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A Global Agenda for Inclusive Recovery: Ensuring People with Intellectual Disabilities and Families are Included in a Post-COVID World

Inclusion International
June 2021

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This report documents the experience of exclusion of people with intellectual disabilities and their families during the COVID-19 pandemic. These experiences reveal pre-existing structural inequalities that affected the lives of people with intellectual disabilities and their families before COVID-19, during the pandemic, and beyond, and this report raises up the voices of those most excluded in a time of global crisis and demands an inclusive COVID-19 recovery.

 

This report includes the experiences of people with intellectual disabilities and families across eight different issue areas. Across these themes, we examined how and why people with intellectual disabilities were left out and excluded in pandemic responses, what pre-existing conditions and inequalities contributed to their vulnerability and exclusion, and how future policy structures could begin to address both this immediate and systemic exclusion.

 

Together, these experiences and policy solutions form our global agenda for inclusive COVID-19 recovery, an action plan to ensure that government efforts to ‘build back better’ are inclusive of people with intellectual disabilities and their families.

Increasingly consulted, but not yet participating: IDA global survey report on participation of Organisations of Persons with Disabilities

INTERNATIONAL DISABILITY ALLIANCE (IDA)
November 2020

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This new report presents the findings of the first-ever global survey led by OPDs on their participation in decision making processes of governments, the UN system and funding agencies.

The IDA Global Survey is part of a strategy to hold decision-makers accountable for their commitments under Articles 4.3 and 32 of the UN Convention on the Rights of Persons with Disabilities (CRPD). Based on testimonies collected from OPDs in 165 counties, the report assesses the quality, depth, scope and relevance of the OPDs participation in programmes and policies, and offers recommendations for governments, the UN system and funding agencies.

Guidelines on best practice for persons living with deafblindness

ZWANENBURG, Aline
TESNI, Sian
June 2019

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These guidelines were developed to advance understanding of the needs and challenges of persons living with deafblindness and to promote their inclusion in society. The target audience are members of the CBM Federation with particular interest to, among others staff at Regional and Country Offices, Member Associations, co-workers, partners (including governments, education agencies, public and private service providers, and professionals), as well as persons living with deafblindness and their families.

 

Part One gives an overview of the impact deafblindness can have on an individual’s development and learning. It emphasises the need for a continuum of services and programmes, including early detection, referral, educational input, and family support.

 

Part Two outlines components of education and rehabilitation programmes. It provides guidelines on communication, holistic assessment procedures, assistive devices, advocacy and self-determination, transition planning, and discusses the importance of on-going regular access to health and therapeutic services.

 

Part Three considers how to improve and expand existing services through the provision of on-going personnel capacity building, and through networking with key stakeholders, to consider intersecting issues and service expansion. Each section includes an overview of the topic explored, some case studies and considerations for service implementation.

Epilepsy: a public health imperative

WORLD HEALTH ORGANISATION (WHO)
2019

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This report is the first global report on epilepsy summarising the available evidence on the burden of epilepsy and the public health response required at global, regional and national levels.

This report is a call for sustained and coordinated action to ensure that every person with epilepsy has access to the care and treatment they need, and the opportunity to live free from stigma and discrimination in all parts of the world. It is time to highlight epilepsy as a public health imperative, to strongly encourage investment in reducing its burden, and to advocate for actions to address gaps in epilepsy knowledge, care and research.

Best Practice Guides for professional supporting autistic students in Higher education. Guide 1: Best practice for HEI managers and senior academics

FABRI, Marc
ANDREWS, Penny
PUKKI, Heta
March 2016

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This guide is for managers and senior academics at universities and higher education institutions, to provide with information and evidence to help develop policies and practices that will benefit autistic students and improve the student experience. It was developed from work in five European countries. It is one of three guides to help higher education professionals support autistic students.

Abuse and denial of sexual and reproductive rights of women with psychosocial disabilities in Mexico

RODRIGUEZ, Priscila
et al
February 2015

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This report presents the situation faced by women with psycho-social conditions in Mexico based on the results of a year-long study. This research included the application of a questionnaire to fifty-one women with psychosocial disabilities who were either members of the Colectivo Chuhcan or received outpatient services at four different health clinics and psychiatric institutions in Mexico City. The main finding of this report is that the Mexican government has failed to implement policies that ensure that women with psychosocial disabilities have safe access to sexual and reproductive health services, on an equal basis with others. It is recommended this research be extended to the rest of the country to gain a clearer picture on the situation of the sexual and reproductive rights of women with disabilities at a national level

Mapping exclusion

KOZMA, Agnes
PETRI, Gabor
November 2012

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This is a comprehensive report on the state of deinstitutionalization from institution-based services towards community-based services in the mental health field in Europe. The report consists of a comparative analysis of trends and policy changes in Europe based on a survey, and 32 country reports are presented in the annex covering issues crucial in the context of community care, such as data about institutional and community-based services, national mental health and deinstitutionalization strategies, information on guardianship and involuntary admission policies
Note: The report is in English, summaries are available in Dutch, French, Hungarian, Polish, Spanish, Romanian and Swedish

