Resources search

Every learner matters: Unpacking the learning crisis for children with disabilities

McCLAIN-NHLAPO, Charlotte
et al
June 2019

Expand view

This paper was developed by the World Bank in partnership with Leonard Cheshire and Inclusion International. It is an attempt to add knowledge to the current understanding of the importance of learning achievements, with a focus on children with disabilities. While the premise is that inclusive education refers to the inclusion of all children, the focus of this paper is on children with disabilities.

The aim of the paper is to:

  • Provide an evidence-based review of educational participation of children with disabilities.
  • Establish a case for focusing on learning achievements for students with disabilities.
  • Take stock of current mechanisms of measurement of learning outcomes and review their inclusivity.
  • Explore evidence of practice and systems which promote disability-inclusive learning for all. 

Four case studies are provided - from Pakistan, South Africa, Canada and UK.

Towards independent living: Collecting examples from Europe

ANGELOVA-MLADENOVA, Lilia
March 2019

Expand view

This Collection is a joint initiative of the European Network on Independent Living (ENIL) and the European Disability Forum (EDF). It features examples from different EU Member States, which to a different extent facilitate the right to live independently in the community.

The examples are divided into four areas, presented in different chapters:

  • Legislation and funding: State Funded Peer-Counselling – Estonia; Direct Payments – Ireland.
  • Community-based support: Peer-Counselling for women with disabilities – Austria; Supported living for adults with intellectual disabilities – Croatia; Supported Decision-Making – The Czech Republic; Mobile Mental Health Units – Greece; Personal Assistance for People with Complex Disabilities – Sweden .
  • Involvement of disabled people: Co-Production in Social Care – United Kingdom; Participation of Organisations of People with Disabilities – Italy
  • Self-advocacy: Self-Advocacy of Disabled People – Romania

 

Public health, research and rights: the perspectives of deliberation panels with politically and socially active disabled people

BERGHS, Maria
ATKIN, Karl
GRAHAM, Hilary
HATTON, Chris
THOMAS, Carol
2017

Expand view

Public health research purports to provide the evidence base for policies, programmes and interventions to improve the health of a population. However, there is increasing awareness that the experiences of disabled people have played little part in informing this evidence base. This paper discusses one aspect of a study commissioned by England’s National Institute for Health Research (NIHR) to review the implications for public health of theories and models of disability. This part of the study focused on the development of a tool or decision aid to promote ethical inclusion of disabled people in public health randomised controlled trials (RCTs) and evaluative research. The tool was introduced at four regional ‘deliberating panels’ involving politically and socially active disabled people. In addition, we held a panel with public health professionals. The deliberation panels debated how the focus of public health was narrowing, why disability was excluded and positive and negative issues with using rights to guide research and evaluative practice. Politically active disabled people argued for a social model of human rights to guide any rights based tools or decision aids in public health and disability research.

DFID data disaggregation action plan - Better data for better lives

UK DEPARTMENT FOR INTERNATIONAL DEVELOPMENT (DFID)
UK AID
January 2017

Expand view

This action plan sets out the steps that the UK Department for International Development (DFID) will take to promote, provide and make use of their own development and humanitarian programme data which can be disaggregated on the basis of sex, age, disability status and geography (in the short term). It also has the objective to build the culture within DFID on disaggregated data, and to work with others to change the international development system on disaggregated data. A review is scheduled for 2020. Working with partners, influencing, capacity building and management information, research, analysis and reporting are outlined. Trailblazer country programmes with Bangladesh, Nepal, Zimbabwe and Rwanda are reported.

School toilets: queer, disabled bodies and gendered lessons of embodiment

SLATER, Jenny
JONES, Charlotte
PROCTER, Lisa
2016

Expand view

In this paper we argue that school toilets function as one civilising site [Elias, 1978. The Civilising Process. Oxford: Blackwell] in which children learn that disabled and queer bodies are out of place. This paper is the first to offer queer and crip perspectives on school toilets. The small body of existing school toilet literature generally works from a normative position which implicitly perpetuates dominant and oppressive ideals. We draw on data from Around the Toilet, a collaborative research project with queer, trans and disabled people (aroundthetoilet.wordpress.com) to critically interrogate this work. In doing this we consider ‘toilet training’ as a form of ‘civilisation’, that teaches lessons around identity, embodiment and ab/normal ways of being in the world. Furthermore, we show that ‘toilet training’ continues into adulthood, albeit in ways that are less easily identifiable than in the early years. We therefore call for a more critical, inclusive, and transformative approach to school toilet research.

