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Guidelines on best practice for persons living with deafblindness

ZWANENBURG, Aline
TESNI, Sian
June 2019

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These guidelines were developed to advance understanding of the needs and challenges of persons living with deafblindness and to promote their inclusion in society. The target audience are members of the CBM Federation with particular interest to, among others staff at Regional and Country Offices, Member Associations, co-workers, partners (including governments, education agencies, public and private service providers, and professionals), as well as persons living with deafblindness and their families.

 

Part One gives an overview of the impact deafblindness can have on an individual’s development and learning. It emphasises the need for a continuum of services and programmes, including early detection, referral, educational input, and family support.

 

Part Two outlines components of education and rehabilitation programmes. It provides guidelines on communication, holistic assessment procedures, assistive devices, advocacy and self-determination, transition planning, and discusses the importance of on-going regular access to health and therapeutic services.

 

Part Three considers how to improve and expand existing services through the provision of on-going personnel capacity building, and through networking with key stakeholders, to consider intersecting issues and service expansion. Each section includes an overview of the topic explored, some case studies and considerations for service implementation.

Assistive technology and people: a position paper from the first global research, innovation and education on assistive technology (GREAT) summit

DESMOND, Deirdre
et al
May 2018

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"Assistive technology (AT) is a powerful enabler of participation. The World Health Organization’s Global Collaboration on Assistive Technology (GATE) programme is actively working towards access to assistive technology for all. Developed through collaborative work as a part of the Global Research, Innovation and Education on Assistive Technology (GREAT) Summit, this position paper provides a “state of the science” view of AT users, conceptualized as “People” within the set of GATE strategic “P”s. 

Disability and Rehabilitation: Assistive Technology 
Volume 13, 2018 - Issue 5: Position Papers from the First Global Research, Innovation, and Education on Assistive Technology (GREAT) Summit

This issue has 7 papers from the GREAT summit

https://doi.org/10.1080/17483107.2018.1471169

Assistive technology and people: a position paper from the first global research, innovation and education on assistive technology (GREAT) summit

DESMOND, Deirdre
LAYTON, Natasha
BENTLEY, Jacob
BOOT, Fleur Heleen
BORG, Johan
DHUNGANA, Bishnu Maya
GALLAGHER, Pamela
GITLOW, Lynn
GOWRAN, Rosemary Joan
GROCE, Nora
MAVROU, Katerina
MACKEOGH, Trish
MCDONALD, Rachael
PETTERSSON, Cecilia
SCHERER, Marcia J
2018

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Assistive technology (AT) is a powerful enabler of participation. The World Health Organization’s Global Collaboration on Assistive Technology (GATE) programme is actively working towards access to assistive technology for all. Developed through collaborative work as a part of the Global Research, Innovation and Education on Assistive Technology (GREAT) Summit, this position paper provides a “state of the science” view of AT users, conceptualized as “People” within the set of GATE strategic “P”s. People are at the core of policy, products, personnel and provision. AT is an interface between the person and the life they would like to lead. People’s preferences, perspectives and goals are fundamental to defining and determining the success of AT. Maximizing the impact of AT in enabling participation requires an individualized and holistic understanding of the value and meaning of AT for the individual, taking a universal model perspective, focusing on the person, in context, and then considering the condition and/or the technology. This paper aims to situate and emphasize people at the centre of AT systems: we highlight personal meanings and perspectives on AT use and consider the role of advocacy, empowerment and co-design in developing and driving AT processes.

