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People are neglected, not diseases: the relationship between disability and neglected tropical diseases

HAMILL, Claire Louise
et al
May 2019

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The affect of NTDs can contribute to poverty, illness, mental health and psychosocial, cognitive, intellectual and physical impairments, all of which can, in turn, result in disability through a multifaceted process upon which many other factors impinge. It is this complex and non-linear relationship between disability and NTDs that forms the basis of this review

 

Transactions of The Royal Society of Tropical Medicine and Hygiene 2019; 00: 1–6
doi:10.1093/trstmh/trz036

 

 

Missing millions: How older people with disabilities are excluded from humanitarian response

SHEPPARD, Phillip
POLACK, Sarah
McGIVERN, Madeleine
July 2018

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The aim of this study was to explore the experiences of older people with disabilities across a range of humanitarian settings, considering:

  • whether older people with disabilities have additional needs and challenges accessing humanitarian assistance and protection
  • what factors facilitate or limit access by older people with disabilities to humanitarian assistance and protection
  • to what extent is humanitarian response inclusive of older people with disabilities

A systematic literature review of published studies was conducted. Key online humanitarian guidelines were explored to review how far they explicitly address older people with disabilities. Data from six population-based disability surveys comparing the living situation of older people with and without disabilities were analysed. These included databases from two crises-affected populations in Haiti (post-earthquake) and Palestine. Data from four non-humanitarian settings was also reviewed to explore more broadly the situation for older people with disabilities – India, Guatemala, Cameroon and Nepal. Interviews were held with older people with disabilities, members of their families and local key informants in two conflict-affected populations in Ndutu and Mtendeli refugee camps in Western Tanzania, and Donetsk and Luhansk regions of Eastern Ukraine to find out about their experiences. Staff of five international agencies working in humanitarian response were also interviewed. 

 

Findings highlight particular issues facing older people with disabilities in humanitarian crises: more risk escaping from danger;  barriers to accessing social protection and work; barriers to accessing health and rehabilitation services; barriers to accessing food and other essentials; unsuitable housing and poor living conditions;  insecurity and discrimination; threats to dignity and independence; social isolation and loneliness; risks to mental health; and missing from humanitarian response.

 

A table brings together the findings from the different components of the research to show the needs, risks, barriers and enablers for older people with disabilities identified in the research. Recommendations are provided to humanitarian donors, policy makers and practitioners

The right to live independently and be included in the community : Addressing barriers to independent living across the globe

ANGELOVNA-MLADENOVA, Lilia
June 2017

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"This reports looks at the main barriers to the realisation of disabled people’s right to live independently and be included in the community, which is set out in Article 19 of the UN Convention on the Rights of Persons with Disabilities (CRPD). They are grouped in seven broad areas: (1) misunderstanding and misuse of key terms, (2) negative attitudes and stigma, (3) lack of support for families, (4) prevalence of institutional services, (5) barriers related to community support services, (6) barriers in mainstream services and facilities, and (7) barriers, concerning other CRPD provisions, with effect on Article 19. A set of recommendations is also provided, outlining measures required to address these barriers"

Social relationships, mental health and wellbeing in physical disability: a systematic review

TOUGH, Hannah
SIEGRIST, Johannes
FEKETE, Christine
May 2017

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The aim of this study is to systematically review quantitative studies exploring associations of social relationships with mental health and wellbeing in persons with physical disabilities. The objective is to summarise a complex and heterogeneous body of empirical research on the association of different social relationship constructs with mental health and wellbeing in physical disability and to highlight conceptual and methodological deficiencies in the field of research. The literature search included original articles published in English between January 1, 1995 and May 31, 2016. Data was extracted on study and participants’ characteristics, independent and dependent variables, used measures and effects sizes of associations between social relationships and mental health or wellbeing. A narrative review was performed to synthesise findings along the constructs social support, social networks, negative social interactions, family functioning and relationship quality.  Of the 63 included studies, 47 were cross-sectional and 16 longitudinal.

BMC Public Health (2017) 17:414 

DOI 10.1186/s12889-017-4308-6

Mental health and human rights : Report of the United Nations High Commissioner for Human Rights

OFFICE OF THE HIGH COMMISIONER FOR HUMAN RIGHTS
January 2017

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"The present report, mandated by the Human Rights Council in resolution 32/18, identifies some of the major challenges faced by users of mental health services, persons with mental health conditions and persons with psychosocial disabilities. These include stigma and discrimination, violations of economic, social and other rights and the denial of autonomy and legal capacity.