Improved and standardized method for assessing years lived with disability after injury

HAAGSMA, JA
et al
2012

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"This article presents the results of study that aimed to develop a standardized method for calculating years lived with disability (YLD) after injury. The method developed consists of obtaining data on injury cases seen in emergency departments as well as injury-related hospital admissions, using the EUROCOST system to link the injury cases to disability information and employing empirical data to describe functional outcomes in injured patients. The novel method for calculating YLD after injury can be applied in different settings, overcomes some limitations of the method used to calculate the global burden of disease, and allows more accurate estimates of the population burden of injury"
Bull World Health Organ, 90

Making it work guideline

GUY, Michael
September 2011

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Making it Work is a methodology for researching and documenting good practices on key disability issues, and then using this evidence to carry out effective advocacy in line with the principles of the Convention for the Rights of Persons with Disabilities .The methodology is straight-forward: it can be used to develop projects on any disability issue, in any country, at any level, by all types of organizations. Indeed many organizations throughout the world are now using this approach and sharing their good practice research and recommendations online. This guideline sets out a step-by-step approach for implementing such projects

Support to organisations representative of persons with disabilities

GEISER, Priscille
ZIEGLER, Stefanie
ZURMÜHL, Ute
July 2011

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This policy paper is based on the practice and experience acquired by Handicap International (HI) in working with and supporting organisations representative of people with disabilities. The paper first outlines the development of DPOs and their particular roles and responsibilities with regards to the goal of improving the situation of persons with disabilities. It then discusses the importance of supporting DPOs specifically regarding HI’s engagement, presents key components of projects, and highlights links with HI’s institutional framework documents. This paper is useful for anyone interested in support to organisations representative of persons with disabilities

Gender-based violence prevention and response : a methodological guide

BRANCHAT, Julia
DUPLESSY, Constance
2010

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This methodological guide is the result of a cross-disciplinary project to consolidate the experiences and tools on gender-based violence. As well as a general presentation of the issue of gender-based violence, this guide presents various aspects of caring for victims of violence, awareness-raising activities and arguments that can accompany those activities. It aims to facilitate the development and implementation of actions to combat gender-based violence and to enhance the quality of interventions in the field. Best practices and know-how are also highlighted. This guide will of use to anyone interested in gender-based violence and developing gender-based violence prevention and response initiatives
Note: web link will take you to a page which is in French. Scroll down the page to images of the report where French, English and Spanish links to the report are provided

Assisting the victims : recommendations on implementing the Cartagena action plan 2010 - 2014

CARTAGENA SUMMIT
December 2009

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“"This document is primarily intended to provide recommendations to States Parties on each action related to victim assistance in such a way as to facilitate a holistic and integrated approach to addressing the rights and needs of mine victims. The recommendations are not intended to replace existing plans, but rather, should be considered as ideas for enhancing the implementation of the Cartagena Action Plan in the period 2010 to 2014"

Education in emergencies : including everyone

PINNOCK, Helen
February 2009

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The guide outlines useful principles for an inclusive emergency education approach, provides advice for strategies and actions at key stages of an emergency, offers advice on dealing with challenges, and highlights what support emergencies' education staff should expect from their organisations. It is aimed at anyone working to provide, manage or support education services in emergencies, and complements the INEE Minimum Standards for Education in Emergencies, Chronic Crises and Early Reconstruction

Convention on cluster munitions

CLUSTER MUNITION COALITION
2008

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"The Convention on Cluster Munitions, CCM, prohibits all use, stockpiling, production and transfer of Cluster Munitions. Separate articles in the Convention concern assistance to victims, clearance of contaminated areas and destruction of stockpiles"
Dublin Diplomatic Conference on Cluster Munitions
Dublin, Ireland
19-30 May 2008

A new weave of power, people & politics : the action guide for advocacy and citizen participation

VENEKLASEN, Lisa
MILLER, Valerie
March 2007

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This comprehensive action guide provides an approach for building people’s participation and collective power that goes beyond influencing policy and politics to transforming public decision-making. It offers easily adaptable 'modules' for NGOs trainers, activists, grass-roots organisations, who wish to develop ideas around advocacy. One of the strengths is that it focuses on peoples participation and explores ideas relating to power and politics in citizen-centred advocacy. It emphasises power and constituency-building discussed through the lens of gender/race/class and is based upon the concrete experiences of social change worldwide
It also offers facilitators tips, sample exercises and easily adaptable handouts, along with core information to support anyone through the learning process. Based on long-term experience of a range of practitioners, the guide provides well-tested methods for promoting citizen participation and practical ways of realising a rights-based approach.
The contents, chapters 1, 3, 5, 10 and 13 can be accessed electronically

Buenas practicas en la respuesta peruana al VIH y sida

RED SIDA PERU
September 2004

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This study describes some key projects and interventions conducted in Peru in the fight against HIV/AIDS. The purpose is to identify good practices and learn from successful experiences. The first part of this document discusses the concept of good practice looking at advocacy, promotion and prevention, public awareness raising. The second part outlines the methodology adopted in this study. Part 3 details the objectives and activities of thirty projects and part 4 summarises the lessons learned

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