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Towards independent living: Collecting examples from Europe

ANGELOVA-MLADENOVA, Lilia
March 2019

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This Collection is a joint initiative of the European Network on Independent Living (ENIL) and the European Disability Forum (EDF). It features examples from different EU Member States, which to a different extent facilitate the right to live independently in the community.

The examples are divided into four areas, presented in different chapters:

  • Legislation and funding: State Funded Peer-Counselling – Estonia; Direct Payments – Ireland.
  • Community-based support: Peer-Counselling for women with disabilities – Austria; Supported living for adults with intellectual disabilities – Croatia; Supported Decision-Making – The Czech Republic; Mobile Mental Health Units – Greece; Personal Assistance for People with Complex Disabilities – Sweden .
  • Involvement of disabled people: Co-Production in Social Care – United Kingdom; Participation of Organisations of People with Disabilities – Italy
  • Self-advocacy: Self-Advocacy of Disabled People – Romania

 

Public health, research and rights: the perspectives of deliberation panels with politically and socially active disabled people

BERGHS, Maria
ATKIN, Karl
GRAHAM, Hilary
HATTON, Chris
THOMAS, Carol
2017

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Public health research purports to provide the evidence base for policies, programmes and interventions to improve the health of a population. However, there is increasing awareness that the experiences of disabled people have played little part in informing this evidence base. This paper discusses one aspect of a study commissioned by England’s National Institute for Health Research (NIHR) to review the implications for public health of theories and models of disability. This part of the study focused on the development of a tool or decision aid to promote ethical inclusion of disabled people in public health randomised controlled trials (RCTs) and evaluative research. The tool was introduced at four regional ‘deliberating panels’ involving politically and socially active disabled people. In addition, we held a panel with public health professionals. The deliberation panels debated how the focus of public health was narrowing, why disability was excluded and positive and negative issues with using rights to guide research and evaluative practice. Politically active disabled people argued for a social model of human rights to guide any rights based tools or decision aids in public health and disability research.

DFID data disaggregation action plan - Better data for better lives

UK DEPARTMENT FOR INTERNATIONAL DEVELOPMENT (DFID)
UK AID
January 2017

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This action plan sets out the steps that the UK Department for International Development (DFID) will take to promote, provide and make use of their own development and humanitarian programme data which can be disaggregated on the basis of sex, age, disability status and geography (in the short term). It also has the objective to build the culture within DFID on disaggregated data, and to work with others to change the international development system on disaggregated data. A review is scheduled for 2020. Working with partners, influencing, capacity building and management information, research, analysis and reporting are outlined. Trailblazer country programmes with Bangladesh, Nepal, Zimbabwe and Rwanda are reported.

Violence against children with disabilities : legislation, policies and programmes in the EU

EQUALITY AND DIVERSITY FORUM (EDF)
December 2015

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This report "outlines relevant international and European standards and reviews national legislation and policies addressing violence against children with disabilities. The report also explores the extent and different causes, settings and forms of such violence, and presents measures and initiatives to prevent it”

Available in easy-read version from the web link provided

Human Rights

www.macao-tz.org
December 2014

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Malezi AIDS Care Awareness Organization (MACAO) is a non-profit organization reaching out to neglected Indigenous people in Ngorongoro District, Arusha Region of Northern Tanzania.  Macao founded in 2003, Macao is a humanitarian organization that provides assistance to approximately 200,000 Indigenous Maasai community in Ngorongoro district for addressing needs of water and sanitation, food security, health Care Research, Education, Research environment, Maasai Traditional Research, Human Rights and sustainable economic development by strengthening their livelihoods.  In addition to responding to major relief situations, MACAO focuses on long-term community development through over 4 Area Development Project. We welcome the donors and volunteers to join us in this programs, we are wolking in ruro villages.

Nonparametric estimation of a compensating variation : the cost of disability

HANCOCK, Ruth
MORCIANO, Marcello
PUDNEY, Stephen
December 2013

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This paper proposes a nonparametric matching approach to estimation of implicit costs based on the compensating variation (CV) principle. The paper aims to introduce the matching approach, compare its properties with those of the conventional indirect parametric approach, and demonstrate its application in an important policy area. The authors apply the method to estimate the additional personal costs experienced by disabled older people in Great Britain, finding that those costs are substantial, averaging in the range £48-61 a week, compared with the mean level of state disability benefit (£28) or total public support (£47) received. Estimated costs rise strongly with the severity of disability. The authors compare the nonparametric approach with the standard parametric method, finding that the latter tends to generate large overestimates unless conditions are ideal, and recommend the nonparametric approach

