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Online collective identities for autism: The perspective of Brazilian parents

ANTUNES, Debora
DHOEST, Alexander
2018

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The importance of online communities for parents of people with disabilities has been discussed by many scholars in the fields of Digital and Disability Studies, showing, for instance, the importance of social support and the formation of social ties. In order to contribute to this scholarship, this paper explores how collective identity models are built and circulated by parents of autistic people in one of the biggest Brazilian online communities about the subject, ‘Sou autista… conheça o meu mundo’ (I am autistic…get to know my world). The results were obtained through a digital ethnography, based on participant observation and an exchange of information with the members of the community studied. Based on the data collected, the study concludes that the collective identity models that circulate in this community can be grouped into legitimising, resistant, and project identities, as postulated by Castells (2010). The different views reflect how parents see autism and represent the ways it is treated in Brazilian society.

 

Disability and the Global South, 2018 Vol.5, No. 1

Living conditions among people with disabilities in Mozambique : a national representative study

EIDE, Arne H
KAMALERI, Yusman
January 2009

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"This report provided results of a study of living conditions among people with functional limitation in Mozambique. Two comparative studies of different indicators of living conditions were carried out. These studies include: (i) a comparative study of households with and without family member(s) with functional limitation and (ii) a comparative study of individuals with and without functional limitation. In addition, a detailed study that specifically addresses the situation of individuals with functional limitation was also conducted"
SINTEF A9348

Living conditions among people with activity limitations in Zambia : a national representative study

EIDE, Arne H
LOEB, ME
September 2006

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This report presents the findings of a study about the livelihoods of people with disability in Zambia using both individual data and data from household surveys with and without people with disabilities. The report, one of a series of regional research reports to establish baseline data on living conditions among people in Southern Africa, looks at the fields of health, employment, education, living conditions and services for people with disabilities

Living conditions among people with activity limitations in Zimbabwe : a representative regional survey

EIDE, Arne H
et al
December 2003

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"This report presents the findings of a study about the livelihoods of people with disability in Zimbabwe using data from household surveys with and without people with disabilities. The report, one of a series of regional research reports to establish baseline data on living conditions among people in Southern Africa, looks at the fields of health, employment, education, living conditions and services for people with disabilities"

Living conditions among people with activity limitations in Namibia : a representative, national survey

EIDE, Arne H
VAN ROOY, Gert
LOEB, Mitch E
2003

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This report presents the findings of a study about the livelihoods of people with disability in Namibia using data from household surveys with and without people with disabilities. The report, one of a series of regional research reports to establish baseline data on living conditions among people in Southern Africa, looks at the fields of health, employment, education, living conditions and services for people with disabilities

Language and cultural issues in surveys of the European Union : a short description and an example of fundamental problems and practical solutions

OYEN, H VAN
et al
2002

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Social statistics are a difficult task when comparing countries that are using different languages and have different social systems. The experience from the European Union shows that there are ways around this problem: but the different countries have to agree first on a conceptual framework, standard instruments and common methods of analysis. The example of the European Union describes a possible use of these tools

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