How are service users instructed to measure home furniture for provision of minor assistive devices?

ATWAL, Anita
MCINTYRE, Anne
SPILIOTOPOULOU, Georgia
MONEY, Arthur
PARASKEVOPULOS, Ioannis
2016

Expand view

Purpose: Measurements play a vital role in providing devices that meet the individual needs of users. There is increasing evidence of devices being abandoned. The reasons for this are complex but one key factor that plays a role in non-use of equipment is the lack of fit between the device, environment and person. In addition, the abandonment of devices can be seen as a waste of public money. The aim of this paper is to examine the type, the readability, and the content of existing guidance in relation to measuring home furniture.

 

Method: An online national survey involving health and social care trusts in the UK. We conducted a synthesis of leaflets associated with measurement of furniture to identify existing guidance. The content and readability of this guidance was then evaluated.

 

Results: From the 325 responses received, 64 therapists reported using guidance. From the 13 leaflets that were analysed, 8 leaflets were found to meet Level 3 Adult Literacy Standards (age 9–11). There were differences in the way in which the measurement of furniture items occurred within the leaflets with no measurement guidance reported for baths.

 

Conclusion: There is a need to standardize guidance to ensure that measurements are reliable.

Beyond 2015 : shaping the future of equality, human rights and social justice

EQUALITY AND DIVERSITY FORUM
EDF RESEARCH NETWORK
June 2015

Expand view

This publication is a collection of essays from Equality and Diversity Forum and EDF Research Network Beyond 2015 project. It presents a collection of articles about three main concepts: equality, human rights and social justice in the United Kingdom. The collection principally serves to describe levers for change and scenarios where equality and human rights could be promoted

Rethinking the work capability assessment

BAUMBERG, Ben
et al
March 2015

Expand view

This report outlines the key research findings about the Work Capability Assessment (WCA) criteria of the Employment Support Allowance (ESA), a means tested benefit for those who are unable to find work in Britain. It presents the state of the UK’s existing assessment and then describes how seven key countries systematically assess incapacity, and the lessons these countries provide for reforming the WCA in the UK

Human Rights

www.macao-tz.org
December 2014

Expand view

Malezi AIDS Care Awareness Organization (MACAO) is a non-profit organization reaching out to neglected Indigenous people in Ngorongoro District, Arusha Region of Northern Tanzania.  Macao founded in 2003, Macao is a humanitarian organization that provides assistance to approximately 200,000 Indigenous Maasai community in Ngorongoro district for addressing needs of water and sanitation, food security, health Care Research, Education, Research environment, Maasai Traditional Research, Human Rights and sustainable economic development by strengthening their livelihoods.  In addition to responding to major relief situations, MACAO focuses on long-term community development through over 4 Area Development Project. We welcome the donors and volunteers to join us in this programs, we are wolking in ruro villages.

Send all my friends to school : a global campaign for education UK evaluation of UK’s aid to education for children with disabilities

NOCK, Stephen
DAVIS, Warren
Eds
2014

Expand view

This report reveals a major gap between DFID’s inclusive education policy and practice, with weak implementation, as a result of a lack of resources and capacity. GCE UK’s report highlights that there is an urgent need for a significant increase in policy attention and resources to address the major structural and social barriers that children with disabilities currently face in accessing education. It concludes by making key recommendations.  It finds that the issue needs much greater prioritisation within DFID, and that there is an urgent need for DFID to develop a systematic approach towards the issue, both directly within its education portfolio, and by mainstreaming the issue across other areas of DFID operations. It recommends that it is critical that DFID works to embed disability throughout its development programmes to achieve long-term change, even as governments change and key individuals move on

Nonparametric estimation of a compensating variation : the cost of disability

HANCOCK, Ruth
MORCIANO, Marcello
PUDNEY, Stephen
December 2013

Expand view

This paper proposes a nonparametric matching approach to estimation of implicit costs based on the compensating variation (CV) principle. The paper aims to introduce the matching approach, compare its properties with those of the conventional indirect parametric approach, and demonstrate its application in an important policy area. The authors apply the method to estimate the additional personal costs experienced by disabled older people in Great Britain, finding that those costs are substantial, averaging in the range £48-61 a week, compared with the mean level of state disability benefit (£28) or total public support (£47) received. Estimated costs rise strongly with the severity of disability. The authors compare the nonparametric approach with the standard parametric method, finding that the latter tends to generate large overestimates unless conditions are ideal, and recommend the nonparametric approach