In the report, the High Commissioner recommends a number of policy shifts, which would support the full realisation of the human rights of those populations, such as the systematic inclusion of human rights in policy and the recognition of the individual’s autonomy, agency and dignity. Such changes cover measures to improve the quality of mental health service delivery, to put an end to involuntary treatment and institutionalisation and to create a legal and policy environment that is conducive to the realisation of the human rights of persons with mental health conditions and psychosocial disabilities"

A/HRC/34/32

Human Rights Council, Thirty-fourth session, 27 February-24 March 2017

Inclusive disaster risk reduction

LAFRENIERE, Annie
WALBAUM, Veronique
2017

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This policy paper defines the themes of inclusive disaster risk reduction and explains how these activities fit into the HI mandate. It also identifies the target population and defines modalities of intervention–standard expected outcomes, standard activities–as well as monitoring and evaluation indicators.

For every child, a fair chance : the promise of equity

UNITED NATIONS CHILDREN’S FUND (UNICEF)
November 2015

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“UNICEF’s commitment to equity – giving a fair chance in life to every child, everywhere, especially the most disadvantaged – is built on the conviction that it is right in principle and evidence that it is right in practice. This report makes the case for closing persistent gaps in equity…” The report identifies a number of persistent gaps in equity for children, ranging from health to nutrition, to social inclusion. The report concludes by making recommendations to close gaps in equity worldwide as well as projecting progress in achieving equity by 2030

Conduct an accessibility audit in low and middle income countries

NOUVELLET, Hugues
June 2014

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This guide aims to assist professionals in conducting an accessibility audit, and is aimed at Handicap International professionals who have responsibility for developing, implementing or analysing accessibility activities. Within the framework of inclusive local development, an accessibility audit is a complex, substantial and technical process to implement involving a large number of different stakeholders, increase time preparation and technical specialised skills for making recommendations to remove barriers. An accessibility audit is a participatory democracy exercise which can be used as the basis to form relationships between stakeholders in a municipality accessibility commission or even a municipality commission for inclusive development, who will have responsibility for suggesting, studying, organising and implementing actions to improve accessibility

Victim assistance factsheets

HANDICAP INTERNATIONAL
2014

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The factsheets were developed by Handicap International (HI) as a tool to provide concise information on what victim assistance (VA) is and on how to translate it into concrete actions that have the potential to improve the quality of life of mine/ERW victims and persons with disabilities. The factsheets target States Parties affected by mine/ERW, States Parties in a position to provide assistance, as well as organizations of survivors and other PwD, and other civil society - and international organizations.

 

This package consists of 12 factsheets. Six focus on a specific sector or public policy area that VA is an integral part of and the remaining six are dedicated to cross-cutting issues. With a view to promote synergies between different frameworks, each factsheet makes clear links with development sectors and issues.

 

The 12 topics include: Medical care, Rehabilitation, Psychological & psycho-social support, Education, Social inclusion, Economic inclusion, Gender, Empowerment, Accessibility & Access to services, Data collection, National Action Plans, Coordination, and International Cooperation and assistance

A guide for community health workers supporting children with disabilities

ADAMS, Mel
et al
2014

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"This resource is to be used as a guide for Community Health Workers (CHWs) to support parents in promoting the development and independence of their child with neurodevelopmental disabilities...In line with current thinking, this resource places the emphasis on promoting activity and participation in a child’s daily life activities rather than therapies that try to fix ‘the problem’ (Skelton and Rosenbaum, 2010). As such, this manual provides ideas on how to support the child during activities of daily living – taking particular account of their physical and communication abilities and needs – and does not include hands-on rehabilitation techniques that focus on specific impairments. It does however provide guidance on overall management and prevention of further disability. The materials in this manual can be used as the basis for a programme of intervention that progresses through two stages"

Note: As indicated when clicking on the resource link below, the manual is available once contact details are entered or alternatively user can contact mel@maits.org.uk to receive a free pdf copy of this resource

Inclusive disaster risk management : a framework and toolkit

FERRETTI, Silva
KHAMIS, Marion
2014

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This framework and toolkit have been designed to support practitioners in challenging and deepening inclusiveness in their work. They have been designed in simple language, so the resource should be easy to adapt for the use of field staff as a complement to existing manuals and operational resources on DRM. The practical framework contains the following sections:introduction, framework for inclusive DRM, levels of achievements, and assessing inclusiveness, using the framework for,  annexes and Q&A. Throughout the resource, related resources and checklists are provided and the toolbox features cartoons, tools catalogue, learning pills, case studies, poster and 4D lenses. These resources are useful for practitioners who want to develop an understanding of inclusive DRM framework and to learn how to practically assess inclusiveness in in ongoing DRM situations

Community-based rehabilitation (CBR) and persons with intellectual disabilities : international workshop report