UNESCO global report|Opening new avenues for empowerment : ICTs to access information and knowledge for persons with disabilities

UNITED NATIONS EDUCATIONAL, SCIENTIFIC AND CULTURAL ORGANIZATION (UNESCO)
February 2013

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This report aims "to provide governments, civil society, industry, academia and other groups with an insight into the use of Information and Communication Technologies (ICTs) by persons with disabilities to access information and knowledge around the world; To present an overview and critical assessment of existing information policies and strategies as well as challenges and advantages in using ICTs to access information and knowledge for persons with disabilities; To identify practices at local, national and global levels on effective application of ICTs by persons with disabilities to access information and knowledge; To foster future frameworks on the use of ICTs to access information and knowledge of persons with disabilities (PWD); and Based on the best available information and analysis, to make recommendations for strategy formulation, action-oriented initiatives and new synergies at national, regional and international levels"

Promoting access to the built environment

WILM, Susanne
NOE, Christiane
November 2008

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“"These guidelines on 'Promoting Access to the Built Environment' reflect international standards and recommendations about accessibility in the built environment, and have been developed to assist CBM, its partners and other interested agencies in creating a more fully accessible environment"

Local rehabilitation workshops - LOREWO

December 2006

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This website provides information about how to acquire assistive devices and rehabilitation services that are flexible and designed to be adapted to suit local situations and using existing, local resources. It would be useful for anyone with an interest in providing access to assistive devices in low and middle income countries

Surgical reconstruction and rehabilitation in leprosy and other neuropathies

SCHWARZ, R. J.
BRANDSMA, J. W.
Eds
2004

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"This book is designed for those with some training in reconstructive surgery for peripheral neuropathies, but who have not been exposed to all of the procedures presently available...In this field it is absolutely essential that the surgeon works closely with a therapist able to educate the patient following reconstructive surgical procedures. As such the book is also designed for therapists, with chapters covering the principles and techniques of pre- and postoperative therapy for neuropathic limbs. The book also contains sections on orthopaedic appliances and prosthesis, but only in sufficient detail to allow the surgeon to have a reasonable understanding of how to choose an appropriate orthosis/ prosthesis and what can be expected of the same"

Guidelines for the socio-economic reintegration of landmine survivors

VICTOR, Jack
ESTEY, Steven
KNIERIM, Heather Burns
August 2003

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This resource provides informative guidelines about the socio-economic reintegration of mine victims. The guidelines have been divided into two major categories; the first category - pre-conditions for socio-economic reintegration - covers the topics of medical, psychological and rehabilitation services. The second category - target areas for socio-economic reintegration - includes psychosocial support, vocational rehabilitation, economic development, education and community integration and support. These guidelines are useful for policy makers and service providers interested in the socio-economic reintegration of landmine survivors

Information communication technologies, poverty and empowerment

SKUSE, Andrew
2001

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Provides a framework for pro-poor ICT based initiatives, in the context of globalisation and the rights to information and freedom of expression. Discusses 'old' versus new and emerging ICTs, concluding that the lure of technological and infrastructural solutions has tended to divert attention away from ICTs that poor people actually use - but that the convergence of old and new ICT presents opportunities. Suggests that donors should support the private sector and governments in developing pro-poor strategies. Advocates careful strategic planning and judicious use of appropriate media in every communications initiative

Access exchange international

ACCESS EXCHANGE INTERANTIONAL (AEI)

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Access Exchange International (AEI) is a non-governmental organization which promotes accessible public transport for persons with disabilities and seniors in Africa, Asia, the Americas, Russia and eastern Europe. This website provides information about AEI, their publications and newsletters, and links to other related resources. This resource is useful to people who are interested in accessible public transport

A leg to stand on

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Legs to Stand On is an initiative to prevent disease and restore the lives of persons afflicted with disabling diseases of the lower limb in countries with limited resources.

Scenari-aid

MEREDITH, Grant

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Scenari-Aid is a free website containing over 100 digitally recorded real-life scenarios for people to work through in their own time and style. Each functional scenario is comprised of a number of steps in which the user can pause at any time and choose to respond in a time and manner that best fits their situation, style and needs. This website is useful to users for the following reasons: fluency and speech therapy for people, stroke recovery, literacy skills for people from non-English speaking backgrounds, addressing social anxiety issues and the empowering the long term unemployed

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