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CitizEMPOWER: The importance of supporting inclusive citizen-generated data initiatives

LEONARD CHESHIRE
October 2020

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These recommendations provide guidance on how to ensure more inclusive and effective implementation of Citizen Generated Data (CGD) initiatives and partnerships that engage communities effectively, and especially young people, persons with disabilities and civil rights defenders.

 

The recommendations focus on:

Inclusive Partnerships and Effective Collaboration including a "Spotlight from Uganda: Using WG questions in the national census"

Data Access and Disaggregation including a "Spotlight from Madagascar: Youth generated data and accountability"

Resourcing and Funding including a "Spotlight from International Non Government Organisations: Using Washington Group Questions (WGQ) in humanitarian and development settings"

Rapid assessment of disability in the Philippines: understanding prevalence, well-being, and access to the community for people with disabilities to inform the W-DARE project

MARELLA, Manjula
DEVINE, Alexandra
ARMECIN, Graeme
et al
August 2016

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The aim of this study was to estimate the prevalence of disability and compare the well-being and access to the community between people with and without disabilities. A population-based survey was undertaken in District 2 of Quezon City and in Ligao City. 60 clusters of 50 people aged 18 years and older were selected with probability proportion to size sampling from both locations. The Rapid Assessment of Disability (RAD) survey was used to identify people with disabilities based on their responses to activity limitations. The levels of well-being and access to the community for people with disabilities were compared with controls matched by age, gender, and cluster. Information on barriers to accessing the community was also collected.

Popul Health Metrics 14, 26 (2016)

DOI 10.1186/s12963-016-0096-y

The key informant child disability project in Bangladesh and Pakistan

MACTAGGART, Islay
MURTHY, GVS
2013

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The Key Informant Method (KIM) has previously been tested by CBM, LSHTM and others, and found to be a valid method for the identification of children with severe visual impairment and blindness in Bangladesh, using community volunteers in the place of a door-to-door survey. This report outlines a study that set out to expand this and test whether voluntary, community-level Key Informants (KIs) could be trained to effectively identify children with moderate or severe physical impairments, sensory impairments (visual and hearing) or epilepsy in Bangadesh and Pakistan, and if so whether this process could be used to assess prevalence and plan appropriate referral services for children meeting these criteria

Ways to get people thinking and acting : village theatre and puppet show [Chapter 27]

WERNER, D
BOWER, B
2012

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This chapter explores role playing, sociodramas, people’s theater, and puppet shows as forms of action-packed group story-telling for health workers. Each can be used to explore problems or situations by acting them out and learning processes are provided for both actors and watchers based upon participation and discovery
Chapter 27 of "Helping Health Workers Learn" by D. Warner and B. Bower

Developing intervention strategies to improve community health worker motivation and performance

FRANK, Tine
KALLANDER, Karin
2012

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"This 28-page learning paper describes Malaria Consortium’s experience with Integrated Community Case Management (ICCM) in malaria prevention and treatment in Mozambique and Uganda. ICCM is an approach where community-based health workers are trained to identify, treat, and refer complex cases malaria (and other diseases) in children"
The Learning Series Papers

Briefing for the day of the African child : reaching Millennium Development Goal 4 : what progress has Africa made and what more needs to be done?

HARTILL, Richard G
MILLER, Carol A
June 2009

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This briefing document reviews examples of the progress that Africa has made in reaching the Accelerated Action Towards Africa Fit for Children 2008 - 2012 as adopted by the African Union and Member States in the agreed actions related to Enhancing Life Chances and Child Survival and looks at what more needs to be done. The commitment, "Enhancing Life Chances", entails strengthening health systems to provide quality maternal and child health services; scaling up essential interventions to reduce maternal morbidity and mortality and reduce neonatal mortality; scaling up a minimum package of proven child health interventions; and supporting family and community based actions that enhance children’s health, nutrition and well-being including potable water, improved sanitation and hygiene, appropriate young child feeding practices and food security measures

The state of Africa's children 2008 : child survival

ROGERS, Kate
GEBRE-EGZIABHER, Hirut
2008

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This report complements UNICEF’s ‘State of the World’s Children 2008’. It considers progress towards the related Millennium Development Goals in the region and the main causes of child deaths. It considers health-care systems and community-based approaches to providing maternal and child health care and outlines priorities required to accelerate progress

Integrated management of pregnancy and childbirth : WHO recommended interventions for improving maternal and newborn health