SUNIL, Deepak
Ed
March 2013

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This report presents a summary of the main issues and conclusions from a CBR and persons with intellectual disabilities workshop. The workshop’s four sessions included "a session on health care needs led by Alaa Sebeh; a session on inclusive education led by Katharina Pfortner; a session on livelihoods and economic independence led by Philipa Bragman; and lastly, a session on social participation and empowerment led by Kathy Al Ju’beh." At the end of the workshop the participants agreed to establish an electronic group/network on CBR and intellectual disabilities. All presentations can be accessed from the website in pdf format
"CBR and Persons with Intellectual Disabilities"
Agra, India
24-25 November 2012

Leadership for social inclusion in the lives of persons with disabilities

SHERWIN, Jane
September 2010

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"This article identifies five challenges for those in leadership roles: developing a deep sense of what the concept ‘social inclusion’ really means; confronting the values questions; developing consciousness of what the community is taught through the actions of services; transforming the role of services and workers; and the use of theory-based knowledge. The article also explores the attributes of those in leadership roles, so that they are more equipped to respond to these challenges: ethical and moral leadership; a combination of conceptual clarity, insight, knowledge and wisdom; authentic relationships with people with disabilities and family members; an appreciation of history; and a faith and efforts in things that are likely to bring dividends"
The International Journal of Leadership in Public Services , Vol 6 supplement

Personalised social support : thoughts, method and tools in an approach of proximity social services

RELANDEAU, Audrey
et al
May 2010

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This paper is a methodological guide to personalised social support to enhance understanding, thinking about and practising this approach to social work. It is targeted at field workers and public services’ or association advisers responsible for receiving, informing, guiding and supporting people with disabilities and other vulnerable groups.
This guide is divided into three sections. First, a "principles and benchmarks" section explores the theoretical aspects of social work, development and personalised social support. This section is followed by a "Practical guide" targeted at social workers, facilitators and advisers responsible for providing support and provides an in-depth guide to implementing personalised social support, based on various intervention techniques and practical tools. This section also offers a section devoted to project managers or social mecha¬nism coordinators, featuring benchmarks for the development and follow-up of a social support service. The third section features a "Toolbox" consisting mainly of tools sourced from Handicap International programmes

2nd meeting report on the development of guidelines for community based rehabilitation (CBR)

WORLD HEALTH ORGANIZATION (WHO)
2005

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This meeting decided that the CBR guidelines would be a joint document of ILO, UNESCO and WHO. The members of the advisory group were finalised, and their reponsibilities were outlined to decide the content of the guidelines and its development. A revised CBR matrix was drafted. This document is useful for people interested in CBR and the development of the CBR Guidelines

Human rights and HIV/AIDS

LAZZARINI, Zita
June 1998

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HIV/AIDS prevention and care programmes engage the full range of human rights. International human rights instruments recognise that only non-derogable rights are absolute; other rights may be limited under certain circumstances. However the power to restrict such rights is narrwoly proscribed. To prevent the further spread of HIV/AIDS, while simultaneously protecting the rights of those infected with HIV and those who are not, HIV/AIDS policymakers must review the legality of HIV/AIDS policies, evaluate their public health goals, assess whether the policies can achieve those goals, and weigh whether the benefits outweigh the financial and human rights burden

INCLUDE: A Community-Based Rehabilitation (CBR) learning community

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INCLUDE is an online learning community for community-based rehabilitation (CBR) that aims to inform and support CBR managers and interested stakeholders around the world.

It is an online programme that guides the user through different information modules based on the Community-based rehabilitation guidelines: health, education, livelihood, social and empowerment.

INCLUDE also provides tools to assist users to reflect on their own thoughts and experiences, and case studies that show CBR in action. INCLUDE allows the user to develop an action plan around management and the five components and corresponding elements of the CBR matrix.

These action plans can be stored and built on over time, and shared with others in the CBR community.

High level meeting on non-communicable diseases

GENERAL ASSEMBLY OF THE UNITED NATIONS

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This website presents information from the high-level meeting of the General Assembly on the prevention and control of non-communicable diseases. The high-level meeting addressed the prevention and control of non-communicable diseases worldwide, with a particular focus on developmental and other challenges and social and economic impacts, particularly for developing countries. Background information, key documents, civil society participation, resources and letters are provided. This website is useful to anyone interested in prevention and control of non-communicable diseases worldwide
High level meeting on non-communicable diseases
New York, New York
19-20 September 2011

Resources

THE NCD ALLIANCE

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This section provides resources such as reports, presentations, statements, press releases and other forms of media coverage about non-communicable diseases and the initiatives of The NCD Alliance. This resource is useful to anyone interested in non-communicable diseases

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E-bulletin

Source e-bulletin on Disability and Inclusion

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