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Disability Data Lab learning paper: a practical guide to disability data

JENKINSON, Astrid
et al
December 2019

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The Bond Disability and Development Group (DDG) has commissioned this learning paper to summarise discussions which took place at the DDG’s Data Lab workshop, held in London on 22 October 2019, and to be used as a reference document going forward. This first workshop focused on why organisations need to collect disability data; what tools are available and practical ways in which these can be used. This learning paper provides a summary of these discussions and can act as a guide and reference tool for organisations looking to be more inclusive in their programming, generally, and in their data collection practices, specifically. A number of case studies and numerous resource references are provided.

Guidelines. Inclusion of persons with disabilities in humanitarian action

IASC TASK TEAM ON INCLUSION OF PERSONS WITH DISABILITIES IN HUMANITARIAN ACTION
July 2019

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The guidelines set out essential actions that humanitarian actors must take in order to effectively identify and respond to the needs and rights of persons with disabilities who are most at risk of being left behind in humanitarian settings. The recommended actions in each chapter place persons with disabilities at the centre of humanitarian action, both as actors and as members of affected populations. They are specific to persons with disabilities and to the context of humanitarian action and build on existing and more general standards and guidelines. These are the first humanitarian guidelines to be developed with and by persons with disabilities and their representative organizations in association with traditional humanitarian stakeholders. Based on the outcomes of a comprehensive global and regional multi-stakeholder consultation process, they are designed to promote the implementation of quality humanitarian programmes in all contexts and across all regions, and to establish and increase both the inclusion of persons with disabilities and their meaningful participation in all decisions that concern them. 

 

Chapters include:

  • What to do - key approaches to programming
  • Data and information management
  • Partnerships and empowerment of organisation of people with disabilities
  • Cross cutting considerations
  • Accountability to affected people and protection from sexual exploitation and abuse
  • Humanitarian response options
  • Stakeholder roles and responsibilities
  • What sectors need to do
  • Camp coordination and camp management
  • Education
  • Food security and nutrition
  • Livelihoods
  • Health
  • Protection
  • Shelter and settlements
  • Water, sanitation and hygiene

At risk of exclusion from CRPD and SDGs implementation: Inequality and persons with deafblindness. Initial global report on situation and rights of persons with deafblindness

JENSEN, Rune
et al
September 2018

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Representing between 0.2% to 2% of the population, persons with deafblindness are a very diverse yet hidden group and are, overall, more likely to be poor and unemployed, and with lower educational outcomes. Because deafblindness is less well-known and often misunderstood, people struggle to obtain the right support, and are often excluded from both development and disability programmes. This initial global report on the situation of persons with deafblindness seeks to start a dialogue between international disability rights and development stakeholders, and is based on research undertaken by the World Federation of the Deafblind (WFDB) combining the largest population-based analysis of persons with deafblindness conducted to date (disaggregation of 22 population-based surveys from low, middle and high-income countries), an academic literature review, two surveys conducted among members and partners of WFDB and Sense International. Women and men with deafblindness from across the world took part in the Helen Keller World Conference in June 2018, and were consulted to confirm the findings and elaborate on the recommendations for this report.

 

Data and discussion are presented on people with deafblindess and: inequality; poverty; work; education; health; participation on political and public life; and social life. Datasets are included. 

 

The state of the world's children 2014 in numbers : every child counts

UNITED NATIONS CHILDREN’S FUND (UNICEF)
January 2014

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This report highlights the critical role data and monitoring play in realising children’s rights. It presents an updated compendium of statistics and data (which has been produced thirty years after the initial report) relating to the position of children throughout the world but particularly within the Global South. The data indicators cover a vast range: from demography, health and education, to rate of progression, child mortality, and disparities by household wealth. It emphasises that credible data, disseminated effectively and used correctly, make change possible to target interventions that help right the wrong of exclusion by identifying needs, supporting advocacy, gauging progress and holding duty bearers to account

Sustaining human development : addressing NCDs and disability across the lifecourse

