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Disability & the Global South (DGS), 2017, Vol. 4 No. 1 - Special issue: Disability in the Sustainable Development Goals: Critical Reflections

2017

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Articles include:

  • Editorial: Disability and the SDGs: is the battle over?
  • Entering the SDG era: What do Fijians prioritise as indicators of disability-inclusive education?
  • SDGs, Inclusive Health and the path to Universal Health Coverage
  • No One Left Behind: A review of social protection and disability at the World Bank
  • The capacity of community-based participatory research in relation to disability and the SDGs
  • Measuring Disability and Inclusion in relation to the 2030 Agenda on Sustainable Development

OPERA framework

July 2016

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"A guiding lens for CESR's national enforcement work, the OPERA framework allows an assessment that triangulates outcomes, policies and resources to provide a much fuller picture of what a state is doing to promote the realization of specific rights. Importantly, it traces economic and social deprivations and disparities back to the actions or omissions of the state, to make the case that they constitute an injustice and a violation of human rights."

Community based rehabilitation for people with disabilities in low and middle income countries : a systematic review

IEMMI, Valentina
et al
September 2015

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This Campbell Collaboration systematic review assesses the effectiveness and cost-effectiveness of community-based rehabilitation (CBR) for people with physical and mental disabilities in low- and middle-income countries, and/or their family, their carers, and their community. This review identified 15 studies that assessed the impact of community-based rehabilitation on the lives of people with disabilities and their carers in low- and middle-income countries. The studies included in the review used different types of community-based rehabilitation interventions and targeted different types of physical (stroke, arthritis, chronic obstructive pulmonary disease) and mental disabilities (schizophrenia, dementia, intellectual impairment). The authors conclude that the evidence on the effectiveness of CBR for people with disabilities in low- and middle-income countries suggests that CBR may be effective in improving the clinical outcomes and enhancing functioning and quality of life of the person with disabilities and his/her carer and recommend future studies will need to adopt better study designs, will need to focus on broader clients group, and to include economic evaluations

Campbell Systematic Reviews 2015:15

Developing human rights based indicators to support country monitoring of rehabilitation services and programmes for people with disabilities : a study protocol

SKEMPES, Dimitrios
BICKENBACH, Jerome
September 2015

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This paper seeks to develop a study protocol that can assess and improve the provision of rehabilitation services for people with disabilities across the world. The research targets a knowledge gap that exists whereby there are no indicators to reliable identify the performance of rehabilitation systems and monitoring technologies. The paper provides a detailed analysis of the issue before outlining and justifying a choice of methods for data collection and analysis, and the likely impact and use of the study results

BMC International Health and Human Rights, 15:25

The key informant child disability project in Bangladesh and Pakistan

MACTAGGART, Islay
MURTHY, GVS
2013

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The Key Informant Method (KIM) has previously been tested by CBM, LSHTM and others, and found to be a valid method for the identification of children with severe visual impairment and blindness in Bangladesh, using community volunteers in the place of a door-to-door survey. This report outlines a study that set out to expand this and test whether voluntary, community-level Key Informants (KIs) could be trained to effectively identify children with moderate or severe physical impairments, sensory impairments (visual and hearing) or epilepsy in Bangadesh and Pakistan, and if so whether this process could be used to assess prevalence and plan appropriate referral services for children meeting these criteria

Impact of CBR : impact of community-based rehabilitation programme in Karnataka India

BIGGERI, Mario
et al
2012

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"The main goal of the research was to understand and measure the overall role and impact of CBR in improving the quality of life of persons with different types of impairments, as well as different demographic, social and economic backgrounds. We therefore investigated the effectiveness of CBR programmes in improving the control that persons with disabilities have over their daily lives, their participation in different aspects of community life (i.e. combating stigma and prejudice) and their access to various services over the five domains of the CBR matrix (health, education, livelihood, social and empowerment)"

Evaluating the impact of rehabilitation in the lives of people with disabilities and their families in low and middle income countries : a review of tools

LONDON SCHOOL OF HYGIENE & TROPICAL MEDECINE (LSHTM)
CHRISTOFFEL BLINDEMISSION (CBM)
August 2010

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“As there are many tools available for evaluating impact in the international literature, CBM commissioned this review in order to obtain clear guidance on how research can be carried across their programmes in order to generate high quality and reliable evidence on the impact of their programmes in the lives of people with disabilities and their families”

SUPPORT tools for evidence-informed health policymaking (STP)

OXMAN, Andy
HANNEY, Stephen
Eds
December 2009

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This is a set of 18 tools that can be used by those involved in finding and using research evidence to support evidence-informed health policy making. The series addresses four broad areas: supporting evidence-informed policymaking; identifying needs for research evidence; finding and assessing research evidence; and, going from research evidence to decisions

Community-based rehabilitation : opportunity and challenge

HARTLEY, Sally
et al
November 2009

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This article presents information about community based rehabilitation (CBR) and highlights the present opportunities and challenges. The article details the critiques of CBR and the recent emphasis to redress the balance and improve the evidence base. The article states that "CBR is now ready to be examined more rigorously, applied more consistently, and integrated more effectively into national and international policy making"
The Lancet, Vol 274

