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The experiences of parents of children living with disabilities at Lehlaba Protective Workshop in Sekhukhune district of Limpopo province

TIGERE, Brian
MAKHUBELE, Jabulani C.
September 2019

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Background: Parents of children with disabilities have faced difficulties in looking after their children, be it socially, economically and financially. Parents in rural areas are mainly left with a huge burden, as there is a lack of services and support from both the state and non-governmental organisations. Parents in Sekhukhune district, a rural area in Limpopo province of South Africa, face challenges in raising their disabled children related to lack of resources and lack of services at their disposal.

 

Objectives: This study focuses on the experiences and life circumstances faced by parents of children living with different types of disabilities at Lehlaba Protective Workshop in Sekhukhune district of Limpopo province, South Africa.

 

Method: The study consisted of 14 participants who are parents of children living with disabilities. An interview guide with a set of questions was utilised to gather data. Thematic analysis was used to analyse the data and themes that emerged were grouped together.

 

Results: Themes that emerged from the data showed that most of the participants had varying understandings on the causes of disabilities to their children. The participants also were of the view that a ‘cure’ for disability was available medically, spiritually or through traditional African medicine. The study also brought the notion of absent fathers, as most men do not want to be associated with children who are disabled. Stigmatisation of the parents was also a theme that the study revealed. The parents are subjected to name labelling as they are viewed to be practising witchcraft or to be paying for their sins they committed.

 

Conclusion: Parents of children with disabilities are in their own battle in raising their children. There is a lack of support structures available for parents of children living with disabilities. There is a lack of legislation available for protecting and promoting the rights of children with disabilities. The researchers concluded that raising a child with a disability is expensive, time-consuming and straining.

 

 

African Journal of Disability, Vol 8, 2019

Knowledge and Beliefs about Ear and Hearing Health among Mothers of Young Children in a Rural Community in South India

NARAYANSAMY, M
RAMKUMA, V
NAGARAJAN, R
2014

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Purpose: To study the knowledge and beliefs about ear and hearing healthcare among mothers from a rural community.

 

Method: In 1 week, 6 focus group discussions were conducted across 6 villages of a district in Tamil Nadu in southern India. The participants were 60 mothers who had children below 5 years of age.

 

Results: Mothers in this rural community had information about some aspects of ear and hearing healthcare. They were aware that use of hairpins and safety- pins to clean ears was harmful; they were knowledgeable about ways to identify hearing ability (child responds to name call, verbal instructions, and startles at loud sounds); and, conditions like consanguinity and malnutrition of expectant mothers were recognised as risk factors for hearing loss. However, misconceptions also existed. The practice of pouring herbal juices to remove insects in the ear continued; there was the perception that all children with a hearing problem were “deaf”, and a lack of awareness about the possibility of partial/unilateral hearing loss. Regarding the age of identification, mothers believed that a child’s ability to speak and the ability to hear was pertinent to assess hearing. None of the mothers related normal speech development to normal hearing.

 

Conclusion: For the success of a community-based hearing screening programme, it is important to utilise the existing knowledge of the mothers, and simultaneously attempt to fill in gaps in knowledge and clarify misconceptions. These measures will facilitate greater compliance from the community in achieving the goals of early identification and early intervention for problems of hearing loss.

A community-based health education programme for bio-environmental control of malaria through folk theatre (Kalajatha) in rural India

GHOSH, Susanta K
et al
December 2006

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Kalajatha is a popular, traditional art form of folk theatre depicting various life processes of a local socio-cultural setting. It is an effective medium of mass communication in the Indian sub-continent especially in rural areas. Using this medium, an operational feasibility health education programme was carried out for malaria control. This study was carried out under the primary health care system involving the local community and various potential partners

Sharing knowledge for community development and transformation : a handbook

MCHOMBU, Kingo J
August 2004

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This handbook addresses the information needs of rural communities in Africa and explores the relationship between knowledge and development, and how community information resource centres can contribute to and can spark community development. It provides guidance for establishing community information centres and for ensuring their sustainability. The second edition includes several case studies from Ethiopia, draws out lessons learned, and includes a special section on HIV and AIDS resource centres. Each chapter concludes with suggested discussion questions for community groups

Locally generated printed materials in agriculture : an experience from Uganda and Ghana

CARTER, Isabel
1999

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This report examines the usefulness of locally generated information material to (near-) subsistence level farmers in Uganda and Ghana. It questions the assumption that non-literate farmers do not benefit from information material and shows the variety of vectors and strategies that communities use to disseminate new knowledge. It examines the conventional theoretical and practical bases for the provision of information and contrasts these with practice at community level. The starting point for the report is a survey of Footsteps readership by Tearfund. Footsteps is a widely disseminated newsletter on community development, aimed at near-subsistence level farmers. It seeks to provide farmers with printed agricultural information in their own language and appropriate for their situation

The paradigm of communication in development : from knowledge transfer to community participation : lessons from the Grameen Bank, Bangladesh

FUGELSANG, A
CHANDLER, D
1997

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This case study describes in some detail the communication methodologies in a cooperative bank in Bangladesh, which relies on the participation of landless people. The paper describes and analyzes the bank's approach to external and internal communication and information processing, its methods of information, management and decision-making - features of the Bank's organization and functioning which have played a significant role in its success

The internet and rural and agricultural development : an integrated approach

RICHARDSON, Don
1997

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Discusses the potential benefits of using the Internet for rural / agricultural development. Contextualises the growth of the internet in development initiatives and addresses the potential of the internet in specific areas, eg community development, research/education, small and medium enterprise development, and news media. Finallly, identifies several areas of best practice to guide effective use of the internet. Recommends engaging intermediary agencies involved in (project support, research, extension, health etc) in internet initiatives, as well as stakeholders and intended beneficiaries. Warns against the widening information gap between haves and have-nots

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