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Estimating assistive product need in Cameroon and India: results of population‐based surveys and comparison of self‐report and clinical impairment assessment approaches

BOGGS, Dorothy
KUPER, Hannah
MACTAGGART, Islay
MURTHY, GVS
OYE, Joseph
POLACK, Sarah
November 2020

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To estimate population need and coverage for distance glasses, hearing aids and wheelchairs in India and Cameroon, and to explore the relationship between assistive product (AP) need measured through self‐report and clinical impairment assessment.

Population‐based surveys of approximately 4000 people each were conducted in Mahabubnagar district, India and Fundong district, Cameroon. Participants underwent standardised vision, hearing and musculoskeletal impairment assessment to assess need for distance glasses, hearing aids, wheelchairs. Participants with moderate or worse impairment and/or self‐reported difficulties in functioning were also asked about their self‐reported AP need.

 

https://doi.org/10.1111/tmi.13523

The role of the extended family in women's risk of intimate partner violence in Jordan

Nora Groce
Jay Silverman
Manal Shahrouri
Cari Clark
2019

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The extended family as a potential cause of and protection against intimate partner violence (IPV) remains relatively unstudied. This mixed-methods study used focus group discussions (FGDs) and a clinic-based survey to investigate several family-based risk and protective factors associated with women's risk of IPV in Jordan. Seventeen FGDs (total number of participants = 105) were conducted with women in Amman. Each transcript was coded for categories using open coding methodology and mapping. Relevant categories and subcategories were family support, family interference, family abuse, exposure to violence in childhood, and place of residence. For the survey, systematic probability proportionate to size methodology was used to select a sample of 517 literate, ever married, women from seven reproductive health clinics located throughout the country (response rate = ≤70%); due to missing data, the analytic sample was restricted to 418 women. Measures assessed the categories mentioned above. Bivariate and multivariate logistic regression models were constructed to examine the relationship between IPV and the main predictors of interest (residence, family interference, family violence, exposure to violence as a child, and family support). The combined results of the FGDs and the survey demonstrated that the respondent's husband's exposure to violence in childhood and violence perpetrated by other family members were risk factors for IPV. Family interference was also significantly related to IPV but only when the respondent identified the interference as harmful to her relationship. Residence with the respondent's in-laws demonstrated mixed effects. A supportive family was protective against IPV, although the FGDs revealed that families were not always an effective source of assistance. Findings demonstrate the continued role of the wife's and husband's kin in women's risk of IPV in Jordan, highlighting the importance of a broader view of the context of IPV.

Developing country-specific wheelchair service provision strategic plans for Romania and the Philippines

GOWRAN, Rosemary
et al
March 2019

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The process used to support the development of wheelchair service strategic plans in Romania and the Philippines is described. The paper considers the influences, meaning, challenges and developments when producing strategic priorities within two different contexts.

 

Journal of Disability and Rehabilitation: Assistive Technology, Volume 14, 2019 - Issue 6

Access to social protection among people with disabilities: Evidence from Viet Nam

BANKS, Lena
et al
January 2019

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Although people with disabilities are frequently targeted as key beneficiaries of social protection, little is known on their access to existing programmes. This study uses mixed methods to explore participation in disability‐targeted and non‐targeted social protection programmes in Viet Nam, particularly in the district of Cam Le.

 

International Social Security Review, Volume72, Issue1, JANUARY/MARCH 2019, pages 59-82

 

https://doi.org/10.1111/issr.12195

World Health Organization global disability action plan: The Mongolian perspective

KHAN, Fary
et al
April 2018

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The aim of this literature review and research was to provide an update on disability and rehabilitation in Mongolia, and to identify potential barriers and facilitators for implementation of the World Health Organization (WHO) Global Disability Action Plan (GDAP). A 4-member rehabilitation team from the Royal Melbourne Hospital conducted an intensive 6-day workshop at the Mongolian National University of Medical Sciences, for local healthcare professionals (n=77) from medical rehabilitation facilities (urban/rural, public/private) and non-governmental organizations. A modified Delphi method (interactive sessions, consensus agreement) identified challenges for rehabilitation service provision and disability education and attitudes, using GDAP objectives

 

Journal of Rehabilitation Medicine, Volume 50, Number 4, April 2018, pp. 358-366(9)

https://doi.org/10.2340/16501977-2207
 

Wheelchair service provision education and training in low and lower middle income countries: a scoping review

McSweeney, Elizabeth
GOWRAN, Rosemary Joan
November 2017

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This review considers education and training available to personnel who provide wheelchair and seating assistive technology to meet personal posture and mobility requirements within low and lower middle income countries (LLMIC), to ascertain where gaps in knowledge exist and identify human resource education priorities. A scoping review, mapping out existing scientific and grey literature within the field between 1993 and 2017 was conducted.

