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Increasingly consulted, but not yet participating: IDA global survey report on participation of Organisations of Persons with Disabilities

INTERNATIONAL DISABILITY ALLIANCE (IDA)
November 2020

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This new report presents the findings of the first-ever global survey led by OPDs on their participation in decision making processes of governments, the UN system and funding agencies.

The IDA Global Survey is part of a strategy to hold decision-makers accountable for their commitments under Articles 4.3 and 32 of the UN Convention on the Rights of Persons with Disabilities (CRPD). Based on testimonies collected from OPDs in 165 counties, the report assesses the quality, depth, scope and relevance of the OPDs participation in programmes and policies, and offers recommendations for governments, the UN system and funding agencies.

Global Disability Summit: One Year On – accountability report 2019

EQUAL INTERNATIONAL
September 2019

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This first accountability report, one year on from the Global Disability Summit 2018, presents independent analysis of the 171 sets of commitments made by governments and organisations at the Summit. It also sets out the results of a self-reporting survey completed by Summit participants, updating on progress made against their commitments so far.

 

The wider impact of the summit is discussed.

 

The results of the first GDS18 self-reporting survey demonstrate that significant progress has been made on implementation of the 968 Summit commitments. Work is reported to be underway on 74% of the commitments and 10% are reported as already completed, contributing towards an improved and increased visibility of disability inclusion within development and humanitarian action.

 

Appendix 2 gives country level case studies: Case study developed by Users and Survivors of Psychiatry Kenya; Case Study developed by the National Federation of the Disabled Nepal (NFDN); and Case Study developed by I Am a Human, Jordan

 

Global survey of inclusive early childhood development and early childhood intervention programs

VARGAS-BARON, Emily
et al
March 2019

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To learn more about the current status of IECD (inclusive early childhood development) and ECI (early childhood intervention) programs, three international organizations collaborated to conduct a global survey: RISE Institute; UNICEF; and the Early Childhood Development Task Force (ECDtf), which is within the Global Partnership on Children with Disabilities (GPcwd). This large survey was designed in 2016, was conducted in 2017, and the report was prepared in 2018.

 

The main objectives of the survey were to:

  • Map current implementation of IECD and ECI programs and related activities;
  • Describe key IECD and ECI program features;
  • Identify gaps and challenges in providing accessible IECD and ECI services;
  • Document factors associated with successful implementation and scale-up;
  • Generate recommendations to inform future policy and program development and national planning and implementation efforts.

 

The online survey targeted a range of programs, and activities including IECD and ECI services; rehabilitation and habilitation services; humanitarian, emergency, and child Global Survey of Inclusive ECD and ECI Programs 8 protection services; advocacy campaigns; and research and evaluation projects. 

 

Program respondents provided information on 426 programs that were implemented in 121 countries. 

Education and disability: Analysis of data from 49 countries

UNESCO
March 2018

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Persons with a disability are among the population groups most likely to suffer from exclusion from education but data that permit an analysis of the links between disability and education remain scarce. This paper examines educational disparities linked to disability based on data from 49 countries and territories for five education indicators:

● Proportion of 15- to 29-year-olds who ever attended school

● Out-of-school rate (primary school age, lower secondary school age)

● Completion rate (primary education, lower secondary education)

● Mean years of schooling of the population 25 years and older

● Adult literacy rate (population 15 years and older)

 

The education indicators were calculated with data from three sources, collected between 2005 and 2015: Demographic and Health Surveys (DHS) sponsored by USAID, School-to-Work Transition Surveys (SWTS) by ILO, and population census data compiled by IPUMS-International. Comparability of the data across countries is limited because only some of the surveys and censuses used questions developed by the Washington Group on Disability Statistics to identify persons with a disability. The accuracy of the indicator estimates is also affected by sampling and non-sampling errors in the data, the small sample size of many of the surveys that were analysed, and the relatively small proportion of persons with disabilities in each country’s population. Moreover, because of the scarcity of national data, it is currently not possible to generate statistics on the status of persons with disabilities with regard to education that are regionally or globally representative.