ISER Working Paper Series, No. 2013-26

Fulfilling potential : making it happen

OFFICE FOR DISABILITY ISSUES (ODI)
July 2013

Expand view

This report emphasises the need for innovative cross sector partnerships with disabled people and their organisations and promoting new ways of working to deliver meaningful outcomes. It underscores the UK Government’s commitment to the UN Convention on the Rights of Disabled People to bring about the changes needed in communities that have a real and lasting effect on the day-to-day lives of disabled people. It also harnesses the inspirational power of the London 2012 Olympic and Paralympic Games to deliver further lasting change to attitudes and aspirations
Note: links are available for PDF, RTF, easy-to-read and audio version; for Braille, Large Print formats and a summary in BSL with audio voice-over and subtitles, please contact the publisher

Risks to Client Confidentiality when Communicating Health Information to Blind and Partially Sighted Persons

THURSTON, M
THURSTON, A
2013

Expand view

Purpose: This research was carried out to give a more accurate picture of the particular needs of the blind and partially sighted people living in Scotland. It explores the risks to client confidentiality if information is not provided in accessible formats.

 

Method: Data were gathered from a survey of 228 blind and partially sighted persons in 15 Health Authorities across Scotland. The survey reported NHS clients’ experiences of receiving health information in accessible reading formats.

 

Results: The data indicated that about 90% of blind and partially sighted persons did not receive communications from various NHS health departments in a format that they could read by themselves.

 

Conclusions: The implications for client privacy, confidentiality and the wider impact on life and healthcare have been highlighted. The implications for professional ethical medical practice and for public policy are discussed, and recommendations for improved practice are made.

Benefits stigma in Britain

BAUMBERG, Ben
et al
November 2012

Expand view

This report presents the results of a research study assessing the impact of stigma and other social influences on applying for benefits in the UK

Web accessibility policy making : an international perspective

G3ICT
THE CENTRE FOR INTERNET AND SOCIETY
January 2012

Expand view

This report reviews of a number of countries policies on web accessibility to share good practice. The internet and ICT have become increasingly accessible with the introduction of electronic screen readers, close-captions video viewers and personally tailored assistive technology readers. Despite this, the authors maintain that there are still 1 billion disabled people who could have better access to the internet and ICT and there is great potential for improvement

Enabling equality : furthering disability equality for staff in higher education

EWENS, David
et al
2011

Expand view

Informed by in-depth interviews and a widely distributed survey of disabled staff in higher education institutions, this research identifies ten areas that are influential in shaping the experiences of disabled staff in the workplace, and offers recommendations for best practice
Note: This report is available in both pdf and word format

Disability and the downturn

GORE, Eleanor
PARCKAR, Guy
2009

Expand view

This report considers the link between disability and economic downturn in the UK and emphasises the need for policy makers to respond. It highlights the impact of the recession on disabled people related to areas of work, finance and income, benefit systems and public spending cuts. Suggestions are provided for drafting a new policy for disabled people in the current economic climate

Disability review 2009

GREENHALGH, Caroline
GORE, Eleanor
2009

Expand view

This is the third annual survey highlighting disabled people’s views and experiences of everyday issues around the UK, including education, employment, health and social service, housing, transport and citizenship. The report provides an indicator of the impact of government policies on the lives and experiences of disabled people in the UK

Impact assessment : drivers, dilemmas, and deliberations

CHAPMAN, Jennifer
MANCINI, Antonella
April 2008

Expand view

This paper investigates key debates and issues around impact assessment and performance measurement for UK development NGOs. Initially, it was created to stimulate internal debate at Sightsavers, however, it has been adopted for use by the NGO sector at large. It would be useful for anyone with an interest in organisational management and development

Vaccine anxieties : global science, child health and society

LEACH, Melissa
2007

Expand view

"This book explores how parents understand and engage with childhood vaccination in contrasting global contexts. This rapidly advancing and universal technology has sparked dramatic controversy, whether over MMR in the UK or oral polio vaccines in Nigeria. Combining a fresh anthropological perspective with detailed field research, the book examines anxieties emerging as highly globalized vaccine technologies and technocracies encounter the deeply intimate personal and social worlds of parenting and childcare, and how these are part of transforming science-society relations"

Pages

E-bulletin