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Excluded from the Excluded: People with Intellectual Disabilities in (and out of) Official Development Assistance

Inclusion International
2020

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This report from Inclusion International analyzes data available through the Organization for Economic Cooperation and Development (OECD) Development Assistance Committee (DAC)’s Creditor Reporting System (CRS), which reveals that mainstream development projects fail to include people with intellectual disabilities, and in many cases use project methodologies that promote segregation and other human rights violations.

 

Analysis of ODA data from 2014 to 2018 found that 99.98% of ODA funding did not include people with intellectual disabilities, that 36% of the ODA projects that did include people with intellectual disabilities were not CRPD-compliant, and that only 2% of aid relevant to people with intellectual disabilities and their families was delivered through OPDs.

 

This report urges action from donors to ensure that the commitment to disability-inclusive development under Article 32 of the CRPD is also fulfilled for people with intellectual disabilities, and sets out recommendations for funders to ensure CRPD-compliance and inclusion in the projects they support.

Funding ≠ Inclusion: Segregation and CRPD Non-Compliance in Official Development Assistance

Inclusion International
November 2020

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This two-page summary resource compiles key data on the CRPD-compliance of Official Development Assistance (ODA)-funded programmes. This analysis was originally published in Inclusion International's 2020 report, Excluded from the Excluded, which revealed that 36% of projects that included people with intellectual disabilities in 2018 used methodologies that promoted segregation.

 

This summary resource profiles key data on the CRPD compliance of ODA-funded programme methodologies by thematic area - including livelihoods, education, emergency response, and service provision programmes. The summary resource also shares key recommendations for organizations implementing programmes to ensure CRPD-compliance.

No one left behind? Exclusion of People with Intellectual Disabilities in Official Development Assistance

Inclusion International
November 2020

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This one-page factsheet presents key data from Inclusion International's 2020 report "Excluded from the Excluded," which revealed that people with intellectual disabilities are excluded from 99.98% of Official Development Assistance (ODA)-funded programmes. The factsheet also shares key recommendations for funders to ensure that no one is left behind by ODA funding.

Participation in Practice: Examples of inclusive action for a “Participation Revolution”

March 2020

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Humanitarian organizations and donors have committed to change the way humanitarian action is carried out and create a “Participation Revolution.” In this webinar issues addressed included:

  • inclusion of the people and communities affected by humanitarian crises in practice;
  • how organizations are ensuring that the voices of the most vulnerable groups considering gender, age, ethnicity, language, and special needs are heard and acted upon;
  • how program activities and budgets are designed to support the changes that affected people demand


In this webinar, organized on 26 March 2020 by PHAP and the Steering Committee for Humanitarian Response, we took stock of the progress to date on workstream six of the Grand Bargain and heard success stories from the field that can help agencies achieve a sustained change in how they design and deliver their programs.

 

A full transcript is available. Webinar registrants were asked to provide what they thought, in their context, was the most important factor enabling participation in practice and what they thought was the most important factor preventing participation in practice. Answers are provided in an Annex.

Global Disability Summit - commitments

August 2018

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A major outcome of the Global Disability Summit, July 2018, was the commitments of a large number of organisations to achieve the rights of people with disabilities in developing countires.

The commitments of each organisation are provided in the same format and are categorised by summit theme:

  1. Dignity and respect for all
  2. Inclusive Education
  3. Economic Empowerment
  4. Harnessing Technology and Innovation

Organisations making commitments are grouped in the following categories:

  • National Governments
  • Multilateral organisations
  • Private Sector organisations
  • Foundations
  • Civil society organisations
  • Research organisations
  • Other organisations

 

CRPD Course (with an emphasis on how users and survivors of psychiatry can use the CRPD to advance our human rights)

Tina Minkowitz
March 2017

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The Convention on the Rights of Persons with Disabilities is a watershed in the human rights of users and survivors of psychiatry. This course is offered with an emphasis on how users and survivors of psychiatry can use the CRPD to advance human rights of persons with disabilities.