https://doi.org/10.1080/17483107.2017.1392621

Journal of Disability and Rehabilitation: Assistive Technology, Volume 14, 2019 - Issue 1

Disability and social protection programmes in low- and middle-income countries: a systematic review

BANKS, Lena Morgon
MEAKLE, Rachel
MACTAGGART, Islay
et al
2016

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“This paper systematically reviews the evidence on whether persons with disabilities in low- and middle-income countries are adequately included in social protection programmes, and assesses the financial and non-financial impacts of participation. Overall, we found that access to social protection appears to fall far below need. Benefits from participation are mostly limited to maintaining minimum living standards and do not appear to fulfil the potential of long-term individual and societal social and economic development. However, the most notable finding of this review is that there is a dearth of high-quality, robust evidence in this area, indicating a need for further research.”

Disability and HIV : a systematic review and a meta-analysis of the risk of HIV infection among adults with disabilities in Sub-Saharan Africa

DE BEAUDRAP, Pierre
MAC-SEING, Muriel
PASQUIER, Estelle
July 2014

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"More than one billion people worldwide are estimated to be living with a disability. A significant proportion of them lives in Sub-Saharan Africa where they are reported to be at increased risk of HIV. However, quantitative evidence on this remains scarce. A systematic review and a meta-analysis of the risk of HIV infection among people with disabilities living in Sub-Saharan Africa were undertaken. We searched all published or unpublished studies and national surveys reporting HIV prevalence among adults with disabilities living in Sub-Saharan Africa between 2000 and 2013. The risk ratio (RR) of HIV infection in people with disabilities versus people without disabilities was estimated through a random-effects meta-analysis. Of the 12,252 references screened, 13 studies were selected. HIV prevalence varied widely across studies from 1.1% to 29%. Pooled RRs of HIV infection in people with disabilities compared to the general population were 1.31 (1.02–1.69) overall; 1.16 (0.71–1.87) among people with mental illness or intellectual disabilities and 1.07 (0.58–1.95) among people with hearing disabilities. This meta-analysis provides evidence that people with disabilities do not have a lower risk of HIV when compared to the general population, and that women with disabilities are especially affected. A clear increasing gradient in the risk of HIV according to gender and disability status was also observed. The important heterogeneity across studies and their varying quality warrant a closer look at the intersection between disability and HIV. Additional studies with more systematic approaches and with higher-quality methodologies are required to further address this knowledge gap"

 

AIDS Care : Psychological and Socio-medical Aspects of HIV/AIDS, Volume 26, Issue 12

DOI: 10.1080/09540121.2014.936820

 

Predictors of voluntary HIV counselling and testing services utilization among people with disabilities in Addis Ababa, Ethiopia

ADEREMI, Toyin Janet
et al
June 2014

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“The study investigated HIV testing prevalence and factors associated with the utilization of voluntary HIV counselling and testing (VCT) services among individuals with disabilities in Addis Ababa. The analysis was based on a survey of 209 men and 203 women with disabilities, aged 15–49, who had ever heard about HIV and AIDS in four sub-cities in Addis Ababa. HIV testing prevalence was 53.2%, with no significant difference between males and females. Comprehensive HIV knowledge, living with spouse, and religious affiliations positively predicted utilization of VCT services among participants. Living with both parents and having physical or mental/intellectual disabilities were negative predictors of VCT services utilization. More research on the predictors of utilization of VCT services by gender and urban/rural divides are needed among people with disabilities”

AIDS Care: Psychological and Socio-medical Aspects of AIDS/HIV, Vol 26, Issue 10

Children with disabilities : a critical appraisal

SABATELLO, Maya
2013

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This essay contemplates the rights of children with disabilities under international law. It anal­yses the philosophical and practical reasons for the failure of the Convention on the Rights of the Child to protect the rights of children with disabilities, and looks at the remedial measures adopted under the Convention on the Rights of Persons with Disabilities (CRPD). The argument advanced is that, especially when children’s perspectives are considered, assistive technologies are at the heart of national and international efforts to advance the rights of children with disabilities, most importantly, a right to inclusion. The author considers the challenges ahead and draw conclusions on the future of the rights of children with disabilities

International Journal of Children’s Rights, 21 

CRPD advocacy by the world network of users and survivors of psychiatry : the emergence of a user/survivor perspective in human rights

MINKOVITZ, Tina
August 2012

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"Human rights law evolves through processes of social eruption, in which social movements agitate for the recognition of injustices as legal wrongs, and in which sectors of the population that have been oppressed rise up to assert themselves as protagonists who change the landscape of law along with the social, economic and cultural relationships in which law is grounded. The involvement of users and survivors of psychiatry in the CRPD drafting and negotiations, as an integral part of the community of people with disabilities, set the stage for a dramatic (r)evolution in human rights law. This paper explores the genesis of key provisions in the CRPD on legal capacity, liberty, and freedom from forced interventions, and their early interpretation and application"

