Resources search

Systematic review of interventions for reducing stigma experienced by children with disabilities and their families in low and middle-income countries: state of the evidence.

SMYTHE, Tracey
ADELSON, Jaimie
POLACK, Sarah
March 2020

Expand view

A literature review was carried out to identify and assess the evidence for interventions to reduce stigma experienced by children with disabilities and their families in low and middle-income settings. A systematic review of seven databases (MEDLINE, EMBASE, Global Health, PsycINFO, Social Policy and Practice, CINAHL, IBSS) for articles published January 2000 to April 2018 was carried out. Data were extracted on study population, study design, intervention level(s) and target group, and type(s) of stigma addressed. A narrative approach was used to synthesise the results.

Twenty studies were included. The majority (65%) of interventions targeted enacted stigma (negative attitudes) and the most common intervention approach was education/training (63%). Over half (54%) of interventions were delivered at the organisational/ institutional level and only four studies targeted more than one social level. The most common disability targeted was epilepsy (50%) followed by intellectual impairment (20%). 

doi: 10.1111/tmi.13388

Trop Med Int Health. 2020 Mar

The Malawi key informant child disability project

TATARYN, Myroslava
et al
August 2014

Expand view

“The aim of this study was to use the KIM to estimate the prevalence of moderate/severe physical, sensory and intellectual impairments and epilepsy among children in two districts (Ntcheu and Thyolo) in Malawi. The Key Informant Method (KIM) is a novel method for generating these data. KIM focuses on training community volunteers to identify local children who may have disabilities, who are then screened by medical professionals and referred on for appropriate health and rehabilitation interventions. Consequently, the method offers an alternative to population-based surveys of disability in children, which can be costly and time consuming”

The Malawi key informant child disability project : summary report

TATARYN, Myroslava
et al
August 2014

Expand view

This report provides a summary of research project conducted by the International Centre for Evidence in Disability at the London School of Hygiene and Tropical Medicine and the University of Malawi. The study used the Key Informant Method (KIM) to estimate the prevalence of moderate/severe physical, sensory and intellectual impairments and epilepsy among children in two districts (Ntcheu and Thyolo) in Malawi. This report presents summary of the study’s background information, aims and objectives, key findings, conclusions and recommendations

Community volunteers : an asset for detecting and following up children with disabilities

INTERNATIONAL CENTER FOR EVIDENCE ON DISABILITY (ICED)
December 2012

Expand view

This video presents a  recording of a seminar held at the London School of Hygiene and Tropical Medicine (LSHTM) in November 2012.  The seminar explores the findings and recommendations from a four year CBM-funded project in Bangladesh and Pakistan to identify children with disabilities and connect them with appropriate rehabilitative services

Fighting against epilepsy in Rwanda : an efficient patient-centred experience

FINEL, Elodie
March 2012

Expand view

This document presents a learning-from-experience "capitalisation’’ process on Handicap International’s epilepsy project in Rwanda. It includes 4 parts: (1) Principles & Benchmarks which sets the framework including main concepts, definitions and intervention context (2) Intervention methods which detail the main activities monitoring the project and its tools (3) Focus which presents the community-based approach and provides a deeper look into the know-how and good practices developed through this approach (4) Results which provides the limitations and recommendations found during the capitalisation process to different stakeholders
SD/LL 04

Fighting against epilepsy in Rwanda : an efficient patient-centred experience

FINEL, Elodie
2012

Expand view

This brief provides a summary of the learning-from-experience process on Handicap International's project "Promoting access to medical care, ensuring the school, social, family and community integration of epileptic people in Rwanda." Strategy and intervention methods are highlighted along with the community-based approach
Brief SD/LL 04

Packages of care for epilepsy in low- and middle-income countries

MBUBA, Caroline K
NEWTON, Charles R
October 2009

Expand view

This article focuses on the management of epilepsy in low- and middle-income countries and recommends a package of care - a combination of interventions aimed at improving the recognition and management of conditions to achieve optimal outcomes - for epilepsy, that is sustainable

Mental health and development sustaining impact : annual impact report 2009

RAJA, Shoba
DOUGHERTY, Charlotte
2009

Expand view

Basicneeds is an organization which aims to reach people with mental illness and epilepsy, to improve their health, financial well-being, and social acceptance. BasicNeeds provides treatment, training and promoted capacity building. This annual report presents BasicNeeds actions in 2009, highlighting their experiences in India, Sri Lanka, Lao PDR, Ghana, Uganda, Kenya, Tanzania, and Nepal

mhGAP mental health gap action programme : scaling up care for mental, neurological, and substance use disorders

WORLD HEALTH ORGANIZATION (WHO)
2008

Expand view

This report presents an action plan to scale up services for mental, neurological and substance use disorders for countries, especially low and lower middle income countries. It describes the mhGAP programme, outlines framework for country action and emphasises the building of partnerships. This resource is useful for people interested in scaling up services for mental health in developing countries

Primary prevention of mental, neurological and psychosocial disorders

WORLD HEALTH ORGANIZATION (WHO)
1998

Expand view

This book describes a number of simple and effective measures for the primary prevention of selected mental, neurological, and psychosocial disorders. Addressed to policy-makers as well as mental health professionals, the book aims both to increase awareness of the potential of primary prevention and to encourage the use of specific interventions. Four disorders are covered: mental retardation, epilepsy, suicide, and burnout of health care staff. Each disorder is discussed according to a common format that includes information on the size of the problem, risk factors and causes, and measures available for primary prevention. The book adopts a public health approach, arguing that the multifactorial causes of most mental and neurological disorders requires broad-based strategies involving many different sectors. Recommended lines of action range from simple procedures to measures at the legislative level. [Publisher's abstract, amended]

WHO Mental Health Gap Action Programme

WORLD HEALTH ORGANIZATION

Expand view

The WHO Mental Health Gap Action Programme (mhGAP) aims at scaling up services for mental, neurological and substance use disorders for countries especially with low- and middle-income. The programme asserts that with proper care, psychosocial assistance and medication, tens of millions could be treated for depression, schizophrenia, and epilepsy, prevented from suicide and begin to lead normal lives– even where resources are scarce.

Resources available include:

mhGAP Operations Manual (2018)
mhGAP Training Manuals (2017)
mhGAP Intervention Guide 2.0 app (2017)
mhGAP Intervention Guide - Version 2.0 (2016)

Reports of the yearly mhGAP Forum are available

 

WHO : mental health

WORLD HEALTH ORGANIZATION (WHO)

Expand view

This video provides an overview of the global mental health situation with detailed information and statistics. It highlights the mental health Gap Action Programme (mhGAP) which is an WHO initiative that advocates for proper care, psychosocial assistance, and medication in limited resource settings for the treatment of depression, schizophrenia, and epilepsy and for the prevention of suicide

Help in higher education

YOUNG EPILEPSY

Expand view

This resource contains a support pack for higher education institutions to students with epilepsy. This pack contains: a free guide to epilepsy, an epilepsy questionnaire, dedicated online resources for students to manage their epilepsy at university, and online course for higher education staff

 

Note: this resource is free however users need to fill out the form provided

E-bulletin

Source e-bulletin on Disability and Inclusion

Subscribe to updates