WORLD HEALTH ORGANIZATION (WHO), DEPARTMENT OF MAKING PREGNANCY SAFER
2007

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This paper contains five tables listing recommendations to improve maternal and newborn health and survival, through health services, family and community. Table 1. Care in pregnancy, childbirth and postpartum period for mother and newborn infant; Table 2. Place of care, providers, interventions and commodities; Table 3. Home care, family, community and workplace support for the woman during pregnancy and childbirth and for the newborn infant; Table 4. Care for the woman before and between pregancies; Table 5. Pregnant women not wanting child

Community-based management of severe acute malnutrition : a joint statement by the World Health Organization, the World Food Programme, the United Nations System Standing Committee on Nutrition and the United Nations Children's Fund

WORLD HEALTH ORGANIZATION (WHO)
et al
2007

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This statement advocates a community-based approach to the management of severe malnutrition, combined with a facility-based approach for those malnourished children with medical complications. It outlines actions that countries can take and suggests how WHO, WFP, SCN, UNICEF and other partners can support these actions

Danger signs of neonatal illnesses : perceptions of caregivers and health workers in northern India

AWASTHI, Shally
VERMA, Tuhina
AGARWAL, Monica
October 2006

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This article explores the "household practices that can affect neonatal health, from the perspective of caregivers and health workers; to identify signs in neonates leading either to recognition of illness or health-care seeking; and to ascertain the proportion of caregivers who recognize the individual items of the integrated management of neonatal and childhood illnesses (IMNCI) programme"
Bulletin of the World Health Organization, 84(10)

Participatory monitoring and evaluation of community- and faith-based programs : a step-by-step guide for people who want to make HIV and AIDS services and activities more effective in their community

September 2006

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This guide adopts a learning approach to participatory monitoring and evaluation of HIV and AIDS programmes, and sees programme achievements and problems as a means to better decison-making. It provides a comprehensive overview of monitoring and evaluation processes, from planning to indicators selection, baselines definition and report writing. The process is outlined in simple and practical steps. Includes a chapter on participatory methods and tools and a list of useful HIV and AIDS programmes indicators. This publication is primarily intended for community- and faith-based programme managers and group facilitators

Getting ready : findings from the National School Readiness Indicators Initiative. A 17 State partnership

RHODE ISLAND KIDS COUNT
Ed
February 2005

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This is a comprehensive report on school readiness indicators. The report explores why school readiness is important, and identifies core indicators in relation to children's development, families, communities and services. It also looks at indicators in relation to policy making and provides a sampling of policy options. The focus is on the US experience but findings and indicators can be adapted and applied to other contexts

Making commitments matter : a toolkit for young people to evaluate national youth policy

UNITED NATIONS. Division for Social Policy and Development
2004

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This toolkit is meant for national youth organisations and/or representatives working with youth. It can be used as a tool to assess a country's progress in reaching the World Programme of Action on Youth (WPAY) goals; prioritise an organisation's work, and based on findings initiate actions at the national level. It should be used as a starting point for determining what has been done to better the lives of young people since 1995 in their community. In addition to providing methods for evaluating this progress, the toolkit also contains concrete tools to further youth work

A manual for CBR planners

THOMAS, Maya
THOMAS, M J
Eds
2003

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This manual for community-based rehabilitation planners has 13 sections and contains a very useful overview of the history of CBR with valuable introductory reading for newcomers to the field. The subsequent six sections cover planning, needs assessment and include suggestions of how to understand local communities and encourage community participation in CBR programmes. The final six sections are concerned with programme management issues; for example, as organising self-help groups, training personnel for CBR, and the sustainability of projects including evaluation and management of change

Children, HIV/AIDS and communication in South Africa : a bibliographic review

FOX, Susan
OYOSI, Salome
PARKER, Warren
May 2002

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This list of books, articles and reports covers five topics: Policies, rights and statistics; Community and family impacts; Community and family responses; Children and communication; HIV/AIDS communication. Entries are carefully selected and many include thorough abstracts. It supports a literature review (also available online). It is searchable online through the CADRE website www.cadre.org.za

Report of the second meeting of the Global Alliance to eliminate lymphatic filariasis

GLOBAL ALLIANCE TO ELIMINATE LYMPHATIC FILARIASIS
2002

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This meeting was an opportunity for Global Alliance members to take stock of activities related to lymphatic filariasis (LF) elimination programmes at country, regional and global levels. This report aims to capture the basic elements of the discussion at the meeting. The aim was to enable the Alliance to build on progress to date and scale up coverage to ensure that by 2020 LF is eliminated. It is a useful resource for health managers

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