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Global Disability Summit - Civil Society Consultations 2020

INTERNATIONAL DISABILITY ALLIANCE (IDA)
February 2021

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In December 2020, IDA coordinated with local and regional partners 4 (four) GDS consultations involving persons with disabilities in Africa, Latin America and Asia. These were the beginning of a series of more than 20 workshops that IDA is planning with partner organizations in different parts of the world, to assess progress made against national commitments adopted in 2018, discuss thematic priorities, and plan events, discussions and training for the run-up to the main GDS event in Oslo.

In total, consultations have been carried in 15 countries with more than 100 participants, reaching 5 (five) underrepresented groups: persons with intellectual & psychosocial disabilities, indigenous persons with disabilities, youth, and women

Breaking down the barriers for people with disabilities through innovation in Africa

GSMA
September 2020

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During this interactive session, hosted by GSMA’s Assistive Tech team, we shared insights on the mobile disability gap, including findings from our gender and disability research, and lessons learnt from the innovation landscape. We also heard from several leading assistive tech innovators supporting the digital inclusion of people with disabilities, both visible or unseen across emerging markets

Inclusion of persons with disabilities in social protection for COVID-19 recovery and beyond

COTE, Alex
BALASUBRAMANIAN, Meenakshi
WANGARE, Fatma
HUDA. Karishma
DOS SANTOS, Joaozito
O'BRIEN, Felicity
September 2020

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The COVID-19 crisis has magnified the barriers and inequalities faced by persons with disabilities. Consultation with organisations representing persons with disabilities across regions highlighted the limitation of social protection systems in LMICs to provide adequate support due to lack of social protection schemes, low coverage, and inadequacy of existing schemes. There is little in the way of publicly funded community support services and in some contexts an overreliance on residential institutions, whose users have been disproportionally represented among COVID-19 fatalities. 

In the midst of the crisis, countries have been struggling with inaccessible information (e.g sign language), the lack of universal schemes, and national disability registry for broad outreach and fast relief.

The webinar aimed at providing a global overview of the social protection response for persons with disabilities and their families as well as the different key social protection issues to consider for an inclusive COVID-19 recover

‘Education for All’ under lockdown: the path ahead for inclusion of children with disabilities

NATH, Seema
June 2020

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During the COVID-19 pandemic, schools around the world experience extraordinary times and as education moves online, those who have historically faced marginalisation find themselves facing new challenges to access education. The situation is disproportionately affecting those within marginalised communities in India and across the globe. In education, these disadvantages are amplified for learners with disabilities belonging to low socio-economic backgrounds. Lessons to be learned from schools that are incorporating the principles of inclusion and social justice while approaching these challenges are highlighted.

COVID-19: How to include marginalized and vulnerable people in risk communication and community engagement

UN WOMEN
TRANSLATORS WITHOUT BORDERS
March 2020

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Recommendations for inclusion of marginalised and vulnerable groups in risk communications and community engangement are made. Groups considered are: children; people with disabilities; women and girls; pregnant women; persons living with HIV; gender based violence survivors; refugees and migrants; elderly; people in existing humanitarian emergencies; people with pre-existing medical conditions; sexual and gender minorities; ethnic minorities.

#COVIDdisability: Disability-related resources for families

CANADIAN ASSOCIATION FOR COMMUNITY LIVING (CACL)
2020

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A series of disability-related resources related to the COVID-19 pandemic for people with intellectual disabilities and their families.

 

Topics include:

  • Trusted COVID-19 Information
  • Plain Language Information
  • COVID-19 and Discrimination 
  • Information for Caregivers
  • COVID-19 and Government Support
  • COVID-19 and Mental Health
  • Accessible Information on COVID-19
  • Emergency Preparedness and People with a Disability

African Journal of Disability Vol 7 (2018)

2018

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This journal provides

  • Nineteen original research articles on a variety of topics including the cost of raising a child with autism, experiences of care givers to stroke survivors, dyslexic's learning experiences, communication rehabilitation, disability and food security, hearing children of deaf parents and rehabilitation of stroke survivors, disability policy, learning for deaf learners, aquatic based interventions for children with cerebral palsy, evaluation of community based rehabilitation programmes, the impact of stroke and barriers to the implementation of inclusive education.
  • Seven review articles: Intellectual disability rights and inclusive citizenship in South Africa: What can a scoping review tell us?; The benefits of hydrotherapy to patients with spinal cord injuries; Simple ideas that work: Celebrating development in persons with profound intellectual and multiple disabilities; The relationship between social support and participation in stroke: A systematic review; Parents of children with disabilities: A systematic review of parenting interventions and self-efficacy; Implementation of the 2006 Convention on the Rights of Persons with Disabilities in Zimbabwe: A review; Part 1: A review of using photovoice as a disability research method: Implications for eliciting the experiences of persons with disabilities on the Community Based Rehabilitation programme in Namibia
  • There is an opinion paper entitled - Deafening silence on a vital issue: The World Health Organization has ignored the sexuality of persons with disabilities
  •  There is a case study - Lessons from the pilot of a mobile application to map assistive technology suppliers in Africa

Human rights of refugee-survivors of sexual and gender-based violence with communication disability

MARSHALL, Julie
BARRETT, Helen
November 2017

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The main aims of this project were to document current knowledge about the intersectionality between sexual and gender-based violence (SGBV), communication disability and refugees, to identify any reported good practice, and to begin to understand and describe the challenges to supporting refugee-survivors of SGBV with communication disability, in Rwanda. The project involved 54 participants, including 50 humanitarian and partner organisation staff and four carers of refugees with communication disabilities, from two locations (camp-based and urban refugees).

