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Right to health: Reality of persons with spina bifida and hydrocephalus

MCPHERSON. Amy
January 2017

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"This report maps the situation of persons with SBH in relation to healthcare access and is a follow up of the CRPD Concluding Observations Art.25. Through a comprehensive survey, IF collected valuable data on the experiences, satisfaction, and perceptions of healthcare coverage of individuals with SBH across Europe. Based on its findings, the financial coverage of treatment and assistive products for patients with SBH is grossly insufficient across the EU. Europe as a whole lacks multidisciplinary care and specialised SBH teams, which translates into long waiting times and insufficient knowledge of the SBH specificities. 

Considering these findings, IF urges the EU Member States to adequately support the healthcare needs of persons with SBH, and to invest more substantially into creating multidisciplinary clinics that can help avoid preventable complications 11 and may reduce the overall burden 12 on the patient and the system. In addition, the Member States should actively support creation of the European Reference Networks as a way of improving care for persons with SBH. IF also calls on the European institutions for support in training medical professionals on rights of persons with disabilities."

Disability and HIV : a systematic review and a meta-analysis of the risk of HIV infection among adults with disabilities in Sub-Saharan Africa

DE BEAUDRAP, Pierre
MAC-SEING, Muriel
PASQUIER, Estelle
July 2014

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"More than one billion people worldwide are estimated to be living with a disability. A significant proportion of them lives in Sub-Saharan Africa where they are reported to be at increased risk of HIV. However, quantitative evidence on this remains scarce. A systematic review and a meta-analysis of the risk of HIV infection among people with disabilities living in Sub-Saharan Africa were undertaken. We searched all published or unpublished studies and national surveys reporting HIV prevalence among adults with disabilities living in Sub-Saharan Africa between 2000 and 2013. The risk ratio (RR) of HIV infection in people with disabilities versus people without disabilities was estimated through a random-effects meta-analysis. Of the 12,252 references screened, 13 studies were selected. HIV prevalence varied widely across studies from 1.1% to 29%. Pooled RRs of HIV infection in people with disabilities compared to the general population were 1.31 (1.02–1.69) overall; 1.16 (0.71–1.87) among people with mental illness or intellectual disabilities and 1.07 (0.58–1.95) among people with hearing disabilities. This meta-analysis provides evidence that people with disabilities do not have a lower risk of HIV when compared to the general population, and that women with disabilities are especially affected. A clear increasing gradient in the risk of HIV according to gender and disability status was also observed. The important heterogeneity across studies and their varying quality warrant a closer look at the intersection between disability and HIV. Additional studies with more systematic approaches and with higher-quality methodologies are required to further address this knowledge gap"

 

AIDS Care : Psychological and Socio-medical Aspects of HIV/AIDS, Volume 26, Issue 12

DOI: 10.1080/09540121.2014.936820

 

The global status report on road safety 2013 : supporting a decade of action

WORLD HEALTH ORGANIZATION (WHO)
2013

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"This report presents information on road safety from 182 countries, accounting for almost 99% of the world’s population. The report indicates that worldwide the total number of road traffic deaths remains unacceptably high at 1.24 million per year. Only 28 countries, covering 7% of the world’s population, have comprehensive road safety laws on five key risk factors: drinking and driving, speeding, and failing to use motorcycle helmets, seat-belts, and child restraints. This report serves as a baseline for the Decade of Action for Road Safety 2011-2020, declared by the UN General Assembly. This is the second in a Global status report series"

The relation between multiple pains and mental disorders : results from the world mental health surveys

GUREJE, Oje
et al
March 2008

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Using information from 17 population surveys. this article analyses whether there are differences between the prevalence of mood, anxiety and alcohol use disorders among persons with multiple pain conditions compared with those with single pain problems. The results suggest that the existence of multiple pain conditions can be favourably and comparably associated with mood and anxiety disorders in diverse cultures. This article would be of interest to people interested in the relation among multiple pains and mental disorders
PAIN, Vol 135, Issue 1

Risk factors for participation restriction in leprosy and development of a screening tool to identify individuals at risk

NICHOLLS, PG
et al
December 2005

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This paper explores risk factors for participation restrictions experienced by people affected by leprosy. The objective was to develop a screening tool to identify individuals at risk. An initial round of qualitative fieldwork in eight centres in Nepal, India and Brazil identified 35 potential risk factors for participation restriction. This was further assessed through quantitative fieldwork in six centres in India and Brazil. In all, 264 individuals receiving leprosy treatment or rehabilitation services made a retrospective assessment of their status at time of diagnosis. Their level of participation restriction was assessed using the Participation Scale, and regression analysis identified risk factors for participation restriction. Four consolidated items were identified as the basis for a simple screening tool to identify individuals at risk: physical impact of leprosy, an emotional response to the diagnosis, female gender and having little or no education. Such a tool may form the basis for a screening and referral procedure to identify newly diagnosed individuals at risk of participation restrictions and the need of actions that may prevent such restrictions
Leprosy Review, Vol 76, Issue 4

Sexual behaviour in a fishing community on Lake Victoria, Uganda

PICKERING, H
et al
April 1997

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This study describes the sexual behaviour of men and women in a fishing village on the shores of Lake Victoria in South West Uganda. The village is near a well known trading town truck stop on the main trans Africa highway with a high recorded prevalence of HIV infection. These data show a very high rate of sexual mixing within the village but little contact with people from outside. This suggests that all sexually active men and women in the village are at high risk of STDs including HIV. There is currently no formal health care available in the village. Such communities should be targeted in future STD control programmes

Global health observatory (GHO)

WORLD HEALTH ORGANIZATION (WHO)

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The Global Health Observatory (GHO) provides access to WHO's global health-related statistics. The aim of the GHO is to: compile and verify major sources of health data; provide easy access to country data and metadata; present scientifically sound information in user-friendly formats. Specific areas are provided for theme pages, a data repository, reports, country statistics, a map gallery and standards

Global health observatory (GHO) : non-communicable diseases (NCD)

WORLD HEALTH ORGANIZATION (WHO)

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This area of the global health observatory (GHO) provides access to WHO's global non-communicable disease (NCD) statistics. It presents general NCD information, mortality and morbidity statistics, risk factors, and the health system’s response and capacity to address and respond to NCDs. Links are also provided to related NCD data products. This database is useful to anyone interested in NCD related statistics and data

The WHO global infobase

WORLD HEALTH ORGANIZATION (WHO)

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"The WHO Global InfoBase is a data warehouse that collects, stores and displays information on chronic diseases and their risk factors for all WHO member states...The Infobase assembles, for the first time in one place, non-communicable disease (NCD) risk factor data collected from WHO Member States. NCD risk factor data are crucial for predicting the future burden of chronic diseases in populations and also for identifying potential interventions to reduce the future burden. The Infobase online dissemination tool provides not only data but also health information to help users understand health enquiries worldwide and improve the health of nations." NCD indicators, mortalities and country profiles are provided, displaying the information with user-friendly tools including graphs, maps and data tables. This database is useful to anyone interested in NCD related statistics and data

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