and promoting innovation to fill data gaps; mobilising resources to overcome inequalities between developed and developing countries and between data-poor and data-rich people; leadership and coordination to enable the data revolution to play its full role in the realisation of sustainable development

The Convention on the Rights of Persons with Disabilities Training Guide : Professional Training Series No. 19

UNITED NATIONS HUMAN RIGHTS OFFICE OF THE HIGH COMISSIONER
2014

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These eight training modules are meant to “inform and empower those who are involved in ratifying, implementing and monitoring the two instruments. While the Training Guide is mainly targeted at facilitators of training courses on the Convention and its Optional Protocol, it acknowledges that each and every one of us has a role to play. I recommend wide dissemination of the training package, and its use by all those who want to embark upon the essential journey towards greater awareness and effective implementation of the rights of persons with disabilities and, ultimately, the building of an inclusive society for all.”

Disaster risk reduction through climate change adaptation : Incheon declaration, remap and action plan

NATIONAL EMERGENCY MANAGEMENT AGENCY, REPUBLIC OF KOREA
October 2010

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This conference report presents a summary of the agreements made during the fourth Asian Ministerial Conference on Disaster Risk Reduction. The report contains a roadmap, agreed by the States in attendance, to establish climate resilient disaster risk management (DRM) systems that contribute to sustainable development at regional, national, sub national and community levels by 2015. This roadmap details a wide range of activities, including delivering training to key stakeholders, developing communication plans relating to disaster risk reduction, and the promotion of child- and people-centered education for community preparedness and risk reduction

The 4th Asian Ministerial Conference on Disaster Risk Reduction

25-28 October 2010

Incheon, Republic of Korea

National partnership platforms on HIV and TB : a toolkit to strengthen civil society information, dialogue and advocacy

RAMAKANT, Bobby
et al
2009

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This toolkit aims to share the learning on national partnership programmes (NPP) so far, The examples, case studies, challenges and processes described are therefore a ‘work-in-progress’ rather than perfectly presented material. The toolkit also provides examples of successful initiatives using the NPP approach. A NPP is based on the principle that information is power, providing tools for information sharing, networking and dialogue. NPPs facilitate the process of consensus building, developing an informed common advocacy agenda and implementing effective country level advocacy on HIV and TB

Mapping dialogue : a research project profiling dialogue tools and processes for social change

BOJER, Marianne Mille
MCKAY, Elaine
ROEHL, Heiko
April 2006

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This report profiles ten methods for facilitating dialogue. The approaches are diverse: some are designed for small groups, others for large numbers of people; some explore conflict while others are based on what is agreed. Part 1 looks at the foundations for, and approaches to, dialogue and offers some background on dialogue in traditional African culture. Part 2 maps out ten dialogue methods in depth and a number of others more briefly. Part 3 offers some ideas for how to assess what method to use in a given context

A strategy to enhance the global research effort in maternal and child health : the Mother-Child International Research Network

HAMILTON, Richard
March 2006

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This article presents the mission and objectives of the Mother-Child International Research Network. The network aims to support and bring together researchers and research institutions working in the field of mother and child health in low-income countries, facilitating access to scientific debate and opportunities for collaboration. The network's website www.mother-child.org holds scientific updates, distance-learning activities and weblog facilities and is designed to support health communication and exchange and increase exposure to a wide international audience

Lessons learned from the nine communities funded through the Connecting Communities for Better Health program

FOUNDATION FOR EHEALTH INITIATIVE
2006

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This document brings together the experiences and lessons learned in the implementation of health information exchange (HIE) initiatives as part of Connecting Communities for Better Health programme. The programme provides support to health information organisations and initiatives across the United States, but lessons can be applied to other contexts and settings. Covers all main components of programme planning and implementation, including: creating business models; planning and building IT infrastructure; getting started; assessing the environment; developing a shared vision; marketing; resource allocation and budget; data collection and evaluation; replication of prior success as a project strategy

Implementing knowledge strategies : lessons from international development agencies

RAMALINGAM, Ben
April 2005

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This study synthesises existing research on knowledge and learning in the development sector, and draws out eight key questions for examining related strategies and systems in development agencies. Together, these questions make up a comprehensive Knowledge Strategies Framework, which brings together four 'dimensions': organisational knowledge, organisational links, organisational contexts, and external factors. The study then presents the analysis of data collected on current knowledge and learning practices in 13 selected case study organisations. It finds that organisational learning is most effective where it is defined and understood, and where it is linked to ongoing processes. It sets out questions and considerations for further investigation

ICTs and the fight against HIV/AIDS in India : the SAATHII experience

RAMAKRISHNAN, L
January 2005

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This article explores the work of SAATHII - Solidarity and Action Against the HIV Infection in India - a non-profit organisation launched in 2000 to facilitate dialogue among the diverse sectors involved in the fight against HIV/AIDS in India. The author reports on the organisation's use of various ICTs to provide information in a range of ways to activists, volunteers, NGO programme personnel, funders and policy makers, and also examines the lessons learned so far

Building bridges with SIPAA : lessons from an African response to HIV and AIDS

DUNN, Alison
HEALTHLINK WORLDWIDE
2005

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This document examines the key lessons from the Support to the International Partnership against AIDS in Africa (SIPAA) programme implemented between 2001 and 2005 in nine African countries. The programme's main focus was on African leadership and ownership, involvement and participation of people living with or affected by HIV and AIDS and mobilisation of national and regional partners. Lessons learned include: meaningful involvement of people living with HIV and AIDS; supporting associations according to potential rather than proven track record; networks support; support for local leaders; making connections through National AIDS Councils; building strong partnerships; sharing information and knowledge across Africa; making the most of African skills and resources

Undergraduate medical and pharmacy education : the need for change and the way forward

2005

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This is a report of the Second International Consultation on Undergraduate Medical and Pharmacy Education, convened by Health Action International Asia Pacific (HAIAP) in collaboration with the South East Asia Regional Office (SEARO) and the Eastern Mediterranean Regional Office (EMRO) of the World Health Organization (WHO). It attempts to identify the shortfalls of medical and pharmacy education in the context of developing countries, indigenous cultures and changing expectations and demands on the profession. The consultation produced a series of recommendations, including introducing social, economic and ethical concepts in medical education and making access to information resources more available to pharmacy students and pharmacists

Use of information to address TB/HIV in Cambodia: workshop proceedings from Banteay Meanchey, Battambang, Phnom Penh, and Sihanoukville

BONNET, Jayaseeli
PHAT, So
SEAK, Kunrath
June 2004

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Cambodia is one of the countries most severely affected by TB and HIV. Partners in Health Reformplus (PHRplus) is providing technical support to government pilot interventions, developing an information component to support HIV/TB activities. It is standardizing the information being collected across all sites and facilitating its use by implementing partners in order to increase case detection and strengthen case management of TB/HIV co-morbidity. In January - March 2004, PHRplus conducted workshops with the four sites to review information and data it had collected, to identify current pilot accomplishments and to recommend how work could be improved. This report presents the workshop findings

Sustainable ICT

May 2004

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This website was created as part of a DFID-funded research programme on sustainability factors in ICT for development projects. It presents a diverse range of case studies of programmes attempting to use information and commuication technologies as an integrated component of development programming, addressing economic, social and institutional sustainability. A brief description and the key objectives are provided for each, with a link through to each of the actual studies. The website also includes links to the research report, which provides useful analysis

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