Information Paper No.49

 

Operationalizing the 2030 agenda : ways forward to improve monitoring and evaluation of disability inclusion

UNITED NATIONS DEPARTMENT OF ECONOMIC AND SOCIAL AFFIARS (UNDESA)
2015

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This note concerns monitoring and evaluation of disability and inclusion in light of the sustainable development goals. The note identifies steps which can be taken by individual countries and the international community as a whole to address the gaps in data disaggregation and collection concerning people with disabilities. The note concludes with a discussion of possible ways forward for better monitoring and evaluation for disability inclusion in the 2030 Agenda for Sustainable Development

Living with disability and disasters : UNISDR 2013 survey on living with disabilities and disasters : key findings

UNITED NATIONS OFFICE FOR DISASTER RISK REDUCTION (UNISDR)
2014

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This report discusses "the results of the first-ever UN global survey of persons living with disabilities (PWDs) on how they cope with disasters, illustrates why they die, or are injured, in disproportionate numbers in disasters. Survey responses from 5,717 persons from all over the world reveal that persons living with disabilities are rarely consulted about their needs in potential disaster situations." The report concludes with a number of recommendations for how to develop disaster risk reduction practises that include people with disabilities

A data revolution for disability-inclusive development

MITRA, Sophie
August 2013

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This article examines data collection and monitoring for disability-inclusive development. It discusses the need for a data revolution and the UN's Washington City Group on Disability Statistics’ questions as a measurement example
The Lancet Global Health, Early Online Publication

Old age, disability and mental health : data issues for a post-2015 framework

SAMMAN, Emma
RODRIGUEZ-TAKEUCHI, L. K
May 2013

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"This Background Note focuses on inequalities associated with old age, disability and mental health. It argues that these should be considered salient sources of group-based difference, given the numbers of people affected, their marginalisation and vulnerability, and their relative neglect in international agreements to date. This note identifies a lack of data as a particular concern, but one that can be addressed through revisions to standard household surveys. To this end, the paper discusses the available data and their limitations, constraints to better data collection and efforts needed to adjust key international survey instruments -the World Bank’s Core Welfare Indicator Questionnaire (CWIQ) and Living Standards and Measurement Survey (LSMS), Macro International’s Demographic and Health Survey (DHS) and the UNICEF Multiple Indicator Cluster Survey (MICS)- to collect reliable data on these issues. It sets out technical adjustments that would enable these surveys to broaden their coverage, collect richer information and improve their identification of these three groups. It concludes by commenting on how measures to address the inequalities that affect these groups could be incorporated within a new post-2015 framework agreement"
ODI Background note

A million voices : the world we want|A sustainable future with dignity for all

UNDG MILLENNIUM DEVELOPMENT GOALS TASK FORCE
2013

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"This report by the United Nations Development Group (UNDG) collects the perspectives on the 'world we want' from over 1 million people around the globe. For almost one year, people have engaged energetically in 88 national consultations, 11 thematic dialogues, and through the MY World global survey...The findings of this global conversation contain important messages for governments as they seek to agree on a new development agenda that can build on the successes of the Millennium Development Goals (MDGs)"

Zero project report 2013

FEMBEK, Michael
et al
November 2012

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This report provides details on the implementation of the UN Convention on the Rights of Persons with disabilities with the aim to improve lives of people with disabilities and their legal rights. Details of research, statistics from surveys done in 55 participating countries, social indicators, employment indicators, innovative practices and innovative policies are presented to measure improvement of access to transport, career development, education, equal opportunity and human rights for people with disabilities

Zero project report 2012 summary

ESSL FOUNDATION
November 2012

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The easy read summary of the 2012 Zero Project report presents information about the progress of the UN Convention on the Rights of Persons with Disabilities. This summary provides examples of good practice and laws survey results from 35 countries, 2 states in the US and 9 provinces in Austria

Inequalities relating to health and the life course : disability, mental Illness and older age

