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Medication management for people with disabilities

SINGLECARE
September 2019

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This guide provides tips for people with disabilities and their caregivers to properly handle prescriptions and manage medications. Practical advice is given on:

  • How to read medication labels
  • Managing medications at home
  • Medication strategies for people with visual impairments
  • Medication management for people with a physical disability and/or mobility limitations
  • Medication management for people with intellectual disabilities
  • Tips for effective medication management as the caregiver of a person with a disability

Enabling Education Review Issue 8 - 2019: Family involvement in inclusive education

CORCORAN, Su
LEWIS, Ingrid
Eds
2019

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Articles in this issue include:

Working together to advocate for our children in Trinidad and Tobago

The inclusion of deaf children in Malaysia: parental support and advocacy

Family-mediated intervention to support inclusion in Bulgaria

Creating inclusivity and diversity through a parent support group in Kolkata, India 

The positive impact of family involvement in inclusive education, Tetouan, Morocco

Learning From Experience: Guidelines for locally sourced and cost-effective strategies for hygiene at home for people with high support needs.

World Vision/CBM Australia
May 2018

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This learning resource is the result of a partnership between World Vision Australia and CBM Australia that aims to improve inclusion of people with disabilities in World Vision’s Water, Hygiene and Sanitation (WASH) initiatives, including in Sri Lanka. The guidelines are based on experiences and observations from World Vision’s implementation of the Rural Integrated WASH 3 (RIWASH 3) project in Jaffna District, Northern Province, funded by the Australian Government’s Civil Society WASH Fund 2. The four year project commenced in 2014. It aimed to improve the ability of WASH actors to sustain services, increase adoption of improved hygiene practices, and increase equitable use of water and sanitation facilities of target communities within 11 Grama Niladari Divisions (GNDs) in Jaffna District.

To support disability inclusion within the project, World Vision partnered with CBM Australia. CBM Australia has focused on building capacities of partners for disability
inclusion, fostering connections with local Disabled People’s Organisations, and providing technical guidance on disability inclusion within planned activities. World Vision also partnered with the Northern Province Consortium of the Organizations for the Differently Abled (NPCODA) for disability assessment, technical support and capacity building on inclusion of people with disabilities in the project.

HYGIENE AT HOME FOR PEOPLE WITH HIGH SUPPORT NEEDS
This document is one of two developed in the Jaffna District and describes strategies that used to assist households and individuals in hygiene tasks at home. The strategies were designed to be low cost and were developed using locally available materials and skills in the Jaffna District of Sri Lanka.

NOTE: The development of this learning resource was funded by the Australian Government's Civil Society WASH Fund 2.

Everybody Matters: Good practices for inclusion of people with disabilities in sexual and reproductive health and rights programmes

Van SLOBBE, Caroline
November 2017

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This publication provides introductory chapters from two activists who work to create better opportunities for people with disabilities in Nigeria and India. Subsequently, the challenges that organisations worldwide have encountered whilst improving the access to and knowledge of sexual and reproductive health and rights for people with disabilities are presented. Ways in which they managed to find solutions and the results achieved are reviewed. Some cases show the importance of a more personal approach whilst others emphasise the advantage of changing systems and policies. Different regions, types of disabilities and various SRHR-topics are reflected in these stories. All cases provide lessons learnt that contribute to a set of recommendations for improved responses. The closing chapter highlights the challenges, solutions, and ambitions that are presented and lead up to a concise overview of recommendations.  