 

International Journal of Speech-Language Pathology,  20:1, 44-49,

DOI: 10.1080/17549507.2017.1392608

Towards Inclusion - A guide for organisations and practitioners

VAN EK, Vera
SCHOT, Sander
2017

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This guide is the result of collaboration between Light for the World (LFTW), Mission East (ME), and ICCO Cooperation.

Based on decades of experience of working with the most marginalized and excluded communities, the three organizations cooperated to record their experiences in a publication which can be used in a variety of relief and development contexts. ‘Towards Inclusion’ is designed to be an easy to use reference for organizational and program/project development with a focus on gender responsiveness and disability inclusion.

The guide is made up of three parts:
• the first part guides users through the process of organizational self-assessment to determine readiness to change and identify key steps towards becoming a more inclusive organization.
• the second part introduces the ACAP framework, as a means of improving inclusion in programming via Access, Communication, Attitude and Participation. A range of tools for measuring and improving inclusion at all stages of the project cycle are provided.
• the third part provides guidelines for the people or ‘change facilitators’ who will guide organizations through the process of change towards becoming more inclusive.

The publication can be found at “Towards Inclusion Guide” and the accessible version of the publication can be downloaded. Both are free of charge.

Possibilities for organisation trainings and/or webinars on the practical application of the guide are under consideration. Contact ACAP@gmail.com.

Una Vida Sin Palabras?: Disability, Subalternity and the Sandinista Revolution

BURKE, Lucy
RUDMAN, Thomas
2016

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This paper offers an analysis of the documentary film, Una Vida Sin Palabras [A life without words] (2011). The film follows a short period in the lives of a campesino family living in a rural area of Nicaragua as a teacher of Nicaraguan sign language, working for a local NGO, endeavours to teach three deaf siblings how to sign. Bringing together the critical practices of Disability and Subaltern studies in the specific context of contemporary Nicaragua, the paper argues: (1) that the film ultimately re-inscribes and reinforces the subalternity of the disabled subjects it sets out to portray; and (2) that the hierarchy it produces between its object – the deaf family – and its implied educated, metropolitan audience replays some influential (but, we would argue, politically limited) critiques of the failure of the first Sandinista Government (1979-1990) and other broad based radical political movements to represent the national popular. In so doing, the paper also makes a case for the political and intellectual importance of bringing a Critical Disability Studies perspective to the field of Subaltern Studies, and argues that an engagement with the problems that are presented by this film at the level of both form and content raise some important questions for both fields of enquiry.

 

Disability & the Global South (DGS), 2016, Vol. 3 No. 1

A guide for community health workers supporting children with disabilities

ADAMS, Mel
et al
2014

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"This resource is to be used as a guide for Community Health Workers (CHWs) to support parents in promoting the development and independence of their child with neurodevelopmental disabilities...In line with current thinking, this resource places the emphasis on promoting activity and participation in a child’s daily life activities rather than therapies that try to fix ‘the problem’ (Skelton and Rosenbaum, 2010). As such, this manual provides ideas on how to support the child during activities of daily living – taking particular account of their physical and communication abilities and needs – and does not include hands-on rehabilitation techniques that focus on specific impairments. It does however provide guidance on overall management and prevention of further disability. The materials in this manual can be used as the basis for a programme of intervention that progresses through two stages"

Note: As indicated when clicking on the resource link below, the manual is available once contact details are entered or alternatively user can contact mel@maits.org.uk to receive a free pdf copy of this resource

HIV/AIDS and disability networking : summary report of survey consultation

CAMERON, Cathy
March 2010

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Recognising the importance of the connection between HIV and disability, this report aims to explore options for the development of a global network among the HIV/AIDS and disability fields in order to advance policy and program development. Through a survey consultation process, the report identifies and documents communication and collaborative activities that currently exist or are under development and provides recommendations to increase communication and collaboration. This report would be of interest to those working in the HIV/AIDS and disability fields

Sexual-health communication across and within cultures : the clown project, Guatemala

SAVDIE, Anthony
CHETLEY, Andrew
June 2009

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This paper puts forward an argument in favour of careful and critical analysis of culture in formulating communication strategies with and for specific groups, based on experience drawn from the Clown Project in Guatemala and other countries in Central America. The Clown Project uses labour-intensive face-to-face street theatre and dialogue, participatory workshops, and symbolic communication such as print-based material to reach those most vulnerable to the spread and impact of HIV and AIDS . The analysis takes into account relations of power within and between vulnerable groups, examining the centre-periphery dynamic between classes, genders, ethnicities, age groups, and other social identities. Both appropriately supported insider perspectives and appropriately processed outsider knowledge are recommended, along with ways of bridging science and the field, theory and practice