SAMMAN, Emma
RODRIGUEZ-TACKEUCHI, Laura
November 2012

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"Issues related to early childhood feature prominently in the MDG framework (as do malnutrition, HIV status and malaria), and data collection in these areas is fairly advanced. Other sources of inequality are notable by their virtual absence - among these, older age, disability and mental illness, although these issues each appear to affect sizeable numbers of particularly vulnerable people throughout the world. A clear obstacle to ‘mainstreaming’ these sources of inequality in a new post-2015 agreement is the widespread lack of nationally representative internationally comparable data. This could arise from definitional or technical issues (what to measure and/or how), operational issues (e.g., resource or capacity constraints), attitudinal issues (relating to stigma) and/or lack of demand from data users. Greater attention is needed to explore these constraints and how they might be overcome. To this end, this paper discusses currently available data and its limitations, constraints to better data collection and efforts needed to adjust key international survey instruments- the World Bank’s Core Welfare Indicator Questionnaire (CWIQ) and Living Standards and Measurement Survey (LSMS), Macro International’s Demographic and Health Survey (DHS) and the UNICEF Multiple Indicator Cluster Survey (MICS) - to collect reliable data on these sources of inequality, alongside other household indicators"
Note: Accepted under the "Addressing Inequalities" Global Thematic Consultation - Call for Proposals for Background Papers, Oct 2012

Findings on accessibility of the zero project

HEINDORF, Ingrid
Eds
June 2012

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This report presents the findings from The Zero Project 2012 which highlights the implementation of the UN Convention on the Rights of Persons with Disabilities. The report’s thematic focus on barriers provides examples of social indicators, good practice and good policy relating to accessibility to the physical environment, to transportation, to information and communications, as well as to other facilities and services provided to the public “"A prelude to the European Accessibility Act: Findings of the international Zero Project Report 2012"
Brussels, Belgium
21 June 2012

Capacity development in disability and development for CLMV government officers

FOUNDATION FOR ADVANCED STUDIES ON INTERNATIONAL DEVELOPMENT (FASID)
June 2010

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This is a completion report of a disability project which started from July 2007 to June 2010 with the objective of enhancing the capacities of government officers engaged in disability issues to analyse, formulate and implement policies and programmes in Cambodia, Lao PDR, Myanmar and Vietnam (CLMV countries). This project report reviews and summarises FASID’s activities and achievements

To what extent are disabled people included in international development work? How can the barriers to inclusion be overcome?

YEO, Rebecca
2003

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This paper is a result of research carried out with international development organisations in the UK to examine the extent to which disabled people are included in their work and to look at the barriers to inclusion and at strategies to overcome these barriers. The paper examines the problems that organisations have in including disabled people and solutions that might overcome these.

Baseline assessment : inclusion and disability in World Bank activities

STIENSTRA, Deborah
FRICKE, Yutta
D'AUBIN, April
2002

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This report provides the World Bank with an assessment of its current efforts to integrate people with disabilities. At the same time, it offers information and recommendations from World Bank headquarters, in the field, and from other related institutions, on how best to move forward to improve the amount and quality of Bank development assistance that includes people with disabilities.
The report advises the World Bank on ways to include disabled people in different activities such as economic support, knowledge sharing, consultation, decision making, accessibility and inclusion. The report will be of interest for organisations which cooperate with the World Bank and for organisations which aim to learn more about international development

Review of the present situation in special needs education

HEGARTY, Seamus
1995

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An overall comparison between the two situations - 1986 and 1993 - reported here and in the previous report allow for some guarded optimism. Most countries provided some information on policies but varied greatly in the amount of detail offered. Special educational provision is more firmly located within regular education, at school and the administrative levels, than before and has greater legislative underpinning. Within the policy statements, themselves, the most common strands related to : developing the individual's potential, integration and necessary steps for implementation. Regarding legislation, most countries did include special needs provision in the same regulatory framework as general education; the most common reason given for excluding particular children was severity of disability. Much remains to be done and there is no room for complacency. Many countries face fiscal and personnel constraints, and maintaining let alone increasing existing investment in special educational provision will not be easy. A word of caution : even where resources are not the central issue, the pressures created by the general school reforms taking place in many countries may reduce the priority given to speical educational provision. However, progress has been made, despite the many difficulties.

Zero project : for a world without barriers

ESSL FOUNDATION
World Future Council

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The Zero Project advocates for the rights of persons with disabilities internationally, and its mission is working for a world with zero barriers. The project's website is based on social media and is an interactive platform for anyone who is interested in Social Indicators, Innovative Practice and Innovative Policy examples in the field of disability. It aims to highlight the best solutions for creating change for the better. Information is also provided about the project, related conferences, resources and latest news

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