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Good practices on the implementation of the UNCRPD in Timor Leste (2015-2017)

HANDICAP INTERNATIONAL
DOS SANTOS, Domingos T.M.
et al
August 2019

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The 2015-2017 Advocating for Change Project (AfC), a project funded by the German Federal Ministry for Economic Cooperation and Development (BMZ), aimed at promoting and advocating for rights of people with disabilities through the push for the ratification of the UNCRPD at the national level, improving quality decentralization process at the local level and promoting quality livelihood action for people with disabilities through improved and inclusive vocational training center (CNEFP) in Tibar.

One particular activity in this project is the collection and dissemination of best practices with the "Making it Work" methodology. This methodology aims to document and promote already existing best practices that adhere to the principles of UNCRPD. Making it Work utilizes a multi stakeholder approach and encourages members of DPOs and other organizations to identify best practices and effective action in and surrounding their localities. These best practices are then collected with the ultimate goal to serve as examples of embodiment of the UNCRPD for replication by organizations or institutions elsewhere.

Disability in humanitarian context: A case study from Iraq

HUMANITY & INCLUSION (HI)
June 2018

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This brief presents and addresses some of the challenges that prevent internally displaced persons with disabilities and other vulnerable population groups (elderly, injured persons, pregnant women, etc.) in camp settings from accessing humanitarian services in Iraq and impede on the development of an inclusive humanitarian response. Examples drawn from Handicap International’s experience working in Iraq with persons with disabilities and vulnerable population groups further illustrate those challenges. The recommendations to the humanitarian community provided in this brief aim at improving the protection of persons with disabilities and their inclusion in the humanitarian response

Hearing aid systems in low-resource settings (Community Ear & Hearing Health, vol.15, no.19, 2018)

RICARD, Paddy
Ed
2018

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Articles in this issue are:

  • Hearing aid systems in low-resource settings
  • How hearing aids work and how to take care of them
  • The impact of hearing aid use in low and middle-income countries
  • Barriers to the use of hearing aid systems in low-and middle-income countries
  • Beyond devices: what to consider when providing hearing aids in LMICs
  • Improving access to hearing care and hearing rehabilitation in the Philippines
     

Making the SDGs count for women and girls with disabilities

UN WOMEN
July 2017

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"In line with several critical areas under thematic review at the High-level Political Forum on Sustainable Development in 2017, this brief underlines the need to mainstream disability into all efforts to achieve gender equality and women’s empowerment (SDG 5); highlights key issues for ending poverty (SDG 1) and ensuring healthy lives (SDG 3) for women and girls with disabilities; and calls for closing data gaps on gender and disability"

Postpartum Depression: Signs and Resources for Help

Nursing@Georgetown
July 2017

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This resource provides insights into the symptoms of postpartum depression and how to support a loved one with PPD. Also included in the article are insights on how to find providers and community groups that offer free resources. Readers can also learn what to do in crisis situations to ensure that important preventative measures are taken when needed.

Building the capacity of policy-makers and planners to strengthen mental health systems in low- and middle-income countries: a systematic review

Roxanne Keynejad
Maya Semrau
Mark Toynbee
Sara Evans-Lacko
Crick Lund, Oye Gureje
Sheila Ndyanabangi
Emilie Courtin
Jibril O. Abdulmalik
Atalay Ale
Abebaw Fekadu
Graham Thornicroft
Charlotte Hanlo
October 2016

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Background

Little is known about the interventions required to build the capacity of mental health policy-makers and planners in low- and middle-income countries (LMICs). We conducted a systematic review with the primary aim of identifying and synthesizing the evidence base for building the capacity of policy-makers and planners to strengthen mental health systems in LMICs.

Methods

We searched MEDLINE, Embase, PsycINFO, Web of Knowledge, Web of Science, Scopus, CINAHL, LILACS, ScieELO, Google Scholar and Cochrane databases for studies reporting evidence, experience or evaluation of capacity-building of policy-makers, service planners or managers in mental health system strengthening in LMICs. Reports in English, Spanish, Portuguese, French or German were included. Additional papers were identified by hand-searching references and contacting experts and key informants. Database searches yielded 2922 abstracts and 28 additional papers were identified. Following screening, 409 full papers were reviewed, of which 14 fulfilled inclusion criteria for the review. Data were extracted from all included papers and synthesized into a narrative review.

Results

Only a small number of mental health system-related capacity-building interventions for policy-makers and planners in LMICs were described. Most models of capacity-building combined brief training with longer term mentorship, dialogue and/or the establishment of networks of support. However, rigorous research and evaluation methods were largely absent, with studies being of low quality, limiting the potential to separate mental health system strengthening outcomes from the effects of associated contextual factors.

Conclusions

This review demonstrates the need for partnership approaches to building the capacity of mental health policy-makers and planners in LMICs, assessed rigorously against pre-specified conceptual frameworks and hypotheses, utilising longitudinal evaluation and mixed quantitative and qualitative approaches.

