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Disability Data Review: A collation and analysis of disability data from 40 countries

LEONARD CHESHIRE
2018

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This report was developed to inform dialogue at the 2018 Global Disability Summit. It contains full details on the methods and findings of data analysis from 40 countries and 16 indicators. The report identifies available data and existing gaps to understand how the growing body of available disability data can be disaggregated and to support monitoring and evaluation efforts for the Sustainable Development Goals (SDGs) and the United Nations Convention on the Rights of Persons with Disabilities (CRPD).

Is Adaptive Behaviour too Normal to be Normally Distributed?

SPREAT, Scott
2017

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Purpose: This study attempts to ascertain if adaptive behaviour complies with the characteristics of a normal distribution.

 

Methods: Adaptive behaviour data collected from two large state samples of 2900 were reviewed to determine the shape of their distributions. A smaller convenience sample of 37 adults without intellectual disability was similarly reviewed.  

 

Results: Findings suggest that the shape of the distribution of adaptive behaviour increasingly deviates from normal as cognitive abilities increase.   

 

Conclusions/Implications: It does not appear that adaptive behaviour is normally distributed. This will impact the diagnosis of intellectual disability because while IQ scores two standard deviations below the mean reliably cut off about 2% of the population, a similar cut-off cannot be assumed for adaptive behaviour.

Mental health assessments in refugees and asylum seekers: evaluation of a tablet-assisted screening software

MORINA, Naser
et al
October 2017

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Mental health problems resulting from persecution and forced migration are very common among refugees and asylum seekers and evolve into a major public health challenge. Language barriers often prevent timely access to appropriate health care, leading to chronic trajectories and abortive social integration. Tools for multilingual screening and assessment could be of great benefit for this particularly vulnerable population as well as for policy makers. This study aimed at testing the reliability, feasibility and usability of the Multi-Adaptive Psychological Screening Software (MAPSS), a newly developed Audio Computer-Assisted Self-Interview Software (ACASI) for touchscreen devices, for screening purposes in a clinical setting. In a randomized cross-over design including both MAPSS and paper-pencil clinician-administered interviews, 30 treatment-seeking refugees completed clinical measures and a feasibility questionnaire to rate the user interface of MAPSS. Five professionals performed given tasks in MAPSS and completed usability questionnaires for the administration interface.

Conflict and Health 2017 11:18

https://doi.org/10.1186/s13031-017-0120-2

L’autonomisation de personnes vulnérables, notamment des personnes handicapées, dans un contexte dépourvu de services et de ressources

ROCHE, Audrey
October 2017

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Cette publication est le produit d’un processus de capitalisation de l'expérience en insertion socioéconomique de personnes handicapées acquise par Handicap International et ses partenaires de mise en œuvre dans le cadre du projet TEAM CONGO à Kananga en RDC. L’objectif de cette capitalisation est d’une part, d’exposer la méthodologie en matière d’insertion socio-économique appliquée à Kananga, en détaillant les 2 principales bonnes pratiques - l’Accompagnement Social Personnalisé avec une approche holistique, et l’accès au capital économique via des micro-crédits- et les leçons apprises afin que les équipes d’Handicap International, les agences gouvernementales, et les organisations travaillant dans le domaine de l’Insertion socio-économique des personnes handicapées et personnes très vulnérables, puissent les utiliser dans le cadre de futures interventions. D’autre part, cette capitalisation vise à ébaucher des recommandations pour les futures interventions qui pourraient avoir lieu dans ce domaine en République Démocratique du Congo (RDC) ou dans des contextes similaires, dans lesquels les initiatives publiques ou privées en faveur de l'insertion économique des populations vulnérables comme l’offre de formation professionnelle, les opportunités d'emploi formel et l’accès au capital sont rares, voire même inexistantes. Une méthodologie d'action détaillée et adaptée à des contextes pauvres en ressources, sera ainsi proposée, à la lumière de l’expérience du volet d’insertion socio-économique du projet TEAM CONGO.

A guide for ensuring equity and inclusion in education

UNESCO
July 2017

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This guide is intended to support countries in embedding inclusion and equity in educational policy. It supports Sustainable Development Goal (SDG) 4 on education calls for inclusive and equitable quality education and lifelong learning opportunities for all by 2030. The guide is intended for use primarily by key government education policy-makers working with key stakeholders. The guide provides an assessment framework that can serve to: review how well equity and inclusion currently figure in existing policies; decide which actions are needed to improve policies and their implementation towards equitable and inclusive education systems; and monitor progress. The guide includes evidence that informs the assessment framework, examples of initiatives that are contributing to more inclusive and equitable education systems in different parts of the world, and recommendations for further reading. 

