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Addressing the disability data gap in humanitarian action

COLLINSON, Sarah
October 2020

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This Humanitarian Practice Network Paper (Number 83) explores the challenge of improving the collection, analysis and use of disability data to support more inclusive, impartial and accountable humanitarian action. It considers both the obstacles in this area and the potential opportunities for improving practice going forward. The paper draws directly on the experience and outcomes of a recent UK Aid-funded multi-partner action research project led by Humanity & Inclusion which explored how the use of the internationally validated Washington Group Questions on Disability can support the collection of more reliable and comparable quantitative data on persons with disabilities in humanitarian settings.

Based on a broader desk review of practice-based reports and case studies, this paper also draws on a further range of methods and approaches that have been taken to collect, analyse and use data and information to support inclusion of people with disabilities across different stages of the humanitarian programming cycle, focusing particularly on instances where qualitative information is used in combination with quantitative data. The paper looks at the collection and use of data on the accessibility and inclusiveness of humanitarian programmes, as well as data on the number, needs and capacities of persons with disabilities

Disability data collection: A summary review of the use of the Washington Group Questions by development and humanitarian actors

QUIGLEY, Nolan
et al
October 2018

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The Washington Group Questions on Disability are rapidly emerging as the preferred data collection methodology by the global community for national data collection efforts on disability. However, more and more development and humanitarian actors are now using the methodology in their own data collection efforts. This is beyond the original purpose of the questions, which was to generate usable data for governments. Leonard Cheshire and Humanity & Inclusion, two international charities focussed on disability and inclusion, have worked together to share learnings of recent research studies. These studies aim to understand how the Washington Group Questions (WGQ) have been used by development and humanitarian actors and the impact of using the methodology. This summary report outlines the key findings, analysis and conclusions about the application of the Washington Group Questions in a range of contexts. The report concludes with a number of recommendations for different stakeholders.

DFID data disaggregation action plan - Better data for better lives

UK DEPARTMENT FOR INTERNATIONAL DEVELOPMENT (DFID)
UK AID
January 2017

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This action plan sets out the steps that the UK Department for International Development (DFID) will take to promote, provide and make use of their own development and humanitarian programme data which can be disaggregated on the basis of sex, age, disability status and geography (in the short term). It also has the objective to build the culture within DFID on disaggregated data, and to work with others to change the international development system on disaggregated data. A review is scheduled for 2020. Working with partners, influencing, capacity building and management information, research, analysis and reporting are outlined. Trailblazer country programmes with Bangladesh, Nepal, Zimbabwe and Rwanda are reported.

Interventions for children affected by armed conflict: a systematic review of mental health and psychosocial support in low- and middle-income countries

JORDANS, Mark. J. D.
PIGOTT, Hugo
TOL, Wietse A
January 2016

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Over one billion children under the age of 18 live in countries affected by armed conflict. This systematic review replicates an earlier study, aiming to provide a comprehensive update of the most current developments in interventions for children affected by armed conflict. For the period 2009– 2015, a total of 1538 records were collected. Twenty-four studies met the inclusion criteria, and the included interventions involve data from 4858 children. Two types of analysis were conducted. First, for an account of intervention descriptions, thematic analysis was used to summarise themes, with a specific focus on cultural adaptations. Second, all evaluation studies reporting quantitative data were categorised into level of evidence (1 = randomized controlled trials, all types; 2 = quasi-experimental design and controlled studies; 3 = non-controlled design; 4 = case studies) 

Current Psychiatry Reports, vol 18 (9), doi:10.1007/s11920-015-0648-z

The ScoPeO tool : measuring the impact of our interventions : quality of life, safety and social and family protection

HANDICAP INTERNATIONAL
2015

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This advocacy briefing paper presents information about Handicap International’s ScoPeO tool which is a data collection tool to help measure outcomes of development initiatives on the quality of life (QOL) of beneficiaries who have accessed our projects and those of our partners. This brief highlights the need to measure quality of life and provides an overview of how ScoPeO works along with a case study from Rwanda. It outlines how humanitarian and development actors can measure impact and suggests ways to measure progress

Advocacy briefing paper

Capturing the difference we make : community-based rehabilitation indicators manual