Zika: the origin and spread of a mosquito-borne virus

KINDHAUSER, Mary Kay
ALLEN Tomas
FRANK Veronika
SANTHANAA Ravi Shankar
DYE Christopher
September 2016

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The temporal and geographical distribution of Zika virus infection and associated neurological disorders, from 1947 to 1 February 2016, when Zika became a Public Health Emergency of International Concern (PHEIC) are described following an extensive literature search. During this period a total of 74 countries and territories had reported human Zika virus infections. The timeline in this paper charts the discovery of the virus (1947), its isolation from mosquitos (1948), the first human infection (1952), the initial spread of infection from Asia to a Pacific island (2007), the first known instance of sexual transmission (2008), reports of Guillain-Barré syndrome (2014) and microcephaly (2015) linked to Zika infections and the first appearance of Zika in the Americas (from 2015). The paper concludes that the Zika virus infection in humans appears to have changed in character as its geographical range has expanded from equatorial Africa and Asia. The change is from an endemic, mosquito-borne infection causing mild illness to one that can cause large outbreaks linked with neurological sequelae and congenital abnormalities

 

Detecting Guillain-Barré syndrome caused by Zika virus using systems developed for polio surveillance

KANDEL, Nirmal
LAMICHHANE Jaya
TANGERMANN Rudolf
RODIEA Guenael
September 2016

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With increasing evidence of linkages between Guillain-Barré syndrome and Zika virus infection, the importance of enhancing Guillain-Barré syndrome surveillance is highlighted and use of existing surveillance systems like the one for acute flaccid paralysis (AFP) used by polio eradication programmes is proposed. A process for using the AFP surveillance system for Zika virus surveillance is outlined. Worldwide distribution maps of  Aedes aegypti and Aedes albopictus are presented and control measures following Zika infection testing are listed.

Living in hell : abuses against people with psychosocial disabilities in Indonesia

HUMAN RIGHTS WATCH (HRW)
March 2016

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This article with a video is related to a report examining the abuses—including pasung—that persons with psychosocial disabilities face in the community, mental hospitals, and various other institutions in Indonesia, including stigma, arbitrary and prolonged detention, involuntary treatment, and physical and sexual violence. It also examines the government’s shortcomings in addressing these problems.

Based on research across the Indonesian islands of Java and Sumatra, Human Rights Watch documented 175 cases of persons with psychosocial disabilities in pasung or who were recently rescued from pasung. 

 

Access to HIV and AIDS care: persons with disabilities still left behind

MAC-SEING, Muriel
October 2015

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This article presents disability-inclusive good practices, policy and program related opportunities. It highlights a series of facts and figures related to people with disabilities and HIV infection and the interaction between HIV and disability.  The article goes on to outline Handicap International’s proposal to “remove HIV-related barriers for persons with disabilities” in a two-track approach that includes decision makers, service providers, and service users. Finally, the article shares discussions of successful inclusive practices involving HIV and persons with disabilities in various communities around the world and the key challenges and opportunities to include disability into HIV and AIDS

The economic lives of people with disabilities in Vietnam

PALMER, M
GROCE, N
MONT, D
NGUYEN, O H
MITRA, S
July 2015

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Through a series of focus group discussions conducted in northern and central Vietnam, this study gives voice to the lived economic experience of families with disabilities and how
they manage the economic challenges associated with disability. The dynamic of low and unstable income combined with on-going health care and other disability-related costs
gives rise to a range of coping mechanisms (borrowing, reducing and foregoing expenditures, drawing upon savings and substituting labour) that helps to maintain living standards
in the short-run yet threatens the longer-term welfare of both the individual with disability and their household. Current social protection programs were reported as not accessible to
all and while addressing some immediate economic costs of disability, do not successfully meet current needs nor accommodate wider barriers to availing benefits.

Malawi : DoDMA exploring indigenous knowledge on disasters

KAZEMBE, Ida
May 2015

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This article contains an interview with Mulder Mkutumula, Mitigation Officer at the Department of Disaster Management Affairs in Malawi. Mr. Mkutumula discusses the importance of raising awareness and understanding of disaster risk reduction in Malawi, especially in the context of the 2015 floods

Knowledge and perceptions of HIV-infected patients regarding HIV transmission and treatment in Ho Chi Minh City, Vietnam

Hoang, Dong
Dinh, An T
Groce, Nora
Sullivan, Lynn
March 2015

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Patient education concerning HIV and antiretroviral (ARV) medications is important for optimal outcomes. The authors assessed the knowledge and perceptions of HIV-infected patients in an ARV education program in Ho Chi Minh City, Vietnam. The study population’s knowledge of HIV/AIDS and ARV medications, perceived stigmatization, and areas of knowledge deficits underscore the need for effective patient education programs addressing poorly understood issues around HIV/AIDS.