ISER Working Paper Series, No. 2013-26

Processes and approaches to enable sustainable access to quality rehabilitation services : comparative study of Handicap International programmes in Albania, Kosovo and Mozambique

HAZARD, Damien
AXELSSON ETEO, Charlotte
2012

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This comparative study of Handicap International programmes in Albania, Kosovo and Mozam-bique analyses processes and approaches that have been used by Handicap International to enable access to quality rehabilitation services for people with disabilities, and specifically to look at their impact in terms of Sustainability
SD/RS 07

Disability rights or disabling rights? CRPD alternative report

HUNGARIAN DISABILITY CAUCUS
August 2010

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This report, prepared by a collaborative network of disabled peoples organizations and their allies, is the parallel civil society report submitted along with the governments report as specified by article 35 of the CRPD. The civil society organisations provide an analysis of the present situation of people with disabilities according to the articles of the CRPD and make recommendations to the Hungarian government to enable evidence based legislative and policy planning. This resource is useful for people interested in the situation of people with disabilities in Hungary

Going to scale with community-led total sanitation : reflections on experience, issues and ways forward

CHAMBERS, Robert
2009

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Community-Led Total Sanitation (CLTS) is a revolutionary approach in which communities are facilitated to conduct their own appraisal and analysis of open defecation and take their own action to become open defecation-free. This report presents CLTS approaches in six countries which differ organisationally with contrasting combinations of NGOs, projects and governments. Practical elements in strategies for going to scale have included: training and facilitating; starting in favourable conditions; conducting campaigns and encouraging competition; recruiting and committing teams and full-time facilitators and trainers; organising workshops and cross-visits; supporting and sponsoring Natural Leaders and community consultants and inspiring and empowering children

 

Practice Paper, Vol 2009, No 1

Shifting the paradigm in social service provision : making quality services accessible for people with disabilities in south east Europe

CHIRIACESCU, Diana
December 2008

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This report examines the ways in which policies and practices evolve in the social services sector in South East Europe, as well as the impact of this change process on the lives of people with disabilities. It aims to identify the main stakes, priorities and steps forward that should be undertaken in order to modernise this sector in an effective and sustainable way

Make development inclusive : how to include the perspectives of persons with disabilities in the project cycle management guidelines of the EC|Concepts and guiding principles

CHRISTIAN BLIND MISSION (CBM)
2008

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This resource was created to serve as a practical tool for Eurorpean Commission operational staff to encourage the inclusion of a disability perspective at each stage of the Project Cycle Management. The purpose is to support the inclusion of persons with disabilities from project programming through to evaluation. This resource features examples of projects that include the perspectives of persons with disabilities

Imagine the difference : teaching pack

SCOPE
Eds
2007

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This highly accessible toolkit is free and available online after quickly registering with the disability charity, Scope's website. It includes teaching plans, activity sheets and assembly ideas. The purpose is to raise awareness around disability issues and the inclusion of disabled children in primary schools. This resource would be useful to anyone with an interest in education development and approaches in disability

Vaccine anxieties : global science, child health and society

LEACH, Melissa
2007

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"This book explores how parents understand and engage with childhood vaccination in contrasting global contexts. This rapidly advancing and universal technology has sparked dramatic controversy, whether over MMR in the UK or oral polio vaccines in Nigeria. Combining a fresh anthropological perspective with detailed field research, the book examines anxieties emerging as highly globalized vaccine technologies and technocracies encounter the deeply intimate personal and social worlds of parenting and childcare, and how these are part of transforming science-society relations"

Addressing violence against women in HIV testing and counselling

WORLD HEALTH ORGANIZATION (WHO)
2006

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This is a summary and recommendations from an international consultation co-convened by the WHO departments of Gender, Women and Health (GWH) and of HIV & AIDS to identify and review promising strategies or good practices to support women who may fear or experience violence as a consequence of HIV testing and/or HIV status disclosure; and develop recommendations to guide programmes and policies related to HIV testing and counselling, in light of current strategies to expand access to these and related services

Disabled parents network

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Set up by disabled people, the aim of the website and of the Disabled Parents Network is to facilitate training, raise awareness, and provide a range of information and advice for disabled people who would like to become parents or are parents already

The European journal of development research

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A multi-disciplinary journal that seeks to broaden our understanding of the processes that advance or impede human development, whether from a political, economic, sociological or anthropological perspective
Produced 5 times a year
Rest of World: 448 GBP (institutional) 70 GBP (personal)
Europe: 448 GBP (institutional) / 70 GBP (personal)
US: 740 USD (institutional) 116 USD (personal)

UNDEF update

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This newsletter highlights news from the fields as well as a selection of readings on related topics
A quarterly publication
Free online

E-bulletin