WORLD HEALTH ORGANIZATION (WHO)
2015

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This manual presents indicators that "capture the difference (Community-Based Rehabilitation) CBR makes in the lives of people with disabilities in the communities where it is implemented. This manual presents these (base and supplementary) indicators and provides simple guidance on collecting the data needed to inform them. The indicators have been developed to show the difference between people living with a disability and their families and those without disabilities in relation to the information reported in the indicators. This comparability provides valuable information to CBR managers, donors and government agencies alike, which can be used to guide decision-making, support advocacy and improve accountability. Further, the ability of the indicators to provide a comparison of the populations of persons with disability to persons without disability aligns with the United Nations Convention on the Rights of Persons with Disabilities (CRPD), which states that persons with disability have equal rights to those without disabilities...this manual serves to standardize the monitoring of differences made by in the lives of people with disabilities and their families, making it possible to compare the difference CBR makes across areas and countries. This manual aligns with the WHO Global Disability Action Plan 2014–2021, and may also be used to monitor other development plans in an easy and efficient way”

Disability action plan

WORLD HEALTH ORGANIZATION (WHO)
April 2014

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The Action Plan is based on the recommendations of the WHO and World Bank World report on disability and in line with the Convention on the Rights of Persons with Disabilities. It was developed in consultation with Member States, United Nations organizations and national and international partners including organizations of people with disabilities.

The Action Plan has three objectives : to remove barriers and improve access to health services and programmes; to strengthen and extend rehabilitation, habilitation, assistive technology, assistance and support services, and community-based rehabilitation; to strengthen collection of relevant and internationally comparable data on disability and support research on disability and related services

World malaria report 2009

WORLD HEALTH ORGANIZATION (WHO)
2009

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This report summarises information received from 108 malaria endemic countries and other sources and updates the analysis presented in the 2008 Report. It highlights progress made in meeting the World Health Assembly (WHA) targets for malaria to be achieved by 2010 and 2015, and new goals on malaria elimination contained in the Global Malaria Action Plan (2008)

Monitorings and evaluation manual : handbook on monitoring and evaluation of development projects

DISABLED PEOPLE’S ORGANISATIONS DENMARK (DPOD)
2009

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“The manual provides answers to what monitoring and evaluation are about, and what it takes to perform them. Numerous specific examples are presented, and annexes at the end serve practical purposes in day-to-day work, including a list to inspire the programming of monitoring and evaluation visits, and a catalogue of ideas for the formulation of indicators”

State of the world's mothers 2008 : closing the survival gap for children under 5

SAVE THE CHILDREN USA
May 2008

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This report shows which countries are succeeding - and which are failing - to deliver basic health care to the mothers and children who need it most. It examines where the health care gaps between the poorest and best-off children are widest, and where they are smallest. It also looks at the survival gaps between the rich and poor children in developing countries, and shows how millions of children’s lives could be saved by ensuring all children get essential, low-cost health care

Indicators for assessing infant and young child feeding practices : part 1, definitions|Conclusions of a consensus meeting held 6-8 November 2007 in Washington, DC, USA

WORLD HEALTH ORGANIZATION (WHO)
2008

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This publication defines indicators that could be used to revise those outlined in the document 'Indicators for assessing breastfeeding practices', published in 1991. This document provided a set of indicators that could be used to assess infant feeding within and across countries and evaluate the progress of breastfeeding promotion efforts

Participatory monitoring and evaluation of community- and faith-based programs : a step-by-step guide for people who want to make HIV and AIDS services and activities more effective in their community

September 2006

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This guide adopts a learning approach to participatory monitoring and evaluation of HIV and AIDS programmes, and sees programme achievements and problems as a means to better decison-making. It provides a comprehensive overview of monitoring and evaluation processes, from planning to indicators selection, baselines definition and report writing. The process is outlined in simple and practical steps. Includes a chapter on participatory methods and tools and a list of useful HIV and AIDS programmes indicators. This publication is primarily intended for community- and faith-based programme managers and group facilitators

Guide to monitoring and evaluation of the national response for children orphaned and made vulnerable by HIV/AIDS

UNITED NATIONS CHILDREN'S FUND (UNICEF)
February 2005

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One of the major challenges facing governments, international organisations and non-governmental organisations in their responses to children made vulnerable by HIV and AIDS is the lack of data on the quality and effectiveness of their interventions. This document provides guidance to these institutions in the monitoring and evaluation of the national response for children orphaned and made vulnerable by HIV and AIDS. It includes methods and tools for measurement at the national level. The guide is organised into two parts. The first discusses issues relevant to the general monitoring and evaluation of orphans and other children made vulnerable by HIV and AIDS and the second part provides specific guidance in the use of the recommended indicators