 

The Convention of course guarantees the rights of all persons with disabilities, in all their diversity.  Major constituencies organized at the international level included the World Network of Users and Survivors of Psychiatry, World Federation of the Deaf, World Blind Union, World Federation of the Deafblind, Inclusion International (persons with intellectual disabilities and their families), International Federation of Hard of Hearing Persons, and Disabled Peoples’ International (cross-disability).  They organized all disabled people’s organizations and allies into the International Disability Caucus, and aimed for the Convention to be equally relevant to all persons with disabilities irrespective of the type of disability or geographical location.  Every constituency finds what it needs in the text, and the Convention can be approached from a number of different starting points to uncover its potential.

 

The course is taught by Tina Minkowitz, Esq., a human rights lawyer and survivor of psychiatry who was instrumental in developing the relevant provisions.  She represented the World Network of Users and Survivors of Psychiatry (WNUSP) in the drafting and negotiation of the CRPD, and subsequently founded the Center for the Human Rights of Users and Survivors of Psychiatry (CHRUSP).

Statement to mark the 10th anniversary of the UN Convention on the Rights of Persons with Disabilities

DEVANDAS-AGUILAR, Catalina
December 2016

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"It is time to move from law to practice in the implementation of the rights of persons with disabilities

GENEVA (13 December 2016) – A United Nations human rights expert has urged States to redouble their efforts to end the marginalization of persons with disabilities, in a statement marking the anniversary of the UN Convention on the Rights of Persons with Disabilities.

Catalina Devandas Aguilar, the UN Special Rapporteur on the rights of persons with disabilities, said much work remained to be tackled, 10 years after the Convention was adopted by the UN General Assembly on 13 December 2006"

The Paralympic Games and the Promotion of the Rights of Persons with Disabilities

UN CHRONICLE
September 2016

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This article explores the effect of the paraolympic games on driving social inclusion and an understanding of disability and disability rights around the world. Highlighting the poor conditions before the Bejing games in 2008, the article explains how perceptions and awareness within society have changed. The article also highlighted the United Kingdom as a leader in the field of disability rights and equality thought protection of those rights. 

The ScoPeO tool : measuring the impact of our interventions : quality of life, safety and social and family protection

HANDICAP INTERNATIONAL
2015

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This advocacy briefing paper presents information about Handicap International’s ScoPeO tool which is a data collection tool to help measure outcomes of development initiatives on the quality of life (QOL) of beneficiaries who have accessed our projects and those of our partners. This brief highlights the need to measure quality of life and provides an overview of how ScoPeO works along with a case study from Rwanda. It outlines how humanitarian and development actors can measure impact and suggests ways to measure progress

Advocacy briefing paper

Human Rights

www.macao-tz.org
December 2014

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Malezi AIDS Care Awareness Organization (MACAO) is a non-profit organization reaching out to neglected Indigenous people in Ngorongoro District, Arusha Region of Northern Tanzania.  Macao founded in 2003, Macao is a humanitarian organization that provides assistance to approximately 200,000 Indigenous Maasai community in Ngorongoro district for addressing needs of water and sanitation, food security, health Care Research, Education, Research environment, Maasai Traditional Research, Human Rights and sustainable economic development by strengthening their livelihoods.  In addition to responding to major relief situations, MACAO focuses on long-term community development through over 4 Area Development Project. We welcome the donors and volunteers to join us in this programs, we are wolking in ruro villages.