Including children with disabilities in humanitarian action

UNICEF
July 2017

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"The purpose of Including Children with Disabilities in Humanitarian Action is to strengthen the inclusion of children and women with disabilities, and their families, in emergency preparedness, response and early recovery, and recovery and reconstruction. This series of booklets provides insight into the situation of children with disabilities in humanitarian contexts, highlights the ways in which they are excluded from humanitarian action, and offers practical actions and tips to better include children and adolescents with disabilities in all stages of humanitarian action. The booklets were created in response to UNICEF colleagues in the field expressing a need for a practical resource to guide their work. The information and recommendations are based on evidence and good practices gathered from literature and field staff experiences. The six booklets on how to include children and adolescents with disabilities in humanitarian programmes are as follows: 1) general guidance; 2) child protection; 3) education; 4) health and HIV/AIDS; 5) nutrition; 6) water, sanitation and hygiene (WASH)".

General guidance available July 2017. Others to follow.

In addition to the PDF versions in English, Arabic and French, the guidance is also available in a range of accessible formats, including EPUB, a Braille-ready file and accessible HTML formats. 

The guidance was developed in collaboration with Handicap International.

Disability measurement and the Washington Group on Disability Statistics : NGO training agenda

WASHINGTON GROUP ON DISABILITY STATISTICS
June 2017

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Four videos are provided which are live recording of an Introductory training for Non-Government Organisations on disability measurement

Session 1 Video: Overview of Disability Measurement and the Washington Group Short Set (1h 35m)

Session 2 Video: Collecting Disability Data (1h 42m)

Session 3 Video: The Importance & Feasibility of Disaggregation by Disability Status (57m)

Session 4 Video: The WG/UNICEF Module on Child Functioning (1h 14m)

 

Global Report on the participation of organisations of persons with disabilities (DPOs) in VNR Processes

INTERNATIONAL DISABILITY ALLIANCE
2017

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Within the Stakeholder Group of Persons with Disabilities, a working group was created on the Voluntary National Reviews (VNRs) aimed at raising awareness among Organisations of Persons with Disabilities (DPOs) to engage with their governments in the national consultation processes on SDG implementation, with particular focus on the 2017 44 volunteering countries. The VNR working group are compiling an outcome document reflecting the work that DPOs carried out at the national, regional and global levels. A comprehensive report – called the Global Report on DPO Participation in VNR Processes – will be issued in draft form prior to the HLPF and will be updated afterward with concrete findings. 

The report will showcase the national level DPO work carried out in different regions as well as best practices and challenges, and will serve as a case study for Member States. It will additionally be useful for DPOs as a model to engage with their government. The case study will feature the volunteering countries of Denmark, Italy, Sweden, Nigeria, Togo, Kenya, Ethiopia, Argentina, El Salvador, Peru, Guatemala, Indonesia, Bangladesh, India and Jordan.

A new way to measure child functioning

UNICEF
WASHINGTON GROUP
May 2017

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"In recognizing the need for a set of questions that would produce internationally comparable data on children, the Washington Group formed a subgroup in 2009 that is chaired by the National Statistical Office of Italy (ISTAT). UNICEF joined the subgroup in 2011.

The first main activity of the subgroup was the development of a short set of questions to reflect current thinking on child functioning for inclusion in censuses and surveys. The new module uses the ICF-CY as the conceptual framework and relies on a functional approach to measuring disability.

The Washington Group/UNICEF Module on Child Functioning, finalized in 2016, covers children between 2 and 17 years of age and assesses functional difficulties in different domains including hearing, vision, communication/comprehension, learning, mobility and emotions. To better reflect the degree of functional difficulty, each area is assessed against a rating scale. The purpose is to identify the subpopulation of children who are at greater risk than other children of the same age or who are experiencing limited participation in an unaccommodating environment. The set of questions is intended for use in national household surveys and censuses"

The module is being translated into multiple languages. Supporting documentation, including a concept note, tabulation plan, templates for reporting, guidelines for interviewers and training materials are also available.