HRW says disabled children in Russia face violence, isolation, neglect

PODELCO, Grant
September 2014

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This article reports on the Human Rights Watch (HRW) report which documents how children with disabilities in Russian orphanages face abuse, neglect and isolation.  The report found that nearly 30 percent of all Russian children with disabilities are removed from their parents and live in state orphanages, where they face neglect and sometimes violence. The report recommendations push for the government and other actors to protect children in institutions from abuse and neglect, better support families raising children with disabilities, and move toward ending institutionalisation of children with disabilities. This article presents seven photo slides, a case study, the key findings and recommendations of the report, an interview with the author and a link to the related HRW video

Assessment of neurodisability and malnutrition in children in Africa

GLADSTONE, Melissa
MALLEWA, Mac
ALUSINE JALLOH, Alhaji
VOSJUIKL, Wieger
POSTELS, Douglas
GROCE, Nora
KERAC, Marco
MOLYNEUX, Elizabeth
March 2014

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Neurodevelopmental delay, neurodisability, and malnutrition interact to contribute a significant burden of disease in global settings. Assessments which are well integrated with plans of management or advice are most likely to improve outcomes. Assessment tools used in clinical research and programming to evaluate outcomes include developmental and cognitive tools that vary in complexity, sensitivity, and validity as well as the target age of assessment. Few tools have been used to measure socioemotional outcomes and fewer to assess the disabled child with malnutrition. There is a paucity of tools used clinically which actually provide families and professionals with advice to improve outcomes. Brain imaging, electroencephalography, audiology, and visual assessment can also be used to assess the effect of malnutrition on brain structure and function. The interaction of neurodisability and malnutrition is powerful, and both need to be considered when assessing children.

Seminars in Pediatric Neurology, Child Neurology in Africa, Volume 21, Issue 1, March 2014, Pages 50–57

Improved and standardized method for assessing years lived with disability after injury

HAAGSMA, JA
et al
2012

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"This article presents the results of study that aimed to develop a standardized method for calculating years lived with disability (YLD) after injury. The method developed consists of obtaining data on injury cases seen in emergency departments as well as injury-related hospital admissions, using the EUROCOST system to link the injury cases to disability information and employing empirical data to describe functional outcomes in injured patients. The novel method for calculating YLD after injury can be applied in different settings, overcomes some limitations of the method used to calculate the global burden of disease, and allows more accurate estimates of the population burden of injury"
Bull World Health Organ, 90

Costs and cost-effectiveness of training traditional birth attendants to reduce neonatal mortality in the Lufwanyama neonatal survival study (LUNESP)

SABIN, Lora L
et al
2012

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"The Lufwanyama Neonatal Survival Project ("LUNESP") was a cluster randomized, controlled trial that showed that training traditional birth attendants (TBAs) to perform interventions targeting birth asphyxia, hypothermia, and neonatal sepsis reduced all-cause neonatal mortality by 45%. This companion analysis was undertaken to analyze intervention costs and cost-effectiveness, and factors that might improve cost-effectiveness"
PLoS ONE 7(4)

Global development voices : living with a disability

CUMMINS, Jaz
VILANI, Lisa
December 2011

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This article is part of the Global development voices series. It features discussions from14 people living with disabilities where they highlight the challenges they face in their respective countries in terms of access to education, healthcare and employment, and in relation to their social lives and relationships. Related links are also provided to The World Report on Disability, key data on disability globally and debates about the issues

The challenge of HIV : social stigma or disability?

MCTIGUE, Peter
November 2010

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"The nature of discrimination against people living with HIV and with AIDS ('PLHA') is rooted in deeper stigmatisation than discrimination against other groups. Reasons for this include the association of HIV/AIDS with behaviours that may be considered socially unacceptable by many people. To combat such discrimination, HIV is deemed to be a 'disability' under the Equality Act 2010. Whilst this protection has been welcomed by various activists and policy groups within the field, it will be argued that the decision to classify HIV as a disability is an inadequate response to the unique and multi-faceted discrimination faced by PLHA. To achieve this this article will examine the history of the virus; current epidemiology within the UK; the extent to which HIV accords with traditional models of disability and the definition employed by the Equality Act 2010; and finally, the manner in which HIV is socially constructed and how this has compounded discrimination against PLHA"
5 Web JCLI

Access to HIV/AIDS and sexual violence protection services among women and men with hearing, visual and physical impairments in Battambang and Kampong Cham provinces of Cambodia

MAC-SEING, Muriel
August 2010

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"This article presents the findings of a study on access to HIV prevention and sexual violence protection services among persons with disabilities in Cambodia, based on a gender and cross-impairment analysis. The results show obvious discrepancies between women and men of different impairments in regards to their level of HIV knowledge and risks to sexual violence, in particular among women with disabilities. Furthermore, local services providers revealed their lack of awareness on disability issues and capacity in providing accessible services to them. Ways forward in addressing the rights of women and men with disabilities, as well as gaps in services delivery will have to be addressed in concerted manners at political, societal and community levels"

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