Good practice examples include:

A shift in SRH programming (Nepal)

Breaking Barriers with performance art (Kenya)

Her Body, Her Rights (Ethiopia)

People with disabilities leading the way (Israel Family Planning Association)

Best Wishes for safe motherhood (Nepal)

It’s my body! (Bangladesh)

Calling a spade a spade (Netherlands)

Four joining forces (Colombia)

Change agents with a disability (Zimbabwe)

Tito’s privacy and rights (Argentina)

Sign language for service providers (Kenya)

School and classroom disabilities inclusion guide for low- and middle-income countries

BULAT, Jennae
HAYES, Anne
et al
January 2017

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This guide provides strategies and recommendations for developing inclusive classrooms and schools. We specifically address the needs of Sub-Saharan African countries, which lack the resources for implementing inclusive education. However, our strategies and recommendations can be equally useful in other contexts where inclusive education practices have not yet been adopted. Strategies for enhancing existing school and classroom environment and instruction include: modify the physical environment; modify classroom managment strategies; ensure social inclusion; adopt best instructional practices; apply strategies for students with sensory disabilities; and use assistive technologies. Strategies for adopting response to intervention include: tier by tier implementation; individualised education plans; and planning for school wide adoption of inclusive practices and a multilevel system of support.

 

 

Global report: Self-Advocacy for inclusion

INCLUSION INTERNATIONAL
November 2016

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Across the Inclusion International network, many individuals and organisations took part in workshops, surveys and interviews to report:

  • what self-advocacy means to them
  • what good support is 
  • how organisations can be more inclusive
  • the vital role that families play in empowering self-advocacy.

This report provides a snapshot of work, and has some useful information for self-advocates, supporters, organisations and families. As well as containing the results from the global survey, interviews and workshops, this report also provides some useful guidance for anyone who wants to make the world more inclusive for people with intellectual disabilities.

 

A website (www.selfadvocacyportal.com) has been developed to share good practice and resources.

Parenting a child with intellectual disability – factors that may contribute in making parenthood a positive experience

PSAILA, Elvira
October 2016

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This paper reviews both internal and external factors which can determine how parenting a child with an intellectual disability can be a positive experience. One in which the parents act as enablers in creating an environment that promotes the development of their children into autonomous adults from the moment of disclosure of the presence of intellectual impairment. The paper reviews literature that explores coping mechanisms, resilience and sense of coherence (SoC) as intrinsic qualities, and working with professionals and support systems as external factors. 

Considering Disability Journal, Vol.1, No.3

DOI: 10.17774/CDJ1.32016.5.20575874

Inclusive civic engagement toolkit. An information toolkit for families and people with intellectual disabilities

INCLUSION INTERNATIONAL
October 2015

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This toolkit has been developed as part of an Inclusion International project, Accessing the Ballot Box, funded by the UN Democracy Fund. The project was designed to address the limited political participation of people with intellectual disabilities in Kenya, Zanzibar and Lebanon.

It sought to identify and challenge the barriers people with intellectual disabilities face in exercising their right to civic engagement and political participation and increase the awareness and knowledge of project stakeholders (people with intellectual disabilities, their families and representative organizations, service providers and governments) on building inclusive democratic processes.

This information toolkit is designed to explore how to support people to access the ballot box before during and after elections and to support people with intellectual disabilities and their families, governments and partners to ensure people with intellectual disabilities are able to exercise their right to political participation.

Independent by not alone. Global report on the right to decide

LAURIN-BOWIE, Connie
Ed
June 2014

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Article 12 of the Convention on the Rights of Persons with Disabilities (CRPD) reflects a fundamental shift in thinking: it asserts that with support all people with intellectual disabilities are able to make decisions and have control in their lives. This Global Report presents the perspective of people with intellectual disabilities and our families on the right to decide. Over two years, over 600 self-advocates, family members, disability advocates, and professionals participated in discussions motivated by Inclusion International's Global Campaign on the Right to Decide. Additionally, more than 80 organizations from more than 40 countries worldwide contributed.