Needs Assessment Handbook

UN Refugee Agency
May 2017

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Given that UNHCR is one of the signatories of the Grand Bargain, the agency’s Needs Assessment Handbook and its accompanying online Needs Assessment Toolkit provide guidance on how to accomplish these objectives.

 

The Handbook is structured in two parts. The first, which is recommended for all audiences defines need assessments and their different types; describes coordination modalities; outlines the roles and responsibilities of different actors in refugee situations, IDP situations, and mixed situations; provides an overview of the steps to conduct needs assessments and the principles that should guide them; and explains the relationship between needs assessments and other information systems. The second part of the Handbook provides detailed practical guidance on how to conduct needs assessments in the field. It can be used as a reference text, with readers referring to specific steps and sections as needed based on their role in the operation or the needs assessment, and the type of situation.

Guatemala National Disability Study ENDIS 2016 Report

DONICIO Carlos
GRECH Shaun
Islay MACTAGGART
Jonathan NABER
Dr Ana Rafaela SALAZAR DE BARRIOS
Gonna ROTA,
Sarah POLLACK
April 2017

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The Guatemala National Disability Study (ENDIS 2016) was undertaken to address a need for up to date reliable data on disability in Guatemala.

Through a population based survey:

* To estimate the national disability prevalence among adults and children in Guatemala, and to provide regional estimates for 5 broad regions

* To disaggregate the prevalence of disability in Guatemala by age, sex, type of functional limitation and socio-economic status

* To explore the impact of disability on: poverty, quality of life, participation, health and opportunities to go to school and to work amongst children and adults respectively

Through a qualitative study:

* To explore cultural, ideological, and social interpretations and responses to disability; provide insight into the disability and poverty relationship; and examine social, political, and economic dimensions operating within this relationship.

Better understanding of youth mental health

The Lancet
April 2017

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Mental health issues are the leading cause of disability in adolescents aged 15–19 years in all the world's regions, contributing 45% of their overall burden of disease. Early intervention to prevent mental health disorders is crucial to suicide prevention and to improve lifelong wellbeing. In April 2017, Mission Australia, in association with the Black Dog Institute (a research institute based in New South Wales) published the 5th Youth Mental Health Report. A survey of 21 000 Australian adolescents recorded 22·8% of young Australians meeting the criteria for probable serious mental illness (PSMI), as assessed by the Kessler 6 measure of non-specific psychological distress. Adolescent girls were almost twice as likely than boys to meet the criteria for PSMI. A significantly higher proportion of Aboriginal and Torres Strait Islander responders met the criteria for PSMI (31·6%)  than non-Aboriginal and Torres Strait Islanders.


DOI: http://dx.doi.org/10.1016/S0140-6736(17)31140-6

Vol. 389, No. 10080, p1670, 29 April 2017

 

Counting disability: emerging consensus on the Washington Group questionnaire

GROCE, Nora
MONT, Daniel
2017

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The issuing of a statement by the Interagency and Expert Group on Sustainable Development Goal (SDG) Indicators in Geneva, a group of leading UN agencies, civil society actors, and independent experts strongly supporting the Washington Group on Disability Statistics’ Short Set of Questions (WGSS) is noted and a short explanation of the questions is provided.

 

The Lancet Global Health VOLUME 5, ISSUE 7, PE649-E650, JULY 01, 2017

https://doi.org/10.1016/S2214-109X(17)30207-3

Human rights and disability: A manual for national human rights institutions

CROWTHER, Neil
QUINN, Gerard
REKAS, Abigail
March 2017

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(Updated Dec 2018)

This Manual is designed to provide practical guidance for national human rights institutions (NHRIs) that are actively working to advance the human rights of persons with disabilities, as well as those NHRIs that are seeking to strengthen their efforts in this area. This Manual provides practical guidance and recommendations about how the role and functions of NHRIs can be directed to provide better protection for persons with disabilities, to promote greater awareness and respect for their rights, and to monitor the progress made and obstacles encountered in advancing their rights.

There are three parts to the manual.

