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Forgotten in a crisis: Addressing dementia in humanitarian response

GLOBAL ALZHEIMER'S & DEMENTIA ACTION ALLIANCE
ALZHEIMER'S DISEASE INTERNATIONAL
ALZHEIMER'S PAKISTAN
May 2019

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Every 3 seconds someone develops dementia and it’s one of the leading causes of death worldwide. Despite being some of the most at-risk in times of natural disaster, conflict and forced migration, there is a lack of awareness that dementia is a medical condition, meaning people with dementia are being neglected when they’re most in need of support.

This report investigates ways humanitarian emergency responses can protect and support people living with dementia. It draws on the experiences of people affected by dementia, Alzheimer’s specialists in affected countries, humanitarian organisations and inter-governmental organisations including the World Health Organisation and UNHCR.

Our findings reflect a wider issue of a lack of support for older people and those with disabilities in humanitarian response. We have found that people with dementia are systemically overlooked, due to a lack of global awareness of the condition and associated stigma.

The report is a collaboration between the Global Alzheimer’s & Dementia Action Alliance, Alzheimer’s Disease International and Alzheimer’s Pakistan.

Responding to the Syrian health crisis : the need for data and research

COUTTS, Adam
et al
March 2015

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This article assesses the impact of the war in Syrian the context of the health system and neighbouring countries and the rise in non-communicable diseases. The authors advocate that  urgent policy and research attention needs to be given to the generation of timely and high-quality evidence on the effectiveness of the humanitarian health response, the capacity of health systems within Syria, and the issue of non-communicable diseases among internally displaced people and refugees

The Lancet, Vol 3, Issue 3, PE8-E9, Mar 01, 2015

 

 

Assessment of neurodisability and malnutrition in children in Africa

GLADSTONE, Melissa
MALLEWA, Mac
ALUSINE JALLOH, Alhaji
VOSJUIKL, Wieger
POSTELS, Douglas
GROCE, Nora
KERAC, Marco
MOLYNEUX, Elizabeth
March 2014

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Neurodevelopmental delay, neurodisability, and malnutrition interact to contribute a significant burden of disease in global settings. Assessments which are well integrated with plans of management or advice are most likely to improve outcomes. Assessment tools used in clinical research and programming to evaluate outcomes include developmental and cognitive tools that vary in complexity, sensitivity, and validity as well as the target age of assessment. Few tools have been used to measure socioemotional outcomes and fewer to assess the disabled child with malnutrition. There is a paucity of tools used clinically which actually provide families and professionals with advice to improve outcomes. Brain imaging, electroencephalography, audiology, and visual assessment can also be used to assess the effect of malnutrition on brain structure and function. The interaction of neurodisability and malnutrition is powerful, and both need to be considered when assessing children.

Seminars in Pediatric Neurology, Child Neurology in Africa, Volume 21, Issue 1, March 2014, Pages 50–57

An evidence review of research on health interventions in humanitarian crises

BLANCHET, Karl
et al
November 2013

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This report presents a review of the evidence base of public health interventions in humanitarian crises by assessing the quantity and quality of intervention studies, rather than measuring the actual effectiveness of the intervention itself.  It notes an increase in quality and volume of evidence on health interventions in humanitarian crises and recognises that evidence remains too limited, particularly for gender-based violence (GBV) and water, sanitation and hygiene (WASH). This report identifies a number of common needs across all areas, namely more evidence for the effectiveness of systems and delivery, better developed research methods, and more evidence on dispersed, urban and rural populations, on ensuring continuity of care and measuring and addressing health care needs in middle-income settings (particularly NCDs)

Note: Use links on the left hand side of the webpage to access either the full report, the executive summary, or the individual chapters arranged by health topic

Non-Communicable diseases in an ageing world : a report from the International Longevity Centre UK, HelpAge International and Alzheimer’s Disease International lunch debate