Joining hands: integrating gender and HIV/AIDS: report of an ACORD project using Stepping Stones in Angola, Tanzania and Uganda

HADJIPATERAS, Angela
et al
July 2007

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This is the report of a two-year project to reduce the vulnerability of women and girls in Africa to HIV and AIDS, using Stepping Stones - a gender-focused participatory process that involves working closely with peer groups. The project's other objectives were to: build the capacity of local structures to respond; promote community responses through effective partnerships and advocacy actions; and find out whether Stepping Stones could be used effectively in unconventional settings with a range of population groups such as the nomadic Mucubai tribe in Southern Angola, internally displaced people living in camps in Northern Uganda, and the 21st Battalion of the Angolan armed forces. Key findings include: improvements in the level of knowledge and understanding of HIV/AIDS and increased communication around sexual issues and between couples and within communities, across all three countries, as well as an increased sense of community responsibility for HIV and AIDS. In addition there was patchy evidence of stigma reduction and some reduction in risky cultural and sexual practices. Although increased respect for women, including self respect and a reduction in gender violence was also noted, female subordination in decision making and control over resources remains. Stepping Stones was on the whole considered to be adaptable for use in a wide range of contexts although more thought was needed to develop effective strategies to combat obstacles when using this process in some circumstances

At the heart of change : the role of communication in sustainable development

WILSON, Mark
WARNOCK, Kitty
SCHOEMAKER, Emrys
2007

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This paper shows how information, communication, the media and ICTs are powerful agents of change, how they can give 'voice' to the poor and contribute to more sustainable development, but it also emphasises the need to support and strengthen communication processes used by poor and marginalised people who already face many barriers to receiving information, and to develop the skills and capacity of those people to make their own voices heard. It concludes by suggesting an agenda for action by policy makers, development experts, international organisations, non-governmental organisations and the private sector (including the media)

Breaking barriers : effective communication for universal access to HIV prevention, treatment, care and support by 2010

VINCENT, Robin
October 2006

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This report is a review of the communication challenges to HIV prevention, treatment and care. It acknowledges the existence of multiple informal responses but sees a need for them to be strengthened and supported through a renewed emphasis on communication for social change and a greater understanding of existing cultural and social responses. It makes a number of recommendations to maximise the role of communication in support of universal access by 2010

Inclusion of persons with disabilities in China

GUOZHONG, Eric Zhang
2006

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This article presents a situation analysis of disability in China. Over the last few years the conditions of over 60 million persons with disabilities in China have progressively improved, but they remain a vulnerable group often excluded in the transition processes currently taking place in the country. The paper analyses the legislative framework and explore how inclusion is promoted in areas such as education, employment, housing and culture

Perceptions and practice : an anthology of impact assessment experiences

SAYCE, Kay
NORRISH, Patricia
2006

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This book presents eleven case studies of impact assessment in information and communication projects such as CATIA, Reflect's ICT projects in India, Tearfund's Footsteps project, Bernard van Leer Foundation's Effectiveness Initiative and others. Each case study begins with a summary of the study, followed by first-hand accounts of the key people involved in each assessment. The central issues raised by the studies include learning and accountability, attribution, context, communication, donor issues, resources, and planning. The case studies are bracketted by sensitive and analytical introductory and concluding chapters, which synthesize the practitioners' voices from the case studies, contextualise them in wider debates in development impact assessment, evaluation and learning

Civil society perspectives on TB policy in Bangladesh, Brazil, Nigeria, Tanzania, and Thailand

Public Health Watch, Open Society Institute
2006

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This publication contains an overview of the common themes and funding resulting from five country reports, and the five reports themselves. The World Health Organization has designated all five as TB-high burden countries. The research findings show a low level of awareness about TB, and TB and HIV co-infection; about how TB is transmitted and how it can be cured; and about the link between poverty and TB; as well as low media coverage of TB and a lack of strong communication strategies for national TB programmes. It also contains country-specific recommendations

With the support of multitudes : using strategic communication to fight poverty through PRSPs

MOZAMMEL, Masud
ODUGBEMI, Sina
Eds
2005

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This book is timely and relevant. It makes the crucial point that while building support for Poverty Reduction Strategies (PRSs) is vital to success, such support will not happen without planned, deliberate and sustained efforts to involve the citizenry in an open and inclusive process of two-way communication. This is what is meant by strategic communication. The book gives case studies from all over the world, provides good graphical analysis to prove findings. It was produced in order to improve the chances of success of PRSs in two ways; to show policymakers how strategic communication can help them to achieve some of their objectives in formulating and executing effective PRSs; and to give those actively engaged in the execution of PRSPs guidance on best practice as well as lessons from a community of practice spread around the world

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