  • Part I: The concepts - the human rights framing of disability
  • Part II: The law - international human rights law and disability (CRPD and others)
  • Part III: The practice - what NHRIs can do to contribute to the process of change

 

 

Education and disability - UIS fact sheet no.40

UNESCO INSTITUTE FOR STATISTICS
February 2017

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"The Washington Group on Disability Statistics has developed questions for household surveys that allow the collection and analysis of internationally comparable data on persons with disabilities. This fact sheet presents attendance rates and completion rates disaggregated by disability status based on data from Demographic and Health Surveys that applied the questions recommended by the Washington Group. The findings of the analysis by the UNESCO Institute for Statistics (UIS) confirm that persons with disabilities are more likely to be out of school or to leave school before completing primary or secondary education. The fact sheet also summarises plans by the UIS for future data analysis and activities in standard setting to strengthen the evidence base for monitoring of SDG 4 and the design of education policy"

Right to health: Reality of persons with spina bifida and hydrocephalus

MCPHERSON. Amy
January 2017

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"This report maps the situation of persons with SBH in relation to healthcare access and is a follow up of the CRPD Concluding Observations Art.25. Through a comprehensive survey, IF collected valuable data on the experiences, satisfaction, and perceptions of healthcare coverage of individuals with SBH across Europe. Based on its findings, the financial coverage of treatment and assistive products for patients with SBH is grossly insufficient across the EU. Europe as a whole lacks multidisciplinary care and specialised SBH teams, which translates into long waiting times and insufficient knowledge of the SBH specificities. 

Considering these findings, IF urges the EU Member States to adequately support the healthcare needs of persons with SBH, and to invest more substantially into creating multidisciplinary clinics that can help avoid preventable complications 11 and may reduce the overall burden 12 on the patient and the system. In addition, the Member States should actively support creation of the European Reference Networks as a way of improving care for persons with SBH. IF also calls on the European institutions for support in training medical professionals on rights of persons with disabilities."

DFID data disaggregation action plan - Better data for better lives

UK DEPARTMENT FOR INTERNATIONAL DEVELOPMENT (DFID)
UK AID
January 2017

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This action plan sets out the steps that the UK Department for International Development (DFID) will take to promote, provide and make use of their own development and humanitarian programme data which can be disaggregated on the basis of sex, age, disability status and geography (in the short term). It also has the objective to build the culture within DFID on disaggregated data, and to work with others to change the international development system on disaggregated data. A review is scheduled for 2020. Working with partners, influencing, capacity building and management information, research, analysis and reporting are outlined. Trailblazer country programmes with Bangladesh, Nepal, Zimbabwe and Rwanda are reported.

Prevalence of HIV infection among people with disabilities : a population-based observational study in Yaounde, Cameroon (HandiVIH)

DE BEAUDROP, Pierre
et al
January 2017

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In the HandiVIH study, an estimation and a comparison of HIV prevalence and associated risk factors between people with and without disabilities. In this cross-sectional, population-based, observational study, two-phase random sampling was used to recruit adults with disabilities and a control group matched for age, sex, and residential location from households of the general population. The Washington Group Short Set of Questions on Disability was used to identify people with disabilities. An HIV test was administrated and a life-course history interview carried out with participants. The primary outcome was the prevalence of HIV among participants with and without disabilities. The study took place in Yaoundé, Cameroon, between Oct 2, 2014, and Nov 30, 2015. 

The Lancet HIV · January 2017 

DOI: 10.1016/S2352-3018(16)30209-0

Equal measures 2030: Policymakers survey

EQUAL MEASURES 2030
2017

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This report gives interim findings from results of a survey of 109 policymakers in five countries (Indonesia, India, Kenya, Senegal and Colombia), and seeks to shed light on:

  • How do policymakers perceive progress on gender equality in their countries?
  • What most needs to change in order to improve gender equality?
  • What data and evidence do they rely on to make their decisions?
  • How confident are they in their understanding of the major challenges affecting girls and women in their countries?

 

These findings will contribute to debates about data-driven decision making on gender equality, and raise attention to the gaps in accessible, reliable and relevant data and evidence needed to reach the SDGs by 2030.

Spotlight on Sustainable Development Goal 5: Achieve gender equality and empower all women and girls - UN WOMEN 2017

UN WOMEN
2017

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Spotlights are made on areas of the Sustainable Development Goal (SDG) 5, to achieve gender equality and empower all women and girls, and specific targets and indicators are given. The spotlights are on intimate partner violence, harmful practices (including child marriage and female genital mutilation (FGM)), unpaid care and domestic work, women in leadership, sexual and reproductive health and the gender data gap. Data gaps are identified and a five year programme is outlined, Making Every Women and Girl Count, which is designed to provide technical and financial support to countries to improve the production and use of gender statistics in order to monitor the implementation of gender equality commitments in the 2030 Agenda.

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