Disability and the League of Nations: the Crippled Child’s Bill of Rights and a call for an International Bureau of Information, 1931

GROCE, Nora
2013

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In Disability Studies the evolution of conceptual models is often portrayed as linear, with a nineteenth-century charity model shifting to the medical model that dominated disability discourse in the twentieth century. This is then assumed to be largely unchallenged until the 1970s, when an emergent Disability Rights Movement re-framed issues into the social model, from which evolved a rights-based model. This paper documents two early efforts to address disability issues submitted to the League of Nations: the Crippled Child’s Bill of Rights in 1931 and a ‘Memorial’ requesting the establishment of an International Bureau of Information on Crippled Children in 1929. Neither submission achieved its stated goals, yet both reflect early attempts to place disability within wider social contexts.

From exclusion to equality : realizing the rights of persons with disabilities.|Handbook for parliamentarians on the convention on the rights of persons with disabilities and its optional protocol

BYRNES, Andrew
et al
October 2007

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This handbook is the result of extensive collaboration between the UN Department of Social and Economic Affairs, the Office of the UN High Commissioner for Human Rights, and the Inter-Parliamentary Union. It aims to raise awareness about the UN Convention on the Rights of Persons with Disabilities, disseminate information and help stakeholders understand the key elements of the Convention as they put the articles into practice. Extensive insights and a range of examples are designed to aid parliamentarians as they promote and protect the rights of disabled people. It would be useful for anyone with an interest in human rights and disability and development. It will also be available in Arabic, French and Spanish

Convention on the rights of persons with disabilities : its implementation and relevance for the World Bank

GUERNSEY, Katherine
NICOLI, Marco
NINIO, Alberto
June 2007

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This paper is a World Bank organisational learning tool designed to provide a review and commentary on the relevance of the UN Convention on the Rights of Persons with Disabilities. The purpose is to assist World Bank staff with supporting implementation activities. The articles that make up this document aim to operationalize World Bank protocols, legal obligations and benchmark specific principles. This practical resource would be useful for those working in the field of disability and development, in particular those working towards legislative reform

Social assistance and disability : initial learning

SIGHTSAVERS INTERNATIONAL
April 2007

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This the summary of findings from a study to examine information on disability and mainstreaming of social assistance in developing countries. It addresses a range of key issues, including: the eligibility to and accessibility of social assistance; the socio-economic costs of disability; and the involvement of disabled people in shaping legislation

Moving forward : progress in global disability rights monitoring

LINDQVIST, Bengt
RIOUX, Marcia H
SAMSON, Rita M
2007

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This report is part of a comprehensive project to develop international systems and methodologies for monitoring the human rights of people with disabilities. It represents the second phase of the Disability Rights Promotion International (DRPI) project, the specific aim of which, is to develop capacity building tools and resources to enable people with disabilities to effectively monitor systems, individual experiences and media. This work would be useful to anyone with an interest in human rights, disability and development and the implementation of the UN Convention on the Rights of Persons with Disabilities

Children and adults with disabilities

Swedish Agency for International Development Cooperation (SIDA)
Ed
December 2005

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This position paper concerns the processes for mainstreaming disability in development cooperation. Specifically, it is concerned with the ways in which SIDA can ensure that disabled people are active participants in development work and decision-making processes. The paper includes strategic areas for including persons with disabilities in SIDA's policies and programmes (on education, HIV and AIDS, poverty reduction, etc) along with a range of useful resources on global disability rights and websites on disability issues. This paper would be useful to anyone with an interest in mainstreaming disability in development cooperation, and in particular, to policy-makers, NGOs, and disabled people's organisations

CRPD in plain language

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The plain language version of the UN Convention on the Rights of Persons with Disabilities is a practical, accessible and easily translated version of the official document. This version would be useful for anyone who may have difficulties understanding the original text; for example, those with cognitive disabilities or those whose first language is not English. The purpose of the document is to ensure that the human rights and freedoms of disabled persons are promoted, protected and understood by all

The World Federation of the Deafblind

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This website describes the work of WFDB and provides details of the first, second and third WFDB General Assembly meetings held in collaboration with Helen Keller World Conference. Information about deafblindness is provided and links to international deafblind organisations and resources are highlighted. There is also an open forum to share deafblind information

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