THE NCD ALLIANCE
et al
2013

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This report explores three interconnected global trends — a growing burden of non-communicable diseases (NCDs), the rising prevalence of disability, and changing global population demographics (including rapidly ageing populations). The report highlights that there issues were collectively neglected as policy priorities during the era of the Millennium Development Goals (MDGs). It stresses that the unique opportunity to ensure a future framework that fully integrates NCDs, that goals and targets drive progress for all people including persons with disabilities, and that a lifecourse and rights-based approach underpins all goals and targets to ensure no one is left behind

Findings on accessibility of the zero project

HEINDORF, Ingrid
Eds
June 2012

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This report presents the findings from The Zero Project 2012 which highlights the implementation of the UN Convention on the Rights of Persons with Disabilities. The report’s thematic focus on barriers provides examples of social indicators, good practice and good policy relating to accessibility to the physical environment, to transportation, to information and communications, as well as to other facilities and services provided to the public “"A prelude to the European Accessibility Act: Findings of the international Zero Project Report 2012"
Brussels, Belgium
21 June 2012

Human rights indicators : a guide to measurement and implementation

OFFICE OF THE UNITED NATIONS HIGH COMMISSIONER FOR HUMAN RIGHTS (OHCHR)
2012

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This guide is "a reference resource with operational tools, including an approach to identifying quantitative and qualitative indicators, and the corresponding methodology, to promote objective and comprehensive human rights assessments...The objective of this Guide is to bring together materials covering the conceptual, the methodological and the empirical aspects of the approach underlying the identification of context-sensitive indicators to promote and monitor the implementation of human rights. The Guide provides elements of a framework for building the capacity of human rights monitoring systems and facilitating the use of appropriate tools in policymaking, its implementation and monitoring (fig. I). The Guide aims to reach all those who share a commitment to the promotion of human rights and those who are mandated, directly or indirectly, to address human rights issues in the course of their day-to-day work"
HR/PUB/12/5

Capturing change in women’s realities : a critical overview of current monitoring and evaluation frameworks and approaches

BATLIWALA, Srilatha
PITTMAN, Alexandra
December 2010

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"This document provides a critique of current M[onitoring] &E[valuation] frameworks and approaches as experienced by women’s organizations and movements worldwide along with an analysis of a large number of M&E frameworks and tools. Part I of this document provides a broad overview of common challenges with monitoring and evaluation (M&E) and identifies feminist practices for engaging in M&E to strengthen organizational learning and more readily capture the complex changes that women’s empowerment and gender equality work seek. Part II offers an analysis of a large number of M&E frameworks and tools, along with some of their strengths and weaknesses in assessing women’s rights and gender equality processes and impacts"

Protect for the future : placing children's protection and care at the heart of the MDGs

DELAP, Emily
et al
July 2010

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This paper argues that, in relation to children, this vital change in approach must go beyond a consideration of survival, health and education rights already specifically referred to in the millennium development goals (MDGs), to encompass rights relating to children’s protection and care. These include recognition of the central importance of family-based care for child wellbeing, and children’s rights to be free from violence, exploitation, abuse and neglect. It is argued that only through a consideration of such rights will it be possible to make wide-reaching and sustainable progress in efforts to alleviate child poverty, increase access to education, improve maternal and child health, and reduce the spread of HIV and AIDS

Mapping of child protection M&E tools

AGER, Alastair
AKESSON, Bree
SCHUNK, Kelly
July 2010

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The availability of effective measurement tools is a clear prerequisite for the strengthening of monitoring and evaluation within the field of child protection. This report provides a structured review of a sample of 124 child protection M&E tools
Note: Annexes are available to download in separate files

Child disciplinary practices at home : evidence from a range of low- and middle-income countries