BAMFORD, Sally-Marie
SERRA, Valentina
July 2011

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This report, based on the discussion and recommendations from the expert meeting, presents information about the need for a life-course focus on prevention, treatment, management and related care issues on NCDs and for dementia to be addressed as a global priority for action. "The first part of the report highlights salient policy and political issues on the NCD question and summarises some of the key international developments in this regard. The latter section of the report provides a summary of the presentation by Professor Martin Prince, and identifies some of the key themes which emerged from the meeting"
Expert stakeholder lunch meeting
London, UK
4 May 2011

Ageing and the challenge of non-communicable diseases in low and middle-income countries : a position paper

HELPAGE INTERNATIONAL
2011

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This position paper presents detailed information to advocate for a "whole life course approach to NCDs, which is inclusive of all ages, should be adopted for any recommendations on detection and diagnosis, and strategies for prevention, management and treatment as well as more effective care." It concludes with key messages and recommendations, and is useful for anyone interested in ageing and non-communicable disease in low and middle-income countries

Nutrition, physical activity and NCD prevention : a briefing document

THE NCD ALLIANCE
2011

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"The NCD Alliance Proposed Outcomes Document calls on governments around the world to commit to actions in a number of key areas to tackle the global burden of Non-Communicable Diseases (NCDs). This briefing document works in synergy with the Proposed Outcomes Document and provides evidence-based actions for nutrition and physical activity related aspects of NCD prevention...(This) briefing document is divided into two sections. Part A provides Key Messages and Guiding Principles together with clear Calls for Action to improve nutrition and increase physical activity. Part B presents an overview of the available evidence of nutrition, physical activity and NCDs, and of effective policies and interventions to reduce the common risk factors"

WHO handbook on indoor radon : a public health perspective

ZEEB, Hajo
SHANNOUN, Ferid
2009

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This handbook focuses on residential radon exposure from a public health point of view and provides detailed recommendations on reducing health risks from radon and policy options for preventing and mitigating radon exposure. The material reflects the epidemiological evidence that indoor radon exposure is responsible for a substantial number of lung cancers in the general population

Mental health and development sustaining impact : annual impact report 2009

RAJA, Shoba
DOUGHERTY, Charlotte
2009

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Basicneeds is an organization which aims to reach people with mental illness and epilepsy, to improve their health, financial well-being, and social acceptance. BasicNeeds provides treatment, training and promoted capacity building. This annual report presents BasicNeeds actions in 2009, highlighting their experiences in India, Sri Lanka, Lao PDR, Ghana, Uganda, Kenya, Tanzania, and Nepal

Orientation of participatory approaches on community enquiries regarding lymphatic filariasis

BHANOT, Amit
SHRIVASTAVA, Archana
September 2004

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This report provides an overview of approaches for participatory community planning and enquiries regarding lymphatic filariasis following a workshop. The goal of this document is for health staff, program planners and program managers working for global elimination of lymphatic filariasis, to have an overview of the approaches for participatory community planning and enquiries. It provides guiding principles on methods that can be utilised and source of ideas for probe or explorations that can be made to comprehend the knowledge, attitudes and practices among the endemic communities towards lymphatic Filariasis ”Workshop on the orientation of participatory approaches on community enquiries regarding lymphatic filariasis
Orissa, India
12-16 April 2004

ACCP strategies for supporting women with cervical cancer

WHITE, Sarah C
WINKLER, Jennifer L
2004

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This report provides an overview of current issues relating to cancer treatment in developing countries and describes the support provided to cancer patients in countries where Alliance for Cervical Cancer Prevention (ACCP) has worked. The report outlines recommendations, based on ACCP experiences, for the provision of basic assistance at the national or local level to women with cervical cancer, within the context of a prevention-based intervention in low-resource settings

Emergency tips for people with specific disabilities

INDEPENDENT LIVING RESOURCE CENTRE SAN FRANSCISCO
2003

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This paper is aimed at disabled people. It gives emergency tips for people with specific disabilities such as mobility disabilities, psychiatric disabilities, visual disabilities and others on what to do in the case of an emergency. Tips include preparing an emergency kit, making an evacuation plan, and writing down instructions to assist emergency workers. Although aimed at disabled people in the United States, the tips have some relevance to disabled people in the South

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