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African Journal of Disability Vol 7 (2018)

2018

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This journal provides

  • Nineteen original research articles on a variety of topics including the cost of raising a child with autism, experiences of care givers to stroke survivors, dyslexic's learning experiences, communication rehabilitation, disability and food security, hearing children of deaf parents and rehabilitation of stroke survivors, disability policy, learning for deaf learners, aquatic based interventions for children with cerebral palsy, evaluation of community based rehabilitation programmes, the impact of stroke and barriers to the implementation of inclusive education.
  • Seven review articles: Intellectual disability rights and inclusive citizenship in South Africa: What can a scoping review tell us?; The benefits of hydrotherapy to patients with spinal cord injuries; Simple ideas that work: Celebrating development in persons with profound intellectual and multiple disabilities; The relationship between social support and participation in stroke: A systematic review; Parents of children with disabilities: A systematic review of parenting interventions and self-efficacy; Implementation of the 2006 Convention on the Rights of Persons with Disabilities in Zimbabwe: A review; Part 1: A review of using photovoice as a disability research method: Implications for eliciting the experiences of persons with disabilities on the Community Based Rehabilitation programme in Namibia
  • There is an opinion paper entitled - Deafening silence on a vital issue: The World Health Organization has ignored the sexuality of persons with disabilities
  •  There is a case study - Lessons from the pilot of a mobile application to map assistive technology suppliers in Africa

Human rights of refugee-survivors of sexual and gender-based violence with communication disability

MARSHALL, Julie
BARRETT, Helen
November 2017

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The main aims of this project were to document current knowledge about the intersectionality between sexual and gender-based violence (SGBV), communication disability and refugees, to identify any reported good practice, and to begin to understand and describe the challenges to supporting refugee-survivors of SGBV with communication disability, in Rwanda. The project involved 54 participants, including 50 humanitarian and partner organisation staff and four carers of refugees with communication disabilities, from two locations (camp-based and urban refugees).

 

International Journal of Speech-Language Pathology,  20:1, 44-49,

DOI: 10.1080/17549507.2017.1392608

Right to health: Reality of persons with spina bifida and hydrocephalus

MCPHERSON. Amy
January 2017

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"This report maps the situation of persons with SBH in relation to healthcare access and is a follow up of the CRPD Concluding Observations Art.25. Through a comprehensive survey, IF collected valuable data on the experiences, satisfaction, and perceptions of healthcare coverage of individuals with SBH across Europe. Based on its findings, the financial coverage of treatment and assistive products for patients with SBH is grossly insufficient across the EU. Europe as a whole lacks multidisciplinary care and specialised SBH teams, which translates into long waiting times and insufficient knowledge of the SBH specificities. 

Considering these findings, IF urges the EU Member States to adequately support the healthcare needs of persons with SBH, and to invest more substantially into creating multidisciplinary clinics that can help avoid preventable complications 11 and may reduce the overall burden 12 on the patient and the system. In addition, the Member States should actively support creation of the European Reference Networks as a way of improving care for persons with SBH. IF also calls on the European institutions for support in training medical professionals on rights of persons with disabilities."

Malnutrition and disability: unexplored opportunities for collaboration

GROCE, Nora
CHALLENGER, E
BERMAN-BIELER, R
FARKAS, A
YILMAZ, N
SCHUTLINK, W
CLARK, D
KAPLAN, C
KERAC, M
2014

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There is increasing international interest in the links between malnutrition and disability: both are major global public health problems, both are key human rights concerns, and both are currently prominent within the global health agenda. In this review, interactions between the two fields are explored and it is argued that strengthening links would lead to important mutual benefits and synergies. At numerous points throughout the life-cycle, malnutrition can cause or contribute to an individual's physical, sensory, intellectual or mental health disability. By working more closely together, these problems can be transformed into opportunities: nutrition services and programmes for children and adults can act as entry points to address and, in some cases, avoid or mitigate disability; disability programmes can improve nutrition for the children and adults they serve. For this to happen, however, political commitment and resources are needed, as are better data.