UNITED NATIONS CHILDREN’S FUND (UNICEF)
2010

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This report analyses findings on child discipline from 35 Multiple Indicator Cluster Surveys (MICS) and Demographic and Health Surveys (DHS) conducted in low and middle-income countries in 2005 and 2006. Questions on child discipline were addressed to the mother (or primary caregiver) of one randomly selected child aged 2-14 years in each household. The questionnaire asked whether any member of the household had used various disciplinary practices with that child during the past month. The survey covered eight violent disciplinary practices, some of which were psychological (such as shouting and name calling) while others were physical (such as shaking and hitting). The surveys also collected information on three nonviolent forms of discipline, such as explaining why a behaviour is wrong. Finally, interviewers asked the mother (or primary caregiver) about her or his personal beliefs regarding the need for physical punishment in child rearing"

Recognition, respect and rights: disabled women in a globalised world

MEEKOSHA, Helen
FROMAHDER, Carolyn
2010

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Following a statistically rich overview of the position of disabled women and girls globally, the position of disabled women and girls in Australia is reported. The human rights violations of disabled women in the context of violence, sterilisation and, motherhood and parenting are discussed. The history, evolution and current structure of the Women with Disabilities Australia (WWDA) organisation are described. Some of the challenges and successes of WWDA are also described including: dealing with authorities; negotiating the local, the national and the global; using the new communication technologies; and forming strategic alliances.

The state of world population 2005. The promise of equality : gender equity, reproductive health and the Millennium Development Goals

UNITED NATIONS POPULATION FUND (UNFPA)
2005

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This edition of UNFPA's annual report explores the extent to which the world is meeting the targets outlined in the Millennium Development Goals. It assesses progress, examines shortfalls and provides examples of interventions that have resulted in improvements in the lives of individuals, in families and countries. It highlights the importance of women's education, access to reproductive health services and stopping gender-based violence

The state of the world's children 2006 : excluded and invisible

UNITED NATIONS CHILDREN'S FUND (UNICEF)
2005

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The 2006 UNICEF report focuses on children who are 'excluded' or 'invisible', and is an assessment of the world's most vulnerable children. These are the children, that even if the Millenium Development Goals are met, will be left out. They are the ones who are currently beyond the reach of laws, programmes, research and budgets. The report states that children in four circumstances are most likely to become invisible and forgotten: children without a formal identity, children without parental care, children in adult roles and children who are exploited. For example, children who are not registered at birth do not appear in official statistics and are not acknowledged as members of their society. Discrimination on the basis of gender, ethnicity and disability are also factors in the exclusion of children. The report outlines concrete actions that can be taken by civil society, the private sector, donors and the media to help prevent children falling between the cracks

Practice standards in children’s participation

SAVE THE CHILDREN UK
January 2005

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"These practice standards are intended to guide the practice of staff working to support children’s participation. Each standard is accompanied by a set of criteria that can be used as indicators to see whether or not the standard is being met"

Convention document legal analysis : a legal commentary on the draft convention text produced by the working group for the UN Ad Hoc Committee on a Comprehensive and Integral International Convention on the Protection and Promotion of the Rights and Dign

LANDMINE SURVIVORS NETWORK
2004

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The legal analysis of the draft convention text Comprehensive and Integral International Convention on the Protection and Promotion of the Rights and Dignity of Persons with Disabilities is an exellent document explaining and commenting on the convention text. This document addresses both legal experts and people who need legal background information about the convention

State of the world's children 2005 : childhood under threat

UNITED NATIONS CHILDREN'S FUND (UNICEF)
2004

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The latest UNICEF report concentrates on the theme of the quality of a child’s life. There have been significant advances in the fulfillment of children’s rights to survival, health and education through the provision of essential goods and services, and a growing recognition of the need to create a protective environment to shield children from exploitation, abuse and violence since the Convention on the Rights of the Child was adopted by the UN General Assembly in 1989. Worryingly, however, in several regions and countries some of these gains appear in danger of reversal from three key threats: poverty, armed conflict and HIV/AIDS. The rights of over 1 billion children are violated because they are severely underserved of at least one or more of the basic goods and services required to survive, grow and develop. Swift and decisive action is required to reduce the poverty that children experience, protect them from armed conflict and support those orphaned or made vulnerable by HIV/AIDS

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