The efficacy of community based rehabilitation for children with or at significant risk of intellectual disabilities in low and middle income countries : a review

ROBERTSON, Janet
EMERSON, Eric
HATTON, Chris
August 2009

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"The aim of the present review is to summarise evidence regarding the efficacy of CBR in relation to one particular ‘high risk’ group of disabled children; children with intellectual disabilities (ID)...Only 10 studies were identified for inclusion in the review of research on the effectiveness of CBR for children and adolescents with ID and these are summarised in Appendix Two. An examination of reviews on the effectiveness of CBR for all people with disabilities points to two main reasons for this low level of evidence. Firstly, CBR has not been the subject of a significant amount of rigorous evaluation. Secondly, children and adolescents with ID have not been the recipients of significant amounts of CBR. We will discuss the reviews on the effectiveness of CBR generally and indicate what they say about ID before outlining the extremely small amount of information available on the effectiveness of CBR for children and adolescents with ID"
CeDR Research Report 2009:4

Community based rehabilitation programmes : monitoring and evaluation in order to measure results

CORNIELJE, Huib
VELEMA, Johan P
FINKENFLUGEL, Harry
March 2008

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This paper aims to help develop "methodologies that will help to measure results of Community Based Rehabilitation programmes...The article places considerable importance on management information systems and monitoring, since it is believed that evaluation will greatly benefit from both the existence of baseline data as well as a well-developed and well-implemented information system. The present article emphasises the need for participatory processes in the development of baseline data and information systems. Four key areas for measuring CBR are highlighted: people, power, public society and partnerships. Finally, a tool is presented in order to evaluate (or monitoring and evaluation) systematically"
Leprosy Review, Vol 79, No 1

Evaluating health research capacity building : an evidence-based tool

BATES, Imelda
et al
July 2006

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Health research capacity building is essential to the success and sustainability of research programmes. This article describes the development and use of a tool for determining whether the required infrastructure is present in a given setting, and for designing and evaluating capacity-building programmes in health research. It provides an analysis of published models and effective capacity-building principles, together with structured reflection and action by stakeholders at the Komfo Anokye Teaching Hospital (KATH) in Kumasi, Ghana

Empowered to differ : stakeholders' influences in community-based rehabilitation

FINKENFLÜGEL, Harry
2004

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'Empowered to differ' equally addresses researchers and CBR professionals. The book gives an overview about the developments in the field of community-based rehabilitation since 1978, using the examples of CBR projects in Southern Africa. Finkenflügel asks for the knowledge and the evidence for CBR and to what extent the roles, interests and powers of stakeholders can contribute to this knowledge and evidence

Palliative care in Sub-Saharan Africa : an appraisal

HARDING, Richard
HIGGINSON, Irene
2004

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This report was written from the belief that palliative care is, and will be for the forseeable future, an essential component in the continuum of managing HIV/AIDS in sub-Saharan Africa. There is now a wealth of experience in sub-Saharan Africa about the ways in which palliative care can be delivered both affordably and effectively. However, there remains a lack of properly documented evidence and research to demonstrate the importance of this work and promote its development. This report provides a review of existing evaluations of palliative care projects in sub-Saharan Africa with an emphasis on isolating the factors that lead to sustainability, local ownership and scaling up; the role of palliative care in the management of HIV/AIDS and how to integrate palliative care and Anti-Retroviral Therapy (ART); primary health based care projects in two countries, Kenya and Malawi, that could provide lessons for the implementation of palliative care; lessons from other parallel programmes which mirror palliative care delivery, for example, tuberculosis programmes, and primary care programmes with good links to local clinics and hospitals, and community mobilization and empowerment projects linked to health facilities. In this way it contributes to the effort of providing an evidence base to demonstrate the importance of palliative care and provides a source of reference for policy makers, practitioners, donors and researchers

Making health communication programs work

NATIONAL CANCER INSTITUTE
2002

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This handbook presents key principles and steps in developing and evaluating health communication program for the public, patients, and health professionals. It expands upon and replaces two earlier publications titled Pretesting in Health Communications and Making PSA's Work. Referring primarily to the context of the United States, the guide discusses specific steps in program development and includes examples of their use. Sources of additional information on each subject are included at the end of the chapters

Making a difference for children affected by AIDS : baseline findings from operations research in Uganda

GILBORN, Laelia Zoe
et al
June 2001

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This paper reports on baseline findings from a study of two programmes for AIDS-affected children and their families implemented by PLAN International in the Luwero and Tororo districts of Uganda. One programme, referred to as orphan support, provides educational, health, and nutritional assistance as well as other services to orphans. The second programme, known as succession planning, reaches AIDS-affected children earlier, by helping HIV-positive parents prepare for their children’s future through counseling, will-writing, appointing guardians, and other measures. The study was designed to assess the impact of the orphan support programme on child wellbeing; explore the acceptability of a succession planning programme in the Ugandan context; assess the impact of succession planning on child wellbeing; and determine the impact of succession planning on adult wellbeing and on guardians' capacity to care for orphans

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