National AIDS programmes : a guide to indicators for monitoring and evaluating national antiretroviral programmes

WORLD HEALTH ORGANIZATION (WHO)
2005

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This document is intended to inform the main M&E efforts at the national level by HIV/AIDS programme managers. It should be noted, however, that many of the data necessary for calculating the indicators originate from health facilities. The manual is therefore also of value to programme managers or programme planners in the development of indicators to be used at more local levels. In particular the document can help to align local M&E strategies with the national framework, facilitating the flow of necessary data from the local to the regional and national levels

Investing in development : a practical plan to achieve the Millennium Development Goals

UN MILLENNIUM PROJECT
2005

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This document presents the findings and recommendations of the UN Millennium Project, focusing on the work carried out by 10 thematic task forces comprising more than 250 experts from around the world, including scientists, development practitioners, parliamentarians, policymakers, and representatives from civil society, UN agencies, the World Bank, the International Monetary Fund, and the private sector. It discusses the world's progress toward the Millennium Development Goals (MDGs) in public, private and civil society sectors. The concluding section discusses 'ways forward'

UN Millennium Project 2005 : who's got the power? Transforming health systems for women and children. Task Force on Child Health and Maternal Health

FREEDMAN, Lynn P
et al
2005

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This report has been produced by the Task Force on Child Health and Maternal Health. It identifies technical interventions needed to address the problems of high rates of maternal mortality, continued child deaths due to preventable illnesses, unmet need for sexual and reproductive health services, and weak and fragile health systems. The report also asserts that policymakers must act now to change the fundamental societal dynamics that currently prevent those most in need from accessing quality health care

WHO’s multi-country study on women’s health and domestic violence against women : summary report of initial results on prevalence, health outcomes and women's responses

WORLD HEALTH ORGANIZATION (WHO)
2005

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"Violence against women by an intimate partner is a major contributor to the ill-health of women. This study analyses data from 10 countries and sheds new light on the prevalence of violence against women in countries where few data were previously available. It also uncovers the forms and patterns of this violence across different countries and cultures, documenting the consequences of violence for women’s health. This information has important implications for prevention, care and mitigation... The high rates documented by the Study of sexual abuse experienced by girls and women are of great concern, especially in light of the HIV epidemic. Greater public awareness of this problem is needed and a strong public health response that focuses on preventing such violence from occurring in the first place...This study will help national authorities to design policies and programmes that begin to deal with the problem"

ICT and health [chapter] | ICT and MDGs : a World Bank Group perspective

WORLD BANK GROUP
December 2003

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This article explores the impact of ICTs on health care within developing countries. Topics covered include research and training of health-care workers, achieving health-related MDGs, and storing and disseminating health information. Details are also provided of selected World Bank-funded projects

Monitoring the declaration of commitment on HIV/AIDS : guidelines on construction of indicators

JOINT UNITED NATIONS PROGRAMME ON HIV/AIDS (UNAIDS)
May 2003

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The purpose of these guidelines is to provide National AIDS Councils (or equivalent) with technical guidance on how to measure the core indicators for the implementation of the Declaration of Commitment on HIV/AIDS, adopted by Member States of the United Nations during the United Nations General Assembly Special Session on HIV/AIDS in June 2001. These guidelines provide technical guidance on the detailed specifications of the core indicators, on the information required and the basis of their construction, and on their interpretation. The guidelines also aim to maximize the validity, internal consistency and comparability across countries and over time of the indicator estimates obtained. In particular, the guidelines aim to ensure consistency in the types of data and methods of calculation employed

A manual for CBR planners

THOMAS, Maya
THOMAS, M J
Eds
2003

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This manual for community-based rehabilitation planners has 13 sections and contains a very useful overview of the history of CBR with valuable introductory reading for newcomers to the field. The subsequent six sections cover planning, needs assessment and include suggestions of how to understand local communities and encourage community participation in CBR programmes. The final six sections are concerned with programme management issues; for example, as organising self-help groups, training personnel for CBR, and the sustainability of projects including evaluation and management of change

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