Paediatrics and International Child Health
Volume 34, 2014 - Issue 4: Nutrition and malnutrition in low- and middle-income countries
https://doi.org/10.1179/2046905514Y.0000000156

What works to prevent violence against women with disabilities : a global programme to prevent violence against women and girls

VAN DER HEIJDEN, Ingrid
2014

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This report presents key findings on the evidence from research studies on violence against women with disabilities (WWD) and evidence from interventions to prevent violence.  Despite the greater vulnerability of WWD to gender-based violence (GBV), this report recognises that more research and innovation is needed to develop effective responses, including the identification of risk factors, especially in low-middle income settings. It notes the absence of publications on GBV against WWD, the lack of rigour and demonstrable effectiveness of interventions so far and presents key lessons learned and conclusions. This resource is useful for anyone interested in prevention of violence against women and girls with disabilities

Gender equality and women’s empowerment : women and girls with disabilities

CHRISTOFFEL BLINDENMISSION (CBM)
2014

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This policy brief highlights the intersectionality between gender and disability and advocates that the unique situation of women and girls with disabilities be considered in the provision of protection for women and girls. It outlines the following five key issues for women and girls with disabilities: participation in political and public life, control over their own bodies and family planning, access to justice, education/employment and protection from gender based violence

These issues resonate with the current narrative for crosscutting goals on gender equality and the need for the post-2015 framework to be underpinned by human rights. The recommendations are both overarching (relating to gender equality and human rights) and are also specific to women and girls with disabilities

Post-2015 sustainable development goals : policy brief

Disability associated with exposure to traumatic events: results from a cross-sectional community survey in South Sudan

AYAZI, Touraj
LIEN, Lars
EIDE, Arne Henning
JENKINS, Rachel
ALBINO, Rita Amok
HAUFF , Edvard
May 2013

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"There is a general lack of knowledge regarding disability and especially factors that are associated with disability in low-income countries. We aimed to study the overall and gender-specific prevalence of disability, and the association between exposure to traumatic events and disability in a post-conflict setting. We conducted a cross-sectional community based study of four Greater Bahr el Ghazal States, South Sudan (n = 1200). The Harvard Trauma Questionnaire (HTQ) was applied to investigate exposure to trauma events. Disability was measured using the Washington Group Short Measurement Set on Disability, which is an activity based scale derived from the WHO’s International Classification of Disability, Functioning and Health. The estimated prevalence of disability (with severe difficulty) was 3.6% and 13.4% for disability with moderate difficulties. No gender differences were found in disability prevalence. Almost all participants reported exposure to at least one war-related traumatic event. The result of a hierarchical regression analysis showed that, for both men and women, exposure to traumatic events, older age and living in a polygamous marriage increased the likelihood of having a disability. The finding of association between traumatic experience and disability underlines the precariousness of the human rights situation for individuals with disability in low-income countries. It also has possible implications for the construction of disability services and for the provision of health services to individuals exposed to traumatic events"

 

BMC Public Health, 13:469

Stronger together : nutrition-disability links and synergies|Briefing note

GROCE, Nora
CHALLENGER, Eleanor
KERAC, Marko
2013

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Malnutrition can lead to disability, and disability can also lead to malnutrition. This paper will focus mainly on under-nutrition causing disability and disability causing or contributing to under-nutrition. Both nutrition and disability are key human rights issues. There is increasing knowledge about optimal nutrition-related practices and implementation of often low cost interventions to tackle issues of malnutrition in children. It is essential that governments, international actors and service providers consider and include the needs of children with disabilities in these efforts to ensure that children with disabilities have equitable access to nutrition in order to allow them to grow and thrive

An assessment of the factors of risk and vulnerability of women and men with disabilities to sexual and gender-based violence

HADI, Melinda
MUTONI, Sophia
February 2012

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This report presents the findings of a situational assessment that explored the risk factors and vulnerabilities of women and men with disabilities to sexual and gender-based violence (SGBV) and highlights the complexity of addressing SGBV, sexuality, and the stigma and discrimination that is part of the daily reality for persons with disabilities. Recommendations are provided for various stakeholder groups
SD/ RS 05