Intergenerational poverty and disability : the implications of inheritance policy and practice on persons with disabilities in the developing world

GROCE, Nora Ellen
LONDON, Jillian
STEIN, Michael Ashley
2012

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"In this paper, we examine the existing data and discuss the implications of current inheritance policies and practices that affect the lives of persons with disabilities and their families, arguing that when persons with disabilities are routinely denied equal rights to inherit wealth or property, this denial has a profound impact on their ability to provide for themselves and their families. The stigma, prejudice and social isolation faced by persons with disabilities and the widespread lack of education, social support networks, and the right to appeal injustices at the family, community or national level, further limits the ability of persons with disability to contest inequities encountered in inheritance policies and practices"
Working paper series No 17

Infertility : why can’t we classify this inability as disability?

KHETARPAL, Abha
SINGH, Satendra
2012

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"Disability is a complex phenomenon. It reflects an interaction between features of a person's body and features of the society in which he or she lives. International Classification of Functioning, Disability and Health (ICF), lays stress on the functional as well as the structural problem of a person. All the definitions of disability also include the disorders of the reproductive and endocrine system. So infertility and impotency should also be included in the category of disability. It affects the participation in areas of life and can have a disabling affect on an individual"
Australian Medical Journal, Vol 5, No 6

Paying stories of impairment - parasitic or ethical?|Reflections undertaking anthropological research in post-conflict Sierra Leone

BERGHS, Maria
December 2011

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This article presents ethnographic research in Sierra Leone with people with disabilities. The author explores challenges faced with the research and the importance of engaging in more reciprocal and collaborative communal research using a social model of disability framework to try and access discourses
Journal of Disability Research, Vol 3, No 4

Sexual violence victimization against men with disabilities

MITRA, Monika
MOURADIAN, Vera E
DIAMOND, Marci
October 2011

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This article presents information supporting that men with disabilities are at a heightened risk for lifetime and current sexual violence. The article documents the prevalence of lifetime and past-year sexual violence victimization among a representative sample of men with disabilities in Massachusetts and compares its prevalence among men with disabilities to that of men without disabilities and women with and without disabilities
American Journal of Preventive Medicine, Vol 41, No 5

Preparedness and warning systems for populations with special needs : ensuring everyone gets the message (and knows what to do)

SULLIVAN, Helen T
HÄKKINEN, Markku T
May 2011

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This paper discusses the use of information and communications technologies systems in the use of disaster management situations such as those providing early warnings, and how they benefit persons with disabilities (and the general population).  An ongoing project in Japan provided a case study in which a disaster preparedness information system is meeting the need of persons with disabilities


Geotechnical and Geological Engineering Journal, Volume 29, Issue 3

Disability, displacement and public health : a vision for Haiti

WOLBRING, Gregor
2011

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This article "highlights the situation of people with disabilities displaced by natural disasters, with a particular focus on Haiti which on January 12, 2010 was hit by a catastrophic earthquake of magnitude seven on the Richter scale. The article explores the opportunity for developing a series of best practices with regards to displaced people with disabilities in Haiti - practices that might be applicable to other natural disasters in the future"
Canadian Journal of Public Health, Vol 102, No 2

Lessons from the evolution of a CBR programme for people affected by leprosy in Northern Nigeria

EBENSO, Bassey
et al
December 2010

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"This paper reviews the 13-year evolution of the social economic activities in Northern Nigeria from a welfare-oriented to a community-centred programme for people affected by leprosy...Findings revealed that the transformation among other things, demanded formulation of new programme policies and guidelines; and staff training in CBR principles and practice. Findings also showed that adopting CBR principles and community development projects can stimulate improvements in living conditions,self-esteem and acceptance of people affected by leprosy into the community"
Leprosy Review Journal, Vol 81

Women’s Experience of Group Prenatal Care

Gina Novick
Lois S. Sadler
Sally S. Cohen
Holly Powell Kennedy
Kathleen A. Knafl
Nora Groce
2010

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Group prenatal care (GPNC) is an innovative alternative to individual prenatal care. In this longitudinal study we used ethnographic methods to explore African American and Hispanic women’s experiences of receiving GPNC in two urban clinics. Methods included individual, in-depth, semistructured interviews of women and group leaders in GPNC, participant observation of GPNC sessions, and medical record review. GPNC offered positive experiences and met many of women’s expressed preferences regarding prenatal care. Six themes were identified, which represented separate aspects of women’s experiences: investment, collaborative venture, a social gathering, relationships with boundaries, learning in the group, and changing self. Taken together, the themes conveyed the overall experience of GPNC. Women were especially enthusiastic about learning in groups, about their relationships with group leaders, and about having their pregnancy-related changes and fears normalized; however, there were also important boundaries on relationships between participants, and some women wished for greater privacy during physical examinations.

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