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CitizEMPOWER: The importance of supporting inclusive citizen-generated data initiatives

LEONARD CHESHIRE
October 2020

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These recommendations provide guidance on how to ensure more inclusive and effective implementation of Citizen Generated Data (CGD) initiatives and partnerships that engage communities effectively, and especially young people, persons with disabilities and civil rights defenders.

 

The recommendations focus on:

Inclusive Partnerships and Effective Collaboration including a "Spotlight from Uganda: Using WG questions in the national census"

Data Access and Disaggregation including a "Spotlight from Madagascar: Youth generated data and accountability"

Resourcing and Funding including a "Spotlight from International Non Government Organisations: Using Washington Group Questions (WGQ) in humanitarian and development settings"

Pilot testing of 3D printing technology for transtibial prosthesis in complex contexts (Togo, Madagascar and Syria)

CONICAVE, Jerome
TAN, Daniele
2017

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In January-October 2016, Handicap International carried out a pilot testing of 3D printing technology for transtibial prosthesis in Togo, Madagascar and Syria. The aim of the study was to explore and test how physical rehabilitation services can be more accessible to people living in complex contexts via innovative technologies (such as 3D printing, treatment processes that use Internet technology and tools) and decentralised services by bringing them closer to the patients. This scientific summary provides the context, the objectives, the methodology, the results of the study, and perspectives for the future.

A number of technical appendices are available

RS/05

African Disability Rights Yearbook volume 5 2017

NGWENA, Charles
et al
2017

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This volume of the African Disability Rights Yearbook is divided into four sections presenting articles, country reports, commentaries on regional developments and a book review. The first section A of the journal presents a number of articles on issues affecting people with disabilities in Africa, ranging from education and rights of children with disabilities to albinism. Section B presents country reports on Djibouti and Madagascar. Section C presents two articles: one on mental health and the other on disability rights developments in the East African Community post-2012. Finally a review of E. Barnes’s 2016 book "The minority body: A theory of disability" is given.

 

Rights to water and sanitation for people with disabilities in Madagascar

VEROMAMINIAINA, Edith
RANDRIANARISOA, Ridjanirainy
December 2016

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"This paper illustrates the experiences of the Platform For People with Disabilities (PFPH), working with the support of WaterAid, to highlight and address the gaps in the realisation of the rights of people with disabilities in Madagascar. The focus has been on engaging the government on the National Inclusion Plan for people with disabilities, which includes water, sanitation and hygiene (WASH). This pilot project was designed to increase access to safe WASH for people with disabilities through a human rights based approach. It focuses on strengthening the capacities of rights holders, as well as the capacity and the political will of duty bearers to fulfil their obligations towards the progressive realisation of rights. The project has strengthened the capacity of the PFPH to advocate for their rights and engage with government on all areas of their rights, although an increase in actual WASH provision is limited by the government’s lack of capacity and resources". 

7th RWSN Forum “Water for Everyone”, 7 ème Forum RWSN « L’eau pour tous » 29 Nov - 02 Dec 2016, Abidjan, Côte d’Ivoire

Emergence and structuring of support groups for people living with mental health problems in Togo, Madagascar, Lebanon and South Sudan

CALVOT Thomas,
PEGON Guillaume
February 2016

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"Based on an ethnographic type baseline study conducted on four support groups for people living with mental health problems, evolving in various contexts (prisons, hospitals, refugee camps and mental health centres) in Madagascar, Lebanon, South Sudan and Togo, this study identifies four dynamics contributing to the emergence and the structuring of these groups: survive, get medical care, get organised, advocate." 

Training social facilitators in personalised social support: Trainers’ booklet

LAFRENIERE, Annie
RELANDEAU, Audrey
KIANI, Shirin
December 2015

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This booklet is the gateway for a training kit on personalised social support (PSS). The aim of this training course is to train social facilitators either in the personalised approach only, or in how to carry out a complete PSS process. The aim of this booklet is therefore to impart the methodological and educational components required to use the content of this training course to Handicap International’s (now Humanity and Inclusion) future PSS trainers. It therefore takes another look at the entire content of the PSS training course, explains the educational choices, presents the modules and other teaching tools created, and above all, provides advice/recommendations for future designers and trainers/facilitators on this theme. Throughout this booklet, internet links provide the reader with quick access to the content of training courses and other relevant resources

Mainstreaming disability and ageing in water, sanitation and hygiene sector

JONES, Hazel
September 2013

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This report presents the findings of a desk study that provided an overview of the current state of disability and ageing issues in WASH, from the perspective of the WASH sector. Both disabled and older people were looked at together, because many frail older people, although they may reject the label ‘disabled’, experience impairments that limit their daily activities, which result in them facing similar kinds of barriers to accessing WASH

Out from the shadows : sexual violence against children with disabilities

ELLERY, Francis
LANSDOWNE, Gerison
CSÁKY, Corinna
2011

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This document is an advocacy report on sexual violence against children with disabilities. It is based on evidence generated from a literature review and primary research in four African countries. Adults with disabilities who had been abused as children were interviewed, as well as carers, lawyers, judges, police, social workers, teachers and members of disabled people's organisations. The report concludes with a set of recommendations, developed in consultation with children, young people and professionals working globally on this issue