Early childhood development and disability : a discussion paper

WORLD HEALTH ORGANIZATION (WHO)
UNITED NATIONS CHILDREN'S FUND (UNICEF)
2012

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"This discussion paper provides a brief overview of issues pertaining to early childhood development (ECD) and disability. It lays the foundation for a long-term strategic and collaborative process aimed at improving the developmental outcomes, participation and protection of young children with disabilities. Essential to this effort is dialogue between United Nations agencies and relevant stakeholders to identify sustainable strategies which build on existing efforts, and expand on multisectoral approaches to guarantee the rights of young children with disabilities and their families"

Preventing intimate partner and sexual violence against women : taking action and generating evidence

WORLD HEALTH ORGANIZATION (WHO)
LONDON SCHOOL OF HYGIENE AND TROPICAL MEDICINE
2010

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"This document aims to provide sufficient information for policy-makers and planners to develop data-driven and evidence-based programmes for preventing intimate partner and sexual violence against women. Chapter 1 outlines the nature, magnitude and consequences of intimate partner and sexual violence within the broader typology of violence. Chapter 2 identifies the risk and protective factors for such violence and the importance of addressing both risk and protective factors in prevention efforts. Chapter 3 summarizes the scientific evidence base for primary prevention strategies, and describes programmes of known effectiveness, those supported by emerging evi-dence and those that could potentially be effective but have yet to be sufficiently evaluated for their impact. Chapter 4 presents a six-step framework for taking action, generating evidence and sharing results. In the closing section, several future research priorities are outlined and a number of key conclusions drawn"

A handbook for network support agents and other community workers supporting HIV prevention, care, support and treatment

March 2009

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This manual is intended to help network support agents and other community workers be more effective in disseminating standardised information about HIV and AIDS. It "...emphasises the importance of the acquisition of knowledge, skills and the right attitude needed to identify the psychosocial needs of people of people infected and affected by HIV/AIDS and address these needs by giving information, counselling and appropriate referrals. Knowledge of counselling and psychosocial care, is combined as much as possible with prevention activities such as adopting HIV basic care positive prevention and adherence to treatment"

17 fact sheets on gender-related aspects of HIV/AIDS | Resource pack on gender and HIV/AIDS

UNAIDS Inter-Agency Task Team on Gender and HIV/AIDS
2005

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These fact sheets aim to provide policy makers with concise information about gender related aspects of the HIV/AIDS pandemic. They deal with core facts and issues in thematic areas and are underpinned by an analysis which clarifies how gender issues are fuelling the crisis. Each theme presents a self-contained set of issues and recommendations and many of the themes are interlinked. All of them are connected by a concern to promote a gender-enlightened and comprehensive response to HIV/AIDS and its impacts

World report on road traffic injury prevention

PEDEN, Margie
et al
2004

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"This joint WHO/World Bank report on road traffic injury prevention is an important part of the response to the world’s road safety crisis. It is directed at international, regional and national policy-makers, international agencies and key professionals in public health, transport, engineering, education and other sectors, and aims to stimulate action for road safety. It sets out universal principles rather than a ‘blue print’ for worldwide application, recognizing fully the need to identify local needs and the adaptation of ‘best practices’ accordingly"
Note: a summary of the report and a report factsheet are also available

Where there is no psychiatrist : a mental health care manual

PATEL, Vikram
2003

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This is a practical manual about mental health care, aimed at community health workers, primary care nurses, social workers and primary care doctors. It describes more than 30 clinical problems associated with mental illness, using a problem-solving approach to guide the reader through their assessment and management. It addresses the lack of understanding of mental health among many health workers

Criminal law, public health and HIV transmission : a policy options paper

JOINT UNITED NATIONS PROGRAMME ON HIV/AIDS (UNAIDS)
June 2002

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A number of cases have been reported in which people living with HIV have been criminally charged for a variety of acts that transmit HIV or risk transmission. To assist in the development of sound public policy, this paper proposes principles to guide thinking about, and development of, law and policy on this issue; identifies a number of policy considerations; considers alternatives to criminalisation presented by public health laws; and discusses how the criminal law might be justifiably applied

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