Inclusive communities = stronger communities : global report on article 19 : the right to live and be included in the community

EIDERMAN, Steven
et al
October 2012

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This report presents the perspective of people with intellectual disabilities and their families on living and being included in the community. The study shares experiences of inclusion in the community, of exclusion and isolation from the community and the impact that these experiences have had on the lives of people with intellectual disabilities and their families. It details findings on the experience of exclusion and isolation, the progress made since the implementation of the CRPD, and what the new and emerging challenges are that threaten inclusion.  The report also outlines a vision of inclusion and makes recommendations for directions for the future. This comprehensive report will be useful to those studying and working with disability issues, inclusion in particular

Promoting empowerment|Emancipatory research in community-based rehabilitation programmes : a guide for CBR programmes managers

DEEPAK, Sunil
2012

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This practical guide is written for organizations and persons involved in CBR projects. It is also targeted at DPOs, especially those working at community and peripheral levels. The information provides a straight forward guide for people working in CBR programmes to carry out simple emancipatory research (ER). Examples are provided from successful ER projects. This resource is useful to anyone interested in ER in community-based rehabilitation programmes

Rocking the cradle : ensuring the rights of parents with disabilities and their children

NATIONAL COUNCIL ON DISABILITY
2012

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"The report analyzes how U.S. disability law and policy apply to parents with disabilities in the child welfare and family law systems, and the disparate treatment of parents with disabilities and their children. Examination of the impediments prospective parents with disabilities encounter when accessing assisted reproductive technologies or adopting provides further examples of the need for comprehensive protection of these rights"

Family perceptions of intellectual disability : understanding and support in Dar as Salaam

ALDERSEY, H. M
2012

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"This article outlines and discusses interviews that were conducted in Dar es Salaam, Tanzania, with family members of children and adults with intellectual disabilities. These interviews explore how families came to understand that their child had an intellectual disability; the availability of family support; and family hopes and dreams for the future, and were a part of a wider exploratory study that gathered insight from individuals with disabilities, families, and other providers of support to explore understandings and perceptions of disability in Dar es Salaam"
African Journal of Disability, Vol 1, Issue 1, Art. #32

The right to live in the community : making it happen for people with intellectual disabilities in Bosnia and Herzegovina, Montenegro, Serbia and Kosovo

ADAMS, Lisa
2008

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This report concerns the situation of people with intellectual disabilities in Bosnia and Herzegovina, Croatia, Kosovo under UN Security Council Resolution 1244, Montenegro and Serbia. It describes how five organisations working in the region have successfully developed innovative services to support people with intellectual disabilities to live in their communities as equal citizens. The aim of this report is to highlight the importance of developing a range of client-focused, community-based services as alternatives to institutionalisation; demonstrate that such services can successfully be developed in the region; identify barriers to the development of such services; and make recommendations on how to address such barriers

Moving away from labels : a school for all

CBR NETWORK (SOUTH ASIA)
2005

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This manual describes the process of developing inclusive education practices in India and the need for future development. It outlines practical information and includes templates of individual education plans for children with disabilities in mainstream schools to aid their learning. The manual aims to enable families and teachers at the grassroots level to include all children into neighborhood schools

Sexuality and relationships education for people with down syndrome

WOOD, Mandy
2004

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"This article describes why Sexuality and Relationships Education (SRE) as part of the school curriculum is especially important for individuals with Down syndrome and how parents and professionals can work together to ensure that it is delivered effectively"
Down Syndrome News and Update 4(2)

Disability and social responses in some Southern African nations : Angola, Botswana, Burundi, D.R. Congo (ex Zaire), Malawi, Mozambique, Namibia, Tanzania, Rwanda, Zambia, Zimbabwe. A bibliography, with introduction and some historical items

MILES, M
January 2003

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(From introducton) This bibliography, currently with approx. 1400 items, began in 1996 with a focus on the development of non-medical services concerned with mental retardation (mental handicap, learning difficulties, intellectual impairment) in Zambia. The development of services for people with other disabilities, and for children, and childrearing and language use, and then developments in neighbouring countries, soon began to be added. Then the weight of the new material outgrew the initial focus. Some biomedical papers have been added for their social contents or where a community-based or health education program concerned with biomedical conditions seems relevant to the development of disability awareness in communities. Newspaper and magazine-type articles have mostly been omitted. Available to download from the CIRRIE website

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