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‘Whose agenda? Who knows best? Whose voice?’ Co-creating a technology research roadmap with autism stakeholders

PARSONS, Sarah
YUILL, Nicola
GOOD, Judith
BROSNAN, Mark
2019

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Technologies play vital roles in the learning and participation of autistic people and yet have mostly been conceptualised according to a medical model of disability. In this stakeholder review, the comments of 240 participants from a two-year seminar series focusing on autism and technology were analysed to co-construct an understanding of how research could develop more inclusively. Our socio-cultural analysis shows that stakeholders were very positive about the roles that technologies can play in many areas of life, but that these technologies need to be developed and evaluated according to the needs and preferences of autistic people and their families. We propose an inclusive common social framework for research based on the core themes of social inclusion, perspectives, and participation and agency. Such a framework requires the field to recognise that some current practices are exclusionary and that a commitment to action is needed in order to make positive changes.

A world without Down’s syndrome? Online resistance on Twitter: #worldwithoutdowns and #justaboutcoping

BURCH, Leah
2017

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Presented by actress and comedian Sally Phillips, A World Without Down’s Syndrome has brought important ethical debates regarding prenatal screening into the public domain. By talking to people with Down’s syndrome, family members, and professionals, Sally has presented a nuanced and thorough examination of the type of world we are living in. Following the documentary, Twitter users have continued to engage with debates and have created a resilient platform for challenging public attitudes. This paper explores the ways in which Twitter hashtags have provided a space for such important and long overdue conversations. While it would not be possible to provide a full overview of the topical conversations that the two hashtags have provoked, I aim to focus on some of the most prominent topics. The following, then, will explore the potential of alternative narratives that resist, and disrupt, normative notions of the human using the hashtags #worldwithoutdowns and #justaboutcoping.

Preparedness and warning systems for populations with special needs : ensuring everyone gets the message (and knows what to do)

SULLIVAN, Helen T
HÄKKINEN, Markku T
May 2011

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This paper discusses the use of information and communications technologies systems in the use of disaster management situations such as those providing early warnings, and how they benefit persons with disabilities (and the general population).  An ongoing project in Japan provided a case study in which a disaster preparedness information system is meeting the need of persons with disabilities


Geotechnical and Geological Engineering Journal, Volume 29, Issue 3

The contributions of ICTs to pro-poor growth

BATCHELOR, Simon
SCOTT, Nigel
TAYLOR, Nigel
March 2005

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A background paper prepared for the DAC Network on Poverty Reduction. It provides a useful overview of definitions of ICT, pro-poor growth thinking and impacts on poverty

Can we achieve health information for all by 2015?

GODLEE, Fiona
et al
July 2004

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This article summarizes the attempts, since 1995, to utilize information and communication technology to bridge the health information gap between developing and industrialized countries. The authors note that the successes has been 'patchy' and that the potential has not been reached. Significant gaps continue between the north and south and also are seen between urban and rural areas especially for current clinical information. Stakeholders have not been involved sufficiently and there is considerable need for better telecommunications access and capacity building. The authors conclude that, without championing by a major player such as the WHO, the millennium goal of unviersal access to health information will not be reached despite some successes in the past 10 years

The cost-effectiveness of technology transfer using telemedicine

JOHNSON, K
KENNEDY, C
MURDOCH, I
2004

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This article describes the use of teleophthalmology, a form of telemedicine, as a mode of technology transfer between the United Kingdom and South Africa. Researchers found the technology transfer project to be cost-effective in reducing the burden of eye disease, and that practitioners in South Africa also learned novel procedures that could help future patients and improve cost-effectiveness

Tools for development : using information and communications technology to achieve the Millennium Development Goals

UNITED NATIONS ICT TASK FORCE SECRETARIAT
December 2003

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Sponsored by the UN ICT Task Force, this paper represents an attempt to define more precisely how ICTs can be used to further the achievement of basic development objectives. Using the Millennium Development Goals (MDGs) as a baseline for analysis, the paper conducts a mapping exercise, which links the application of ICTs to broader development goals as expressed in the MDGs. The mapping of ICT tools to the attainment of the millennium goals in specific development areas leads to a series of ICT-specific targets and suggests possible indicators for measuring progress

Fighting rural poverty : the role of information and communication technologies|[What can information and communication technologoes (ICTs) do for the world's 900 million extremely poor people who live in rural areas?]

GILLMAN, Helen
2003

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This paper brings together some presentations, key issues and recommendations emerged during the discussion in a side event organised by IFAD at the WSIS. The paper calls for greater emphasis on communication rather than on technology, and on the process and content rather than on access and machines. Effective ICT deployment must satisfy the need for ownership, local content, language, culture and appropriateness of technology used. Crucially, communication initiatives should aim at strengthening the capacities of rural people to participate in policy processes

Male, female or disabled : barriers to expression of sexuality

DEEPAK, Sunil
2002

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"This research is based in social model of disability and emancipatory research paradigm, and it explores barriers to the expression of sexuality in a small group of disabled persons in Italy. It has been carried out exclusively through Emails, Newsgroups and Internet, and it also explores the role of internet-based information technologies in participatory and emancipatory research"

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