National response to disability and HIV in Eastern and Southern Africa

HANASS-HANCOCK, Jill
GRANT, Kitty
February 2010

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Although people with disabilities are often at increased risk of exposure to HIV, this policy brief outlines that less than half of the national strategic plans in Eastern and Southern Africa recognise disability as an issue of concern. Recommendations are provided to governments and civil society on how to address the issue effectively. This policy brief would be useful to people interested in HIV policies in Africa

Disability in national strategic plans on HIV and AIDS : a review on the national response to the interrelations of disability and HIV in eastern and southern Africa|Final report

GRANT, Kitty
STRODE, Ann
HANNASS-HANCOCK, Jill
December 2009

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This report examines national AIDS and HIV strategic plans (NSPs) in eastern and southern Africa and includes findings, discussions and best practice examples on the integration of disability throughout the countries. "Generally, the findings of the report show that less than 50% of the countries in Eastern and Southern Africa recognise disability as an issue of concern, or specifically recognise the vulnerability of people with disabilities to HIV and AIDS within their NSPs. Furthermore, it found that even where countries have recognised disability as an issue, there is limited specific guidance within the NSP on HIV-related service provision to meet the needs of people with disabilities. Only one country, South Africa, showed extensive integration of disability into the various focus areas of its NSP." The report concludes with recommendations and provides detailed appendices of national reports for each country surveyed

Survey of the quality of selected antimalarial medicines circulating in Madagascar, Senegal, and Uganda

UNITED STATES PHARMACOPEIA DRUG AND INFORMATION PROGRAM
November 2009

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This report focuses on three of 10 sub-Saharan countries that were covered by a study examining the quality of key antimalarial medicines. A total of 491 samples of anti-malarial medicines (both artemisinin-based combination therapy and sulfadoxine-pyrimethamine products) were collected from the public sector, the regulated private sector and the informal market in these three countries. The study revealed a high failure rate among sampled antimalarials in all three countries, based both on Minilab and full-compendial or quality control laboratory testing

The health worker shortage in Africa : are enough physicians and nurses being trained?

KINFU, Yohannes
et al
February 2009

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"The health worker shortage in sub-Saharan Africa derives from many causes, yet the dynamics of entry into and exit from the health workforce in many of these countries remain poorly understood. This limits the capacity of national governments and their international development partners to design and implement appropriate intervention programmes. This paper provides some of this information through the first systematic estimates of health worker inflow and outflow in selected sub-Saharan African countries"

Shadow report : Review of country coordinating mechanism proposals with SRH-HIV/AIDS integration submitted to the Global Fund round 7

DALY, M. Felicity
SCHECHTMAN, Lisa
August 2007

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This report considers efforts to integrate sexual and reproductive health (SRH) in the HIV & AIDS components of country coordinated proposals submitted in July 2007 by Country Coordinating Mechanisms (CCM) for the 7th Round of funding by the Global Fund to Fight AIDS, Tuberculosis and Malaria (Global Fund).

Realising rights for children : good practice. Eastern and Southern Africa

AFRICAN CHILD POLICY FORUM
2007

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"This report looks at different practices across six countries in East and Southern Africa. The countries represent different legal systems, including one country undergoing post-conflict reconstruction, and highlight good practices, their impacts, key actors and lessons learnt. It aims to offer models for comparison and possible replication to other countries in the region and beyond." Issues include: child law reform; making primary education compulsory and freely available to all; promoting adoption and alternative care; the need for separate courts for children; diversion from the criminal justice system; and the judicial role in the implementation of children's rights. However, while it examines some examples of good practice in the region, it is not intended as a comprehensive or exhaustive review of practices in the region. The report is designed for use by governments, non-governmental organisations and other interested actors in the field of children’s rights to help inform implementation of the CRC in their own countries"

Mapping malaria risk in Africa

MAPPING MALARIA RISK IN AFRICA / ATLAS DU RISKE DE LA MALARIA EN AFRIQUE (MARA/ARMA)
December 2004

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This site presents maps of malaria risk and endemicity (the presence of malaria) in Africa, drawing on published and unpublished data, and through spatial modelling of malaria distribution, seasonality and endemicity. Many factors, especially endemicity, affect the choice of control methods. In the absence of such data it is impossible to rationalize the allocation of limited resources for malaria control. This site presents an opportunity to rethink endemicity and how we may map malaria risk in order to better support planning and programming of malaria control

Disability and rehabilitation status : review of disability issues and rehabilitation services in 29 African countries

GIANNELLLI, Massimo
DEEPAK, Sunil
Eds
December 2004

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This report provides information related to disability issues and rehabilitation services, provided by 29 countries of Africa, and includes demographics, the presence of national policies and NGOs. The report is divided into the following three parts: a global review of information, the country profiles and a summary table of the information provided in individual countries. This report is useful for people interested in disability and rehabilitation services in Africa

Community-based strategies for breastfeeding promotion and support in developing countries

WORLD HEALTH ORGANIZATION (WHO)
2003

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This review examines the role of communities and community-based resource persons in providing support for appropriate feeding practices and access to skilled support when mothers need it. This document is based on a literature review and an analysis of three projects in Madagascar, Honduras and India. It assesses the impact of interventions, the mechanisms through which behaviours can be changed, and the factors that are necessary to maximise and sustain the benefits of interventions

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